{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T05:16:54Z","timestamp":1778908614455,"version":"3.51.4"},"reference-count":62,"publisher":"BMJ","issue":"5","license":[{"start":{"date-parts":[[2021,5,19]],"date-time":"2021-05-19T00:00:00Z","timestamp":1621382400000},"content-version":"unspecified","delay-in-days":18,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000266","name":"Engineering and Physical Sciences Research Council","doi-asserted-by":"publisher","award":["EP\/R033900\/1"],"award-info":[{"award-number":["EP\/R033900\/1"]}],"id":[{"id":"10.13039\/501100000266","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2021,4,16]]},"published-print":{"date-parts":[[2021,5]]},"abstract":"<jats:sec><jats:title>Objectives<\/jats:title><jats:p>Patient-generated data (PGData) are an emergent research area and may improve HIV care. The objectives of this scoping review were to synthesise, evaluate and make recommendations based on the available literature regarding PGData use in HIV care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>Scoping review.<\/jats:p><\/jats:sec><jats:sec><jats:title>Data sources<\/jats:title><jats:p>Embase, Medline, CINAHL Plus, Web of Science, Scopus, PsycINFO and Emcare databases.<\/jats:p><\/jats:sec><jats:sec><jats:title>Eligibility criteria<\/jats:title><jats:p>Studies involving PGData use within HIV care for people living with HIV and\/or healthcare professionals (HCPs) published before February 2021.<\/jats:p><\/jats:sec><jats:sec><jats:title>Data extraction and synthesis<\/jats:title><jats:p>Data were extracted using a table and the Mixed Methods Appraisal Tool was used to assess empirical rigour. We used thematic analysis to evaluate content.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>11 articles met the eligibility criteria. Studies were observational, predominantly concerned hypothetical or novel digital platforms, mainly conducted in high-income settings, and had small sample sizes (range=10\u2013160). There were multiple definitions of PGData. In the majority of studies (n=9), participants were people living with HIV, with a few studies including HCPs, informatics specialists or mixed participant groups. Participants living with HIV were aged 23\u201378 years, mostly men, of diverse ethnicities, and had low educational, health literacy and income levels.<\/jats:p><jats:p>We identified four key themes: (1) Perceptions of PGData and associated digital platforms; (2) Opportunities; (3) Anticipated barriers and (4) Potential impact on patient\u2013HCP relationships.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Use of PGData within HIV care warrants further study, especially with regard to digital inequalities, data privacy and security. There is a need for longitudinal data on use within HIV in a variety of settings with a broad range of users, including impact on clinical outcomes. This will allow greater understanding of the role of PGData use in improving the health and well-being of people living with HIV, which is increasingly pertinent as digital healthcare becomes more widespread as a result of COVID-19.<\/jats:p><\/jats:sec>","DOI":"10.1136\/bmjopen-2020-046393","type":"journal-article","created":{"date-parts":[[2021,5,19]],"date-time":"2021-05-19T18:52:28Z","timestamp":1621450348000},"page":"e046393","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":12,"title":["Patient-generated data in the management of HIV: a scoping review"],"prefix":"10.1136","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5711-0716","authenticated-orcid":false,"given":"Clara","family":"Hewitt","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6310-6836","authenticated-orcid":false,"given":"Karen C","family":"Lloyd","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9802-7727","authenticated-orcid":false,"given":"Shema","family":"Tariq","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4752-5376","authenticated-orcid":false,"given":"Abigail","family":"Durrant","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4002-6136","authenticated-orcid":false,"given":"Caroline","family":"Claisse","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2862-183X","authenticated-orcid":false,"given":"Bakita","family":"Kasadha","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5696-0260","authenticated-orcid":false,"given":"Jo","family":"Gibbs","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2021,5,19]]},"reference":[{"key":"2024102810020645000_11.5.e046393.1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(13)61809-7"},{"key":"2024102810020645000_11.5.e046393.2","doi-asserted-by":"crossref","first-page":"294","DOI":"10.1007\/s13142-015-0317-0","article-title":"Computer-based HIV adherence promotion interventions: a systematic review","volume":"5","author":"Claborn","year":"2015","journal-title":"Transl Behav Med"},{"key":"2024102810020645000_11.5.e046393.3","doi-asserted-by":"crossref","first-page":"302","DOI":"10.1097\/COH.0000000000000072","article-title":"HIV and aging: emerging research issues","volume":"9","author":"Hunt","year":"2014","journal-title":"Curr Opin HIV AIDS"},{"key":"2024102810020645000_11.5.e046393.4","doi-asserted-by":"crossref","DOI":"10.1001\/jamanetworkopen.2020.7954","article-title":"Comparison of overall and Comorbidity-Free life expectancy between insured adults with and without HIV infection, 2000-2016","volume":"3","author":"Marcus","year":"2020","journal-title":"JAMA Netw Open"},{"key":"2024102810020645000_11.5.e046393.5","doi-asserted-by":"crossref","first-page":"268","DOI":"10.1093\/tbm\/ibx025","article-title":"Improving adoption and acceptability of digital health interventions for HIV disease management: a qualitative study","volume":"8","author":"Claborn","year":"2018","journal-title":"Transl Behav Med"},{"key":"2024102810020645000_11.5.e046393.6","doi-asserted-by":"crossref","first-page":"119","DOI":"10.2174\/1874613601711010119","article-title":"mHealth interventions to support self-management in HIV: a systematic review","volume":"11","author":"Cooper","year":"2017","journal-title":"Open AIDS J"},{"key":"2024102810020645000_11.5.e046393.7","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2017-021245"},{"key":"2024102810020645000_11.5.e046393.8","doi-asserted-by":"crossref","DOI":"10.2196\/mhealth.9620","article-title":"Managing patient-generated health data through mobile personal health records: analysis of usage data","volume":"6","author":"Park","year":"2018","journal-title":"JMIR Mhealth Uhealth"},{"key":"2024102810020645000_11.5.e046393.9","unstructured":"Shapiro M , Johnston D , Wald J , et al . 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