{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T05:09:45Z","timestamp":1790744985720,"version":"4.1.0"},"reference-count":34,"publisher":"BMJ","issue":"7","license":[{"start":{"date-parts":[[2021,7,29]],"date-time":"2021-07-29T00:00:00Z","timestamp":1627516800000},"content-version":"unspecified","delay-in-days":28,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100020955","name":"GlaxoSmithKline Biologicals SA.","doi-asserted-by":"crossref","award":["Not applicable."],"award-info":[{"award-number":["Not applicable."]}],"id":[{"id":"10.13039\/100020955","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2021,6,29]]},"published-print":{"date-parts":[[2021,7]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To capture the subjective experience of close family ascendants of acute bacterial meningitis survivors and to explore how they give meaning to this specific experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A qualitative study of indepth interviews using interpretative phenomenological analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Primary outcome<\/jats:title>\n                    <jats:p>Main meaning-making processes of participants\u2019 experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Settings<\/jats:title>\n                    <jats:p>Participants were recruited through two associations of people affected by meningitis and their family ascendants.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Convenience sampling of 11 women whose children or grandchildren were between 0.2 and 20 years old at the time of their meningitis diagnosis (M=4.06, SD=7.3). On average, 9.39 (SD=5.4) years had passed between the onset of illness and the interview.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Six superordinate themes (meningitis disease; healthcare services and professionals; knowledge\/ignorance; repercussions of the meningitis experience: \u2018life afterwards\u2019; sick child attitudes\/behaviour; and sibling attitudes\/behaviour) and two main meaning-making processes in relation to participants\u2019 experience of meningitis were identified: (1) the sick child becoming a \u2018hero\u2019: comparison with other children; and (2) engaging action\/attitude: finding the \u2018positive\u2019 of the traumatic experience and engaging action to improve the care system. These two processes underpin the psychological adjustment to meningitis and its consequences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study provides a unique insight into close family members\u2019 first-hand experience with acute bacterial meningitis. Findings highlighted factors characterising the disease experience, the psychological adjustment of meningitis survivors\u2019 families and their meaning-making processes. These findings are important for research and clinical practice, demonstrating the multidimensional impact of the disease on family ascendants, their need for professional psychological support and the importance of direct involvement of parents in identifying key aspects of care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2020-047465","type":"journal-article","created":{"date-parts":[[2021,7,20]],"date-time":"2021-07-20T12:08:19Z","timestamp":1626782899000},"page":"e047465","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":7,"title":["Familial experience of acute bacterial meningitis in children: a transversal qualitative study using interpretative phenomenological analysis"],"prefix":"10.1136","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6985-6662","authenticated-orcid":false,"given":"Elisabetta","family":"Scanferla","sequence":"first","affiliation":[{"name":"CMME (Clinique des Maladies Mentales et de l'Enc\u00e9phale), GHU Paris psychiatrie et neurosciences, Paris, France"},{"name":"ED 450, Universit\u00e9 de Paris, Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Philip","family":"Gorwood","sequence":"additional","affiliation":[{"name":"CMME (Clinique des Maladies Mentales et de l'Enc\u00e9phale), GHU Paris psychiatrie et neurosciences, Paris, France"},{"name":"U1266, INSERM, Institute of Psychiatry and Neuroscience of Paris (IPNP), Universit\u00e9 de Paris, Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L\u00e9onor","family":"Fasse","sequence":"additional","affiliation":[{"name":"LPPS, EA4057, Universit\u00e9 de Paris, Paris, France"},{"name":"D\u00e9partement de Soins de Support, Gustave Roussy Institute, Villejuif, France"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2021,7,20]]},"reference":[{"key":"2025121222432856000_11.7.e047465.1","unstructured":"Center for Disease Control and Prevention (CDSC) . 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