{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T06:03:23Z","timestamp":1793340203211,"version":"4.5.0"},"reference-count":37,"publisher":"BMJ","issue":"9","license":[{"start":{"date-parts":[[2021,9,9]],"date-time":"2021-09-09T00:00:00Z","timestamp":1631145600000},"content-version":"unspecified","delay-in-days":8,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Policy Research Programme, Department of Health and Social Care","award":["No. 108\/0001"],"award-info":[{"award-number":["No. 108\/0001"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2021,8,13]]},"published-print":{"date-parts":[[2021,9]]},"abstract":"<jats:sec>\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>To explore the perceptions and experience of women whose baby died in the neonatal period about their care in the perinatal period, on delivery suite, in the neonatal unit and afterwards, expressed in their own words.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Secondary analysis of the Listening to Parents study, using thematic analysis based on the open text responses from a postal survey of parents whose baby died in the neonatal period in England. Women were asked about care during the pregnancy, labour and birth, around the time the baby died and about neonatal care. Women whose pregnancy was terminated for fetal abnormality were excluded from this analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Completed questionnaires were received from 249 mothers of whom most (78%) responded with open text. Overarching themes identified were \u2018the importance of proximity\u2019, \u2018recognition of role and identity as a parent\u2019 and \u2018the experience of care\u2019 and subthemes included \u2018hours and moments\u2019, \u2018barriers to contact\u2019, \u2018 being able to parent, even for a short time\u2019, \u2018missed opportunities\u2019, \u2018being heard\u2019 and \u2018sensitive and responsive care\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The findings identify what is most important for mothers in experiencing the life and death of a baby as a newborn. Physical contact with the baby was paramount, as was being treated as a mother and a parent and being able to function as such. The way in which healthcare staff behaved and how their babies were cared for was critical to how mothers felt supported and enabled at this time. If all women whose babies die in the neonatal period after birth are to receive the responsive care they need, greater understanding of the primary need for closeness and proximity, for active recognition of their parental role and staff awareness of the limited time window available is essential.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2021-050832","type":"journal-article","created":{"date-parts":[[2021,9,13]],"date-time":"2021-09-13T11:37:55Z","timestamp":1631533075000},"page":"e050832","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":12,"title":["\u2018This is time we\u2019ll never get back\u2019: a qualitative study of mothers\u2019 experiences of care associated with neonatal death"],"prefix":"10.1136","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5506-3330","authenticated-orcid":false,"given":"Maggie","family":"Redshaw","sequence":"first","affiliation":[{"name":"Policy Research Unit in Maternal Health and Care, National Perinatal Epidemiology Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK"},{"name":"Nuffield Department of Population Health, University of Oxford, Oxford, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Henderson","sequence":"additional","affiliation":[{"name":"Nuffield Department of Population Health, University of Oxford, Oxford, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charlotte","family":"Bevan","sequence":"additional","affiliation":[{"name":"Sands, Stillbirth and Neonatal Death Society, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2021,9,13]]},"reference":[{"key":"2025120619253384000_11.9.e050832.1","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1111\/1471-0528.13009","article-title":"Meeting the needs of parents after a stillbirth or neonatal death","volume":"121 Suppl 4","author":"Flenady","year":"2014","journal-title":"BJOG"},{"key":"2025120619253384000_11.9.e050832.2","article-title":"Support for mothers, fathers and families after perinatal death","volume":"1","author":"Flenady","year":"2008","journal-title":"Cochrane Database Syst Rev"},{"key":"2025120619253384000_11.9.e050832.3","doi-asserted-by":"publisher","DOI":"10.1186\/s12884-016-0800-8"},{"key":"2025120619253384000_11.9.e050832.4","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(96)00039-1"},{"key":"2025120619253384000_11.9.e050832.5","doi-asserted-by":"publisher","DOI":"10.1186\/s12884-016-0806-2"},{"key":"2025120619253384000_11.9.e050832.6","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1186\/s40359-020-0385-x","article-title":"What bereaved parents want health care providers to know when their babies are stillborn: a community-based participatory study","volume":"8","author":"Farrales","year":"2020","journal-title":"BMC Psychol"},{"key":"2025120619253384000_11.9.e050832.7","doi-asserted-by":"publisher","DOI":"10.1097\/01.AOG.0000259317.55726.df"},{"key":"2025120619253384000_11.9.e050832.8","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(15)00836-3"},{"key":"2025120619253384000_11.9.e050832.9","doi-asserted-by":"crossref","first-page":"180","DOI":"10.1037\/0735-7028.36.2.180","article-title":"The scope and impact of perinatal loss: current status and future directions","volume":"36","author":"Bennett","year":"2005","journal-title":"Prof Psychol"},{"key":"2025120619253384000_11.9.e050832.10","doi-asserted-by":"publisher","DOI":"10.1046\/j.1523-536X.2002.00187.x"},{"key":"2025120619253384000_11.9.e050832.11","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2012-002487","article-title":"Parents' first moments with their very preterm babies: a qualitative study","volume":"3","author":"Arnold","year":"2013","journal-title":"BMJ Open"},{"key":"2025120619253384000_11.9.e050832.12","unstructured":"Redshaw M , Harris A , Ingram J . 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