{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T10:16:18Z","timestamp":1777976178331,"version":"3.51.4"},"reference-count":52,"publisher":"BMJ","issue":"2","license":[{"start":{"date-parts":[[2022,2,24]],"date-time":"2022-02-24T00:00:00Z","timestamp":1645660800000},"content-version":"unspecified","delay-in-days":23,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"National Ankylosing Spondylitis Society","award":["WAR1"],"award-info":[{"award-number":["WAR1"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2022,2,4]]},"published-print":{"date-parts":[[2022,2]]},"abstract":"<jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>To explore patients\u2019 lived experiences of axial spondyloarthritis (axSpA) and fatigue.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Design<\/jats:title>\n                  <jats:p>Interpretative phenomenological analysis (lived experience) was used as the study design. Analysis drew together codes with similar meaning to create superordinate and subordinate themes.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Setting<\/jats:title>\n                  <jats:p>Rheumatology departments in three National Health Service Foundation Trusts in the north, midlands and south of England.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Participants<\/jats:title>\n                  <jats:p>A purposive sample of seventeen axSpA patients were recruited. The age range was 22\u201372 years (median age 46), nine were male and eight, female.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>A central concept of achieving balance was identified as the active process of integrating axSpA symptoms and fatigue into daily life, working with and not against their condition to lead a fulfilled life. This was conveyed through three superordinate themes: struggling to find energy, engaging in everyday life and persevering through difficulties. Struggling to find energy was the challenge of retaining enough stamina to do things in daily life. Engaging in everyday life highlighted dedication to being active and organised, learning through experience and acceptance of a changed way of being. Persevering through difficulties identified the physical and emotional effort required to keep moving forward and the importance of feeling supported.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>Achieving balance through finding energy, engaging and persevering everyday was fundamental to having the best possible life. The experience of energy emerged as a distinct but related component of fatigue. However, while energy could be maintained or replenished, fatigue was more difficult to overcome and required greater effort. Energy may be a useful indicator of an individual\u2019s current state and ability to sustain activities that supports their well-being, such as exercise. Awareness of the elements of achieving balance in axSpA may enable patients and clinicians to work together to tailor treatments to individual patient need.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1136\/bmjopen-2021-053958","type":"journal-article","created":{"date-parts":[[2022,2,25]],"date-time":"2022-02-25T11:40:17Z","timestamp":1645789217000},"page":"e053958","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":12,"title":["Qualitative interview study exploring the patient experience of living with axial spondyloarthritis and fatigue: difficult, demanding and draining"],"prefix":"10.1136","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1071-7529","authenticated-orcid":false,"given":"Nathan Ashley","family":"Pearson","sequence":"first","affiliation":[{"name":"Warwick Research in Nursing, University of Warwick, Coventry, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3973-360X","authenticated-orcid":false,"given":"Elizabeth","family":"Tutton","sequence":"additional","affiliation":[{"name":"Warwick Research in Nursing, University of Warwick, Coventry, UK"},{"name":"Kadoorie, Oxford Trauma and Emergency Care, Nuffield Department Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J","family":"Martindale","sequence":"additional","affiliation":[{"name":"Faculty of Health and Social Care, Edge Hill University, Ormskirk, UK"},{"name":"Rheumatology, Wrightington Wigan and Leigh NHS Foundation Trust, Wigan, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"George","family":"Strickland","sequence":"additional","affiliation":[{"name":"Patient Research Partners, Rheumatology, Wrightington Wigan and Leigh NHS Foundation Trust, Wigan, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jean","family":"Thompson","sequence":"additional","affiliation":[{"name":"Patient Research Partners, Rheumatology, Wrightington Wigan and Leigh NHS Foundation Trust, Wigan, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jonathan C","family":"Packham","sequence":"additional","affiliation":[{"name":"Haywood Academic Rheumatology Centre, Midlands Partnership NHS Foundation Trust, Newcastle-under-Lyme, UK"},{"name":"Division of Epidemiology and Public Health, University of Nottingham, Nottingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul","family":"Creamer","sequence":"additional","affiliation":[{"name":"Rheumatology, North Bristol NHS Trust, Westbury on Trym, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kirstie","family":"Haywood","sequence":"additional","affiliation":[{"name":"Warwick Research in Nursing, University of Warwick, Coventry, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2022,2,25]]},"reference":[{"key":"2025101813174502000_12.2.e053958.1","doi-asserted-by":"publisher","DOI":"10.1177\/1759720X12468658"},{"key":"2025101813174502000_12.2.e053958.2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(16)31591-4"},{"key":"2025101813174502000_12.2.e053958.3","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1016\/j.mpmed.2014.02.006","article-title":"Axial spondyloarthritis","volume":"42","author":"Raine","year":"2014","journal-title":"Medicine"},{"key":"2025101813174502000_12.2.e053958.4","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2008.104117"},{"key":"2025101813174502000_12.2.e053958.5","unstructured":"NASS . 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