{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T16:12:42Z","timestamp":1786983162046,"version":"build-2736575974"},"reference-count":44,"publisher":"BMJ","issue":"6","license":[{"start":{"date-parts":[[2023,6,7]],"date-time":"2023-06-07T00:00:00Z","timestamp":1686096000000},"content-version":"unspecified","delay-in-days":6,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"National Institute for Health and Care Research Applied Research Collaboration West","award":["N\/A"],"award-info":[{"award-number":["N\/A"]}]},{"DOI":"10.13039\/501100002001","name":"Health Services and Delivery Research Programme","doi-asserted-by":"publisher","award":["NIHR HSDR grant (Funding stream REF NIHR 131597)"],"award-info":[{"award-number":["NIHR HSDR grant (Funding stream REF NIHR 131597)"]}],"id":[{"id":"10.13039\/501100002001","id-type":"DOI","asserted-by":"publisher"}]},{"name":"NIHR Health and Social Care Delivery HS&DR","award":["REF NIHR 131597"],"award-info":[{"award-number":["REF NIHR 131597"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2023,5,21]]},"published-print":{"date-parts":[[2023,6]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Worldwide, hearing loss is a significant public health issue and one of the most common chronic health conditions experienced by older adults. Hearing loss is associated with communication difficulties, social withdrawal, isolation and lower quality of life. Although hearing aid technology has improved significantly, the workload of managing hearing aids has increased. The aim of this qualitative study is to develop a novel theory of people\u2019s lived experience of hearing loss across the lifespan.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Eligible participants will be young people and adults aged 16 years and above who have a hearing loss and carers\/family members of people with a hearing loss. This study will use individual, in-depth face-to-face or online interviews. With participants\u2019 permission, interviews will be audio-recorded and transcribed verbatim. A grounded theory approach to concurrent data gathering and analysis will develop grouped codes and categories and link these to provide a novel theory to describe the experience of hearing loss.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ethics and dissemination<\/jats:title>\n                    <jats:p>The study was approved by the West of Scotland Research Ethics Service (approval date: 6 May 2022 ref: 22\/WS\/0057) and the Health Research Authority and Health and Care Research Wales Approval (approval date: 14 June 2022; IRAS project ID: 308816). The research will inform the development of a Patient Reported Experience Measure to improve the information and support given to patients. Findings will be disseminated through peer-reviewed articles and at academic conferences, as well as to our patient and public involvement groups, healthcare professionals, audiology services and local commissioners.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2022-069363","type":"journal-article","created":{"date-parts":[[2023,6,7]],"date-time":"2023-06-07T12:42:11Z","timestamp":1686141731000},"page":"e069363","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":7,"title":["Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study"],"prefix":"10.1136","volume":"13","author":[{"given":"Helen","family":"Pryce","sequence":"first","affiliation":[{"name":"Department of Audiology, Aston University College of Health and Life Sciences, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9541-2221","authenticated-orcid":false,"given":"Sian Karen","family":"Smith","sequence":"additional","affiliation":[{"name":"Department of Audiology, Aston University College of Health and Life Sciences, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgina","family":"Burns-O'Connell","sequence":"additional","affiliation":[{"name":"Department of Audiology, Aston University College of Health and Life Sciences, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0438-7666","authenticated-orcid":false,"given":"Rachel","family":"Shaw","sequence":"additional","affiliation":[{"name":"Aston University School of Psychology, Birmingham, UK"},{"name":"Aston Institute of Health & Neurodevelopment, Aston University College of Health and Life Sciences, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saira","family":"Hussain","sequence":"additional","affiliation":[{"name":"Department of Audiology, Aston University College of Health and Life Sciences, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3889-6098","authenticated-orcid":false,"given":"Jonathan","family":"Banks","sequence":"additional","affiliation":[{"name":"University Hospitals Bristol and Weston NHS Foundation Trust, National Institute for Health Research, Applied Research Collaboration West, Bristol, UK"},{"name":"Population Health Sciences, University of Bristol Medical School, Bristol, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8520-6005","authenticated-orcid":false,"given":"Amanda","family":"Hall","sequence":"additional","affiliation":[{"name":"Department of Audiology, Aston University College of Health and Life Sciences, Birmingham, UK"},{"name":"Children's Hearing Centre, University Hospitals Bristol NHS Foundation Trust, Bristol, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5561-0904","authenticated-orcid":false,"given":"Rebecca","family":"Knibb","sequence":"additional","affiliation":[{"name":"Aston University School of Psychology, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rosemary","family":"Greenwood","sequence":"additional","affiliation":[{"name":"Psychology Department, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jean","family":"Straus","sequence":"additional","affiliation":[{"name":"Patient and Public Involvement Representative and Lead, HeLP study, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2023,6,7]]},"reference":[{"key":"2025121220462774000_13.6.e069363.1","unstructured":"WHO . 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