{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T14:26:34Z","timestamp":1787063194399,"version":"build-2736575974"},"reference-count":9,"publisher":"BMJ","issue":"7","license":[{"start":{"date-parts":[[2023,7,9]],"date-time":"2023-07-09T00:00:00Z","timestamp":1688860800000},"content-version":"unspecified","delay-in-days":8,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2023,6,25]]},"published-print":{"date-parts":[[2023,7]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Participants discussed their experiences of hospitalisation and following discharge.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2023-072658","type":"journal-article","created":{"date-parts":[[2023,7,9]],"date-time":"2023-07-09T07:36:01Z","timestamp":1688888161000},"page":"e072658","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":5,"title":["Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study"],"prefix":"10.1136","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2252-6065","authenticated-orcid":false,"given":"Paul","family":"Bennett","sequence":"first","affiliation":[{"name":"School of Psychology, Swansea University, Swansea, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Filiz","family":"Celik","sequence":"additional","affiliation":[{"name":"School of Psychology, Swansea University, Swansea, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenna","family":"Winstanley","sequence":"additional","affiliation":[{"name":"School of Psychology, Swansea University, Swansea, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Beverley J","family":"Hunt","sequence":"additional","affiliation":[{"name":"Guy\u2019s and St Thomas\u2019 NHS Foundation Trust, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sue","family":"Pavord","sequence":"additional","affiliation":[{"name":"Oxford University Hospitals NHS Foundation Trust, Oxford, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2023,7,9]]},"reference":[{"key":"2025121509361198000_13.7.e072658.1","doi-asserted-by":"crossref","first-page":"1680","DOI":"10.1056\/NEJMoa2109908","article-title":"Clinical features of vaccine-induced immune thrombocytopenia and thrombosis","volume":"385","author":"Pavord","year":"2021","journal-title":"N Engl J Med"},{"key":"2025121509361198000_13.7.e072658.2","doi-asserted-by":"crossref","first-page":"2707","DOI":"10.1111\/jth.15853","article-title":"Vaccine-induced immune thrombotic thrombocytopenia (VITT)-Update on diagnosis and management considering different resources","volume":"20","author":"Paez Alacron","year":"2022","journal-title":"J Thromb Haemost"},{"key":"2025121509361198000_13.7.e072658.3","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2018-024805","article-title":"Long-term Psychosocial impact of venous thromboembolism: a qualitative study in the community","volume":"9","author":"Hunter","year":"2019","journal-title":"BMJ Open"},{"key":"2025121509361198000_13.7.e072658.4","doi-asserted-by":"publisher","DOI":"10.1177\/1359105314540965"},{"key":"2025121509361198000_13.7.e072658.5","doi-asserted-by":"crossref","first-page":"507","DOI":"10.1016\/j.cnc.2019.07.006","article-title":"Postintensive care syndrome","volume":"31","author":"Bryant","year":"2019","journal-title":"Crit Care Nurs Clin North Am"},{"key":"2025121509361198000_13.7.e072658.6","unstructured":"Office of National Statistics. Available: htpps:\/\/www.ons.gov.uk\/methodology\/classificationsandstandards\/standardoccupationalclassificationsoc\/soc2020\/soc2020volume3thenationalstatisticssocioeconomicclassificationnssecrebasedonthesoc2020 [Accessed 25 Mar 2023]."},{"key":"2025121509361198000_13.7.e072658.7","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"2025121509361198000_13.7.e072658.8","unstructured":"NICE. Available: https:\/\/www.nice.org.uk\/guidance\/ng200\/resources\/fully-accessible-version-of-the-guideline-pdf-pdf-51036811744 [Accessed 26 Mar 2023]."},{"key":"2025121509361198000_13.7.e072658.9","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1053\/j.seminhematol.2022.02.003","article-title":"The psychiatric and psychological sequelae of vaccine-induced immune thrombotic thrombocytopenia (VITT)","volume":"59","author":"Carpenter","year":"2022","journal-title":"Semin Hematol"}],"container-title":["BMJ Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/bmjopen-2023-072658","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,15]],"date-time":"2025-12-15T17:36:17Z","timestamp":1765820177000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmjopen.bmj.com\/lookup\/doi\/10.1136\/bmjopen-2023-072658"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,7]]},"references-count":9,"journal-issue":{"issue":"7","published-online":{"date-parts":[[2023,7,9]]},"published-print":{"date-parts":[[2023,7]]}},"alternative-id":["10.1136\/bmjopen-2023-072658"],"URL":"https:\/\/doi.org\/10.1136\/bmjopen-2023-072658","relation":{},"ISSN":["2044-6055","2044-6055"],"issn-type":[{"value":"2044-6055","type":"print"},{"value":"2044-6055","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,7]]}}}