{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,20]],"date-time":"2026-03-20T23:34:23Z","timestamp":1774049663301,"version":"3.50.1"},"reference-count":49,"publisher":"BMJ","issue":"11","license":[{"start":{"date-parts":[[2024,11,18]],"date-time":"2024-11-18T00:00:00Z","timestamp":1731888000000},"content-version":"unspecified","delay-in-days":17,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Ping Zhang","award":["The Key Specialized Project of the Nursing Departm"],"award-info":[{"award-number":["The Key Specialized Project of the Nursing Departm"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2024,10,29]]},"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>For emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on how emerging adults with inflammatory bowel disease cope with these uncertainties exist. This study aimed to investigate uncertainties associated with the future of emerging adults with inflammatory bowel disease and explore coping strategies.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A qualitative semistructured interview study with a phenomenological approach. Face-to-face semistructured interviews were conducted, audio-recorded, transcribed verbatim and subsequently analysed using the Colaizzi seven-step analysis method.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>A tertiary hospital in eastern China.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Participants (n=14) were emerging adults with inflammatory bowel disease recruited from a tertiary hospital in eastern China, using a purposeful sampling technique.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Fourteen patients completed the interviews. Four themes were identified: uncertainties in educational and vocational planning, social and interpersonal relationships, mental and emotional health and disease management. Moreover, the participants emphasised the significance of timely patient education postdiagnosis and ensuring consistent medical guidance after discharge to minimise uncertainty and alleviate confusion. They also hoped to manage the disease through traditional Chinese medicine.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study provides valuable insights into the various challenges encountered by emerging adults with inflammatory bowel disease and the factors that may impact their experiences. Additionally, it suggests the need for healthcare providers to devise suitable support and intervention strategies to guide and establish stable management of the patients\u2019 uncertain futures.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Trial registration number<\/jats:title>\n                    <jats:p>ChiCTR2300071289.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2024-089213","type":"journal-article","created":{"date-parts":[[2024,11,18]],"date-time":"2024-11-18T12:45:29Z","timestamp":1731933929000},"page":"e089213","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":3,"title":["An uncertain future: perspectives of emerging adults with inflammatory bowel disease\u2014a qualitative semistructured interview study in eastern China"],"prefix":"10.1136","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-6730-6295","authenticated-orcid":false,"given":"Yu","family":"Zhou","sequence":"first","affiliation":[{"name":"Department of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ranran","family":"Qiao","sequence":"additional","affiliation":[{"name":"School of Nursing, Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tengteng","family":"Ding","sequence":"additional","affiliation":[{"name":"School of Nursing, Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-8795-0053","authenticated-orcid":false,"given":"Hui","family":"Li","sequence":"additional","affiliation":[{"name":"Department of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-2182-6543","authenticated-orcid":false,"given":"Ping","family":"Zhang","sequence":"additional","affiliation":[{"name":"Department of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2024,11,18]]},"reference":[{"key":"2025121220442876000_14.11.e089213.1","doi-asserted-by":"publisher","DOI":"10.1002\/ibd.20545"},{"key":"2025121220442876000_14.11.e089213.2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(17)32448-0"},{"key":"2025121220442876000_14.11.e089213.3","doi-asserted-by":"crossref","first-page":"93","DOI":"10.1159\/000480731","article-title":"The Coming of Age of Inflammatory Bowel Diseases in Asia","volume":"2","author":"Sorrentino","year":"2017","journal-title":"Inflamm Intest Dis"},{"key":"2025121220442876000_14.11.e089213.4","doi-asserted-by":"crossref","first-page":"107","DOI":"10.1038\/s41395-018-0233-2","article-title":"Population Density and Risk of Inflammatory Bowel Disease: A Prospective Population-Based Study in 13 Countries or Regions in Asia-Pacific","volume":"114","author":"Ng","year":"2019","journal-title":"Am J Gastroenterol"},{"key":"2025121220442876000_14.11.e089213.5","doi-asserted-by":"crossref","DOI":"10.2196\/20629","article-title":"Economic Burden and Health Care Access for Patients With Inflammatory Bowel Diseases in China: Web-Based Survey Study","volume":"23","author":"Yu","year":"2021","journal-title":"J Med Internet Res"},{"key":"2025121220442876000_14.11.e089213.6","doi-asserted-by":"publisher","DOI":"10.1002\/cd.75"},{"key":"2025121220442876000_14.11.e089213.7","doi-asserted-by":"crossref","unstructured":"Wood D , Crapnell T , Lau L . Emerging adulthood as a critical stage in the life course. In: Stuber TH , Smith KA , eds. Handbook of life course health development. New York: Springer, 2018: 123\u201343.","DOI":"10.1007\/978-3-319-47143-3_7"},{"key":"2025121220442876000_14.11.e089213.8","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2019-033806","article-title":"Group education for adolescents with type 1 diabetes during transition from paediatric to adult care: study protocol for a multisite, randomised controlled, superiority trial (GET-IT-T1D)","volume":"9","author":"Mok","year":"2019","journal-title":"BMJ Open"},{"key":"2025121220442876000_14.11.e089213.9","doi-asserted-by":"crossref","DOI":"10.1161\/JAHA.122.025278","article-title":"Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association","volume":"11","author":"John","year":"2022","journal-title":"J Am Heart Assoc"},{"key":"2025121220442876000_14.11.e089213.10","article-title":"Enacted Stigma in Inflammatory Bowel Disease: An Italian Phenomenological Study","volume":"11","author":"Simeone","year":"2023","journal-title":"Healthcare (Basel) -> Healthc (Basel)"},{"key":"2025121220442876000_14.11.e089213.11","doi-asserted-by":"crossref","first-page":"1010","DOI":"10.1093\/ibd\/izz260","article-title":"Stigma and Disclosure in Patients With Inflammatory Bowel Disease","volume":"26","author":"Guo","year":"2020","journal-title":"Inflamm Bowel Dis"},{"key":"2025121220442876000_14.11.e089213.12","doi-asserted-by":"crossref","DOI":"10.1186\/s12889-021-10538-w","article-title":"Impact of growing up with somatic long-term health challenges on school completion, NEET status and disability pension: a population-based longitudinal study","volume":"21","author":"Rasalingam","year":"2021","journal-title":"BMC Public Health"},{"key":"2025121220442876000_14.11.e089213.13","doi-asserted-by":"crossref","first-page":"7587","DOI":"10.1080\/09638288.2021.1979662","article-title":"Workplace challenges, supports, and accommodations for people with inflammatory bowel disease: a scoping review","volume":"44","author":"Cheng","year":"2022","journal-title":"Disabil Rehabil"},{"key":"2025121220442876000_14.11.e089213.14","doi-asserted-by":"crossref","DOI":"10.1155\/2015\/260807","article-title":"The Emerging Adult with Inflammatory Bowel Disease: Challenges and Recommendations for the Adult Gastroenterologist","volume":"2015","author":"Trivedi","year":"2015","journal-title":"Gastroenterol Res Pract"},{"key":"2025121220442876000_14.11.e089213.15","doi-asserted-by":"crossref","first-page":"1432","DOI":"10.14309\/ajg.0000000000000222","article-title":"Inflammatory Bowel Disease: A Practical Path to Transitioning From Pediatric to Adult Care","volume":"114","author":"Menon","year":"2019","journal-title":"Am J Gastroenterol"},{"key":"2025121220442876000_14.11.e089213.16","doi-asserted-by":"crossref","unstructured":"Touma N , Zanni L , Blanc P , et al . Digesting Crohn\u2019s Disease: The Journey of Young Adults since Diagnosis. J Clin Med 2023;12. doi:10.3390\/jcm12227128","DOI":"10.3390\/jcm12227128"},{"key":"2025121220442876000_14.11.e089213.17","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1016\/j.ijnurstu.2018.07.017","article-title":"Living with Inflammatory Bowel Disease: A review of qualitative research studies","volume":"87","author":"Fourie","year":"2018","journal-title":"Int J Nurs Stud"},{"key":"2025121220442876000_14.11.e089213.18","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1097\/SGA.0000000000000723","article-title":"The Illness Experiences of Chinese Adolescent Patients Living with Crohn Disease: A Descriptive Qualitative Study","volume":"46","author":"Chen","year":"2023","journal-title":"Gastroenterol Nurs"},{"key":"2025121220442876000_14.11.e089213.19","doi-asserted-by":"crossref","first-page":"3824","DOI":"10.1111\/jan.15721","article-title":"The symptom experience of newly diagnosed Chinese patients with Crohn\u2019s disease: A longitudinal qualitative study","volume":"79","author":"Chen","year":"2023","journal-title":"J Adv Nurs"},{"key":"2025121220442876000_14.11.e089213.20","doi-asserted-by":"crossref","first-page":"298","DOI":"10.1111\/1751-2980.12994","article-title":"Chinese consensus on diagnosis and treatment in inflammatory bowel disease (2018, Beijing)","volume":"22","year":"2021","journal-title":"J of Digest Dis"},{"key":"2025121220442876000_14.11.e089213.21","unstructured":"Colaizzi PF . n.d. Psychological research as the phenomenologist views it."},{"key":"2025121220442876000_14.11.e089213.22","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"2025121220442876000_14.11.e089213.23","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2019-317765"},{"key":"2025121220442876000_14.11.e089213.24","first-page":"97","article-title":"Inflammatory Bowel Disease - Challenges in the Workplace and Support for Coping with Disease","volume":"61","author":"Langbrandtner","year":"2022","journal-title":"Rehabilitation (Stuttg)"},{"key":"2025121220442876000_14.11.e089213.25","doi-asserted-by":"crossref","first-page":"726","DOI":"10.1111\/1467-9566.12561","article-title":"\u201cIt seems like you\u2019re going around in circles\u201d: recurrent biographical disruption constructed through the past, present and anticipated future in the narratives of young adults with inflammatory bowel disease","volume":"39","author":"Saunders","year":"2017","journal-title":"Sociol Health Illn"},{"key":"2025121220442876000_14.11.e089213.26","doi-asserted-by":"crossref","first-page":"379","DOI":"10.1093\/ecco-jcc\/jjac145","article-title":"What are the Unmet Needs and Most Relevant Treatment Outcomes According to Patients with Inflammatory Bowel Disease? A Qualitative Patient Preference Study","volume":"17","author":"Schoefs","year":"2023","journal-title":"J Crohns Colitis"},{"key":"2025121220442876000_14.11.e089213.27","article-title":"Sustaining, Forming, and Letting Go of Friendships for Young People with Inflammatory Bowel Disease (IBD): A Qualitative Interview-Based Study","volume":"2020","author":"Rouncefield-Swales","year":"2020","journal-title":"Int J Chronic Dis"},{"key":"2025121220442876000_14.11.e089213.28","doi-asserted-by":"crossref","DOI":"10.1186\/s12890-023-02440-5","article-title":"Effectiveness of family support health education intervention to improve health-related quality of life among pulmonary tuberculosis patients in Melaka, Malaysia","volume":"23","author":"Saidi","year":"2023","journal-title":"BMC Pulm Med"},{"key":"2025121220442876000_14.11.e089213.29","doi-asserted-by":"crossref","first-page":"107","DOI":"10.1016\/j.jadohealth.2024.02.021","article-title":"Emerging Adults With Type 2 Diabetes: Understanding Illness Experience and Transition to Adult Care","volume":"75","author":"Edmondson","year":"2024","journal-title":"J Adolesc Health"},{"key":"2025121220442876000_14.11.e089213.30","doi-asserted-by":"crossref","first-page":"216","DOI":"10.1093\/bjd\/ljae133","article-title":"Burden of disease and treatment patterns in patients with vitiligo: findings from a national longitudinal retrospective study in the UK","volume":"191","author":"Eleftheriadou","year":"2024","journal-title":"Br J Dermatol"},{"key":"2025121220442876000_14.11.e089213.31","doi-asserted-by":"crossref","first-page":"2887","DOI":"10.1007\/s00467-024-06314-8","article-title":"Common mental health conditions and considerations in pediatric chronic kidney disease","volume":"39","author":"Mai","year":"2024","journal-title":"Pediatr Nephrol"},{"key":"2025121220442876000_14.11.e089213.32","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1097\/SGA.0000000000000288","article-title":"Identifying Needs in Young Adults With Inflammatory Bowel Disease: A Qualitative Study","volume":"41","author":"Cho","year":"2018","journal-title":"Gastroenterol Nurs"},{"key":"2025121220442876000_14.11.e089213.33","first-page":"647","article-title":"Effect of cognitive behavioral therapy on emotional intervention among type 2 diabetes patients with mild to moderate anxiety and depression in community","volume":"40","author":"Deng","year":"2024","journal-title":"Chin J Health Educ"},{"key":"2025121220442876000_14.11.e089213.34","first-page":"2350","article-title":"Research progress on application of problem-solving therapy in patients with chronic disease","volume":"38","author":"Lu","year":"2024","journal-title":"Chin Nurs Res"},{"key":"2025121220442876000_14.11.e089213.35","unstructured":"Qin QI , Im H , Kunshan LI , et al . Influence of herb-partitioned moxibustion at Qihai (CV6) and bilateral Tianshu (ST25) and Shangjuxu (ST37) acupoints on toll-like receptors 4 signaling pathways in patients with ulcerative colitis. J Trad Chin Med 2021;41."},{"key":"2025121220442876000_14.11.e089213.36","doi-asserted-by":"crossref","first-page":"750","DOI":"10.1089\/acm.2020.0531","article-title":"Qigong Exercise for Patients with Gastrointestinal Cancer Undergoing Chemotherapy and at High Risk for Depression: A Randomized Clinical Trial","volume":"27","author":"Yang","year":"2021","journal-title":"J Altern Complement Med"},{"key":"2025121220442876000_14.11.e089213.37","doi-asserted-by":"crossref","first-page":"702","DOI":"10.1093\/tbm\/ibac008","article-title":"Building social identity-based groups to enhance online peer support for patients with chronic disease: a pilot study using mixed-methods evaluation","volume":"12","author":"Su","year":"2022","journal-title":"Transl Behav Med"},{"key":"2025121220442876000_14.11.e089213.38","doi-asserted-by":"crossref","DOI":"10.1016\/j.ctcp.2022.101702","article-title":"Effects of baduanjin exercise on blood glucose, depression and anxiety among patients with type II diabetes and emotional disorders: A meta-analysis","volume":"50","author":"Luo","year":"2023","journal-title":"Complement Ther Clin Pract"},{"key":"2025121220442876000_14.11.e089213.39","article-title":"Traditional Chinese exercises on depression: A network meta-analysis","volume":"103","author":"Feng","year":"2024","journal-title":"Medicine (Abingdon)"},{"key":"2025121220442876000_14.11.e089213.40","first-page":"632","article-title":"The effects of aromatherapy and music on pain, anxiety, and stress levels in palliative care patients","volume":"32","author":"Akba\u015f Uysal","year":"2024","journal-title":"Support Care Cancer"},{"key":"2025121220442876000_14.11.e089213.41","doi-asserted-by":"crossref","DOI":"10.1016\/j.jpsychores.2021.110400","article-title":"Empowered transitions: Understanding the experience of transitioning from pediatric to adult care among adolescents with inflammatory bowel disease and their parents using photovoice","volume":"143","author":"Feingold","year":"2021","journal-title":"J Psychosom Res"},{"key":"2025121220442876000_14.11.e089213.42","doi-asserted-by":"crossref","DOI":"10.1186\/s12876-023-03080-z","article-title":"Factors influencing the healthcare transition in Chinese adolescents with inflammatory bowel disease: a multi-perspective qualitative study","volume":"23","author":"Zhou","year":"2023","journal-title":"BMC Gastroenterol"},{"key":"2025121220442876000_14.11.e089213.43","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2019-033535","article-title":"Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation","volume":"10","author":"Sattoe","year":"2020","journal-title":"BMJ Open"},{"key":"2025121220442876000_14.11.e089213.44","doi-asserted-by":"crossref","first-page":"317","DOI":"10.1007\/s40271-019-00407-5","article-title":"A Qualitative Research for Defining Meaningful Attributes for the Treatment of Inflammatory Bowel Disease from the Patient Perspective","volume":"13","author":"Louis","year":"2020","journal-title":"Patient"},{"key":"2025121220442876000_14.11.e089213.45","doi-asserted-by":"crossref","DOI":"10.2196\/36767","article-title":"The Effectiveness of Patient Training in Inflammatory Bowel Disease Knowledge via Instagram: Randomized Controlled Trial","volume":"24","author":"Blunck","year":"2022","journal-title":"J Med Internet Res"},{"key":"2025121220442876000_14.11.e089213.46","doi-asserted-by":"crossref","DOI":"10.1177\/20552076231205741","article-title":"Mobile-based program improves healthy eating of ulcerative colitis patients: A pilot study","volume":"9","author":"Tu","year":"2023","journal-title":"Digit Health"},{"key":"2025121220442876000_14.11.e089213.47","doi-asserted-by":"crossref","DOI":"10.1016\/j.pec.2023.108034","article-title":"\u201cSymptom-free\u201d when inflammatory bowel disease is in remission: Expectations raised by online resources","volume":"119","author":"Huisman","year":"2024","journal-title":"Pat Educ Couns"},{"key":"2025121220442876000_14.11.e089213.48","first-page":"164","article-title":"Effect of traditional Chinese medicine transitional care among patients with ulcerative colitis","volume":"16","author":"Chen","year":"2016","journal-title":"Chin Nurs Manage"},{"key":"2025121220442876000_14.11.e089213.49","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1177\/15691861231167536","article-title":"Effect of five-elements music therapy combined with Baduanjin qigong on patients with mild COVID-19","volume":"36","author":"Zhang","year":"2023","journal-title":"Hong Kong J Occup Ther"}],"container-title":["BMJ Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/bmjopen-2024-089213","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,13]],"date-time":"2025-12-13T04:44:45Z","timestamp":1765601085000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmjopen.bmj.com\/lookup\/doi\/10.1136\/bmjopen-2024-089213"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11]]},"references-count":49,"journal-issue":{"issue":"11","published-online":{"date-parts":[[2024,11,18]]},"published-print":{"date-parts":[[2024,11]]}},"alternative-id":["10.1136\/bmjopen-2024-089213"],"URL":"https:\/\/doi.org\/10.1136\/bmjopen-2024-089213","relation":{},"ISSN":["2044-6055","2044-6055"],"issn-type":[{"value":"2044-6055","type":"print"},{"value":"2044-6055","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,11]]}}}