{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,28]],"date-time":"2025-11-28T03:47:20Z","timestamp":1764301640276,"version":"3.46.0"},"reference-count":24,"publisher":"BMJ","issue":"11","license":[{"start":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T00:00:00Z","timestamp":1764115200000},"content-version":"unspecified","delay-in-days":25,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"NIHR Health and Social Care Delivery Research","award":["NIHR159019"],"award-info":[{"award-number":["NIHR159019"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2025,11,7]]},"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>The HOPSCOTCH study \u2018Helping Optimise Primary Care Support During Transition From Children\u2019s Hospice Care\u2019 aims to develop a toolbox to enable engagement of primary care services in the care of young people with life-limiting conditions (LLC) with a specific focus on the point of transition from children\u2019s hospice services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods and analysis<\/jats:title>\n                    <jats:p>Individual interviews will be held with young people with LLC, their families and healthcare professionals (HCPs). In alignment with Experience Based Co-Design (EBCD) methodology, extracts of film and audio from young people and family interviews will be combined to professionally produce a \u2018catalyst film\u2019 highlighting key points and experiences before, during and after the transition from children\u2019s hospice care. Role-specific workshops will be held with young people with LLC, their families and HCPs working in primary care, children\u2019s hospices and adult hospice services. The catalyst film will be used in feedback workshops to prompt prioritisation of key issues to take forward into toolbox development in a shared young people, family and HCP workshop. A documentary analysis of resources currently used to support transition and communication between care settings will support contextual understanding of the transition process. Young people, parents and professionals have shaped and continue to have influence over the study delivery as advisors alongside a multidisciplinary steering committee.<\/jats:p>\n                    <jats:p>The study design has been guided by the UK Medical Research Council complex intervention framework. Intervention development draws on the principles of EBCD and is theoretically driven by the Behaviour Change Wheel.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ethics and dissemination<\/jats:title>\n                    <jats:p>The study is registered with the UK\u2019s Clinical Study Registry (ISCTRN75964234).<\/jats:p>\n                    <jats:p>Ethical approval was obtained from Wales 3 ethics board on 2 July 2025 (IRAS ID 334486). This study will include ongoing dissemination and knowledge transfer to key audiences (young people, parents, service providers, commissioners) via publications, national bodies, knowledge exchange events, web-based platforms, social media and clinical\/academic forums.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2025-108660","type":"journal-article","created":{"date-parts":[[2025,11,28]],"date-time":"2025-11-28T03:45:24Z","timestamp":1764301524000},"page":"e108660","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":0,"title":["Experience-based co-design informed development of a toolbox to help optimise primary care support during transition from children\u2019s hospice care: HOPSCOTCH study protocol"],"prefix":"10.1136","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2859-2020","authenticated-orcid":false,"given":"Emma","family":"Chapman","sequence":"first","affiliation":[{"name":"Academic Unit of Palliative Care, University of Leeds, Leeds, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Mitchell","sequence":"additional","affiliation":[{"name":"Academic Unit of Palliative Care, University of Leeds, Leeds, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1360-4191","authenticated-orcid":false,"given":"Lorna Katharine","family":"Fraser","sequence":"additional","affiliation":[{"name":"Cicely Saunders Institute, King\u2019s College London, London, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7413-0500","authenticated-orcid":false,"given":"Jordanne","family":"Wozencroft","sequence":"additional","affiliation":[{"name":"PPI representative, England, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ben","family":"Morris","sequence":"additional","affiliation":[{"name":"PPI representative, England, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"George","family":"Peat","sequence":"additional","affiliation":[{"name":"Department of Social work, Education, and Community Wellbeing, Northumbria University, Newcastle upon Tyne, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tagore","family":"Charles","sequence":"additional","affiliation":[{"name":"Noah's Ark Children\u2019s Hospice, London, England, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0712-9208","authenticated-orcid":false,"given":"Joanna","family":"Elverson","sequence":"additional","affiliation":[{"name":"St Oswald\u2019s Hospice and Newcastle upon Tyne Hospitals, Newcastle upon Tyne, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul","family":"Carder","sequence":"additional","affiliation":[{"name":"NHS West Yorkshire Integrated Care Board, Wakefield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katie","family":"Tallowin","sequence":"additional","affiliation":[{"name":"Together for Short Lives, Bristol, England, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Josefine","family":"Magnusson","sequence":"additional","affiliation":[{"name":"Cicely Saunders Institute, King\u2019s College London, London, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lucy","family":"Ziegler","sequence":"additional","affiliation":[{"name":"Academic Unit of Palliative Care, University of Leeds, Leeds, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2025,11,27]]},"reference":[{"key":"2025112719455168000_15.11.e108660.1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320975308"},{"key":"2025112719455168000_15.11.e108660.2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-2846"},{"key":"2025112719455168000_15.11.e108660.3","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231154300"},{"key":"2025112719455168000_15.11.e108660.4","doi-asserted-by":"crossref","first-page":"NP3","DOI":"10.1177\/02692163211038698","article-title":"Palliative care for teenagers and young adults - the need for more evidence","volume":"36","author":"Ziegler","year":"2022","journal-title":"Palliat Med"},{"key":"2025112719455168000_15.11.e108660.5","doi-asserted-by":"crossref","DOI":"10.1136\/bmjspcare-2015-000852","article-title":"GPs and paediatric oncology palliative care: a Q methodological study","volume":"10","author":"Neilson","year":"2020","journal-title":"BMJ Support Palliat Care"},{"key":"2025112719455168000_15.11.e108660.6","doi-asserted-by":"publisher","DOI":"10.3399\/bjgp20X708233"},{"key":"2025112719455168000_15.11.e108660.7","unstructured":"UK Hansard . 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