{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T16:52:41Z","timestamp":1782492761919,"version":"3.54.5"},"reference-count":82,"publisher":"BMJ","issue":"3","license":[{"start":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T00:00:00Z","timestamp":1773014400000},"content-version":"unspecified","delay-in-days":8,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2026,2,23]]},"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To explore how thoracic surgical nurses perceive and respond to the chronic illness needs of individuals with myasthenia gravis undergoing thymectomy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Data were collected through four focus group interviews using a semi-structured interview guide. The analysis followed a hermeneutic approach, identifying recurring themes through iterative interpretation and critical reflection. Nineteen thoracic surgical nurses from ward and postanaesthesia care unit settings participated, representing a diverse range of clinical experience. The study followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist for reporting the findings of this study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The analysis identified three overarching themes reflecting nurses\u2019 experiences of caring for individuals with myasthenia gravis undergoing thymectomy.\n                      <jats:italic>First<\/jats:italic>\n                      , nurses described how the chronic aspects of the illness often \u2018disappeared\u2019 within the surgical care process, with attention focused mainly on procedural recovery, leaving patients\u2019 broader illness needs unaddressed.\n                      <jats:italic>Second<\/jats:italic>\n                      , nurses experienced a dilemma between providing acute surgical care and responding to patients\u2019 chronic illness understanding, highlighting uncertainty due to limited knowledge and lack of clear guidelines.\n                      <jats:italic>Third<\/jats:italic>\n                      , nurses emphasised the difficulty of managing the invisible and unpredictable symptoms of myasthenia gravis, which created a heightened need for vigilance but also uncertainty in symptom assessment and support. Across all themes, the findings suggest that surgical care practices may insufficiently recognise patients\u2019 ongoing illness experiences, emphasising the need for greater knowledge, interdisciplinary collaboration and chronic illness-sensitive care approaches.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The study highlights the need for increased attention to chronic illness needs in surgical care, supporting interdisciplinary collaboration and tailored nursing practices that address the lived experiences of patients with chronic conditions.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2025-109575","type":"journal-article","created":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T14:25:19Z","timestamp":1773066319000},"page":"e109575","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":0,"title":["Caring beyond the procedure: a qualitative study on thoracic surgery nurses\u2019 perspectives on chronic illness experiences of individuals with myasthenia gravis undergoing thymectomy"],"prefix":"10.1136","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3267-8038","authenticated-orcid":false,"given":"Malene","family":"Missel","sequence":"first","affiliation":[{"name":"Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"},{"name":"University of Copenhagen Faculty of Health and Medical Sciences, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pernille Orloff","family":"Donsel","sequence":"additional","affiliation":[{"name":"Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Trine Fj\u00e6llegaard","family":"Nielsen","sequence":"additional","affiliation":[{"name":"Patient, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erik Lilja","family":"Secher","sequence":"additional","affiliation":[{"name":"Anesthesiology, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Estephani Birkenfeldt Zeballos","family":"Medeiros","sequence":"additional","affiliation":[{"name":"Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrine","family":"Rude","sequence":"additional","affiliation":[{"name":"Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joan Lilja Sunnleyg","family":"H\u00f8jgaard","sequence":"additional","affiliation":[{"name":"Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Niels-Erik","family":"Viby","sequence":"additional","affiliation":[{"name":"Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Simone","family":"Birnbaum","sequence":"additional","affiliation":[{"name":"Neuromuscular Physiology and Evaluation Laboratory, Neuromuscular Investigation Center, Institute of Myology, Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Linda Kahr","family":"Andersen","sequence":"additional","affiliation":[{"name":"Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rene Horsleben","family":"Petersen","sequence":"additional","affiliation":[{"name":"Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"},{"name":"University of Copenhagen Faculty of Health and Medical Sciences, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nanna","family":"Witting","sequence":"additional","affiliation":[{"name":"University of Copenhagen Faculty of Health and Medical Sciences, Copenhagen, Denmark"},{"name":"Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2026,3,9]]},"reference":[{"key":"2026062609354902000_16.3.e109575.1","unstructured":"World Health Organization . World health statistics 2023: monitoring health for the SDGs, sustainable development goals. Geneva, 2023."},{"key":"2026062609354902000_16.3.e109575.2","doi-asserted-by":"crossref","DOI":"10.1186\/s41256-024-00393-8","article-title":"Effects of population aging on quality of life and disease burden: a population-based study","volume":"10","author":"Xi","year":"2025","journal-title":"Glob Health Res Policy"},{"key":"2026062609354902000_16.3.e109575.3","doi-asserted-by":"crossref","unstructured":"Tichenor M , Sridhar D . The global burden of disease study institute for health metrics and evaluation. Wellcome Open Res 2020;4. doi:10.12688\/wellcomeopenres.15011.2","DOI":"10.12688\/wellcomeopenres.15011.2"},{"key":"2026062609354902000_16.3.e109575.4","unstructured":"Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion . National diabetes statistics report 2022. Atlanta, GA, 2022."},{"key":"2026062609354902000_16.3.e109575.5","doi-asserted-by":"crossref","DOI":"10.1172\/JCI178722","article-title":"Estimation of prevalence of autoimmune diseases in the United States using electronic health record data","volume":"135","author":"Abend","year":"2024","journal-title":"J Clin Invest"},{"key":"2026062609354902000_16.3.e109575.6","doi-asserted-by":"crossref","first-page":"400","DOI":"10.1159\/000533527","article-title":"A Global, Regional, and National Survey on Burden and Quality of Care Index of Multiple Sclerosis: Global Burden of Disease Systematic Analysis 1990-2019","volume":"57","author":"Maroufi","year":"2023","journal-title":"Neuroepidemiology"},{"key":"2026062609354902000_16.3.e109575.7","doi-asserted-by":"crossref","DOI":"10.3389\/fpubh.2023.1073278","article-title":"Global, regional, and national burden of multiple sclerosis from 1990 to 2019: Findings of global burden of disease study 2019","volume":"11","author":"Qian","year":"2023","journal-title":"Front Public Health"},{"key":"2026062609354902000_16.3.e109575.8","doi-asserted-by":"crossref","DOI":"10.1136\/lupus-2023-001032","article-title":"Burden of systemic lupus erythematosus in clinical practice: baseline data from the SLE Prospective Observational Cohort Study (SPOCS) by interferon gene signature","volume":"10","author":"Arnaud","year":"2023","journal-title":"Lupus Sci Med"},{"key":"2026062609354902000_16.3.e109575.9","doi-asserted-by":"crossref","first-page":"2971","DOI":"10.1007\/s10067-023-06681-x","article-title":"Burden of disease and real-world treatment patterns of patients with systemic lupus erythematosus in the Australian OPAL dataset","volume":"42","author":"Ciciriello","year":"2023","journal-title":"Clin Rheumatol"},{"key":"2026062609354902000_16.3.e109575.10","doi-asserted-by":"crossref","DOI":"10.3389\/fneur.2023.1307627","article-title":"The burden of myasthenia gravis - highlighting the impact on family planning and the role of social support","volume":"14","author":"Stein","year":"2023","journal-title":"Front Neurol"},{"key":"2026062609354902000_16.3.e109575.11","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2022-068104","article-title":"Patient-reported impact of myasthenia gravis in the real world: findings from a digital observational survey-based study (MyRealWorld MG)","volume":"13","author":"Berrih-Aknin","year":"2023","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.12","doi-asserted-by":"crossref","first-page":"2357","DOI":"10.1111\/jocn.12827","article-title":"Living with chronic illness in adults: a concept analysis","volume":"24","author":"Ambrosio","year":"2015","journal-title":"J Clin Nurs"},{"key":"2026062609354902000_16.3.e109575.13","doi-asserted-by":"crossref","DOI":"10.1186\/s12913-022-08426-z","article-title":"Barriers to accessing health care for people with chronic conditions: a qualitative interview study","volume":"22","author":"Schwarz","year":"2022","journal-title":"BMC Health Serv Res"},{"key":"2026062609354902000_16.3.e109575.14","doi-asserted-by":"crossref","first-page":"116596","DOI":"10.1016\/j.socscimed.2024.116596","article-title":"There but not really involved: The meanings of loneliness for people with chronic illness","volume":"343","author":"Lewis","year":"2024","journal-title":"Soc Sci Med"},{"key":"2026062609354902000_16.3.e109575.15","doi-asserted-by":"crossref","first-page":"4694","DOI":"10.4103\/jfmpc.jfmpc_2399_21","article-title":"The impact of chronic disease and accompanying bio-psycho-social factors on health-related quality of life","volume":"11","author":"Bahall","year":"2022","journal-title":"J Family Med Prim Care"},{"key":"2026062609354902000_16.3.e109575.16","doi-asserted-by":"publisher","DOI":"10.1111\/joim.12843"},{"key":"2026062609354902000_16.3.e109575.17","doi-asserted-by":"crossref","DOI":"10.1186\/s12955-019-1084-2","article-title":"A systematic review of dimensions evaluating patient experience in chronic illness","volume":"17","author":"Forestier","year":"2019","journal-title":"Health Qual Life Outcomes"},{"key":"2026062609354902000_16.3.e109575.18","first-page":"663","article-title":"Lack of awareness of systemic lupus erythematosus and its consequences in a cohort of moderate and severe patients in Spain: The LupusVoice study","volume":"33","author":"Galindo Izquierdo","year":"2024","journal-title":"Lupus (Los Angel)"},{"key":"2026062609354902000_16.3.e109575.19","doi-asserted-by":"crossref","first-page":"151961","DOI":"10.1016\/j.apnr.2025.151961","article-title":"Challenges navigating thymectomy with myasthenia gravis: A qualitative study of patient treatment experiences","volume":"83","author":"Missel","year":"2025","journal-title":"Appl Nurs Res"},{"key":"2026062609354902000_16.3.e109575.20","doi-asserted-by":"crossref","first-page":"121","DOI":"10.2217\/cer-2021-0258","article-title":"Early mobilization in enhanced recovery after surgery pathways: current evidence and recent advancements","volume":"11","author":"Tazreean","year":"2022","journal-title":"J Comp Eff Res"},{"key":"2026062609354902000_16.3.e109575.21","doi-asserted-by":"crossref","first-page":"775","DOI":"10.1001\/jamasurg.2021.0586","article-title":"Opportunities and Challenges for the Next Phase of Enhanced Recovery After Surgery","volume":"156","author":"Ljungqvist","year":"2021","journal-title":"JAMA Surg"},{"key":"2026062609354902000_16.3.e109575.22","doi-asserted-by":"publisher","DOI":"10.1093\/ejcts\/ezy301"},{"key":"2026062609354902000_16.3.e109575.23","doi-asserted-by":"crossref","DOI":"10.1186\/s13012-017-0597-5","article-title":"Implementation of Enhanced Recovery After Surgery: a strategy to transform surgical care across a health system","volume":"12","author":"Gramlich","year":"2017","journal-title":"Implement Sci"},{"key":"2026062609354902000_16.3.e109575.24","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2021-053687","article-title":"Barriers to implementation of enhanced recovery after surgery (ERAS) by a multidisciplinary team in China: a multicentre qualitative study","volume":"12","author":"Wang","year":"2022","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.25","doi-asserted-by":"crossref","DOI":"10.1177\/23779608221150706","article-title":"Chronic Illness Patients\u2019 Perceptions of Quality of Care During Hospitalization: A Qualitative Study","volume":"9","author":"Tunsi","year":"2023","journal-title":"SAGE Open Nurs"},{"key":"2026062609354902000_16.3.e109575.26","doi-asserted-by":"crossref","DOI":"10.3389\/fneur.2020.00604","article-title":"A Practical Approach to Managing Patients With Myasthenia Gravis-Opinions and a Review of the Literature","volume":"11","author":"Farrugia","year":"2020","journal-title":"Front Neurol"},{"key":"2026062609354902000_16.3.e109575.27","first-page":"65","article-title":"Video-assisted thoracoscopic thymectomy using 5-mm ports and LigaSure","volume":"5","author":"Petersen","year":"2016","journal-title":"Ann Cardiothorac Surg"},{"key":"2026062609354902000_16.3.e109575.28","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp-2023-333097"},{"key":"2026062609354902000_16.3.e109575.29","doi-asserted-by":"crossref","unstructured":"Gilhus NE , Andersen H , Andersen LK , et al . Generalized myasthenia gravis with acetylcholine receptor antibodies: A guidance for treatment. Euro J of Neurology 2024;31. doi:10.1111\/ene.16229","DOI":"10.1111\/ene.16229"},{"key":"2026062609354902000_16.3.e109575.30","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1111\/nyas.13537","article-title":"Developing treatment guidelines for myasthenia gravis","volume":"1412","author":"Sanders","year":"2018","journal-title":"Ann N Y Acad Sci"},{"key":"2026062609354902000_16.3.e109575.31","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1212\/WNL.0000000000011124","article-title":"International Consensus Guidance for Management of Myasthenia Gravis: 2020 Update","volume":"96","author":"Narayanaswami","year":"2021","journal-title":"Neurology (ECronicon)"},{"key":"2026062609354902000_16.3.e109575.32","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1602489"},{"key":"2026062609354902000_16.3.e109575.33","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMra1602678"},{"key":"2026062609354902000_16.3.e109575.34","doi-asserted-by":"crossref","first-page":"823","DOI":"10.1080\/14737175.2019.1600404","article-title":"An update on thymectomy in myasthenia gravis","volume":"19","author":"Evoli","year":"2019","journal-title":"Expert Rev Neurother"},{"key":"2026062609354902000_16.3.e109575.35","doi-asserted-by":"crossref","DOI":"10.3390\/jpm14030241","article-title":"Thymus Surgery Prospectives and Perspectives in Myasthenia Gravis","volume":"14","author":"Salahoru","year":"2024","journal-title":"J Pers Med"},{"key":"2026062609354902000_16.3.e109575.36","doi-asserted-by":"crossref","first-page":"1287","DOI":"10.1016\/j.nmd.2021.07.396","article-title":"Myasthenia gravis: do not forget the patient perspective","volume":"31","author":"Gilhus","year":"2021","journal-title":"Neuromuscul Disord"},{"key":"2026062609354902000_16.3.e109575.37","doi-asserted-by":"crossref","first-page":"253","DOI":"10.1016\/j.ncl.2018.01.002","article-title":"Generalized Myasthenia Gravis: Classification, Clinical Presentation, Natural History, and Epidemiology","volume":"36","author":"Hehir","year":"2018","journal-title":"Neurol Clin"},{"key":"2026062609354902000_16.3.e109575.38","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-021-10891-1"},{"key":"2026062609354902000_16.3.e109575.39","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1007\/s00104-021-01436-3","article-title":"The value of thymectomy in the treatment of non-thymomatous myasthenia gravis","volume":"93","author":"Menghesha","year":"2022","journal-title":"Chirurg"},{"key":"2026062609354902000_16.3.e109575.40","doi-asserted-by":"crossref","DOI":"10.1093\/ejcts\/ezad179","article-title":"Thymectomy in severe (Myasthenia Gravis Foundation of America classes IV-V) generalized myasthenia gravis: is the game really worth the candle?","volume":"63","author":"Brascia","year":"2023","journal-title":"Eur J Cardiothorac Surg"},{"key":"2026062609354902000_16.3.e109575.41","doi-asserted-by":"crossref","first-page":"2527","DOI":"10.1111\/jocn.13639","article-title":"The meaning of person-centred care in the perioperative nursing context from the patient\u2019s perspective - an integrative review","volume":"26","author":"Arakelian","year":"2017","journal-title":"J Clin Nurs"},{"key":"2026062609354902000_16.3.e109575.42","doi-asserted-by":"crossref","first-page":"102895","DOI":"10.1016\/j.jaut.2022.102895","article-title":"Poor responses and adverse outcomes of myasthenia gravis after thymectomy: Predicting factors and immunological implications","volume":"132","author":"Chen","year":"2022","journal-title":"J Autoimmun"},{"key":"2026062609354902000_16.3.e109575.43","doi-asserted-by":"crossref","first-page":"S976","DOI":"10.21037\/jtd.2019.04.08","article-title":"ERAS and patient reported outcomes in thoracic surgery: a review of current data","volume":"11","author":"Medbery","year":"2019","journal-title":"J Thorac Dis"},{"key":"2026062609354902000_16.3.e109575.44","first-page":"20","article-title":"Learning to see and think like a nurse: Clinical reasoning and caring practices","volume":"30","author":"Benner","year":"2007","journal-title":"Journal of Japanese Society of Nursing Research"},{"key":"2026062609354902000_16.3.e109575.45","doi-asserted-by":"crossref","first-page":"4037","DOI":"10.1111\/jocn.16555","article-title":"Do enhanced recovery after lung cancer surgery programs risk putting primacy of caring at stake? A qualitative focus group study on nurses\u2019 perspectives","volume":"32","author":"Missel","year":"2023","journal-title":"J Clin Nurs"},{"key":"2026062609354902000_16.3.e109575.46","unstructured":"Benner P . Clinical Reasoning: A Science-Using a Form of Practical Reasoning that Includes a Concern for Responsible Actions Towards Patients\/Families. Educating Nurses with Patricia Benner 2022."},{"key":"2026062609354902000_16.3.e109575.47","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3310\/hsdr06290","article-title":"Understanding new models of integrated care in developed countries: a systematic review","volume":"6","author":"Baxter","year":"2018","journal-title":"Health Serv Deliv Res"},{"key":"2026062609354902000_16.3.e109575.48","unstructured":"Gadamer HG . Truth and method.2nd rev ed. London: Continuum, 2004."},{"key":"2026062609354902000_16.3.e109575.49","doi-asserted-by":"crossref","first-page":"33","DOI":"10.19079\/pr.2017.6.car","article-title":"Havi Carel, Phenomenology of illness","volume":"3","author":"Carel","year":"2017","journal-title":"Phenomenological Reviews"},{"key":"2026062609354902000_16.3.e109575.50","doi-asserted-by":"publisher","DOI":"10.1007\/s11017-010-9161-x"},{"key":"2026062609354902000_16.3.e109575.51","doi-asserted-by":"crossref","unstructured":"Frank AW . The wounded storyteller. Body, illness, and ethics. Chicago and London: The University of Chicago Press, 1995.","DOI":"10.7208\/chicago\/9780226260037.001.0001"},{"key":"2026062609354902000_16.3.e109575.52","unstructured":"Frank AW . Letting stories breathe. The University Of Chicago Press, 2012."},{"key":"2026062609354902000_16.3.e109575.53","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2021-055428","article-title":"Patient and public involvement in the development of clinical practice guidelines: a scoping review","volume":"12","author":"Bryant","year":"2022","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.54","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2023-083215","article-title":"Patient and public involvement in healthcare: a systematic mapping review of systematic reviews - identification of current research and possible directions for future research","volume":"14","author":"Bergholtz","year":"2024","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.55","unstructured":"Polit DF , Beck CT . Nursing research: generating and assessing evidence for nursing practice.11th edn. Wolters Kluwer, 2020."},{"key":"2026062609354902000_16.3.e109575.56","doi-asserted-by":"publisher","DOI":"10.1080\/03098260600927575"},{"key":"2026062609354902000_16.3.e109575.57","doi-asserted-by":"publisher","DOI":"10.1177\/1468794112468475"},{"key":"2026062609354902000_16.3.e109575.58","doi-asserted-by":"publisher","DOI":"10.1080\/02813430802661811"},{"key":"2026062609354902000_16.3.e109575.59","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"2026062609354902000_16.3.e109575.60","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315617444"},{"key":"2026062609354902000_16.3.e109575.61","unstructured":"Gulddal J , Hermeneutics MM . An anthology of understanding. Denmark: Gyldendal, 2002."},{"key":"2026062609354902000_16.3.e109575.62","doi-asserted-by":"crossref","DOI":"10.1186\/s41927-023-00327-w","article-title":"Patient and public involvement in research: a review of practical resources for young investigators","volume":"7","author":"Arumugam","year":"2023","journal-title":"BMC Rheumatol"},{"key":"2026062609354902000_16.3.e109575.63","unstructured":"Turk A , Boylan A , Locock L . A researcher\u2019s guide to patient and public involvement. A guide based on the experiences of health and medical researchers, patients and members of the public. 2016."},{"key":"2026062609354902000_16.3.e109575.64","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12479"},{"key":"2026062609354902000_16.3.e109575.65","unstructured":"Dekker J , Prins J , Jassim G , et al . The evidence base for psychosocial interventions in oncology-the way forward. Psychooncology 2016;25."},{"key":"2026062609354902000_16.3.e109575.66","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2017-017959","article-title":"Interventions to improve screening and appropriate referral of patients with cancer for psychosocial distress: systematic review","volume":"8","author":"McCarter","year":"2018","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.67","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2024-084681","article-title":"Research investigating patient and carer psychoeducation needs regarding post-stroke cognition: a scoping review","volume":"15","author":"Hobden","year":"2025","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.68","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2020-041249","article-title":"Quality of life in adults with multiple sclerosis: a systematic review","volume":"10","author":"Gil-Gonz\u00e1lez","year":"2020","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.69","doi-asserted-by":"crossref","first-page":"742","DOI":"10.1017\/S1478951522001535","article-title":"Psychosocial palliative care: Patients\u2019 preferred intervention medium, target domains, and well-being priorities","volume":"22","author":"Pakenham","year":"2024","journal-title":"Pall Supp Care"},{"key":"2026062609354902000_16.3.e109575.70","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2016-011555","article-title":"Meaning of living with severe chronic obstructive lung disease: a qualitative study","volume":"6","author":"Marx","year":"2016","journal-title":"BMJ Open"},{"key":"2026062609354902000_16.3.e109575.71","doi-asserted-by":"crossref","first-page":"1096","DOI":"10.1177\/10497323231191709","article-title":"Ready to Go Home? Nurses\u2019 Perspectives of Prolonged Admission for Patients Undergoing Video-Assisted Thoracic Surgery for Non-Small-Cell Lung Cancer in Denmark","volume":"34","author":"Missel","year":"2024","journal-title":"Qual Health Res"},{"key":"2026062609354902000_16.3.e109575.72","doi-asserted-by":"crossref","unstructured":"Huang L , Kehlet H , Petersen RH . Reasons for staying in hospital after video-assisted thoracoscopic surgery lobectomy. BJS Open 2022;6. doi:10.1093\/bjsopen\/zrac050","DOI":"10.1093\/bjsopen\/zrac050"},{"key":"2026062609354902000_16.3.e109575.73","doi-asserted-by":"crossref","first-page":"1694","DOI":"10.1111\/jocn.15724","article-title":"What\u2019s going on after hospital? - Exploring the transition from hospital to home and patient experiences of nurse-led follow-up phone calls","volume":"30","author":"Donsel","year":"2021","journal-title":"J Clin Nurs"},{"key":"2026062609354902000_16.3.e109575.74","doi-asserted-by":"crossref","DOI":"10.1097\/CR9.0000000000000046","article-title":"What\u2019s Going on in the Hospital?: A Qualitative Study Investigating Patient Experiences of Prolonged Hospitalization After Video-assisted Thoracoscopic Surgery","volume":"3","author":"Donsel","year":"2023","journal-title":"Cancer Care Research Online"},{"key":"2026062609354902000_16.3.e109575.75","doi-asserted-by":"crossref","first-page":"1467","DOI":"10.1016\/j.pec.2020.11.010","article-title":"Preoperative concerns of patients undergoing general surgery","volume":"104","author":"Cheng","year":"2021","journal-title":"Patient Educ Couns"},{"key":"2026062609354902000_16.3.e109575.76","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1111\/jan.12738","article-title":"A qualitative thematic review: emotional labour in healthcare settings","volume":"72","author":"Riley","year":"2016","journal-title":"J Adv Nurs"},{"key":"2026062609354902000_16.3.e109575.77","doi-asserted-by":"crossref","DOI":"10.1093\/ejcts\/ezae402","article-title":"Optimizing nurse staffing in thoracic surgery: the imperative of Enhanced Recovery Programs-a statement of the European Society of Thoracic Surgeons Nursing & Allied Health Professionals Working Group","volume":"65","author":"Fehlmann","year":"2024","journal-title":"Eur J Cardiothorac Surg"},{"key":"2026062609354902000_16.3.e109575.78","doi-asserted-by":"crossref","first-page":"569","DOI":"10.1111\/j.1365-2648.2012.06032.x","article-title":"Existential issues among nurses in surgical care--a hermeneutical study of critical incidents","volume":"69","author":"Udo","year":"2013","journal-title":"J Adv Nurs"},{"key":"2026062609354902000_16.3.e109575.79","doi-asserted-by":"crossref","first-page":"271","DOI":"10.1007\/s40520-017-0868-7","article-title":"Patients\u2019 preferences and existential perspective: what to consider and how should patient\u2019s expectations be guided?","volume":"30","author":"Holmes","year":"2018","journal-title":"Aging Clin Exp Res"},{"key":"2026062609354902000_16.3.e109575.80","doi-asserted-by":"crossref","unstructured":"Schoenau MN . Dominant restitution narratives of \u2018being lucky\u2019: An ethnographic exploration of narratives about operable lung cancer. European J Cancer Care 2022;31. doi:10.1111\/ecc.13633","DOI":"10.1111\/ecc.13633"},{"key":"2026062609354902000_16.3.e109575.81","doi-asserted-by":"crossref","unstructured":"Missel M , Witting N . It\u2019s you it\u2019s about! Exploring existential aspects on quality of life with myasthenia gravis. Med Health Care Philos 2025. doi:10.1007\/s11019-025-10320-4","DOI":"10.1007\/s11019-025-10320-4"},{"key":"2026062609354902000_16.3.e109575.82","doi-asserted-by":"crossref","first-page":"429","DOI":"10.1093\/tbm\/ibx077","article-title":"Patient and caregiver perspectives on care coordination during transitions of surgical care","volume":"8","author":"Brooke","year":"2018","journal-title":"Transl Behav Med"}],"container-title":["BMJ Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/bmjopen-2025-109575","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T16:38:57Z","timestamp":1782491937000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmjopen.bmj.com\/lookup\/doi\/10.1136\/bmjopen-2025-109575"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3]]},"references-count":82,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2026,3,9]]},"published-print":{"date-parts":[[2026,3]]}},"alternative-id":["10.1136\/bmjopen-2025-109575"],"URL":"https:\/\/doi.org\/10.1136\/bmjopen-2025-109575","relation":{},"ISSN":["2044-6055","2044-6055"],"issn-type":[{"value":"2044-6055","type":"print"},{"value":"2044-6055","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,3]]}}}