{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T07:25:17Z","timestamp":1772177117990,"version":"3.50.1"},"reference-count":19,"publisher":"BMJ","issue":"1","license":[{"start":{"date-parts":[[2024,1,10]],"date-time":"2024-01-10T00:00:00Z","timestamp":1704844800000},"content-version":"unspecified","delay-in-days":9,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["bmjph"],"accepted":{"date-parts":[[2023,12,7]]},"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:sec>\n                  <jats:title>Objectives<\/jats:title>\n                  <jats:p>This study aims to explore the lived experience of young adults with life-limiting conditions (YALLC) and how they perceive and navigate adulthood, to identify challenges and opportunities for improved care and support.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>A qualitative study using interpretative phenomenological analysis to understand how young adults who survived childhood serious illness make sense of current circumstances. Seven YALLC with different diagnoses ranging from 19 to 39 years were recruited through purposive sampling in a specialist paediatric palliative care service\/adult hospice. In-depth, semistructured interviews were conducted, and verbatim transcripts analysed iteratively.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Four major themes emerged: (1) living with limitations and in limbo\u2014compressed timelines and confusion, triggered by dissonance between age-expected versus developmentally appropriate aspirations and goals; (2) experiencing identity crises, confronting existential concerns and chasing the elusive goal of enduring connection\u2014struggle between public versus self-identities, including issues around self-worth and purpose; (3) striving for autonomy while tolerating interdependence\/codependence\u2014tensions arising from their desire for independence against the need to rely on others and (4) accepting and appreciating LLC as integral to one\u2019s existence\u2014demonstrating adaptability, creativity and resilience. Themes highlight a complex interplay of push-pull factors encountered by YALLC at multiple levels as they strive for a normative or negotiated life course.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusion<\/jats:title>\n                  <jats:p>YALLC face an intricate web of physical, psychoemotional, social and financial challenges compounded by underlying, persistent or progressive illnesses. Contextual understanding and identified gaps from this study will guide affirmative strategies to improve quality of life among a growing cohort.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1136\/bmjph-2023-000343","type":"journal-article","created":{"date-parts":[[2024,1,10]],"date-time":"2024-01-10T20:30:28Z","timestamp":1704918628000},"page":"e000343","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":2,"title":["\u2018I really feel like I am ageing early\u2019: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC)"],"prefix":"10.1136","volume":"2","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3157-507X","authenticated-orcid":false,"given":"Celene","family":"Ting","sequence":"first","affiliation":[{"name":"HCA Hospice, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-7818-6991","authenticated-orcid":false,"given":"Xiangyi","family":"Chen","sequence":"additional","affiliation":[{"name":"HCA Hospice, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ya Nee","family":"Poh","sequence":"additional","affiliation":[{"name":"HCA Hospice, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3130-6171","authenticated-orcid":false,"given":"Zhi Zheng","family":"Yeo","sequence":"additional","affiliation":[{"name":"HCA Hospice, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Qishun Raymond","family":"Ang","sequence":"additional","affiliation":[{"name":"HCA Hospice, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4241-3295","authenticated-orcid":false,"given":"Poh Heng","family":"Chong","sequence":"additional","affiliation":[{"name":"HCA Hospice, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2024,1,10]]},"reference":[{"key":"2025083110264898000_2.1.e000343.1","unstructured":"Together for Short Lives . Key information about children who may need palliative care. In: Together for Short Lives. 2023. Available: https:\/\/www.togetherforshortlives.org.uk\/changing-lives\/supporting-care-professionals\/introduction-childrens-palliative-care\/categories-of-life-limiting-conditions\/"},{"key":"2025083110264898000_2.1.e000343.2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2013.9518"},{"key":"2025083110264898000_2.1.e000343.3","unstructured":"Marsh S , Cameron M , Duggan M , et al . Young people with life-limiting conditions: transition to adulthood: Phase 1 report. Marie Curie Cancer Care, 2011. 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