{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T12:24:47Z","timestamp":1765887887919,"version":"3.44.0"},"reference-count":15,"publisher":"BMJ","issue":"1","funder":[{"DOI":"10.13039\/100002291","name":"Pulmonary Hypertension Association","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100002291","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open Resp Res"],"accepted":{"date-parts":[[2017,4,14]]},"published-print":{"date-parts":[[2017,6]]},"abstract":"<jats:sec>\n                  <jats:title>Introduction<\/jats:title>\n                  <jats:p>Pulmonary hypertension is life limiting. Delays in diagnosis are common, and even after treatment has been initiated, pulmonary hypertension has marked effects on many aspects of social and physical function. We believed that a new approach to examining disease impact could be achieved through a combination of narrative research and creative writing.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>Detailed unstructured narrative interviews with people with pulmonary hypertension were analysed thematically. Individual moments were also summarised and studied using creative writing, in which the interviewer created microstories from narrative and interview data. Stories were shared with their subjects, and with other patients, clinicians, researchers and the wider public. The study was carried out in hospital and in patients\u2019 homes.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Narrative analysis generated a rich data set which highlighted profound effects of pulmonary hypertension on identity, and demonstrated how the disease results in very marked personal change with ongoing and unpredictable requirement for adaptation. The novel methodology of microstory development proved to be an effective tool to summarise, communicate and explore the consequences of pulmonary hypertension and the clinical challenges of caring for patients with this illness.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>A holistic approach to treatment of chronic respiratory diseases such as pulmonary hypertension requires and benefits from explicit exploration of the full impacts of the illness. Narrative analysis and the novel approach of targeted microstory development can form a valuable component of the repertoire of approaches to effectively comprehend chronic disease and can also facilitate patient-focused discussion and interventions.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1136\/bmjresp-2017-000184","type":"journal-article","created":{"date-parts":[[2017,6,5]],"date-time":"2017-06-05T20:10:18Z","timestamp":1496693418000},"page":"e000184","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":4,"title":["Combining creative writing and narrative analysis to deliver new insights into the impact of pulmonary hypertension"],"prefix":"10.1136","volume":"4","author":[{"given":"Julia C","family":"Goddard","sequence":"first","affiliation":[{"name":"Department of Infection, Immunity and Cardiovascular Science, Faculty of Medicine, Dentistry and Health, University of Sheffield, Sheffield, UK"},{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"},{"name":"Medical Humanities Sheffield, University of Sheffield, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Iain J","family":"Armstrong","sequence":"additional","affiliation":[{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David G","family":"Kiely","sequence":"additional","affiliation":[{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlie A","family":"Elliot","sequence":"additional","affiliation":[{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Athanasios","family":"Charalampopoulos","sequence":"additional","affiliation":[{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robin","family":"Condliffe","sequence":"additional","affiliation":[{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brendan J","family":"Stone","sequence":"additional","affiliation":[{"name":"School of English, Faculty of Arts and Humanities, University of Sheffield, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ian","family":"Sabroe","sequence":"additional","affiliation":[{"name":"Department of Infection, Immunity and Cardiovascular Science, Faculty of Medicine, Dentistry and Health, University of Sheffield, Sheffield, UK"},{"name":"Sheffield Pulmonary Vascular Disease Unit, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"},{"name":"Medical Humanities Sheffield, University of Sheffield, Sheffield, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2017,6,5]]},"reference":[{"key":"2025083109393563000_4.1.e000184.1","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2011-000806","article-title":"The trajectory to diagnosis with pulmonary arterial hypertension: a qualitative study","volume":"2","author":"Armstrong","year":"2012","journal-title":"BMJ Open"},{"key":"2025083109393563000_4.1.e000184.2","doi-asserted-by":"crossref","unstructured":"Sabroe I , Withington P . Language matters: \u201ccounsel\u201d in early modern and modern medicine. In: Whitehead A , Woods A , eds. The Edinburgh Companion to the Critical Medical Humanities. Edinburgh: BMJ Publishing Group, 2016:508\u201326.","DOI":"10.1515\/9781474400053-032"},{"key":"2025083109393563000_4.1.e000184.3","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1186\/s12931-016-0388-6","article-title":"Development of the pulmonary arterial Hypertension-Symptoms and impact (PAH-SYMPACT\u00ae) questionnaire: a new patient-reported outcome instrument for PAH","volume":"17","author":"McCollister","year":"2016","journal-title":"Respir Res"},{"key":"2025083109393563000_4.1.e000184.4","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-005-3513-4"},{"key":"2025083109393563000_4.1.e000184.5","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00127113"},{"key":"2025083109393563000_4.1.e000184.6","doi-asserted-by":"publisher","DOI":"10.1513\/AnnalsATS.201412-572OC"},{"key":"2025083109393563000_4.1.e000184.7","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2013-004735","article-title":"Living with pulmonary hypertension: unique insights from an international ethnographic study","volume":"4","author":"Kingman","year":"2014","journal-title":"BMJ Open"},{"key":"2025083109393563000_4.1.e000184.8","doi-asserted-by":"publisher","DOI":"10.1183\/16000617.0078-2016"},{"key":"2025083109393563000_4.1.e000184.9","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2013.01.014"},{"key":"2025083109393563000_4.1.e000184.10","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp038249"},{"key":"2025083109393563000_4.1.e000184.11","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.318.7175.48"},{"key":"2025083109393563000_4.1.e000184.12","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(13)61129-0"},{"key":"2025083109393563000_4.1.e000184.13","unstructured":"Carel H . Illness: The Cry of the Flesh. BMJ Publishing Group, 2013:31."},{"key":"2025083109393563000_4.1.e000184.14","doi-asserted-by":"crossref","first-page":"691","DOI":"10.1353\/sor.2004.0045","article-title":"Life as a Narrative","volume":"71","author":"Bruner","year":"2004","journal-title":"Soc Res"},{"key":"2025083109393563000_4.1.e000184.15","doi-asserted-by":"publisher","DOI":"10.1136\/medhum-2016-011054"}],"container-title":["BMJ Open Respiratory Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/bmjresp-2017-000184","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,8,31]],"date-time":"2025-08-31T16:39:42Z","timestamp":1756658382000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmjopenrespres.bmj.com\/lookup\/doi\/10.1136\/bmjresp-2017-000184"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,6]]},"references-count":15,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2017,6,5]]},"published-print":{"date-parts":[[2017,6]]}},"alternative-id":["10.1136\/bmjresp-2017-000184"],"URL":"https:\/\/doi.org\/10.1136\/bmjresp-2017-000184","relation":{},"ISSN":["2052-4439"],"issn-type":[{"type":"electronic","value":"2052-4439"}],"subject":[],"published":{"date-parts":[[2017,6]]}}}