{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,24]],"date-time":"2026-08-24T22:41:47Z","timestamp":1787611307929,"version":"build-2736575974"},"reference-count":29,"publisher":"BMJ","issue":"1","funder":[{"name":"Scientific Commitee of Blekinge County Council"},{"name":"The Swedish Hearth-Lung Foundation"},{"name":"The Swedish Respiratory Society"},{"name":"The Swedish Society for Medical Research"},{"name":"The Swedish Society of Medicine"},{"name":"The Wera and Emil Cornell Foundation"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open Resp Res"],"published-print":{"date-parts":[[2019,2]]},"abstract":"<jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>Breathlessness, the subjective sensation of breathing discomfort, is common and appears in the daily life of people with cardiorespiratory diseases. Physicians often rely on patient\u2019s history based on symptom recall. The relation between recalled and experienced breathlessness is still poorly understood. This paper presents the protocol for a study primarily aimed at evaluating the relationship between experienced breathlessness and (1) recalled breathlessness and (2) predicted future breathlessness.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>A mobile phone application will be used to collect data during daily life. Medically stable participants, \u226518 years of age with mean daily breathlessness of Numerical Rating Scale (NRS) 3\/10 and able to use a mobile phone with internet will rate their breathlessness intensity on a 0\u201310 NRS prompted the user several times daily for 1\u2009week. Participants will recall their breathlessness each day and week. Multivariable random effects regression models will be used for statistical analyses.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Results of the study will be submitted for publication in peer-reviewed journals and presented at relevant conferences.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Discussion<\/jats:title>\n                  <jats:p>This protocol describes a study aimed at investigating previously unknown areas of the experience and recall of breathlessness using a new method of data collection.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Registration details<\/jats:title>\n                  <jats:p>Prospectively registered with ClinicalTrials.gov (Nr: <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"clintrialgov\" xlink:href=\"NCT03468205\">NCT03468205<\/jats:ext-link>).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Ethics and dissemination<\/jats:title>\n                  <jats:p>The study has received ethical approval from the Regional Ethical Review Board Lund (DNr 2017\/149). After a general study information including that participation is entirely voluntary, participants will answer the eligibility criteria and be asked to consent to participate before entering the study questions. Written informed consent to participate will be obtained for participants in the clinical sub-cohort. Participation can be discontinued at the discretion of the participant in which case no further data will be collected.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1136\/bmjresp-2018-000370","type":"journal-article","created":{"date-parts":[[2019,2,14]],"date-time":"2019-02-14T02:04:18Z","timestamp":1550109858000},"page":"e000370","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":8,"title":["Relating Experienced To Recalled breathlessness Observational (RETRO) study: a prospective study using a mobile phone application"],"prefix":"10.1136","volume":"6","clinical-trial-number":[{"clinical-trial-number":"nct03468205","registry":"10.18810\/clinical-trials-gov"}],"author":[{"given":"Jacob","family":"Sandberg","sequence":"first","affiliation":[{"name":"Department of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Lansing","sequence":"additional","affiliation":[{"name":"Department of Psychology, University of Arizona Tucson, Arizona, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Anderberg","sequence":"additional","affiliation":[{"name":"Department of Health, Blekinge Institute of Technology, Karlskrona, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Currow","sequence":"additional","affiliation":[{"name":"Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK"},{"name":"IMPACCT, Faculty of Health, University of Technology Sydney, Sydney, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josefin","family":"Sundh","sequence":"additional","affiliation":[{"name":"Department of Respiratory Medicine, School of Medical Sciences, \u00d6rebro University, \u00d6rebro, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zainab","family":"Ahmadi","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sebastian","family":"Palmqvist","sequence":"additional","affiliation":[{"name":"Clinical Memory Research Unit, Sweden, Lund, University, Neurology Clinic, Sk\u00e5ne University Hospital, Sweden, Europe"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7227-5113","authenticated-orcid":false,"given":"Magnus","family":"Ekstr\u00f6m","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2019,2,12]]},"reference":[{"key":"2025083111074402000_6.1.e000370.1","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00036813"},{"key":"2025083111074402000_6.1.e000370.2","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00165409"},{"key":"2025083111074402000_6.1.e000370.3","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-11-33"},{"key":"2025083111074402000_6.1.e000370.4","doi-asserted-by":"publisher","DOI":"10.1016\/j.resp.2008.07.012"},{"key":"2025083111074402000_6.1.e000370.5","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1016\/j.jpainsymman.2018.02.013","article-title":"Prevalence of dyspnea among hospitalized patients at the time of admission","volume":"56","author":"Stevens","year":"2018","journal-title":"J Pain Symptom Manage"},{"key":"2025083111074402000_6.1.e000370.6","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00038914"},{"key":"2025083111074402000_6.1.e000370.7","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1016\/S0004-9514(09)70078-9","article-title":"Quality of recalled dyspnoea is different from exercise-induced dyspnoea: an experimental study","volume":"55","author":"Williams","year":"2009","journal-title":"Aust J Physiother"},{"key":"2025083111074402000_6.1.e000370.8","doi-asserted-by":"crossref","first-page":"1166","DOI":"10.1037\/hea0000222","article-title":"Was it so bad? 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