{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T01:14:54Z","timestamp":1791249294119,"version":"4.1.0"},"reference-count":16,"publisher":"BMJ","issue":"1","license":[{"start":{"date-parts":[[2022,1,19]],"date-time":"2022-01-19T00:00:00Z","timestamp":1642550400000},"content-version":"unspecified","delay-in-days":18,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Mesothelioma UK"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open Resp Res"],"accepted":{"date-parts":[[2022,1,5]]},"published-print":{"date-parts":[[2022,1]]},"abstract":"<jats:sec>\n                  <jats:title>Objectives<\/jats:title>\n                  <jats:p>Malignant mesothelioma is an aggressive malignancy of mesothelial surfaces, most commonly those of the pleura. The aim of this study was to understand, using a national questionnaire, the gendered care experiences of patients with malignant pleural mesothelioma (MPM).<\/jats:p>\n                  <jats:p>Patients were asked about their experience of the diagnostic process, about information clarity, health care professionals\u2019 knowledge, general practitioner support and overall satisfaction with care received.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Setting<\/jats:title>\n                  <jats:p>Recruitment of patients was carried out in three UK countries (England, Wales and Scotland) via mesothelioma clinical nurse specialists.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Participants<\/jats:title>\n                  <jats:p>In total, 503 patients completed the questionnaire. 460 had MPM, the remainder had other types of mesothelioma. In accord with the study protocol, only the MPM patients were included in this study.<\/jats:p>\n                  <jats:p>Primary and secondary measures were: (1) time from symptom to diagnosis, (2) satisfaction with the diagnosis and treatment, and (3) quality of life and well-being.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>There were gender differences in time from symptom to diagnosis. The time from symptom to diagnosis was significantly longer for women than men (median=152 days vs men=92\u2009days, p=0.01). Lack of a verified source of exposure to asbestos was a hindrance to private treatment access for women (95% of those that access private treatment are men). Patients were five times more likely to be satisfied if they thought that the doctors knew enough about their condition (OR=4.4, p=0.001) and nearly three times more likely to be satisfied if information was presented in a sensitive way (OR=2.8,p=0.01).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>This study has several implications for clinical practice. Our findings suggest that the diagnostic time in women might be reduced by reviewing diagnostic processes including occupational history taking, and by revising the occupational risk of mesothelioma categorisation.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1136\/bmjresp-2021-001050","type":"journal-article","created":{"date-parts":[[2022,1,20]],"date-time":"2022-01-20T10:41:11Z","timestamp":1642675271000},"page":"e001050","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":9,"title":["Malignant pleural mesothelioma patients\u2019 experience by gender: findings from a cross-sectional UK-national questionnaire"],"prefix":"10.1136","volume":"9","author":[{"given":"Michaela","family":"Senek","sequence":"first","affiliation":[{"name":"Division of Nursing and Midwifery, School of Health Sciences, The University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steve","family":"Robertson","sequence":"additional","affiliation":[{"name":"Division of Nursing and Midwifery, School of Health Sciences, The University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Liz","family":"Darlison","sequence":"additional","affiliation":[{"name":"Mesothelioma UK, Leicester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lorraine","family":"Creech","sequence":"additional","affiliation":[{"name":"Mesothelioma UK, Leicester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angela","family":"Tod","sequence":"additional","affiliation":[{"name":"Division of Nursing and Midwifery, School of Health Sciences, The University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2022,1,20]]},"reference":[{"key":"2025083110420147000_9.1.e001050.1","doi-asserted-by":"publisher","DOI":"10.1183\/16000617.0063-2016"},{"key":"2025083110420147000_9.1.e001050.2","unstructured":"Cancer Research UK . Cancer research UK cancer incidence statistics. CancerResearchUK, 2018."},{"key":"2025083110420147000_9.1.e001050.3","unstructured":"PH S . Cytoreductive surgery and perioperative chemotherapy for peritoneal surface malignancy: textbook and video atlas. Cine-Med Publishers Woodbury, 2012."},{"key":"2025083110420147000_9.1.e001050.4","doi-asserted-by":"publisher","DOI":"10.1093\/occmed\/kqi034"},{"key":"2025083110420147000_9.1.e001050.5","unstructured":"Physicians RC of . National mesothelioma audit report."},{"key":"2025083110420147000_9.1.e001050.6","doi-asserted-by":"publisher","DOI":"10.1038\/sj.bjc.6604879"},{"key":"2025083110420147000_9.1.e001050.7","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2014.04.040"},{"key":"2025083110420147000_9.1.e001050.8","doi-asserted-by":"crossref","unstructured":"Stahel R , Bosco EF , Opitz I . Mesothelioma. In: Lung cancer therapy annual, 2008.","DOI":"10.3109\/9780203092132-10"},{"key":"2025083110420147000_9.1.e001050.9","doi-asserted-by":"crossref","first-page":"62","DOI":"10.1016\/j.ejon.2016.09.007","article-title":"A systematic literature review comparing the psychological care needs of patients with mesothelioma and advanced lung cancer","volume":"25","author":"Ball","year":"2016","journal-title":"Eur J Oncol Nurs"},{"key":"2025083110420147000_9.1.e001050.10","doi-asserted-by":"publisher","DOI":"10.1136\/bmjresp-2019-000413"},{"key":"2025083110420147000_9.1.e001050.11","first-page":"3509","article-title":"Managing malignant pleural mesothelioma: experience and perceptions of health care professionals caring for people with mesothelioma","volume":"27","author":"Warby","year":"2019","journal-title":"Support Care Cancer"},{"key":"2025083110420147000_9.1.e001050.12","unstructured":"Senek M , Steve Robertson AT . Mesothelioma: exploring gender differences in time to diagnosis, seeking legal advice and occupational risk. Cancer Nurs Pract 2020."},{"key":"2025083110420147000_9.1.e001050.13","doi-asserted-by":"crossref","first-page":"1528","DOI":"10.1002\/pon.3162","article-title":"'It's all bad news': the first 3 months following a diagnosis of malignant pleural mesothelioma","volume":"22","author":"Arber","year":"2013","journal-title":"Psychooncology"},{"key":"2025083110420147000_9.1.e001050.14","doi-asserted-by":"crossref","first-page":"101966","DOI":"10.1016\/j.ejon.2021.101966","article-title":"Gender and the experiences of living with mesothelioma: a thematic analysis","volume":"52","author":"Ejegi-Memeh","year":"2021","journal-title":"Eur J Oncol Nurs"},{"key":"2025083110420147000_9.1.e001050.15","doi-asserted-by":"crossref","first-page":"1032","DOI":"10.1016\/j.healthpol.2020.06.005","article-title":"Predictors of filing claims and receiving compensation in malignant mesothelioma patients","volume":"124","author":"Marinaccio","year":"2020","journal-title":"Health Policy"},{"key":"2025083110420147000_9.1.e001050.16","unstructured":"Morrin M , Jack Aldane HK . Don\u2019t breathe in: Bridging the Asbestos Safety Gap [Internet], 2019. 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