{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,21]],"date-time":"2026-01-21T02:45:39Z","timestamp":1768963539268,"version":"3.49.0"},"reference-count":26,"publisher":"BMJ","issue":"1","license":[{"start":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T00:00:00Z","timestamp":1768867200000},"content-version":"unspecified","delay-in-days":19,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Southwest NIHR CRN","award":["JM22-23\/DH_UK"],"award-info":[{"award-number":["JM22-23\/DH_UK"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open Resp Res"],"accepted":{"date-parts":[[2025,12,27]]},"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Patient-reported experience measures (PREMs) are a key component of healthcare accountability frameworks, health policy, integrated care board commissioning and integrated care partnerships generating data which are crucial markers of patient care quality. The Rheumatoid Arthritis Patient-Reported Experience Measure (RA-PREM) incorporates the eight core elements of NHS Patient Experience Framework and is validated in a range of rheumatic conditions. Our objective is to determine the acceptability and feasibility of the RA-PREM for an interstitial lung disease (ILD) population.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A mixed-methods patient-centred approach incorporating an interdisciplinary research steering group with patient partners. Patient surveys evaluated the language and meaning of the RA-PREM 8 domains, 24 statements and response categories. A patient focus group examined contentious statements. A consensus group of expert patient-partners agreed statements for the modified RA-PREM. Focus group participants reviewed the modified instrument (ILD-PREM) for acceptability and face\/content validity.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>A single NHSE-commissioned, regional ILD service\/UK.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thirteen patients (10 male) diagnosed with ILD participated in focus group discussions. Critical discussion of the RA-PREM resulted in nuanced modifications of four statements of three domains. Five patients (three male) and three healthcare researchers attained consensus on the face\/content validity of statements. Seventy-three patients completed the ILD-PREM following outpatient contact.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The ILD-PREM retains 24 statements representing the eight domains of the RA-PREM. It meets face\/content validity criteria and is acceptable to an ILD population. Longitudinal validation of the ILD-PREM across ILD services including further testing in global minority groups will establish criterion and construct validity and objective measures of reliability.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjresp-2025-003330","type":"journal-article","created":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T14:35:20Z","timestamp":1768919720000},"page":"e003330","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":0,"title":["Patient-reported experience measure (PREM) for patients with interstitial lung disease (ILD): modification of a pre-existing measure"],"prefix":"10.1136","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5218-4732","authenticated-orcid":false,"given":"Jessica","family":"Mandizha","sequence":"first","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK"},{"name":"Faculty of Health Sciences, University of Exeter, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlie","family":"Crook","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joseph","family":"Lanario","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK"},{"name":"College of Medicine and Health, University of Birmingham, Birmingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Davies","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna","family":"Duckworth","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter Hospital, Exeter, UK"},{"name":"Medical School, University of Exeter, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Howard P","family":"Almond","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon University Healthcare NHS Foundation Trust, Exeter, UK"},{"name":"School of Healthcare Professions, University of Exeter, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Lines","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Gibbons","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK"},{"name":"Faculty of Medicine, University of Exeter, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Chris","family":"Scotton","sequence":"additional","affiliation":[{"name":"NIHR Biomedical Research Centre, University of Exeter, Exeter, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0468-3537","authenticated-orcid":false,"given":"Anne-Marie","family":"Russell","sequence":"additional","affiliation":[{"name":"College of Medicine and Health, University of Birmingham, Birmingham, UK"},{"name":"The University of Adelaide Faculty of Health and Medical Sciences, Adelaide, South Australia, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2026,1,20]]},"reference":[{"key":"2026012006350948000_13.1.e003330.1","doi-asserted-by":"publisher","DOI":"10.1186\/s12931-020-1296-3"},{"key":"2026012006350948000_13.1.e003330.2","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.201308-1483ST"},{"key":"2026012006350948000_13.1.e003330.3","doi-asserted-by":"publisher","DOI":"10.1378\/chest.09-0444"},{"key":"2026012006350948000_13.1.e003330.4","unstructured":"National Institute for Health and Care Excellence . Idiopathic pulmonary fibrosis in adults: quality standard [QS79]. National Institute for Health and Care Excellence (NICE); 2015. Available: https:\/\/www.nice.org.uk\/guidance\/qs79 [Accessed 07 Mar 2024]."},{"key":"2026012006350948000_13.1.e003330.5","unstructured":"National Institute for Health and Care Excellence . Idiopathic pulmonary fibrosis in adults: diagnosis and management [CG163]. National Institute for Health and Care Excellence (NICE); 2017. Available: https:\/\/www.nice.org.uk\/guidance\/cg163 [Accessed 07 Mar 2024]."},{"key":"2026012006350948000_13.1.e003330.6","doi-asserted-by":"publisher","DOI":"10.1136\/bmjqs-2013-002707"},{"key":"2026012006350948000_13.1.e003330.7","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13494"},{"key":"2026012006350948000_13.1.e003330.8","unstructured":"NHS Patient Experience Framework . Gateway reference. 2011. Available: https:\/\/assets.publishing.service.gov.uk\/media\/5a7c62b740f0b62aff6c14e9\/dh_132788.pdf [Accessed 07 Mar 2024]."},{"key":"2026012006350948000_13.1.e003330.9","unstructured":"National Institute for Health and Care Excellence . Patient experience in adult NHS services: quality standard [QS15]. National Institute for Health and Care Excellence (NICE); 2019. Available: www.nice.org.uk\/guidance\/qs15 [Accessed 07 Mar 2024]."},{"key":"2026012006350948000_13.1.e003330.10","doi-asserted-by":"crossref","DOI":"10.1186\/s13643-015-0089-0","article-title":"Instruments to measure patient experience of healthcare quality in hospitals: a systematic review","volume":"4","author":"Beattie","year":"2015","journal-title":"Syst Rev"},{"key":"2026012006350948000_13.1.e003330.11","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzx027"},{"key":"2026012006350948000_13.1.e003330.12","doi-asserted-by":"publisher","DOI":"10.1111\/1475-6773.13187"},{"key":"2026012006350948000_13.1.e003330.13","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-021-02822-4"},{"key":"2026012006350948000_13.1.e003330.14","unstructured":"Health services advisory group CAHPS hospital survey (HCAHPS) quality assurance guidelines version. Centres for Medicare & Medicaid Services; 2024. 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