{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T10:08:06Z","timestamp":1791540486025,"version":"4.3.4"},"reference-count":106,"publisher":"BMJ","issue":"6","content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["Gut"],"published-print":{"date-parts":[[2017,6]]},"DOI":"10.1136\/gutjnl-2016-313000","type":"journal-article","created":{"date-parts":[[2017,2,23]],"date-time":"2017-02-23T01:10:18Z","timestamp":1487812218000},"page":"988-1000","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":106,"title":["UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care"],"prefix":"10.1136","volume":"66","author":[{"given":"Alenka J","family":"Brooks","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Philip J","family":"Smith","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Cohen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul","family":"Collins","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Douds","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Valda","family":"Forbes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel R","family":"Gaya","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian T","family":"Johnston","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick J","family":"McKiernan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charles D","family":"Murray","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shaji","family":"Sebastian","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monica","family":"Smith","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa","family":"Whitley","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lesley","family":"Williams","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard K","family":"Russell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sara A","family":"McCartney","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James O","family":"Lindsay","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2017,2,21]]},"reference":[{"key":"key-10.1136\/gutjnl-2016-313000-1","doi-asserted-by":"crossref","first-page":"830","DOI":"10.1016\/j.crohns.2012.01.010","article-title":"The requirements and barriers to successful transition of adolescents with inflammatory bowel disease: differing perceptions from a survey of adult and paediatric gastroenterologists","volume":"6","author":"Sebastian","year":"2012","journal-title":"J Crohns Colitis"},{"key":"key-10.1136\/gutjnl-2016-313000-2","doi-asserted-by":"crossref","first-page":"30","DOI":"10.12968\/gasn.2012.10.1.30","article-title":"Perspectives of transition care in inflammatory bowel disease: a survey","volume":"10","author":"Houston","year":"2012","journal-title":"Gastrointest Nurs"},{"key":"key-10.1136\/gutjnl-2016-313000-3","doi-asserted-by":"crossref","first-page":"734","DOI":"10.1016\/j.dld.2015.04.002","article-title":"Transition of gastroenterological patients from paediatric to adult care: A position statement by the Italian Societies of Gastroenterology","volume":"47","author":"Elli","year":"2015","journal-title":"Dig Liver Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-4","doi-asserted-by":"crossref","first-page":"570","DOI":"10.1016\/1054-139X(93)90143-D","article-title":"Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine","volume":"14","author":"Blum","year":"1993","journal-title":"J Adolesc Health"},{"key":"key-10.1136\/gutjnl-2016-313000-5","doi-asserted-by":"crossref","first-page":"1184","DOI":"10.1136\/gutjnl-2015-309164","article-title":"British Society of Gastroenterology policy and processes for the development of guidelines","volume":"64","author":"Tham","year":"2015","journal-title":"Gut"},{"key":"key-10.1136\/gutjnl-2016-313000-6","unstructured":"BSG. Advice on the production of guidelines British Society of Gastroenterology advice on the production of guidelines. 2016 (cited 23 Aug 2016). http:\/\/www.bsg.org.uk\/clinical-guidelines\/general\/advice-on-the-production-of-guidelines.html"},{"key":"key-10.1136\/gutjnl-2016-313000-7","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1016\/j.jclinepi.2010.04.026","article-title":"GRADE guidelines: 1. Introduction\u2014GRADE evidence profiles and summary of findings tables","volume":"64","author":"Guyatt","year":"2011","journal-title":"J Clin Epidemiol"},{"key":"key-10.1136\/gutjnl-2016-313000-8","doi-asserted-by":"crossref","first-page":"924","DOI":"10.1136\/bmj.39489.470347.AD","article-title":"GRADE: an emerging consensus on rating quality of evidence and strength of recommendations","volume":"336","author":"Guyatt","year":"2008","journal-title":"BMJ"},{"key":"key-10.1136\/gutjnl-2016-313000-9","doi-asserted-by":"crossref","first-page":"E472","DOI":"10.1503\/cmaj.091716","article-title":"Development of the AGREE II, part 2: assessment of validity of items and tools to support application","volume":"182","author":"Brouwers","year":"2010","journal-title":"CMAJ"},{"key":"key-10.1136\/gutjnl-2016-313000-10","doi-asserted-by":"crossref","first-page":"1179","DOI":"10.1016\/j.crohns.2014.04.005","article-title":"Consensus guidelines of ECCO\/ESPGHAN on the medical management of pediatric Crohn's disease","volume":"8","author":"Ruemmele","year":"2014","journal-title":"J Crohns Colitis"},{"key":"key-10.1136\/gutjnl-2016-313000-11","doi-asserted-by":"crossref","first-page":"340","DOI":"10.1097\/MPG.0b013e3182662233","article-title":"Management of pediatric ulcerative colitis: joint ECCO and ESPGHAN evidence-based consensus guidelines","volume":"55","author":"Turner","year":"2012","journal-title":"J Pediatr Gastroenterol Nutr"},{"key":"key-10.1136\/gutjnl-2016-313000-12","doi-asserted-by":"crossref","first-page":"242","DOI":"10.1097\/MPG.0b013e31819c0cf8","article-title":"Transition clinics in paediatric gastroenterology in the United Kingdom: room for improvement","volume":"51","author":"Muhammed","year":"2010","journal-title":"J Pediatr Gastroenterol Nutr"},{"key":"key-10.1136\/gutjnl-2016-313000-13","doi-asserted-by":"crossref","first-page":"505","DOI":"10.1097\/00005176-200304000-00019","article-title":"Transition clinics for adolescents with chronic gastrointestinal disease in the UK and Ireland","volume":"36","author":"Davies","year":"2003","journal-title":"J Pediatr Gastroenterol Nutr"},{"key":"key-10.1136\/gutjnl-2016-313000-14","doi-asserted-by":"crossref","first-page":"1242","DOI":"10.1136\/gutjnl-2016-311574","article-title":"Transition from childhood to adulthood in coeliac disease: the Prague consensus report","volume":"65","author":"Ludvigsson","year":"2016","journal-title":"Gut"},{"key":"key-10.1136\/gutjnl-2016-313000-15","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1111\/j.1442-2050.2011.01315.x","article-title":"Health-care transition from pediatric to adult-focused gastroenterology in patients with eosinophilic esophagitis","volume":"26","author":"Dellon","year":"2013","journal-title":"Dis Esophagus"},{"key":"key-10.1136\/gutjnl-2016-313000-16","doi-asserted-by":"crossref","first-page":"749","DOI":"10.1016\/j.gtc.2007.07.015","article-title":"Gastrointestinal motility disorders in adolescent patients: transitioning to adult care","volume":"36","author":"Sood","year":"2007","journal-title":"Gastroenterol Clin North Am"},{"key":"key-10.1136\/gutjnl-2016-313000-17","doi-asserted-by":"crossref","first-page":"1953","DOI":"10.1016\/S0140-6736(14)61838-9","article-title":"Addressing liver disease in the UK: a blueprint for attaining excellence in health care and reducing premature mortality from lifestyle issues of excess consumption of alcohol, obesity, and viral hepatitis","volume":"384","author":"Williams","year":"2014","journal-title":"Lancet"},{"key":"key-10.1136\/gutjnl-2016-313000-18","unstructured":"Annual Report on Liver Transplantation. 2014. http:\/\/www.odt.nhs.uk\/pdf\/organ_specific_report_liver_2014.pdf"},{"key":"key-10.1136\/gutjnl-2016-313000-19","doi-asserted-by":"crossref","first-page":"1114","DOI":"10.1053\/j.gastro.2008.06.081","article-title":"Definition of phenotypic characteristics of childhood-onset inflammatory bowel disease","volume":"135","author":"Van Limbergen","year":"2008","journal-title":"Gastroenterology"},{"key":"key-10.1136\/gutjnl-2016-313000-20","doi-asserted-by":"crossref","first-page":"1210","DOI":"10.1136\/gutjnl-2013-306578","article-title":"Diagnosis and management of adult coeliac disease: guidelines from the British Society of Gastroenterology","volume":"63","author":"Ludvigsson","year":"2014","journal-title":"Gut"},{"key":"key-10.1136\/gutjnl-2016-313000-21","doi-asserted-by":"crossref","first-page":"557","DOI":"10.1111\/j.1365-2214.2008.00844.x","article-title":"Transition to adult care: experiences and expectations of adolescents with a chronic illness","volume":"34","author":"Tuchman","year":"2008","journal-title":"Child Care Health Dev"},{"key":"key-10.1136\/gutjnl-2016-313000-22","doi-asserted-by":"crossref","first-page":"e1134","DOI":"10.1542\/peds.2009-0041","article-title":"Transition to adult care for youths with diabetes mellitus: findings from a Universal Health Care System","volume":"124","author":"Nakhla","year":"2009","journal-title":"Pediatrics"},{"key":"key-10.1136\/gutjnl-2016-313000-23","doi-asserted-by":"crossref","first-page":"649","DOI":"10.1046\/j.1464-5491.2002.00757.x","article-title":"Current methods of transfer of young people with Type 1 diabetes to adult services","volume":"19","author":"Kipps","year":"2002","journal-title":"Diabet Med"},{"key":"key-10.1136\/gutjnl-2016-313000-24","doi-asserted-by":"crossref","first-page":"485","DOI":"10.1136\/heartjnl-2012-302831","article-title":"Loss to specialist follow-up in congenital heart disease; out of sight, out of mind","volume":"99","author":"Wray","year":"2013","journal-title":"Heart"},{"key":"key-10.1136\/gutjnl-2016-313000-25","doi-asserted-by":"crossref","first-page":"697","DOI":"10.1002\/pbc.24870","article-title":"Identification of risk factors for an unsuccessful transition from pediatric to adult sickle cell disease care","volume":"61","author":"Andemariam","year":"2014","journal-title":"Pediatr Blood Cancer"},{"key":"key-10.1136\/gutjnl-2016-313000-26","doi-asserted-by":"crossref","first-page":"608","DOI":"10.1111\/j.1399-3046.2007.00689.x","article-title":"Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services","volume":"11","author":"Annunziato","year":"2007","journal-title":"Pediatr Transplant"},{"key":"key-10.1136\/gutjnl-2016-313000-27","doi-asserted-by":"crossref","first-page":"469","DOI":"10.1007\/s004670050794","article-title":"Non-compliance and transfer from paediatric to adult transplant unit","volume":"14","author":"Watson","year":"2000","journal-title":"Pediatr Nephrol"},{"key":"key-10.1136\/gutjnl-2016-313000-28","doi-asserted-by":"crossref","first-page":"212","DOI":"10.1016\/j.jadohealth.2015.04.012","article-title":"Evaluation of outcomes in adolescent inflammatory bowel disease patients following transfer from pediatric to adult health care services: case for transition","volume":"57","author":"Cole","year":"2015","journal-title":"J Adolesc Health"},{"key":"key-10.1136\/gutjnl-2016-313000-29","doi-asserted-by":"crossref","first-page":"2437","DOI":"10.1111\/j.1572-0241.2004.40182.x","article-title":"Celiac disease and the transition from childhood to adulthood: a 28-year follow-up","volume":"99","author":"O'Leary","year":"2004","journal-title":"Am J Gastroenterol"},{"key":"key-10.1136\/gutjnl-2016-313000-30","doi-asserted-by":"crossref","first-page":"203","DOI":"10.1097\/00042737-200602000-00014","article-title":"Disease characteristics as determinants of the labour market position of adolescents and young adults with chronic digestive disorders","volume":"18","author":"Calsbeek","year":"2006","journal-title":"Eur J Gastroenterol Hepatol"},{"key":"key-10.1136\/gutjnl-2016-313000-31","first-page":"1064","article-title":"Work losses related to inflammatory bowel disease in the United States: results from The National Health Interview Survey","volume":"98","author":"Longobardi","year":"2003","journal-title":"Am J Gastroenterol"},{"key":"key-10.1136\/gutjnl-2016-313000-32","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1111\/j.1365-2265.2008.03467.x","article-title":"Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach","volume":"71","author":"Cadario","year":"2009","journal-title":"Clin Endocrinol (Oxf)"},{"key":"key-10.1136\/gutjnl-2016-313000-33","doi-asserted-by":"crossref","first-page":"548","DOI":"10.1136\/adc.2010.202473","article-title":"Improving the transition between paediatric and adult healthcare: a systematic review","volume":"96","author":"Crowley","year":"2011","journal-title":"Arch Dis Child"},{"key":"key-10.1136\/gutjnl-2016-313000-34","doi-asserted-by":"crossref","first-page":"764","DOI":"10.1111\/j.1464-5491.2007.02152.x","article-title":"A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15\u201325\u2005years","volume":"24","author":"Holmes-Walker","year":"2007","journal-title":"Diabet Med"},{"key":"key-10.1136\/gutjnl-2016-313000-35","doi-asserted-by":"crossref","first-page":"1529","DOI":"10.2337\/dc07-2247","article-title":"Evaluation of a systems navigator model for transition from pediatric to adult care for young adults with type 1 diabetes","volume":"31","author":"Van Walleghem","year":"2008","journal-title":"Diabetes Care"},{"key":"key-10.1136\/gutjnl-2016-313000-36","doi-asserted-by":"crossref","first-page":"161","DOI":"10.1093\/rheumatology\/kel198","article-title":"The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis","volume":"46","author":"McDonagh","year":"2007","journal-title":"Rheumatology"},{"key":"key-10.1136\/gutjnl-2016-313000-37","doi-asserted-by":"crossref","first-page":"1113","DOI":"10.1136\/heartjnl-2014-305748","article-title":"Healthcare transition for youth with heart disease: a clinical trial","volume":"100","author":"Mackie","year":"2014","journal-title":"Heart"},{"key":"key-10.1136\/gutjnl-2016-313000-38","doi-asserted-by":"crossref","first-page":"e3718","DOI":"10.1136\/bmj.e3718","article-title":"Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure","volume":"344","author":"Harden","year":"2012","journal-title":"BMJ"},{"key":"key-10.1136\/gutjnl-2016-313000-39","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1016\/j.gcb.2008.01.044","article-title":"Transition of patients with inflammatory bowel disease from pediatric to adult care","volume":"32","author":"Dabadie","year":"2008","journal-title":"Gastroent\u00e9rologie Clin Biol"},{"key":"key-10.1136\/gutjnl-2016-313000-40","doi-asserted-by":"crossref","first-page":"e1639","DOI":"10.1542\/peds.2013-2830","article-title":"Preparing adolescents with chronic disease for transition to adult care: A technology program","volume":"133","author":"Huang","year":"2014","journal-title":"Pediatrics"},{"key":"key-10.1136\/gutjnl-2016-313000-41","doi-asserted-by":"crossref","first-page":"944","DOI":"10.1111\/j.1399-3046.2010.01349.x","article-title":"Assessment of transition readiness skills and adherence in pediatric liver transplant recipients","volume":"14","author":"Fredericks","year":"2010","journal-title":"Pediatr Transpl"},{"key":"key-10.1136\/gutjnl-2016-313000-42","doi-asserted-by":"crossref","first-page":"1628","DOI":"10.1016\/j.jpeds.2013.07.031","article-title":"Strangers headed to a strange land? A pilot study of using a transition coordinator to improve transfer from pediatric to adult services","volume":"163","author":"Annunziato","year":"2013","journal-title":"J Pediatr"},{"key":"key-10.1136\/gutjnl-2016-313000-43","doi-asserted-by":"crossref","first-page":"802","DOI":"10.1136\/adc.2006.103796","article-title":"Transition of care from paediatric to adult rheumatology","volume":"92","author":"McDonagh","year":"2007","journal-title":"Arch Dis Child"},{"key":"key-10.1136\/gutjnl-2016-313000-44","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1111\/j.1440-1754.1997.tb01005.x","article-title":"Chronic illness in adolescents: transfer or transition to adult services?","volume":"33","author":"Sawyer","year":"1997","journal-title":"J Paediatr Child Health"},{"key":"key-10.1136\/gutjnl-2016-313000-45","doi-asserted-by":"crossref","first-page":"303","DOI":"10.1177\/152692480601600404","article-title":"Smoothing things over: the transition from pediatric to adult care for kidney transplant recipients","volume":"16","author":"Remorino","year":"2006","journal-title":"Prog Transpl"},{"key":"key-10.1136\/gutjnl-2016-313000-46","doi-asserted-by":"crossref","first-page":"78","DOI":"10.1136\/adc.2009.163931","article-title":"Transition to adult services for children and young people with palliative care needs: a systematic review","volume":"96","author":"Doug","year":"2011","journal-title":"Arch Dis Child"},{"key":"key-10.1136\/gutjnl-2016-313000-47","doi-asserted-by":"crossref","first-page":"3744","DOI":"10.3748\/wjg.15.3744","article-title":"Transition of children with inflammatory bowel disease: big task, little evidence","volume":"15","author":"El-Matary","year":"2009","journal-title":"World J Gastroenterol"},{"key":"key-10.1136\/gutjnl-2016-313000-48","doi-asserted-by":"crossref","first-page":"317","DOI":"10.1370\/afm.570","article-title":"Challenges of change: a qualitative study of chronic care model implementation","volume":"4","author":"Hroscikoski","year":"2006","journal-title":"Ann Fam Med"},{"key":"key-10.1136\/gutjnl-2016-313000-49","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1111\/j.1399-3046.2007.00789.x","article-title":"Transitioning health care responsibility from caregivers to patient: a pilot study aiming to facilitate medication adherence during this process","volume":"12","author":"Annunziato","year":"2008","journal-title":"Pediatr Transplant"},{"key":"key-10.1136\/gutjnl-2016-313000-50","doi-asserted-by":"crossref","first-page":"439","DOI":"10.1111\/j.1365-2214.2004.00440.x","article-title":"Good practices that address continuity during transition from child to adult care: synthesis of the evidence","volume":"30","author":"While","year":"2004","journal-title":"Child Care Heal Dev"},{"key":"key-10.1136\/gutjnl-2016-313000-51","doi-asserted-by":"crossref","first-page":"509","DOI":"10.1016\/j.crohns.2011.03.015","article-title":"Adolescents with IBD: the importance of structured transition care","volume":"5","author":"Goodhand","year":"2011","journal-title":"J Crohns Colitis"},{"key":"key-10.1136\/gutjnl-2016-313000-52","doi-asserted-by":"crossref","first-page":"2169","DOI":"10.1002\/ibd.21576","article-title":"Transitioning the adolescent inflammatory bowel disease patient: guidelines for the adult and pediatric gastroenterologist","volume":"17","author":"Leung","year":"2011","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-53","doi-asserted-by":"crossref","first-page":"652","DOI":"10.12968\/bjon.2010.19.10.48205","article-title":"\u201cTransition: moving on well\u201d\u2014from paediatric to adult health care","volume":"19","author":"Pywell","year":"2010","journal-title":"Br J Nurs"},{"key":"key-10.1136\/gutjnl-2016-313000-54","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1111\/j.1365-2702.2009.03027.x","article-title":"Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness","volume":"19","author":"Rapley","year":"2010","journal-title":"J Clin Nurs"},{"key":"key-10.1136\/gutjnl-2016-313000-55","doi-asserted-by":"crossref","first-page":"823","DOI":"10.1111\/j.1399-3046.2010.01348.x","article-title":"A translational and systemic approach to transferring liver transplant recipients from pediatric to adult-oriented care settings","volume":"14","author":"Annunziato","year":"2010","journal-title":"Pediatr Transplant"},{"key":"key-10.1136\/gutjnl-2016-313000-56","doi-asserted-by":"crossref","first-page":"218","DOI":"10.1207\/s15326888chc1804_4","article-title":"Assessment of readiness to transfer to adult care for adolescents with cystic fibrosis","volume":"18","author":"Cappelli","year":"1989","journal-title":"Child Health Care"},{"key":"key-10.1136\/gutjnl-2016-313000-57","doi-asserted-by":"crossref","first-page":"744","DOI":"10.3109\/0886022X.2012.678171","article-title":"A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale","volume":"34","author":"Ferris","year":"2012","journal-title":"Ren Fail"},{"key":"key-10.1136\/gutjnl-2016-313000-58","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1093\/jpepsy\/jsr049","article-title":"Getting ready to leave: transition readiness in adolescent kidney transplant recipients","volume":"37","author":"Gilleland","year":"2012","journal-title":"J Pediatr Psychol"},{"key":"key-10.1136\/gutjnl-2016-313000-59","doi-asserted-by":"crossref","first-page":"291","DOI":"10.1177\/152692480601600403","article-title":"The ON TRAC model for transitional care of adolescents","volume":"16","author":"Paone","year":"2006","journal-title":"Prog Transpl"},{"key":"key-10.1136\/gutjnl-2016-313000-60","doi-asserted-by":"crossref","first-page":"160","DOI":"10.1093\/jpepsy\/jsp128","article-title":"Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ\u2014Transition Readiness Assessment Questionnaire","volume":"36","author":"Sawicki","year":"2011","journal-title":"J Pediatr Psychol"},{"key":"key-10.1136\/gutjnl-2016-313000-61","doi-asserted-by":"crossref","first-page":"415","DOI":"10.1016\/j.acap.2014.03.008","article-title":"The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity","volume":"14","author":"Wood","year":"2014","journal-title":"Acad Pediatr"},{"key":"key-10.1136\/gutjnl-2016-313000-62","doi-asserted-by":"crossref","first-page":"588","DOI":"10.1093\/jpepsy\/jsu028","article-title":"Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development","volume":"39","author":"Schwartz","year":"2014","journal-title":"J Pediatr Psychol"},{"key":"key-10.1136\/gutjnl-2016-313000-63","doi-asserted-by":"crossref","first-page":"e375","DOI":"10.1016\/j.crohns.2013.02.017","article-title":"Self-efficacy in adolescents with inflammatory bowel disease: a pilot study of the \u201cIBD-yourself\u201d, a disease-specific questionnaire","volume":"7","author":"Zijlstra","year":"2013","journal-title":"J Crohns Colitis"},{"key":"key-10.1136\/gutjnl-2016-313000-64","doi-asserted-by":"crossref","first-page":"428","DOI":"10.1002\/ppul.1154","article-title":"Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views","volume":"32","author":"Boyle","year":"2001","journal-title":"Pediatr Pulmonol"},{"key":"key-10.1136\/gutjnl-2016-313000-65","doi-asserted-by":"crossref","first-page":"1131","DOI":"10.1002\/ibd.21464","article-title":"Assessment of knowledge in adolescents with inflammatory bowel disease using a novel transition tool","volume":"17","author":"Benchimol","year":"2011","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-66","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1002\/edn.5","article-title":"Impact of a special education programme in patients transferred from a paediatric to an adult diabetes unit","volume":"1","author":"Vidal","year":"2004","journal-title":"Eur Diabetes Nurs"},{"key":"key-10.1136\/gutjnl-2016-313000-67"},{"key":"key-10.1136\/gutjnl-2016-313000-68","first-page":"e7","article-title":"Text Messaging Improves Participation in Laboratory Testing in Adolescent Liver Transplant Patients","volume":"7","author":"McKenzie","year":"2015","journal-title":"J Particip Med"},{"key":"key-10.1136\/gutjnl-2016-313000-69","doi-asserted-by":"crossref","first-page":"991","DOI":"10.1089\/152091503322641042","article-title":"\u201cSweet Talk\u201d: text messaging support for intensive insulin therapy for young people with diabetes","volume":"5","author":"Franklin","year":"2003","journal-title":"Diabetes Technol Ther"},{"key":"key-10.1136\/gutjnl-2016-313000-70","doi-asserted-by":"crossref","first-page":"366","DOI":"10.5694\/j.1326-5377.2005.tb07085.x","article-title":"Use of SMS text messaging to improve outpatient attendance","volume":"183","author":"Downer","year":"2005","journal-title":"Med J Aust"},{"key":"key-10.1136\/gutjnl-2016-313000-71","doi-asserted-by":"crossref","first-page":"1001","DOI":"10.1111\/j.1464-5491.2011.03302.x","article-title":"Mobile phone support is associated with reduced ketoacidosis in young adults","volume":"28","author":"Farrell","year":"2011","journal-title":"Diabet Med"},{"key":"key-10.1136\/gutjnl-2016-313000-72","doi-asserted-by":"crossref","first-page":"421","DOI":"10.1016\/j.pec.2015.10.024","article-title":"A multicenter prospective quasi-experimental study on the impact of a transition-oriented generic patient education program on health service participation and quality of life in adolescents and young adults","volume":"99","author":"Schmidt","year":"2016","journal-title":"Patient Educ Couns"},{"key":"key-10.1136\/gutjnl-2016-313000-73","doi-asserted-by":"crossref","first-page":"364","DOI":"10.1111\/j.1399-3046.2004.00287.x","article-title":"Growing up and moving on: transition from pediatric to adult care","volume":"9","author":"McDonagh","year":"2005","journal-title":"Pediatr Transpl"},{"key":"key-10.1136\/gutjnl-2016-313000-74","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1097\/01.MIB.0000194182.85047.6a","article-title":"Educate, communicate, anticipate-practical recommendations for transitioning adolescents with IBD to adult health care","volume":"12","author":"Hait","year":"2006","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-75","doi-asserted-by":"crossref","first-page":"223","DOI":"10.1080\/09638280310001644924","article-title":"Experiences of adolescents with cystic fibrosis during their transition from paediatric to adult health care: a qualitative study of young Australian adults","volume":"26","author":"Brumfield","year":"2004","journal-title":"Disabil Rhabil"},{"key":"key-10.1136\/gutjnl-2016-313000-76","first-page":"132","article-title":"Evaluation of patients\u2019 opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care","volume":"67","author":"Busse","year":"2007","journal-title":"Horm Res"},{"key":"key-10.1136\/gutjnl-2016-313000-77","doi-asserted-by":"crossref","first-page":"404","DOI":"10.7861\/clinmedicine.14-4-404","article-title":"Young adults as users of adult healthcare: experiences of young adults with complex or life-limiting conditions","volume":"14","author":"Beresford","year":"2014","journal-title":"Clin Med"},{"key":"key-10.1136\/gutjnl-2016-313000-78","doi-asserted-by":"crossref","first-page":"738","DOI":"10.1016\/j.ijnurstu.2012.04.014","article-title":"Liminality and transfer to adult services: a qualitative investigation involving young people with cystic fibrosis","volume":"50","author":"Tierney","year":"2013","journal-title":"Int J Nurs Stud"},{"key":"key-10.1136\/gutjnl-2016-313000-79","doi-asserted-by":"crossref","first-page":"1458","DOI":"10.1097\/MIB.0000000000000045","article-title":"Transition of the patient with IBD from pediatric to adult care-an assessment of current evidence","volume":"20","author":"de Silva","year":"2014","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-80","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1177\/152692480601600405","article-title":"There to here: young adult patients\u2019 perceptions of the process of transition from pediatric to adult transplant care","volume":"16","author":"McCurdy","year":"2006","journal-title":"Prog Translant"},{"key":"key-10.1136\/gutjnl-2016-313000-81","doi-asserted-by":"crossref","first-page":"1052","DOI":"10.2337\/diacare.26.4.1052","article-title":"Poor prognosis of young adults with type 1 diabetes: a longitudinal study","volume":"26","author":"Bryden","year":"2003","journal-title":"Diabetes Care"},{"key":"key-10.1136\/gutjnl-2016-313000-82","doi-asserted-by":"crossref","first-page":"1218","DOI":"10.1097\/MIB.0b013e318280b13e","article-title":"Incidence, clinical characteristics, and natural history of pediatric IBD in Wisconsin: a population-based epidemiological study","volume":"19","author":"Adamiak","year":"2013","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-83","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1002\/ibd.20693","article-title":"Profile of depression in adolescents with inflammatory bowel disease: implications for treatment","volume":"15","author":"Szigethy","year":"2009","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-84","doi-asserted-by":"crossref","first-page":"395","DOI":"10.1097\/00005176-200410000-00017","article-title":"Depressive symptoms and inflammatory bowel disease in children and adolescents: a cross-sectional study","volume":"39","author":"Szigethy","year":"2004","journal-title":"J Pediatr Gastroenterol Nutr"},{"key":"key-10.1136\/gutjnl-2016-313000-85","doi-asserted-by":"crossref","first-page":"1011","DOI":"10.1023\/B:QURE.0000025598.89003.0c","article-title":"Coping strategies and quality of life of adolescents with inflammatory bowel disease","volume":"13","author":"van der Zaag-Loonen","year":"2004","journal-title":"Qual Life Res"},{"key":"key-10.1136\/gutjnl-2016-313000-86","doi-asserted-by":"crossref","first-page":"1386","DOI":"10.1136\/gut.2007.134817","article-title":"Predicting relapse in Crohn's disease: a biopsychosocial model","volume":"57","author":"Bitton","year":"2008","journal-title":"Gut"},{"key":"key-10.1136\/gutjnl-2016-313000-87","doi-asserted-by":"crossref","first-page":"726","DOI":"10.1016\/j.jaac.2014.04.014","article-title":"Randomized Efficacy Trial of Two Psychotherapies for Depression in Youth With Inflammatory Bowel Disease","volume":"53","author":"Szigethy","year":"2014","journal-title":"J Am Acad Child Adolesc Psychiatry"},{"key":"key-10.1136\/gutjnl-2016-313000-88","doi-asserted-by":"crossref","first-page":"359","DOI":"10.1016\/j.pedhc.2012.03.004","article-title":"Parental experiences transitioning their adolescent with epilepsy and cognitive impairments to adult health care","volume":"27","author":"Schultz","year":"2013","journal-title":"J Pediatr Heal Care"},{"key":"key-10.1136\/gutjnl-2016-313000-89","doi-asserted-by":"crossref","first-page":"770","DOI":"10.1093\/rheumatology\/keh175","article-title":"User perspectives of transitional care for adolescents with juvenile idiopathic arthritis","volume":"43","author":"Shaw","year":"2004","journal-title":"Rheumatology"},{"key":"key-10.1136\/gutjnl-2016-313000-90","doi-asserted-by":"crossref","first-page":"225","DOI":"10.1016\/S1054-139X(02)00396-8","article-title":"Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs","volume":"32","author":"Geenen","year":"2003","journal-title":"J Adolesc Heal"},{"key":"key-10.1136\/gutjnl-2016-313000-91","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1097\/MEG.0b013e32834d09f1","article-title":"Evaluation of a group-based behavioral intervention to promote adherence in adolescents with inflammatory bowel disease","volume":"24","author":"Hommel","year":"2012","journal-title":"Eur J Gastroenterol Hepatol"},{"key":"key-10.1136\/gutjnl-2016-313000-92","doi-asserted-by":"crossref","first-page":"1534","DOI":"10.1097\/MIB.0b013e3182813482","article-title":"Practical strategies for enhancing adherence to treatment regimen in inflammatory bowel disease","volume":"19","author":"Greenley","year":"2013","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-93","first-page":"8","article-title":"How do adolescents with juvenile chronic arthritis consider their disease related knowledge, their unmet service needs, and the attractiveness of various services?","volume":"7","author":"Ullrich","year":"2002","journal-title":"Eur J Med Res"},{"key":"key-10.1136\/gutjnl-2016-313000-94","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1093\/jpepsy\/18.1.83","article-title":"Conceptions of illness by children with juvenile rheumatoid arthritis: a cognitive developmental approach","volume":"18","author":"Berry","year":"1993","journal-title":"J Pediatr Psychol"},{"key":"key-10.1136\/gutjnl-2016-313000-95","doi-asserted-by":"crossref","first-page":"2310","DOI":"10.1002\/ibd.22937","article-title":"When independent healthcare behaviors develop in adolescents with inflammatory bowel disease","volume":"18","author":"van Groningen","year":"2012","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-96","doi-asserted-by":"crossref","first-page":"1129","DOI":"10.1177\/0009922810379042","article-title":"Self-management of older adolescents with inflammatory bowel disease: a pilot study of behavior and knowledge as prelude to transition","volume":"49","author":"Fishman","year":"2010","journal-title":"Clin Paediatr"},{"key":"key-10.1136\/gutjnl-2016-313000-97","doi-asserted-by":"crossref","first-page":"819","DOI":"10.1111\/j.1399-3046.2011.01582.x","article-title":"Developmental and disease-related influences on self-management acquisition among pediatric liver transplant recipients","volume":"15","author":"Piering","year":"2011","journal-title":"Pediat Transpl"},{"key":"key-10.1136\/gutjnl-2016-313000-98","doi-asserted-by":"crossref","first-page":"423","DOI":"10.1002\/ibd.21349","article-title":"Epidemiology of pediatric inflammatory bowel disease: a systematic review of international trends","volume":"17","author":"Benchimol","year":"2011","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-99","doi-asserted-by":"crossref","first-page":"429","DOI":"10.1016\/j.jadohealth.2010.10.016","article-title":"Patients\u2019 perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies","volume":"48","author":"Lugasi","year":"2011","journal-title":"J Adolesc Health"},{"key":"key-10.1136\/gutjnl-2016-313000-100","doi-asserted-by":"crossref","first-page":"735","DOI":"10.1155\/2004\/474232","article-title":"Say goodbye and say hello: the transition from pediatric to adult gastroenterology","volume":"18","author":"Pinzon","year":"2004","journal-title":"Can J Gastroenterol"},{"key":"key-10.1136\/gutjnl-2016-313000-101","doi-asserted-by":"crossref","first-page":"363","DOI":"10.1177\/152692480501500408","article-title":"Transfer versus transition: success in pediatric transplantation brings the welcome challenge of transition","volume":"15","author":"Stabile","year":"2005","journal-title":"Progr Transpl"},{"key":"key-10.1136\/gutjnl-2016-313000-102","doi-asserted-by":"crossref","first-page":"841","DOI":"10.1111\/j.1365-2214.2011.01317.x","article-title":"\u201cDown the rabbit hole\u201d: enhancing the transition process for youth with cystic fibrosis and congenital heart disease by re-imagining the future and time","volume":"37","author":"Moola","year":"2011","journal-title":"Child Care Health Dev"},{"key":"key-10.1136\/gutjnl-2016-313000-103","doi-asserted-by":"crossref","first-page":"657","DOI":"10.1002\/ibd.21090","article-title":"Female gender and surgery impair relationships, body image, and sexuality in inflammatory bowel disease: patient perceptions","volume":"16","author":"Muller","year":"2010","journal-title":"Inflamm Bowel Dis"},{"key":"key-10.1136\/gutjnl-2016-313000-104","doi-asserted-by":"crossref","first-page":"493","DOI":"10.1016\/j.crohns.2010.07.004","article-title":"European evidenced-based consensus on reproduction in inflammatory bowel disease","volume":"4","author":"van der Woude","year":"2010","journal-title":"J Crohns Colitis"},{"key":"key-10.1136\/gutjnl-2016-313000-105","doi-asserted-by":"crossref","first-page":"1162","DOI":"10.1002\/art.23928","article-title":"Young people first, juvenile idiopathic arthritis second: Transitional care in rheumatology","volume":"59","author":"McDonagh","year":"2008","journal-title":"Arthritis Rheus"},{"key":"key-10.1136\/gutjnl-2016-313000-106","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1177\/1049732314523505","article-title":"Internalizing motivation to self-care: a multifaceted challenge for young liver transplant recipients","volume":"24","author":"Aujoulat","year":"2014","journal-title":"Qual Heal Res"}],"container-title":["Gut"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/gutjnl-2016-313000","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,10,2]],"date-time":"2020-10-02T22:05:55Z","timestamp":1601676355000},"score":1,"resource":{"primary":{"URL":"https:\/\/gut.bmj.com\/lookup\/doi\/10.1136\/gutjnl-2016-313000"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,2,21]]},"references-count":106,"journal-issue":{"issue":"6","published-online":{"date-parts":[[2017,5,12]]},"published-print":{"date-parts":[[2017,6]]}},"alternative-id":["10.1136\/gutjnl-2016-313000"],"URL":"https:\/\/doi.org\/10.1136\/gutjnl-2016-313000","relation":{},"ISSN":["0017-5749","1468-3288"],"issn-type":[{"value":"0017-5749","type":"print"},{"value":"1468-3288","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,2,21]]}}}