{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,9]],"date-time":"2026-01-09T00:50:50Z","timestamp":1767919850293,"version":"3.49.0"},"reference-count":20,"publisher":"BMJ","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Epidemiol Community Health"],"published-print":{"date-parts":[[1995,2]]},"abstract":"<jats:p>STUDY OBJECTIVES--To describe the uses of the Independent Living Fund (ILF) in south east London and to highlight users' views about the system of cash versus care provision for people with disabilities. DESIGN--Face to face interviews between users of the fund and an interviewer to discuss cash for care, using a structured questionnaire. SETTING--Interviews took place in the person's home. PARTICIPANTS--The database at the ILF headquarters in Nottingham of all recipients of the fund was used. People were entered into the study on an \"opt-in\" basis. RESULTS--Ninety five people were interviewed, of whom 72 (76%) had a modified Barthel score of less than 10. Before the ILF award, 31 (32%) people had received no community services, although it seems that social services were targeted at those living alone among the remaining 64 people. After the award, 23 of the 64 (36%) had their community services reduced or withdrawn. Sixty eight (71%) people bought a total care package with their award. Forty two people (44%) used agency care and a quarter of these had complaints about the quality of care. Seventy four (78%) overall, and 93% of those from ethnic minorities, would opt for a system of cash for care again. CONCLUSIONS--People used the ILF successfully to procure care of a type and flexibility which suited them and enabled them to live independently. Central government should reconsider wider cash for care schemes and the possibility of having both the statutory and non-statutory sectors on contract to some care users.<\/jats:p>","DOI":"10.1136\/jech.49.1.43","type":"journal-article","created":{"date-parts":[[2008,11,12]],"date-time":"2008-11-12T15:10:54Z","timestamp":1226502654000},"page":"43-47","source":"Crossref","is-referenced-by-count":6,"title":["Disability: use of an independent living fund in south east London and users' views about the system of cash versus care provision."],"prefix":"10.1136","volume":"49","author":[{"given":"Y","family":"Doyle","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[1995,2,1]]},"reference":[{"key":"ref_1","article-title":"Caringfor People","author":"Secretaries of State for Health, Social Security, Wales, and Scotland","year":"1989","unstructured":"Secretaries of State for Health, Social Security, Wales, and Scotland. Caringfor People. London: HMSO, 1989. Cmnd 849."},{"key":"ref_2","article-title":"Last on the list. Community services for people with physical disabilities","author":"Beardshaw, V.","year":"1988","unstructured":"Beardshaw V. Last on the list. Community services for people with physical disabilities. London: King's Fund Institute, 1988."},{"key":"ref_3","article-title":"Health services for adults with physical disabilities. A survey of district health authorities 1988189","year":"1990","unstructured":"Edwards FC, Warren MD. Health services for adults with physical disabilities. A survey of district health authorities 1988189. London: Royal College of Physicians, 1990."},{"key":"ref_4","first-page":"95","article-title":"Evidence of unmet need in the care of severely physically disabled adults","volume":"306","author":"Williams, M.H.; Bowie, C.","year":"1993","unstructured":"Williams MH, Bowie C. Evidence of unmet need in the care of severely physically disabled adults. BMJ7 1993;306: 95-8."},{"key":"ref_5","first-page":"113","article-title":"Hospital service for young adults with spina bifida and hydrocephalus","volume":"11","author":"Holland, M.B.; Gilbertson, M.P.","year":"1983","unstructured":"Holland MB, Gilbertson MP. Hospital service for young adults with spina bifida and hydrocephalus. Survery in Infancy & Childhood 1983; Suppl 11: 113-15.","journal-title":"Survery in Infancy & Childhood"},{"key":"ref_6","article-title":"Greenwich personal assistant schemes. Second year evaluation - interim report","author":"Oliver, M.; Zarb, G.","year":"1992","unstructured":"Oliver M, Zarb G. Greenwich personal assistant schemes. Second year evaluation - interim report. London: Oliver & Zarb Associates\/Thames Polytechnic, 1992."},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1080\/02674649166780011","article-title":"Losing ground: Social policy and disabled people in Great Britain 1980-90","volume":"6","author":"Glendenning, C.","year":"1991","unstructured":"Glendenning C. Losing ground: Social policy and disabled people in Great Britain 1980-90. Disability, Handicap and Society 1991;6:3-19.","journal-title":"Disability, Handicap and Society"},{"key":"ref_8","article-title":"Cash or care. A question of choice?","author":"Craig, G.","year":"1993","unstructured":"Craig G. Cash or care. A question of choice? York: University of York: Social Policy Research Unit, 1993."},{"key":"ref_9","article-title":"Allocating resources to meet needs","volume-title":"Disablement in the community","author":"Patrick, D.L.; Scrivens, E.","year":"1989","unstructured":"Patrick DL, Scrivens E. Allocating resources to meet needs. In: Patrick DL, Peach H eds. Disablement in the community. Oxford: Oxford University Press, 1989."},{"key":"ref_10","article-title":"Making community care a reality. The Independent Living Fund 1988-1993","author":"Kestenbaum, A.","year":"1993","unstructured":"Kestenbaum A. Making community care a reality. The Independent Living Fund 1988-1993. Nottingham: Independent Living Fund, 1993."},{"key":"ref_11","article-title":"The needs ofyoung people with physical disabilities in the Camberwell area","author":"Doyle, Y.","year":"1991","unstructured":"Doyle Y. The needs ofyoung people with physical disabilities in the Camberwell area of south east London. London: South East London Health Authority, 1991."},{"key":"ref_12","article-title":"Cash for care. A report on the experience of Independent Living Fund clients","author":"Kestenbaum, A.","year":"1992","unstructured":"Kestenbaum A. Cash for care. A report on the experience of Independent Living Fund clients. Nottingham: Independent Living Fund, 1992."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"61","DOI":"10.3109\/09638288809164103","article-title":"The Barthel ADL Index. A standard measure of physical disability","volume":"10","author":"Wade, D.T.; Collin, C.","year":"1988","unstructured":"Wade DT, Collin C. The Barthel ADL Index. A standard measure of physical disability. Int Dis Studies 1988;10: 61-3.","journal-title":"Int Dis Studies"},{"key":"ref_14","article-title":"Poverty and disability","author":"Alliance, Disability","year":"1987","unstructured":"Disability Alliance. Poverty and disability. London: Disability Alliance, 1987."},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"320","DOI":"10.1136\/bmj.298.6669.320","article-title":"Income and standards of living of disabled people (letter)","volume":"298","author":"Hull, R.G.; Frank, A.","year":"1989","unstructured":"Hull RG, Frank A. Income and standards of living of disabled people (letter). BMJ 1989;298:320.","journal-title":"BMJ"},{"key":"ref_16","article-title":"Caring for severely disabled people. Care providers and their costs","author":"Phillips, V.","year":"1993","unstructured":"Phillips V. Caring for severely disabled people. Care providers and their costs. Nottingham: Independent Living Fund, 1993."},{"key":"ref_17","first-page":"87","article-title":"Severely mobility-disabled people assess the quality of their lives","volume":"17","author":"Stensman, R.","year":"1985","unstructured":"Stensman R. Severely mobility-disabled people assess the quality of their lives. Scandj3 Rehab Med 1985;17:87-99.","journal-title":"Scandj3 Rehab Med"},{"key":"ref_18","first-page":"24","volume":"6","author":"concepts of independent living, Laurie G.European","year":"1980","unstructured":"Laurie G. European concepts of independent living. RehabilitationlWORLD 1980;6:24-47.","journal-title":"RehabilitationlWORLD"},{"key":"ref_19","article-title":"A comparison of social provisions for people with disabilities in the Netherlands and UK","author":"Mitchell, P.","year":"1983","unstructured":"Mitchell P. A comparison of social provisions for people with disabilities in the Netherlands and UK. London: Royal Association for Disability and Rehabilitation, 1983."},{"key":"ref_20","article-title":"House of Commons Health Committee. Community care: The way forward","year":"1993","unstructured":"House of Commons Health Committee. Community care: The way forward. London: HMSO, 1993."}],"container-title":["Journal of Epidemiology and Community Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/jech.49.1.43","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T09:20:42Z","timestamp":1759483242000},"score":1,"resource":{"primary":{"URL":"https:\/\/jech.bmj.com\/lookup\/doi\/10.1136\/jech.49.1.43"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[1995,2]]},"references-count":20,"journal-issue":{"issue":"1","published-online":{"date-parts":[[1995,2,1]]},"published-print":{"date-parts":[[1995,2]]}},"alternative-id":["10.1136\/jech.49.1.43"],"URL":"https:\/\/doi.org\/10.1136\/jech.49.1.43","relation":{},"ISSN":["0143-005X","1470-2738"],"issn-type":[{"value":"0143-005X","type":"print"},{"value":"1470-2738","type":"electronic"}],"subject":[],"published":{"date-parts":[[1995,2]]}}}