{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T04:38:39Z","timestamp":1793335119731,"version":"4.5.0"},"reference-count":44,"publisher":"BMJ","issue":"3","content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["J Fam Plann Reprod Health Care"],"accepted":{"date-parts":[[2014,7,3]]},"published-print":{"date-parts":[[2015,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Endometriosis is experienced by approximately 10% of women worldwide; it is associated with significant burden on the woman, her family, and society.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>The aim of this systematic review was to synthesise the available qualitative literature to increase our understanding of the effects of endometriosis on women's lives.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Seven social science and medical databases (PubMed, Medline, CINAHL, Web of Science, ScienceDirect, PsycInfo and Embase) and Google Scholar were searched for peer-reviewed papers published in English of research using qualitative methods.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results and conclusions<\/jats:title>\n                    <jats:p>Eighteen papers reporting 11 studies met the inclusion criteria. Participant numbers ranged from 15 to 61 women, all recruited from support groups and specialised clinics. Studies were conducted in high-income, Anglophone countries. The review identified four prominent themes: Life, Symptoms, Medical Experience, and Self. Women's reported experiences demonstrated opportunities for enhancing current clinical practice, including improved education about endometriosis for health professionals, the need to take a comprehensive approach to pain treatment, and initiating appropriate discussion of the impact on sex life. Significant evidence gaps were identified: there was inadequate investigation of women's experiences of endometriosis-associated infertility and of the impact of reduced social participation on perceived support and emotional well-being, and limited or no inclusion of the experiences of adolescent and post-menopausal women, women from low socioeconomic backgrounds, women who do not identify as Caucasian, and non-heterosexual women.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/jfprhc-2013-100853","type":"journal-article","created":{"date-parts":[[2014,9,3]],"date-time":"2014-09-03T09:18:04Z","timestamp":1409735884000},"page":"225-234","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":212,"title":["Women's experiences of endometriosis: a systematic review and synthesis of qualitative research"],"prefix":"10.1136","volume":"41","author":[{"given":"Kate","family":"Young","sequence":"first","affiliation":[{"name":"PhD Candidate, The Jean Hailes Research Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Fisher","sequence":"additional","affiliation":[{"name":"Director, The Jean Hailes Research Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maggie","family":"Kirkman","sequence":"additional","affiliation":[{"name":"Senior Research Fellow, The Jean Hailes Research Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2014,9,2]]},"reference":[{"key":"2025090510201336000_41.3.225.1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bpobgyn.2004.01.007"},{"key":"2025090510201336000_41.3.225.2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMcp1000274"},{"key":"2025090510201336000_41.3.225.3","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2012.06.029"},{"key":"2025090510201336000_41.3.225.4","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/del339"},{"key":"2025090510201336000_41.3.225.5","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/det050"},{"key":"2025090510201336000_41.3.225.6","doi-asserted-by":"crossref","first-page":"501","DOI":"10.1080\/01443610600797301","article-title":"Systematic reviews of qualitative evidence: what are the experiences of women with endometriosis?","volume":"26","author":"Denny","year":"2006","journal-title":"J Obstet Gynaecol"},{"key":"2025090510201336000_41.3.225.7","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2010.12.021"},{"key":"2025090510201336000_41.3.225.8","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.315.7110.740"},{"key":"2025090510201336000_41.3.225.9","doi-asserted-by":"crossref","first-page":"243","DOI":"10.5694\/j.1326-5377.2008.tb01595.x","article-title":"Quality in qualitative research","volume":"188","author":"Kitto","year":"2008","journal-title":"Med J Aust"},{"key":"2025090510201336000_41.3.225.10","doi-asserted-by":"publisher","DOI":"10.1177\/1468794106058867"},{"key":"2025090510201336000_41.3.225.11","first-page":"625","article-title":"The social and psychological impact of endometriosis on women's lives: a critical narrative review","volume":"19","author":"Culley","year":"2013","journal-title":"Hum Reprod"},{"key":"2025090510201336000_41.3.225.12","unstructured":"Liamputtong P . Qualitative Research Methods (3rd edn). Melbourne, Australia: Oxford University Press, 2009."},{"key":"2025090510201336000_41.3.225.13","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1614.2002.01100.x"},{"key":"2025090510201336000_41.3.225.14","unstructured":"Critical Appraisal Skills Programme. 10 questions to help you make sense of qualitative research: Critical Appraisal Skills Programme, 2010. http:\/\/www.casp-uk.net\/wp-content\/uploads\/2011\/11\/CASP_Qualitative_Appraisal_Checklist_14oct10.pdf[accessed 6 May 2013]."},{"key":"2025090510201336000_41.3.225.15","doi-asserted-by":"publisher","DOI":"10.1177\/104973239800800305"},{"key":"2025090510201336000_41.3.225.16","doi-asserted-by":"crossref","first-page":"45B","DOI":"10.1177\/135581960501000110","article-title":"Synthesising qualitative and quantitative evidence: a review of possible methods","volume":"10","author":"Dixon-Woods","year":"2005","journal-title":"J Health Serv Res Policy"},{"key":"2025090510201336000_41.3.225.17","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"2025090510201336000_41.3.225.18","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2006.04.054"},{"key":"2025090510201336000_41.3.225.19","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-172X.2003.00396.x"},{"key":"2025090510201336000_41.3.225.20","doi-asserted-by":"publisher","DOI":"10.1016\/S1353-6117(02)00138-5"},{"key":"2025090510201336000_41.3.225.21","doi-asserted-by":"publisher","DOI":"10.1783\/147118907781004831"},{"key":"2025090510201336000_41.3.225.22","doi-asserted-by":"crossref","first-page":"111","DOI":"10.1016\/j.ejogrb.2007.10.006","article-title":"Endometriosis and the primary care consultation","volume":"139","author":"Denny","year":"2008","journal-title":"Eur J Obstet Gyne Reprod Biol"},{"key":"2025090510201336000_41.3.225.23","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2004.03055.x"},{"key":"2025090510201336000_41.3.225.24","first-page":"39","article-title":"\u2018You are one of the unlucky ones\u2019: delay in the diagnosis of endometriosis","volume":"1","author":"Denny","year":"2004","journal-title":"Divers Health Soc C"},{"key":"2025090510201336000_41.3.225.25","doi-asserted-by":"publisher","DOI":"10.1177\/1049732309338725"},{"key":"2025090510201336000_41.3.225.26","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/des345"},{"key":"2025090510201336000_41.3.225.27","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-172X.2008.00718.x"},{"key":"2025090510201336000_41.3.225.28","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2005.01231.x"},{"key":"2025090510201336000_41.3.225.29","doi-asserted-by":"publisher","DOI":"10.1080\/01674820400002279"},{"key":"2025090510201336000_41.3.225.30","doi-asserted-by":"publisher","DOI":"10.1177\/1049732308315432"},{"key":"2025090510201336000_41.3.225.31","first-page":"349","article-title":"Endurance and contest: women's narratives of endometriosis","volume":"12","author":"Markovic","year":"2008","journal-title":"Health (NY)"},{"key":"2025090510201336000_41.3.225.32","doi-asserted-by":"crossref","first-page":"1220","DOI":"10.1016\/j.socscimed.2009.07.023","article-title":"The etiquette of endometriosis: stigmatisation, menstrual concealment and the diagnostic delay","volume":"69","author":"Seear","year":"2009","journal-title":"Soc Sci Med"},{"key":"2025090510201336000_41.3.225.33","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1080\/13698570903013649","article-title":"\u2018Nobody really knows what it is or how to treat it\u2019: why women with endometriosis do not comply with healthcare advice","volume":"11","author":"Seear","year":"2009","journal-title":"Health Risk Soc"},{"key":"2025090510201336000_41.3.225.34","doi-asserted-by":"crossref","first-page":"194","DOI":"10.5172\/hesr.18.2.194","article-title":"The third shift: health, work and expertise among women with endometriosis","volume":"18","author":"Seear","year":"2009","journal-title":"Health Sociol Rev"},{"key":"2025090510201336000_41.3.225.35","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1111\/j.1467-9566.2007.01024.x","article-title":"\u2018No one agrees except for those of us who have it\u2019: endometriosis patients as an epistemological community","volume":"29","author":"Whelan","year":"2007","journal-title":"Sociol Health Illn"},{"key":"2025090510201336000_41.3.225.36","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/det284"},{"key":"2025090510201336000_41.3.225.37","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2011.04.095"},{"key":"2025090510201336000_41.3.225.38","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2011.05.090"},{"key":"2025090510201336000_41.3.225.39","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/des073"},{"key":"2025090510201336000_41.3.225.40","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1016\/j.ejogrb.2008.09.003","article-title":"Depressive symptoms, anxiety, and quality of life in women with pelvic endometriosis","volume":"142","author":"Sepulcri","year":"2009","journal-title":"Eur J Obstet Gyne Reprod Bio"},{"key":"2025090510201336000_41.3.225.41","doi-asserted-by":"crossref","unstructured":"Ussher JM . The Madness of Women: Myth and Experience. Hove, UK: Routledge, 2011.","DOI":"10.4324\/9780203806579"},{"key":"2025090510201336000_41.3.225.42","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1300\/J013v46n04_05","article-title":"\u201cHow to say it\u201d: women's descriptions of pelvic pain","volume":"46","author":"Grace","year":"2008","journal-title":"Women Health"},{"key":"2025090510201336000_41.3.225.43","first-page":"877","article-title":"Endometriosis. A clinical and surgical review","volume":"36","author":"Counsellor","year":"1938","journal-title":"Am J Obstet Gynecol"},{"key":"2025090510201336000_41.3.225.44","doi-asserted-by":"publisher","DOI":"10.1136\/jfprhc-2012-100530"}],"container-title":["Journal of Family Planning and Reproductive Health Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/jfprhc-2013-100853","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,9,5]],"date-time":"2025-09-05T17:33:23Z","timestamp":1757093603000},"score":1,"resource":{"primary":{"URL":"https:\/\/jfprhc.bmj.com\/lookup\/doi\/10.1136\/jfprhc-2013-100853"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,9,2]]},"references-count":44,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2015,6,22]]},"published-print":{"date-parts":[[2015,7]]}},"alternative-id":["10.1136\/jfprhc-2013-100853"],"URL":"https:\/\/doi.org\/10.1136\/jfprhc-2013-100853","relation":{},"ISSN":["1471-1893","2045-2098"],"issn-type":[{"value":"1471-1893","type":"print"},{"value":"2045-2098","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,9,2]]}}}