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Our aim, as a cross-sectorial partnership, has been to explore the complexities of heart transplantation by explicitly entangling research from the arts, biosciences and humanities without privileging any one discourse. It has been no easy enterprise yet it has been highly productive of new insights. We draw on our own ongoing funded research with both heart donor families and recipients to explore our different perceptions of what constitutes data and to demonstrate how the dynamic entangling of multiple data produces a constitutive assemblage of elements in which no one can claim priority. Our claim is that the use of such research assemblages and the collaborations that we bring to our project breaks through disciplinary silos to enable a fuller comprehension of the significance and experience of heart transplantation in both theory and practice.<\/jats:p>","DOI":"10.1136\/medhum-2017-011212","type":"journal-article","created":{"date-parts":[[2017,10,2]],"date-time":"2017-10-02T20:55:22Z","timestamp":1506977722000},"page":"46-54","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":25,"title":["Messy entanglements: research assemblages in heart transplantation discourses and practices"],"prefix":"10.1136","volume":"44","author":[{"given":"Margrit","family":"Shildrick","sequence":"first","affiliation":[{"name":"Tema Genus, Tema Institute, Linkopings universitet, Link\u00f6ping, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Carnie","sequence":"additional","affiliation":[{"name":"Winchester School of Art, Southampton University, Winchester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexa","family":"Wright","sequence":"additional","affiliation":[{"name":"Department of English, Linguistics and Cultural Studies, University of Westminster, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"McKeever","sequence":"additional","affiliation":[{"name":"Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily Huan-Ching","family":"Jan","sequence":"additional","affiliation":[{"name":"Department of Studio Arts, Faculty of Fine Arts, Concordia University, Montreal, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Enza","family":"De Luca","sequence":"additional","affiliation":[{"name":"Department of Cardiology and Transplantation, University Health Network, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ingrid","family":"Bachmann","sequence":"additional","affiliation":[{"name":"Department of Studio Arts, Faculty of Fine Arts, Concordia University, Montreal, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Abbey","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, University Health Network, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dana","family":"Dal Bo","sequence":"additional","affiliation":[{"name":"Department of Studio Arts, Faculty of Fine Arts, Concordia University, Montreal, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Poole","sequence":"additional","affiliation":[{"name":"Faculty of Community Services, School of Social Work, Ryerson University, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tammer","family":"El-Sheikh","sequence":"additional","affiliation":[{"name":"Department of Studio Arts, Faculty of Fine Arts, Concordia University, Montreal, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heather","family":"Ross","sequence":"additional","affiliation":[{"name":"Department of Cardiology and Transplantation, University Health Network, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2017,9,28]]},"reference":[{"key":"2025092412052296000_44.1.46.1","doi-asserted-by":"publisher","DOI":"10.1136\/jmh.2008.001073"},{"key":"2025092412052296000_44.1.46.2","doi-asserted-by":"publisher","DOI":"10.1016\/j.healun.2010.05.009"},{"key":"2025092412052296000_44.1.46.3","first-page":"963","article-title":"Qualitative studies better reflect patient distress versus standardized quality of life questionnaires","volume":"30","author":"Abbey","year":"2011","journal-title":"J Heart Lung Transplant"},{"key":"2025092412052296000_44.1.46.4","doi-asserted-by":"crossref","first-page":"619","DOI":"10.1111\/j.1600-6143.2010.03419.x","article-title":"The obligation to say \u2019Thank you': heart transplant recipients' experience of writing to the donor family","volume":"11","author":"Poole","year":"2011","journal-title":"Am J Transplant"},{"key":"2025092412052296000_44.1.46.5","doi-asserted-by":"publisher","DOI":"10.1177\/1363459314560067"},{"key":"2025092412052296000_44.1.46.6","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1016\/j.hrtlng.2016.01.006","article-title":"Grief and loss for patients before and after heart transplant","volume":"45","author":"Poole","year":"2016","journal-title":"Heart Lung"},{"key":"2025092412052296000_44.1.46.7","doi-asserted-by":"crossref","unstructured":"Shildrick M . 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