{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T01:38:29Z","timestamp":1787017109414,"version":"build-2736575974"},"reference-count":53,"publisher":"BMJ","issue":"3","license":[{"start":{"date-parts":[[2021,9,2]],"date-time":"2021-09-02T00:00:00Z","timestamp":1630540800000},"content-version":"unspecified","delay-in-days":1,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Swiss League Against Rheumatism"},{"name":"Swiss Nursing Science Foundation"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["RMD Open"],"accepted":{"date-parts":[[2021,7,28]]},"published-print":{"date-parts":[[2021,9]]},"abstract":"\n Objectives<\/jats:title>\n We engaged patients with systemic sclerosis (SSc) and healthcare professionals to assess electronic health (eHealth) literacy and needs relating to web-based support using internet-based information and communication technologies (ICT).<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n We employed an explanatory sequential mixed methods design. First, we conducted a cross-sectional survey in patients (n=101) and professionals (n=47). Next, we conducted three focus groups with patients, family members and professionals (n=17).<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n Of patients, 89.1% used ICT at least weekly for private communication. Patients reported relatively high comprehension of eHealth information (\n \n \n \n \n \n \n x<\/m:mi>\n \u00af<\/m:mo>\n <\/m:mover>\n <\/m:mrow>\n <\/m:mrow>\n <\/m:mstyle>\n <\/m:math>\n <\/jats:inline-formula>\n =6.7, 95%\u2009CI: 6.2 to 7.3, range 1\u201310), yet were less confident evaluating information reliability (\n \n \n \n \n \n \n x<\/m:mi>\n \u00af<\/m:mo>\n <\/m:mover>\n <\/m:mrow>\n <\/m:mrow>\n <\/m:mstyle>\n <\/m:math>\n <\/jats:inline-formula>\n =5.8, 95%\u2009CI: 5.1 to 6.4) and finding eHealth apps (\n \n \n \n \n \n \n x<\/m:mi>\n \u00af<\/m:mo>\n <\/m:mover>\n <\/m:mrow>\n <\/m:mrow>\n <\/m:mstyle>\n <\/m:math>\n <\/jats:inline-formula>\n =4.8, 95%\u2009CI: 4.2 to 5.4). Patients and professionals reported little experience with web-based self-management support. Focus groups revealed \u2018considering non-ICT-accessible groups\n \u2019<\/jats:italic>\n and \u2018fitting patients\u2019 and professionals\u2019 technology\n \u2019<\/jats:italic>\n as crucial for acceptability. In relation to understanding\/appraising eHealth, participants highlighted that general SSc information is not tailored to individual\u2019s disease course. Recommendations included \u2018providing timely, understandable and safe information\n \u2019<\/jats:italic>\n and \u2018empowering end-users in ICT and health decision-making skills\n \u2019<\/jats:italic>\n . Professionals expressed concerns about lacking resources. Patients were concerned about data security and person-centredness. Key eHealth drivers included \u2018addressing end-user perceptions\n \u2019<\/jats:italic>\n and \u2018putting people at the centre of technology\n \u2019<\/jats:italic>\n .\n <\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n Patients and professionals need education\/training to support uptake of eHealth resources. Key elements include guiding patients to timely\/reliable information and using eHealth to optimise patient\u2013provider communication. Design that is responsive to end-users\u2019 needs and considers individuals with limited eHealth literacy and\/or ICT access appears to be critical for acceptability.<\/jats:p>\n <\/jats:sec>","DOI":"10.1136\/rmdopen-2021-001783","type":"journal-article","created":{"date-parts":[[2021,9,2]],"date-time":"2021-09-02T13:23:03Z","timestamp":1630588983000},"page":"e001783","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":17,"title":["Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study"],"prefix":"10.1136","volume":"7","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8716-9727","authenticated-orcid":false,"given":"Agnes","family":"Kocher","sequence":"first","affiliation":[{"name":"Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, Switzerland"},{"name":"Head Office of Nursing, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Simon","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, Switzerland"},{"name":"Nursing & Midwifery Research Unit, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew A","family":"Dwyer","sequence":"additional","affiliation":[{"name":"Connell School of Nursing, Boston College, Chestnut Hill, Massachusetts, USA"},{"name":"Munn Center for Nursing Research, Massachusetts General Hospital, Boston, Massachusetts, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine","family":"Blatter","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jasmina","family":"Bogdanovic","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrizia","family":"K\u00fcnzler-Heule","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, Switzerland"},{"name":"Department of Gastroenterology\/Hepatology and Department of Nursing, Cantonal Hospital St. Gallen, St Gallen, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter M","family":"Villiger","sequence":"additional","affiliation":[{"name":"Medical Center Monbijou, Bern, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana","family":"Dan","sequence":"additional","affiliation":[{"name":"Service of Rheumatology, Lausanne University Hospital, University of Lausanne, Lausanne, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Oliver","family":"Distler","sequence":"additional","affiliation":[{"name":"Department of Rheumatology, University Hospital Zurich, University of Zurich, Zurich, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9183-550X","authenticated-orcid":false,"given":"Ulrich A","family":"Walker","sequence":"additional","affiliation":[{"name":"Department of Rheumatology, University Hospital Basel, Basel, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dunja","family":"Nicca","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, Switzerland"},{"name":"Department of Global and Public Health, Institute for Epidemiology, Biostatistics and Prevention, University of Zurich, Zurich, Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2021,9,2]]},"reference":[{"key":"2025090313430303000_7.3.e001783.1","unstructured":"European Commission . eHealth adoption in primary healthcare in the EU is on the rise. 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