{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,5]],"date-time":"2026-06-05T02:28:37Z","timestamp":1780626517658,"version":"3.54.1"},"reference-count":46,"publisher":"BMJ","issue":"1","license":[{"start":{"date-parts":[[2024,2,29]],"date-time":"2024-02-29T00:00:00Z","timestamp":1709164800000},"content-version":"unspecified","delay-in-days":28,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Scleroderma Queensland"},{"name":"Scleroderma Manitoba"},{"DOI":"10.13039\/100008582","name":"McGill\n                                    University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008582","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001804","name":"Canada\n                                    Research Chairs","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001804","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100019175","name":"Scleroderma\n                                    Society of Ontario","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100019175","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100023446","name":"Scleroderma\n                                    Association of British Columbia","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100023446","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Scleroderma Canada"},{"name":"Scleroderma SASK"},{"DOI":"10.13039\/501100000024","name":"Canadian\n                                    Institutes of Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Scleroderma Australia"},{"name":"Scl\u00e9rodermie Qu\u00e9bec"},{"name":"Scleroderma New South Wales"},{"DOI":"10.13039\/501100013455","name":"Lady\n                                    Davis Institute for Medical\n                                Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100013455","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100023332","name":"Scleroderma\n                                    Victoria","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100023332","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100020986","name":"Fondation\n                                    de l'H\u00f4pital g\u00e9n\u00e9ral juif","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100020986","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100023335","name":"Scleroderma\n                                    Atlantic","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100023335","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["RMD Open"],"accepted":{"date-parts":[[2024,2,14]]},"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:sec>\n                        <jats:title>Objective<\/jats:title>\n                        <jats:p>The objectives were to (1) compare satisfaction with social roles\n                            and activities in a large multinational systemic sclerosis (SSc) cohort\n                            to general population normative data and (2) identify sociodemographic,\n                            lifestyle and SSc disease factors associated with satisfaction with\n                            social roles and activities.<\/jats:p>\n                    <\/jats:sec>\n                    <jats:sec>\n                        <jats:title>Methods<\/jats:title>\n                        <jats:p>Participants in the Scleroderma Patient-centered Intervention\n                            Network Cohort completed the Patient Reported Outcomes Information\n                            System Version 2 satisfaction with social roles and activities domain\n                            questionnaire. Multivariable regression was used to assess associations\n                            with sociodemographic, lifestyle and disease factors.<\/jats:p>\n                    <\/jats:sec>\n                    <jats:sec>\n                        <jats:title>Results<\/jats:title>\n                        <jats:p>Among 2385 participants, mean satisfaction with social roles and\n                            activities T-score (48.1, SD=9.9) was slightly lower than the US general\n                            population (mean=50, SD=10). Factors independently associated with\n                            satisfaction were years of education (0.54 per SD, 95% CI 0.14 to 0.93);\n                            non-White race or ethnicity (\u22121.13, 95% CI \u22122.18 to \u20130.08); living in\n                            Canada (\u22121.33, 95% CI \u22122.40 to \u20130.26 (reference USA)) or the UK (\u22122.49,\n                            95% CI \u22123.92 to \u20131.06); body mass index (\u22121.08 per SD, 95% CI \u22121.47 to\n                            \u20130.69); gastrointestinal involvement (\u22123.16, 95% CI \u22124.27 to \u20132.05);\n                            digital ulcers (\u22121.90, 95% CI \u22123.05 to \u20130.76); moderate (\u22121.62, 95% CI\n                            \u22122.78 to \u20130.45) or severe (\u22122.26, 95% CI \u22123.99 to \u20130.52) small joint\n                            contractures; interstitial lung disease (\u22121.11, 95% CI \u22121.97 to \u20130.25);\n                            pulmonary arterial hypertension (\u22122.69, 95% CI \u22124.08 to \u20131.30);\n                            rheumatoid arthritis (\u22122.51, 95% CI \u22124.28 to \u20130.73); and Sjogren\u2019s\n                            syndrome (\u22122.42, 95% CI \u22123.96 to \u20130.88).<\/jats:p>\n                    <\/jats:sec>\n                    <jats:sec>\n                        <jats:title>Conclusion<\/jats:title>\n                        <jats:p>Mean satisfaction with social roles and activities is slightly lower\n                            in SSc than the general population and associated with multiple\n                            sociodemographic and disease factors.<\/jats:p>\n                    <\/jats:sec>","DOI":"10.1136\/rmdopen-2023-003876","type":"journal-article","created":{"date-parts":[[2024,3,5]],"date-time":"2024-03-05T19:09:16Z","timestamp":1709665756000},"page":"e003876","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":2,"title":["Factors associated with satisfaction with social roles and activities\n                        among people with systemic sclerosis: a Scleroderma Patient-centered\n                        Intervention Network (SPIN) cohort cross-sectional study"],"prefix":"10.1136","volume":"10","author":[{"given":"Tiffany","family":"Dal 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Factors\n                            associated with physical function among people with systemic sclerosis:\n                            a Scleroderma Patient-centered Intervention Network (SPIN) cohort\n                            cross-sectional study. Rheumatology [Preprint] 2023.\n                            doi:10.1101\/2023.08.23.23294495","DOI":"10.1101\/2023.08.23.23294495"},{"key":"2024030510591844000_10.1.e003876.42","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(99)00045-3"},{"key":"2024030510591844000_10.1.e003876.43","doi-asserted-by":"publisher","DOI":"10.1017\/S0954579400004156"},{"key":"2024030510591844000_10.1.e003876.44","doi-asserted-by":"publisher","DOI":"10.1177\/070674371105600504"},{"key":"2024030510591844000_10.1.e003876.45","doi-asserted-by":"crossref","unstructured":"Hayes SC , Pierson H . Acceptance and commitment\n                            therapy. In: Encyclopedia of cognitive behavior therapy. 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