{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T16:19:31Z","timestamp":1777652371982,"version":"3.51.4"},"reference-count":103,"publisher":"BMJ","issue":"e1","license":[{"start":{"date-parts":[[2020,10,14]],"date-time":"2020-10-14T00:00:00Z","timestamp":1602633600000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100009947","name":"Merck Sharp and Dohme","doi-asserted-by":"publisher","award":["PDE \/BDE \/120498\/ 2016"],"award-info":[{"award-number":["PDE \/BDE \/120498\/ 2016"]}],"id":[{"id":"10.13039\/100009947","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001871","name":"Funda\u00e7\u00e3o para a Ci\u00eancia e a Tecnologia","doi-asserted-by":"publisher","award":["PDE \/BDE \/120498\/ 2016"],"award-info":[{"award-number":["PDE \/BDE \/120498\/ 2016"]}],"id":[{"id":"10.13039\/501100001871","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Support Palliat Care"],"accepted":{"date-parts":[[2020,8,14]]},"published-print":{"date-parts":[[2024,5]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Caregivers play a major role in providing all the support and care in daily activities for their relatives with dementia. To fully describe the influence of dementia caregiving on family caregivers\u2019 life, we conducted a systematic review including caregivers\u2019 perceptions about the positive and negative aspects of caring and the expressed factors.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Materials and methods<\/jats:title>\n                    <jats:p>We conducted a systematic review including articles from January 1998 to July 2020. Qualitative studies reporting family caregivers\u2019 perceptions about their experiences and the effects\/impact of dementia caregiving were eligible. Two authors extracted the data independently, and the analysis focused on the positive and negative aspects of dementia caregiving in caregivers\u2019 life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Eighty-one studies with 3347 participants were included in this review. The positive aspects of caregiving in caregivers\u2019 life encompass personal accomplishment and strengthening relationships, which were enhanced by good medical counselling\/formal care support and family\/friends support. The negative aspects included emotional and social aspects experienced by caregivers. Other factors such as inappropriate medical\/formal care support, illness progression and the costs of dementia contributed to negative appraisal.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion and implications<\/jats:title>\n                    <jats:p>The findings provide insights into the holistic experience of caring for a person with dementia revelling the major positive and negative aspects underlying the caregiver role. The evidence emphasises the need \u2018to focus on positive aspects\u2019 and targeted interventions aimed at reducing the negative impact of caregiving, which has serious consequences on caregivers\u2019 quality of life. A multicomplex intervention for dementia informal caregiving should be developed, committing the society to promote mental health, address these community needs and improve the quality of life of the person with dementia and their family caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjspcare-2020-002242","type":"journal-article","created":{"date-parts":[[2020,10,14]],"date-time":"2020-10-14T17:24:31Z","timestamp":1602696271000},"page":"e38-e49","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":243,"title":["Impact of dementia on informal care: a systematic review of family caregivers\u2019 perceptions"],"prefix":"10.1136","volume":"14","author":[{"given":"Patr\u00edcia","family":"Lindeza","sequence":"first","affiliation":[{"name":"ISAMB, Universidade de Lisboa Instituto de Saude Ambiental, Lisboa, Lisboa, Portugal"}]},{"given":"M\u00e1rio","family":"Rodrigues","sequence":"additional","affiliation":[{"name":"Instituto de Medicina Molecular, Lisboa, Lisboa, Portugal"}]},{"given":"Jo\u00e3o","family":"Costa","sequence":"additional","affiliation":[{"name":"Universidade de Lisboa Centro de Estudos de Medicina Baseada na Evid\u00eancia, Lisboa, Lisboa, Portugal"}]},{"given":"Manuela","family":"Guerreiro","sequence":"additional","affiliation":[{"name":"Instituto de Medicina Molecular, Lisboa, Lisboa, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3158-2106","authenticated-orcid":false,"given":"Mario Miguel","family":"Rosa","sequence":"additional","affiliation":[{"name":"Lab Farmacologia Cl\u00ednica, Universidade de Lisboa Faculdade de Medicina, Lisboa, Portugal"}]}],"member":"239","published-online":{"date-parts":[[2020,10,14]]},"reference":[{"key":"2025121000503153000_14.e1.e38.1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(16)00062-4"},{"key":"2025121000503153000_14.e1.e38.2","doi-asserted-by":"crossref","first-page":"387","DOI":"10.2147\/CEOR.S93323","article-title":"The epidemiology and burden of Alzheimer's disease in Taiwan utilizing data from the National health insurance research database","volume":"8","author":"Hung","year":"2016","journal-title":"Clinicoecon Outcomes Res"},{"key":"2025121000503153000_14.e1.e38.3","doi-asserted-by":"publisher","DOI":"10.31887\/DCNS.2009.11.2\/cqiu"},{"key":"2025121000503153000_14.e1.e38.4","doi-asserted-by":"crossref","DOI":"10.1186\/1471-2458-12-68","article-title":"A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study","volume":"12","author":"Verbeek","year":"2012","journal-title":"BMC Public Health"},{"key":"2025121000503153000_14.e1.e38.5","first-page":"7","article-title":"Who cares for the carer? the often forgotten patient","volume":"31","author":"Brodaty","year":"2002","journal-title":"Aust Fam Physician"},{"key":"2025121000503153000_14.e1.e38.6","doi-asserted-by":"crossref","first-page":"559","DOI":"10.3233\/JAD-150455","article-title":"Beneficial effects of an integrated psychostimulation program in patients with Alzheimer\u2019s disease","volume":"50","author":"Ibarria","year":"2016","journal-title":"JAD"},{"key":"2025121000503153000_14.e1.e38.7","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2011-000178"},{"key":"2025121000503153000_14.e1.e38.8","doi-asserted-by":"crossref","unstructured":"Prince M . 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