{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T18:41:41Z","timestamp":1740163301811,"version":"3.37.3"},"reference-count":15,"publisher":"BMJ","issue":"1","content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Support Palliat Care"],"accepted":{"date-parts":[[2024,7,18]]},"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:sec><jats:title>Objectives<\/jats:title><jats:p>To identify end-of-life preferences of people with advanced chronic obstructive pulmonary disease (COPD) and to compare characteristics between those who wish to discuss the end-of-life and those who do not.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>An analysis of the baseline data of a randomised controlled trial was performed including people with COPD GOLD stages III\u2013IV or former quadrant D with modified Medical Research Council questionnaire grade \u22652, after hospital discharge following an exacerbation. Participants were interviewed using the End-of-Life Preferences Interview.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 165 individuals (53% men; 68\u00b19 years old; 55% care dependent) were included. Most participants wished to take part in shared decision-making (78%), to be informed about a short life expectancy (82%), to discuss the end-of-life (82%), to have loved ones around at death (87%) and to choose when to die (70%). They also reported accepting opioids (74%). Preferences for who to provide physical care, the place, consciousness and atmosphere at death as well as life-sustaining treatments were heterogeneous. Participants who wanted to discuss the end-of-life had a significantly higher educational level (p=0.030) and worse health status than participants who did not (p=0.007).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>End-of-life preferences of people with advanced COPD were heterogeneous, however, most wished to discuss it, especially those with higher educational level and worse health status.<\/jats:p><\/jats:sec><jats:sec><jats:title>Trial registration number<\/jats:title><jats:p>NTR3940.<\/jats:p><\/jats:sec>","DOI":"10.1136\/spcare-2024-005067","type":"journal-article","created":{"date-parts":[[2024,9,20]],"date-time":"2024-09-20T05:50:11Z","timestamp":1726811411000},"page":"134-140","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":0,"title":["End-of-life preferences of people with advanced chronic obstructive pulmonary disease"],"prefix":"10.1136","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4659-5412","authenticated-orcid":false,"given":"M Aurora","family":"Mendes","sequence":"first","affiliation":[]},{"given":"Anouk JL","family":"Muijsenberg","sequence":"additional","affiliation":[]},{"given":"Sarah","family":"Houben-Wilke","sequence":"additional","affiliation":[]},{"given":"Carmen HM","family":"Houben","sequence":"additional","affiliation":[]},{"given":"Martijn A","family":"Spruit","sequence":"additional","affiliation":[]},{"given":"Alda","family":"Marques","sequence":"additional","affiliation":[]},{"given":"Daisy J A","family":"Janssen","sequence":"additional","affiliation":[]}],"member":"239","published-online":{"date-parts":[[2024,9,19]]},"reference":[{"key":"2024122522201221000_15.1.134.1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.202301-0106PP"},{"key":"2024122522201221000_15.1.134.2","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.02014-2022","article-title":"European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease","volume":"62","author":"Janssen","year":"2023","journal-title":"Eur Respir J"},{"key":"2024122522201221000_15.1.134.3","doi-asserted-by":"crossref","DOI":"10.3390\/jcm10010091","article-title":"End-of-Life Care Preferences of Older Patients with Multimorbidity: a Mixed Methods Systematic Review","volume":"10","author":"Gonz\u00e1lez-Gonz\u00e1lez","year":"2020","journal-title":"J Clin 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Japan","volume":"16","author":"Fuseya","year":"2019","journal-title":"COPD"},{"key":"2024122522201221000_15.1.134.6","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00157710"},{"key":"2024122522201221000_15.1.134.7","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2018-211943"},{"key":"2024122522201221000_15.1.134.8","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2007.10.013"},{"key":"2024122522201221000_15.1.134.9","doi-asserted-by":"crossref","DOI":"10.1183\/13993003.01752-2019","article-title":"Attitudes of patients with chronic breathlessness towards treatment with opioids","volume":"55","author":"Verberkt","year":"2020","journal-title":"Eur Respir J"},{"key":"2024122522201221000_15.1.134.10","doi-asserted-by":"crossref","first-page":"221","DOI":"10.1177\/1742395321990109","article-title":"Chronic obstructive pulmonary disease and advance care planning: a synthesis of qualitative literature on patients\u2019 experiences","volume":"18","author":"Ora","year":"2022","journal-title":"Chron Illn"},{"key":"2024122522201221000_15.1.134.11","doi-asserted-by":"crossref","first-page":"147","DOI":"10.1097\/NJH.0000000000000321","article-title":"Factors Associated With Willingness to Accept Palliative Care in Patients With Chronic Obstructive Pulmonary Disease","volume":"19","author":"Chou","year":"2017","journal-title":"J Hosp Palliat Nurs"},{"key":"2024122522201221000_15.1.134.12","doi-asserted-by":"crossref","first-page":"1361","DOI":"10.1177\/0269216320937981","article-title":"The preferences of patients with chronic obstructive pulmonary disease are to discuss palliative care plans with familiar respiratory clinicians, but to delay conversations until their condition deteriorates: a study guided by interpretative phenomenological analysis","volume":"34","author":"Tavares","year":"2020","journal-title":"Palliat Med"},{"key":"2024122522201221000_15.1.134.13","doi-asserted-by":"crossref","DOI":"10.1016\/j.heliyon.2019.e02067","article-title":"Perception of a 'good death' in Thai patients with cancer and their relatives","volume":"5","author":"Chindaprasirt","year":"2019","journal-title":"Heliyon"},{"key":"2024122522201221000_15.1.134.14","doi-asserted-by":"crossref","first-page":"669","DOI":"10.1111\/jocn.15926","article-title":"Spirituality and religiosity are associated with physical and psychological status in patients with chronic obstructive pulmonary disease","volume":"31","author":"Mendes","year":"2022","journal-title":"J Clin Nurs"},{"key":"2024122522201221000_15.1.134.15","doi-asserted-by":"crossref","first-page":"2854","DOI":"10.1111\/jocn.15792","article-title":"Mirror of shame: Patients experiences of late-stage COPD. A qualitative study","volume":"30","author":"Jerpseth","year":"2021","journal-title":"J Clin Nurs"}],"container-title":["BMJ Supportive &amp; Palliative Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/spcare-2024-005067","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,12,26]],"date-time":"2024-12-26T06:21:55Z","timestamp":1735194115000},"score":1,"resource":{"primary":{"URL":"https:\/\/spcare.bmj.com\/lookup\/doi\/10.1136\/spcare-2024-005067"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,9,19]]},"references-count":15,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12,25]]},"published-print":{"date-parts":[[2025,1]]}},"alternative-id":["10.1136\/spcare-2024-005067"],"URL":"https:\/\/doi.org\/10.1136\/spcare-2024-005067","relation":{},"ISSN":["2045-435X","2045-4368"],"issn-type":[{"type":"print","value":"2045-435X"},{"type":"electronic","value":"2045-4368"}],"subject":[],"published":{"date-parts":[[2024,9,19]]}}}