{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T20:47:31Z","timestamp":1776113251700,"version":"3.50.1"},"publisher-location":"New York, NY, USA","reference-count":87,"publisher":"ACM","license":[{"start":{"date-parts":[[2018,4,21]],"date-time":"2018-04-21T00:00:00Z","timestamp":1524268800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.acm.org\/publications\/policies\/copyright_policy#Background"}],"content-domain":{"domain":["dl.acm.org"],"crossmark-restriction":true},"short-container-title":[],"published-print":{"date-parts":[[2018,4,21]]},"DOI":"10.1145\/3173574.3173976","type":"proceedings-article","created":{"date-parts":[[2018,4,20]],"date-time":"2018-04-20T15:38:35Z","timestamp":1524238715000},"page":"1-15","update-policy":"https:\/\/doi.org\/10.1145\/crossmark-policy","source":"Crossref","is-referenced-by-count":64,"title":["Understanding the Mundane Nature of Self-care"],"prefix":"10.1145","author":[{"given":"Francisco","family":"Nunes","sequence":"first","affiliation":[{"name":"Fraunhofer Portugal AICOS & TU Wien (Vienna University of Technology), Porto, Portugal"}]},{"given":"Geraldine","family":"Fitzpatrick","sequence":"additional","affiliation":[{"name":"TU Wien (Vienna University of Technology), Vienna, Austria"}]}],"member":"320","published-online":{"date-parts":[[2018,4,21]]},"reference":[{"key":"e_1_3_2_2_1_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e318225ab66"},{"key":"e_1_3_2_2_2_1","volume-title":"The De-Scription of Technical Objects","author":"Akrich Madeleine","unstructured":"Madeleine Akrich. 1992. The De-Scription of Technical Objects. In Shaping Technology\/Building Society, Wiebe E. Bijker and John Law (Eds.). The MIT Press, Chapter 7, 205--224."},{"key":"e_1_3_2_2_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/amiajnl-2011-000105"},{"key":"e_1_3_2_2_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-642-24500-8_6"},{"key":"e_1_3_2_2_5_1","doi-asserted-by":"publisher","DOI":"10.1145\/3025453.3025869"},{"key":"e_1_3_2_2_6_1","doi-asserted-by":"publisher","DOI":"10.1258\/135763307780908058"},{"key":"e_1_3_2_2_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(02)00032-0"},{"key":"e_1_3_2_2_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870440412331296053"},{"key":"e_1_3_2_2_9_1","volume-title":"Medication timing errors for Parkinson's disease: Perspectives held by caregivers and people with Parkinson's in New Zealand. Parkinson's Disease 2010","author":"Buetow Stephen","year":"2010","unstructured":"Stephen Buetow, Jenny Henshaw, Linda Bryant, and Deirdre O'Sullivan. 2010. Medication timing errors for Parkinson's disease: Perspectives held by caregivers and people with Parkinson's in New Zealand. Parkinson's Disease 2010 (2010)."},{"key":"e_1_3_2_2_10_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2524.2002.00385.x"},{"key":"e_1_3_2_2_11_1","volume-title":"Good Days","author":"Charmaz Kathy","unstructured":"Kathy Charmaz. 1991. Good Days, Bad Days: The Self in Chronic Illness and Time. Rutgers University Press."},{"key":"e_1_3_2_2_12_1","volume-title":"Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis","author":"Charmaz Kathy","unstructured":"Kathy Charmaz. 2006. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Sage Publications Ltd."},{"key":"e_1_3_2_2_13_1","first-page":"2","article-title":"Patients' and caregivers' experiences of the impact of Parkinson's disease on health status","volume":"2011","author":"Chiong-Rivero Horacio","year":"2011","unstructured":"Horacio Chiong-Rivero, Gery W. Ryan, Charles Flippen, Yvette Bordelon, Nicholas R. Szumski, Theresa A. Zesiewicz, Stefanie Vassar, Beverly Weidmer, Rosa Elena Garc\u00b4 ?a, Melissa Bradley, and Barbara G. Vickrey. 2011. Patients' and caregivers' experiences of the impact of Parkinson's disease on health status. Patient Related Outcome Measures 2011, 2 (March 2011), 57--70.","journal-title":"Patient Related Outcome Measures"},{"key":"e_1_3_2_2_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2003.08.012"},{"key":"e_1_3_2_2_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/089826439100300101"},{"key":"e_1_3_2_2_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(85)90308-9"},{"key":"e_1_3_2_2_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.neubiorev.2005.03.024"},{"key":"e_1_3_2_2_18_1","volume-title":"Managing chronic illness at home: three lines of work. Qualitative sociology 8, 3","author":"Corbin Juliet","year":"1985","unstructured":"Juliet Corbin and Anselm Strauss. 1985. Managing chronic illness at home: three lines of work. Qualitative sociology 8, 3 (1985), 224--247."},{"key":"e_1_3_2_2_19_1","unstructured":"Juliet M Corbin and Anselm Strauss. 1988. Unending Work and Care: Managing Chronic Illness at Home. Jossey-Bass."},{"key":"e_1_3_2_2_20_1","doi-asserted-by":"publisher","DOI":"10.4108\/icst.pervasivehealth.2013.252058"},{"key":"e_1_3_2_2_21_1","doi-asserted-by":"publisher","DOI":"10.3384\/cu.2000.1525.124513"},{"key":"e_1_3_2_2_22_1","doi-asserted-by":"publisher","DOI":"10.1145\/2541831.2541839"},{"key":"e_1_3_2_2_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2012.01.012"},{"key":"e_1_3_2_2_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijmedinf.2010.08.006"},{"key":"e_1_3_2_2_25_1","doi-asserted-by":"publisher","DOI":"10.1145\/3025453.3025784"},{"key":"e_1_3_2_2_26_1","volume-title":"Proceedings of the Conference on Design 4 Health","author":"Fitzpatrick Geraldine","year":"2011","unstructured":"Geraldine Fitzpatrick. 2011. New Challenges for Health IT - Design Fit for Life. In Proceedings of the Conference on Design 4 Health 2011. 121--135."},{"key":"e_1_3_2_2_27_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.4770070306"},{"key":"e_1_3_2_2_28_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.284.13.1709-JMS1004-6-1"},{"key":"e_1_3_2_2_29_1","doi-asserted-by":"publisher","DOI":"10.1186\/1743-0003-11-60"},{"key":"e_1_3_2_2_30_1","doi-asserted-by":"publisher","DOI":"10.1177\/0891241607310839"},{"key":"e_1_3_2_2_31_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.1390"},{"key":"e_1_3_2_2_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2016.01.023"},{"key":"e_1_3_2_2_34_1","volume-title":"Stigma: Notes on The Management of Spoiled Identity","author":"Goffman Erving","year":"1963","unstructured":"Erving Goffman. 1963. Stigma: Notes on The Management of Spoiled Identity (1st ed.). Prentice Hall.","edition":"1"},{"key":"e_1_3_2_2_35_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.21922"},{"key":"e_1_3_2_2_36_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12160-014-9607-x"},{"key":"e_1_3_2_2_37_1","volume-title":"The organising vision for telehealth and telecare: discourse analysis. BMJ Open 2, 4","author":"Greenhalgh Trisha","year":"2012","unstructured":"Trisha Greenhalgh, Rob Procter, Joe Wherton, Paul Sugarhood, and Sara Shaw. 2012. The organising vision for telehealth and telecare: discourse analysis. BMJ Open 2, 4 (2012)."},{"key":"e_1_3_2_2_38_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.20602"},{"key":"e_1_3_2_2_39_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2377-7-20"},{"key":"e_1_3_2_2_40_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2010.05459.x"},{"key":"e_1_3_2_2_41_1","doi-asserted-by":"publisher","DOI":"10.1089\/tmj.2013.0014"},{"key":"e_1_3_2_2_42_1","doi-asserted-by":"publisher","DOI":"10.1109\/JBHI.2015.2479625"},{"key":"e_1_3_2_2_43_1","doi-asserted-by":"publisher","DOI":"10.1145\/2468356.2468435"},{"key":"e_1_3_2_2_44_1","article-title":"?Why Didn't it Work?","volume":"17","author":"Lau Annie YS","year":"2015","unstructured":"Annie YS Lau, Ama\u00a8 el Arguel, Sarah Dennis, Siaw-Teng Liaw, and Enrico Coiera. 2015. ?Why Didn't it Work?\" Lessons From a Randomized Controlled Trial of a Web-based Personally Controlled Health Management System for Adults with Asthma. Journal of Medical Internet Research 17, 12 (2015).","journal-title":"Journal of Medical Internet Research"},{"key":"e_1_3_2_2_45_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.20041"},{"key":"e_1_3_2_2_46_1","volume-title":"Lofland","author":"Lofland John","year":"2005","unstructured":"John Lofland, David A. Snow, Leon Anderson, and Lyn H. Lofland. 2005. Analyzing Social Settings: A Guide to Qualitative Observation and Analysis (4th ed.). Wadsworth Publishing."},{"key":"e_1_3_2_2_47_1","unstructured":"Beats Medical Ltd. 2017. Beats Medical Parkinsons Treatment App. (2017). https:\/\/itun.es\/i6Yk7tQ"},{"key":"e_1_3_2_2_48_1","doi-asserted-by":"publisher","DOI":"10.1145\/2702123.2702494"},{"key":"e_1_3_2_2_49_1","doi-asserted-by":"publisher","DOI":"10.1097\/01376517-199110000-00010"},{"key":"e_1_3_2_2_51_1","doi-asserted-by":"publisher","DOI":"10.1258\/jtt.2012.120105"},{"key":"e_1_3_2_2_52_1","first-page":"1","article-title":"Clinical Approach to Parkinson's Disease: Features, Diagnosis, and Principles of Management","volume":"2","author":"Bhatia Massano","year":"2012","unstructured":"Jo? ao Massano and Kailash P. Bhatia. 2012. Clinical Approach to Parkinson's Disease: Features, Diagnosis, and Principles of Management. Cold Spring Harbor Perspectives in Medicine 2, 6 (2012), 1--15.","journal-title":"Cold Spring Harbor Perspectives in Medicine"},{"key":"e_1_3_2_2_53_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-11-131"},{"key":"e_1_3_2_2_54_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2008.01120.x"},{"key":"e_1_3_2_2_55_1","volume-title":"Telehealthcare for long term conditions. BMJ 342","author":"McLean Susannah","year":"2011","unstructured":"Susannah McLean, Denis Protti, and Aziz Sheikh. 2011. Telehealthcare for long term conditions. BMJ 342 (2011)."},{"key":"e_1_3_2_2_56_1","doi-asserted-by":"publisher","DOI":"10.1145\/1978942.1979030"},{"key":"e_1_3_2_2_57_1","doi-asserted-by":"publisher","DOI":"10.1145\/2702123.2702292"},{"key":"e_1_3_2_2_58_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jneumeth.2011.09.019"},{"key":"e_1_3_2_2_59_1","volume-title":"Care in Practice: On Tinkering in Clinics, Homes and Farms, Annemarie Mol, Ingunn Moser, and Jeannette Pols (Eds.). transcript","author":"Mol Annemarie","unstructured":"Annemarie Mol, Ingunn Moser, and Jeannette Pols. 2010. Care: putting practice into theory. In Care in Practice: On Tinkering in Clinics, Homes and Farms, Annemarie Mol, Ingunn Moser, and Jeannette Pols (Eds.). transcript Verlag, Bielefeld, 7--25."},{"key":"e_1_3_2_2_60_1","unstructured":"myHealthPal Group Ltd. 2015. myHealthPal. (2015). https:\/\/itun.es\/i6SC9mf"},{"key":"e_1_3_2_2_61_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.4770110206"},{"key":"e_1_3_2_2_62_1","doi-asserted-by":"publisher","DOI":"10.1145\/1958824.1958876"},{"key":"e_1_3_2_2_63_1","doi-asserted-by":"publisher","DOI":"10.1080\/10447318.2015.1067498"},{"key":"e_1_3_2_2_64_1","doi-asserted-by":"publisher","DOI":"10.1145\/2803173"},{"key":"e_1_3_2_2_65_1","doi-asserted-by":"publisher","DOI":"10.1145\/2702123.2702453"},{"key":"e_1_3_2_2_66_1","doi-asserted-by":"publisher","DOI":"10.1145\/1180875.1180888"},{"key":"e_1_3_2_2_67_1","doi-asserted-by":"publisher","DOI":"10.1145\/2675133.2675248"},{"key":"e_1_3_2_2_68_1","volume-title":"The Social System","author":"Parsons Talcott","unstructured":"Talcott Parsons. 1951. The Social System. Routledge."},{"key":"e_1_3_2_2_69_1","volume-title":"The Management of Chronic Illness: Patient and Doctor Perspectives on Parkinson's Disease","author":"Pinder Ruth","unstructured":"Ruth Pinder. 1990. The Management of Chronic Illness: Patient and Doctor Perspectives on Parkinson's Disease. Macmillan Press."},{"key":"e_1_3_2_2_70_1","doi-asserted-by":"publisher","DOI":"10.1108\/ITP-02-2013-0030"},{"key":"e_1_3_2_2_71_1","doi-asserted-by":"publisher","DOI":"10.1258\/jtt.2009.090812"},{"key":"e_1_3_2_2_72_1","volume-title":"Care at a Distance: On the Closeness of Technology","author":"Pols Jeannette","unstructured":"Jeannette Pols. 2012. Care at a Distance: On the Closeness of Technology. Amsterdam University Press."},{"key":"e_1_3_2_2_73_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0953-5438(98)00056-3"},{"key":"e_1_3_2_2_74_1","doi-asserted-by":"publisher","DOI":"10.1080\/10447311003719847"},{"key":"e_1_3_2_2_75_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732308327076"},{"key":"e_1_3_2_2_76_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-12-220"},{"key":"e_1_3_2_2_77_1","volume-title":"Ada Zhang, Neal Ryan, ThanhG.N. Ton, Rajeev Gandhi, and Samay Jain.","author":"Sharma Vinod","year":"2014","unstructured":"Vinod Sharma, Kunal Mankodiya, Fernando De La Torre, Ada Zhang, Neal Ryan, ThanhG.N. Ton, Rajeev Gandhi, and Samay Jain. 2014. SPARK: Personalized Parkinson Disease Interventions through Synergy between a Smartphone and a Smartwatch. In Design, User Experience, and Usability. User Experience Design for Everyday Life Applications and Services, Aaron Marcus (Ed.). Lecture Notes in Computer Science, Vol. 8519. Springer International Publishing, 103--114."},{"key":"e_1_3_2_2_78_1","volume-title":"With Shaking Hands: Aging with Parkinson's Disease in America's Heartland","author":"Solimeo Samantha","unstructured":"Samantha Solimeo. 2009. With Shaking Hands: Aging with Parkinson's Disease in America's Heartland. Rutgers University Press."},{"key":"e_1_3_2_2_79_1","volume-title":"Bloem","author":"Speelman Arlene D.","year":"2011","unstructured":"Arlene D. Speelman, Bart P. van de Warrenburg, Marlies van Nimwegen, Giselle M. Petzinger, Marten Munneke, and Bastiaan R. Bloem. 2011. How might physical activity benefit patients with Parkinson disease? Nat Rev Neurol 7, 9 (09 2011), 528--534."},{"key":"e_1_3_2_2_80_1","doi-asserted-by":"publisher","DOI":"10.1080\/10447311003720001"},{"key":"e_1_3_2_2_81_1","doi-asserted-by":"publisher","DOI":"10.1108\/ITP-02-2013-0032"},{"key":"e_1_3_2_2_82_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12124"},{"key":"e_1_3_2_2_83_1","volume-title":"Bannon","author":"Storni Cristiano","year":"2012","unstructured":"Cristiano Storni and Liam J. Bannon. 2012. Towards the Design of Truly Patient-Centred Infrastructures: A Socio-Technical Approach to Self-Care. In Health Informatics: An Adaptive Communication Technology for Future Healthcare, Naveen Chilamkurti (Ed.). Nova Science Publishers."},{"key":"e_1_3_2_2_84_1","first-page":"351354","article-title":"The value of personal health records for chronic disease management: what do we know","volume":"43","author":"Tenforde Mark","year":"2011","unstructured":"Mark Tenforde, Anil Jain, and John Hickner. 2011. The value of personal health records for chronic disease management: what do we know? Family Medicine 43, 5 (2011), 351354.","journal-title":"Family Medicine"},{"key":"e_1_3_2_2_85_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2014.898807"},{"key":"e_1_3_2_2_86_1","volume-title":"Esther J. M. Hofman-van Rossum, Sebastiaan Overeem, Dorly J. H. Deeg, George F. Borm, Marleen H. L. van der Horst, Bastiaan R. Bloem, and Marten Munneke.","author":"van Nimwegen Marlies","year":"2011","unstructured":"Marlies van Nimwegen, Arl` ene D. Speelman, Esther J. M. Hofman-van Rossum, Sebastiaan Overeem, Dorly J. H. Deeg, George F. Borm, Marleen H. L. van der Horst, Bastiaan R. Bloem, and Marten Munneke. 2011. Physical inactivity in Parkinson's disease. Journal of Neurology 258, 12 (2011), 2214--2221."},{"key":"e_1_3_2_2_87_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.20.6.64"},{"key":"e_1_3_2_2_88_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(97)00102-X"},{"key":"e_1_3_2_2_89_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1630.2006.00610.x"}],"event":{"name":"CHI '18: CHI Conference on Human Factors in Computing Systems","location":"Montreal QC Canada","acronym":"CHI '18","sponsor":["SIGCHI ACM Special Interest Group on Computer-Human Interaction"]},"container-title":["Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems"],"original-title":[],"link":[{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3173574.3173976","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3173574.3173976","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,18]],"date-time":"2025-06-18T01:08:36Z","timestamp":1750208916000},"score":1,"resource":{"primary":{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3173574.3173976"}},"subtitle":["Ethnographic Accounts of People Living with Parkinson's"],"short-title":[],"issued":{"date-parts":[[2018,4,21]]},"references-count":87,"alternative-id":["10.1145\/3173574.3173976","10.1145\/3173574"],"URL":"https:\/\/doi.org\/10.1145\/3173574.3173976","relation":{},"subject":[],"published":{"date-parts":[[2018,4,21]]},"assertion":[{"value":"2018-04-21","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}