{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,10]],"date-time":"2026-03-10T12:12:14Z","timestamp":1773144734410,"version":"3.50.1"},"reference-count":48,"publisher":"Association for Computing Machinery (ACM)","issue":"CSCW1","license":[{"start":{"date-parts":[[2021,4,13]],"date-time":"2021-04-13T00:00:00Z","timestamp":1618272000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.acm.org\/publications\/policies\/copyright_policy#Background"}],"funder":[{"DOI":"10.13039\/100000001","name":"National Science Foundation","doi-asserted-by":"publisher","award":["1942547"],"award-info":[{"award-number":["1942547"]}],"id":[{"id":"10.13039\/100000001","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["dl.acm.org"],"crossmark-restriction":true},"short-container-title":["Proc. ACM Hum.-Comput. Interact."],"published-print":{"date-parts":[[2021,4,13]]},"abstract":"<jats:p>Previous works have shown that effective communication between parental caregivers and child patients has many benefits to the children, such as providing emotional support and coping skills for health management. Drawing on semi-structured interviews, we have identified the challenges parental caregivers face when communicating with their children about health-related information in daily illness management. Three salient challenges that the parental caregivers encountered include: (i) acknowledging different perceptions and approaches to being a cancer patient, (ii) choosing an appropriate communication method, and (iii) understanding their child's uncommunicated emotions. Based on these challenges, we recognize distinctive, yet implicit, needs that children develop during the illness trajectory, affecting the parent-child dyadic relationship. We discuss design opportunities for a collaborative system that enhances the parent-child dyadic communication by supporting the child's implicit and dynamically changing needs throughout the illness trajectory and beyond.<\/jats:p>","DOI":"10.1145\/3449184","type":"journal-article","created":{"date-parts":[[2021,4,22]],"date-time":"2021-04-22T17:49:24Z","timestamp":1619113764000},"page":"1-24","update-policy":"https:\/\/doi.org\/10.1145\/crossmark-policy","source":"Crossref","is-referenced-by-count":25,"title":["Challenges in the Parent-Child Communication of Health-related Information in Pediatric Cancer Care"],"prefix":"10.1145","volume":"5","author":[{"given":"Woosuk","family":"Seo","sequence":"first","affiliation":[{"name":"University of Michigan, Ann Arbor, MI, USA"}]},{"given":"Ayse G.","family":"Buyuktur","sequence":"additional","affiliation":[{"name":"University of Michigan, Ann Arbor, MI, USA"}]},{"given":"Sung Won","family":"Choi","sequence":"additional","affiliation":[{"name":"University of Michigan, Ann Arbor, MI, USA"}]},{"given":"Laura","family":"Sedig","sequence":"additional","affiliation":[{"name":"University of Michigan, Ann Arbor, MI, USA"}]},{"given":"Sun Young","family":"Park","sequence":"additional","affiliation":[{"name":"University of Michigan, Ann Arbor, MI, USA"}]}],"member":"320","published-online":{"date-parts":[[2021,4,22]]},"reference":[{"key":"e_1_2_1_1_1","unstructured":"[n.d.]. PROMIS: Patient-Reported Outcomes Measurement Information System. http:\/\/www.healthmeasures.net\/ explore-measurement-systems\/promis"},{"key":"e_1_2_1_2_1","unstructured":"[n.d.]. Support for Families When a Child Has Cancer. https:\/\/www.cancer.gov\/about-cancer\/coping\/caregiver- support\/parents"},{"key":"e_1_2_1_3_1","volume-title":"Carlo Clerici, and Geraldina Poggi","author":"Adduci Annarita","year":"2012","unstructured":"Annarita Adduci, Momcilo Jankovic, Sandra Strazzer, Maura Massimino, Carlo Clerici, and Geraldina Poggi. 2012. Parent-child communication and psychological adjustment in children with a brain tumor. Pediatric blood & cancer 59, 2 (2012), 290--294."},{"key":"e_1_2_1_4_1","volume-title":"Parent-child relationship, family structure, and loneliness among adolescents. Adolescent & Family Health","author":"Antognoli-Toland Paula L","year":"2001","unstructured":"Paula L Antognoli-Toland. 2001. Parent-child relationship, family structure, and loneliness among adolescents. Adolescent & Family Health (2001)."},{"key":"e_1_2_1_5_1","doi-asserted-by":"publisher","DOI":"10.1145\/3024969.3025066"},{"key":"e_1_2_1_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/23808985.1977.11923667"},{"key":"e_1_2_1_7_1","doi-asserted-by":"crossref","unstructured":"Hugh Beyer and Karen Holtzblatt. 2000. Contextual design defning customer-centered systems. Morgan Kaufmann.","DOI":"10.1145\/632716.632801"},{"key":"e_1_2_1_8_1","volume-title":"Shared decision making in school age children with asthma. Pediatric nursing 33, 2","author":"Butz Arlene M","year":"2007","unstructured":"Arlene M Butz, Jennifer M Walker, Margaret Pulsifer, and Marilyn Winkelstein. 2007. Shared decision making in school age children with asthma. Pediatric nursing 33, 2 (2007), 111."},{"key":"e_1_2_1_9_1","doi-asserted-by":"crossref","first-page":"274","DOI":"10.1002\/pon.843","article-title":"Parental communication and children's behaviour following diagnosis of childhood leukaemia","volume":"14","author":"Clarke Sally-Ann","year":"2005","unstructured":"Sally-Ann Clarke, Helena Davies, Meriel Jenney, Adam Glaser, and Christine Eiser. 2005. Parental communication and children's behaviour following diagnosis of childhood leukaemia. Psycho-Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer 14, 4 (2005), 274--281.","journal-title":"Psycho-Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer"},{"key":"e_1_2_1_10_1","volume-title":"Louis A Penner, Amy M Peterson, Jefrey W Taub, and Terrance L Albrecht.","author":"Cline Rebecca JW","year":"2006","unstructured":"Rebecca JW Cline, Felicity WK Harper, Louis A Penner, Amy M Peterson, Jefrey W Taub, and Terrance L Albrecht. 2006. Parent communication and child pain and distress during painful pediatric cancer treatments. Social science & medicine 63, 4 (2006), 883--898."},{"key":"e_1_2_1_11_1","volume-title":"Collaborative practice with children and parents. Enhancing preparation for and management of cancer treatment. Cancer practice 5, 6","author":"Ely EA","year":"1997","unstructured":"EA Ely. 1997. Collaborative practice with children and parents. Enhancing preparation for and management of cancer treatment. Cancer practice 5, 6 (1997), 387--390."},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2013.10.007"},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.1037\/0012-1649.35.3.737"},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1145\/3313831.3376426"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.1145\/2858036.2858508"},{"key":"e_1_2_1_16_1","doi-asserted-by":"publisher","DOI":"10.1145\/2207676.2208651"},{"key":"e_1_2_1_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp098"},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1145\/3173574.3174069"},{"key":"e_1_2_1_19_1","doi-asserted-by":"publisher","DOI":"10.1145\/3392876"},{"key":"e_1_2_1_20_1","doi-asserted-by":"crossref","unstructured":"Erin M Johnson Melinda F Hamilton R Scott Watson Rene Claxton Michael Barnett Ann E Thompson and Robert Arnold. 2017. An Intensive Simulation-Based Communication Course for Pediatric Critical Care Medicine (PCCM) Fellows. Pediatric critical care medicine: a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies 18 8 (2017) e348.","DOI":"10.1097\/PCC.0000000000001241"},{"key":"e_1_2_1_21_1","volume-title":"Pediatric palliative care in the community. CA: a cancer journal for clinicians 65, 4","author":"Kaye Erica C","year":"2015","unstructured":"Erica C Kaye, Jared Rubenstein, Deena Levine, Justin N Baker, Devon Dabbs, and Sarah E Friebert. 2015. Pediatric palliative care in the community. CA: a cancer journal for clinicians 65, 4 (2015), 315--333."},{"key":"e_1_2_1_22_1","doi-asserted-by":"publisher","DOI":"10.1145\/1518701.1518965"},{"key":"e_1_2_1_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3549"},{"key":"e_1_2_1_24_1","doi-asserted-by":"publisher","DOI":"10.1145\/2593968.2593970"},{"key":"e_1_2_1_25_1","doi-asserted-by":"publisher","DOI":"10.1145\/2069618.2069699"},{"key":"e_1_2_1_26_1","doi-asserted-by":"publisher","DOI":"10.1145\/2370216.2370277"},{"key":"e_1_2_1_27_1","doi-asserted-by":"publisher","DOI":"10.1145\/2818048.2819983"},{"key":"e_1_2_1_28_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsy054"},{"key":"e_1_2_1_29_1","doi-asserted-by":"publisher","DOI":"10.3109\/01460869509080961"},{"key":"e_1_2_1_30_1","volume-title":"Tracking and Reporting Asthma Data for Children. In Conference Companion Publication of the 2019 on Computer Supported Cooperative Work and Social Computing. 330--334","author":"Nyapathy Nikhila","year":"2019","unstructured":"Nikhila Nyapathy and Rosa I Arriaga. 2019. Tracking and Reporting Asthma Data for Children. In Conference Companion Publication of the 2019 on Computer Supported Cooperative Work and Social Computing. 330--334."},{"key":"e_1_2_1_31_1","doi-asserted-by":"publisher","DOI":"10.1080\/07434610400005622"},{"key":"e_1_2_1_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305277860"},{"key":"e_1_2_1_33_1","doi-asserted-by":"publisher","DOI":"10.1145\/2998181.2998362"},{"key":"e_1_2_1_34_1","doi-asserted-by":"publisher","DOI":"10.1145\/587078.587126"},{"key":"e_1_2_1_35_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jst018"},{"key":"e_1_2_1_36_1","volume-title":"Parent-child relationships","author":"Russell Alan","year":"2002","unstructured":"Alan Russell, Jacqueline Mize, and Kerry Bissaker. 2002. Parent-child relationships. Blackwell handbook of childhood social development (2002), 205--222."},{"key":"e_1_2_1_37_1","volume-title":"Communicating with young people. Paediatric respiratory reviews 4, 4","author":"Rutishauser Christoph","year":"2003","unstructured":"Christoph Rutishauser. 2003. Communicating with young people. Paediatric respiratory reviews 4, 4 (2003), 319--324."},{"key":"e_1_2_1_38_1","first-page":"129","article-title":"Parent-child communication in a childhood cancer context: A literature review","volume":"45","author":"Son Heeyeon","year":"2019","unstructured":"Heeyeon Son, Joan Haase, and Sharron L Docherty. 2019. Parent-child communication in a childhood cancer context: A literature review. Pediatric Nursing 45, 3 (2019), 129--141.","journal-title":"Pediatric Nursing"},{"key":"e_1_2_1_39_1","doi-asserted-by":"publisher","DOI":"10.1145\/3173574.3174114"},{"key":"e_1_2_1_40_1","volume-title":"Grounded theory in practice","author":"Strauss Anselm","unstructured":"Anselm Strauss and Juliet M Corbin. 1997. Grounded theory in practice. Sage."},{"key":"e_1_2_1_41_1","doi-asserted-by":"publisher","DOI":"10.1145\/2556288.2557386"},{"key":"e_1_2_1_42_1","volume-title":"AMIA Annual Symposium Proceedings","volume":"2016","author":"Suh Hyewon","year":"2016","unstructured":"Hyewon Suh, John R Porter, Robert Racadio, Yi-Chen Sung, and Julie A Kientz. 2016. Baby Steps Text: Feasibility Study of an SMS-Based Tool for Tracking Children's Developmental Progress. In AMIA Annual Symposium Proceedings, Vol. 2016. American Medical Informatics Association, 1997."},{"key":"e_1_2_1_43_1","doi-asserted-by":"publisher","DOI":"10.1145\/2207676.2208603"},{"key":"e_1_2_1_44_1","doi-asserted-by":"publisher","DOI":"10.1192\/pb.bp.113.044396"},{"key":"e_1_2_1_45_1","volume-title":"Mind in society Harvard university press","author":"Vygotsky Lev S","year":"1978","unstructured":"Lev S Vygotsky. 1978. Mind in society Harvard university press. Cambridge, MA (1978)."},{"key":"e_1_2_1_46_1","doi-asserted-by":"publisher","DOI":"10.1080\/17405629.2013.876914"},{"key":"e_1_2_1_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/s0277-9536(01)00318-5"},{"key":"e_1_2_1_48_1","volume-title":"Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents. Bmj 326, 7384","author":"Young Bridget","year":"2003","unstructured":"Bridget Young, Mary Dixon-Woods, Kate C Windridge, and David Heney. 2003. Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents. Bmj 326, 7384 (2003), 305."}],"container-title":["Proceedings of the ACM on Human-Computer Interaction"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3449184","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3449184","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3449184","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,17]],"date-time":"2025-06-17T20:18:17Z","timestamp":1750191497000},"score":1,"resource":{"primary":{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3449184"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,4,13]]},"references-count":48,"journal-issue":{"issue":"CSCW1","published-print":{"date-parts":[[2021,4,13]]}},"alternative-id":["10.1145\/3449184"],"URL":"https:\/\/doi.org\/10.1145\/3449184","relation":{},"ISSN":["2573-0142"],"issn-type":[{"value":"2573-0142","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,4,13]]},"assertion":[{"value":"2021-04-22","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}