{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T21:03:41Z","timestamp":1776114221309,"version":"3.50.1"},"reference-count":61,"publisher":"Association for Computing Machinery (ACM)","issue":"CSCW1","license":[{"start":{"date-parts":[[2021,4,13]],"date-time":"2021-04-13T00:00:00Z","timestamp":1618272000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.acm.org\/publications\/policies\/copyright_policy#Background"}],"funder":[{"DOI":"10.13039\/100000133","name":"Agency for Healthcare Research and Quality","doi-asserted-by":"crossref","award":["1R01HS022894"],"award-info":[{"award-number":["1R01HS022894"]}],"id":[{"id":"10.13039\/100000133","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["dl.acm.org"],"crossmark-restriction":true},"short-container-title":["Proc. ACM Hum.-Comput. Interact."],"published-print":{"date-parts":[[2021,4,13]]},"abstract":"<jats:p>To increase patient engagement and facilitate patient-provider collaboration, tools that incorporate patients' goals into medical care plans are needed. However, few studies have explored how hospitalized patients set and share goals to communicate with their caregivers and clinical care teams. Even less is known for how pediatric patients experience sharing their goals during hospitalization. This paper presents a technology probe study to characterize how pediatric patients perceive goal-setting, and how goal-sharing affects their collaboration with their caregivers and clinical care teams. We conducted this study with 13 patient families and 4 clinicians. We found that goals set and shared by pediatric patients foster the patients' autonomy to participate in care decision-making, reveal the gaps of understanding between patients and caregivers, support the patients emotionally during patient and care team interaction, and convey the patients' personalities and preferences to the clinical care team. In addition, we recommend design opportunities to support the different ways that patients' goals can foster high-quality patient care. We also discuss how patients' goals impact the tension of shared decisional authority between patients and caregivers, and how goals support pediatric patients transition to self-care.<\/jats:p>","DOI":"10.1145\/3449238","type":"journal-article","created":{"date-parts":[[2021,4,22]],"date-time":"2021-04-22T17:47:59Z","timestamp":1619113679000},"page":"1-22","update-policy":"https:\/\/doi.org\/10.1145\/crossmark-policy","source":"Crossref","is-referenced-by-count":13,"title":["Supporting Goal-Based Collaboration for Hospitalized Children"],"prefix":"10.1145","volume":"5","author":[{"given":"Yiran","family":"Zhao","sequence":"first","affiliation":[{"name":"University of Washington &amp; Cornell University, New York, NY, USA"}]},{"given":"Yoojung","family":"Kim","sequence":"additional","affiliation":[{"name":"Seoul National University, Seoul, Republic of Korea"}]},{"given":"Calvin","family":"Apodaca","sequence":"additional","affiliation":[{"name":"University of Washington, Seattle, WA, USA"}]},{"given":"Regina","family":"Casanova-Perez","sequence":"additional","affiliation":[{"name":"University of Washington, Seattle, WA, USA"}]},{"given":"Shefali","family":"Haldar","sequence":"additional","affiliation":[{"name":"Northwestern University, Evanston, IL, USA"}]},{"given":"Sonali R.","family":"Mishra","sequence":"additional","affiliation":[{"name":"University of Washington, Seattle, WA, USA"}]},{"given":"Julia C.","family":"Dunbar","sequence":"additional","affiliation":[{"name":"University of Washington, Seattle, WA, USA"}]},{"given":"Ari","family":"Pollack","sequence":"additional","affiliation":[{"name":"Seattle Children's Hospital &amp; University of Washington, Seattle, WA, USA"}]},{"given":"Wanda","family":"Pratt","sequence":"additional","affiliation":[{"name":"University of Washington, Seattle, WA, USA"}]}],"member":"320","published-online":{"date-parts":[[2021,4,22]]},"reference":[{"key":"e_1_2_2_1_1","doi-asserted-by":"publisher","DOI":"10.1093\/ptj\/81.5.1118"},{"key":"e_1_2_2_2_1","doi-asserted-by":"publisher","DOI":"10.1145\/3290605.3300700"},{"key":"e_1_2_2_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.outlook.2013.01.008"},{"key":"e_1_2_2_4_1","doi-asserted-by":"publisher","DOI":"10.1145\/1518701.1518891"},{"key":"e_1_2_2_5_1","doi-asserted-by":"publisher","DOI":"10.1145\/1518701.1518891"},{"key":"e_1_2_2_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2009.06.001"},{"key":"e_1_2_2_7_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.282.24.2313"},{"key":"e_1_2_2_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12529"},{"key":"e_1_2_2_9_1","doi-asserted-by":"publisher","DOI":"10.3402\/qhw.v9.26152"},{"key":"e_1_2_2_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/1460458213489054"},{"key":"e_1_2_2_11_1","volume-title":"What Is Patient-Centered Care? NEJM Catalyst (Jan","author":"Catalyst NEJM","year":"2017","unstructured":"NEJM Catalyst. 2017. What Is Patient-Centered Care? NEJM Catalyst (Jan. 2017). https:\/\/catalyst.nejm.org\/doi\/abs\/10.1056\/CAT.17.0559 Publisher: Massachusetts Medical Society."},{"key":"e_1_2_2_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/jmp"},{"key":"e_1_2_2_13_1","doi-asserted-by":"publisher","DOI":"10.1145\/2818048.2819926"},{"key":"e_1_2_2_14_1","doi-asserted-by":"publisher","DOI":"10.1145\/2818048.2819926"},{"key":"e_1_2_2_15_1","doi-asserted-by":"publisher","DOI":"10.12788\/jhm.2923"},{"key":"e_1_2_2_16_1","doi-asserted-by":"publisher","DOI":"10.1093\/jamia"},{"key":"e_1_2_2_17_1","doi-asserted-by":"publisher","DOI":"10.1145\/1541948.1541960"},{"key":"e_1_2_2_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2005.01247.x"},{"key":"e_1_2_2_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2010.03582.x"},{"key":"e_1_2_2_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.gcb.2008.01.044"},{"key":"e_1_2_2_21_1","volume-title":"There'sa SMART way to write management's goals and objectives. Management review","author":"Doran George T","year":"1981","unstructured":"George T Doran. 1981. There'sa SMART way to write management's goals and objectives. Management review, Vol. 70, 11 (1981), 35--36."},{"key":"e_1_2_2_22_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-012-2077-6"},{"key":"e_1_2_2_23_1","doi-asserted-by":"publisher","DOI":"10.1155\/2016"},{"key":"e_1_2_2_24_1","volume-title":"Medical decision-making in children and adolescents: developmental and neuroscientific aspects. BMC pediatrics","author":"Grootens-Wiegers Petronella","year":"2017","unstructured":"Petronella Grootens-Wiegers, Irma M Hein, Jos M van den Broek, and Martine C de Vries. 2017. Medical decision-making in children and adolescents: developmental and neuroscientific aspects. BMC pediatrics, Vol. 17, 1 (2017), 1--10."},{"key":"e_1_2_2_25_1","doi-asserted-by":"publisher","DOI":"10.1145\/3290605.3300596"},{"key":"e_1_2_2_26_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.282.24.2313"},{"key":"e_1_2_2_27_1","doi-asserted-by":"publisher","DOI":"10.1093\/jamia"},{"key":"e_1_2_2_28_1","doi-asserted-by":"publisher","DOI":"10.1093\/jamia"},{"key":"e_1_2_2_29_1","doi-asserted-by":"publisher","DOI":"10.1093\/jamia\/ocw070"},{"key":"e_1_2_2_30_1","unstructured":"Maher Khefili Shefali Haldar Sonali R Mishra Calvin Apodaca Erin Beneteau Ari H Pollack and Wanda Pratt. 2018. Designs to Support Informed Hospitalized Patients. In AMIA. https:\/\/symposium2018.zerista.com\/event\/member\/509122"},{"key":"e_1_2_2_31_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2013.01.016"},{"key":"e_1_2_2_32_1","doi-asserted-by":"publisher","DOI":"10.1145\/3064663.3064697"},{"key":"e_1_2_2_33_1","volume-title":"Pignone","author":"Lewis Carmen L.","year":"2009","unstructured":"Carmen L. Lewis and Michael P. Pignone. 2009. Promoting Informed Decision-Making in a Primary Care Practice by Implementing Decision Aids. North Carolina medical journal, Vol. 70, 2 (2009), 136--139. https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC3213756\/"},{"key":"e_1_2_2_34_1","doi-asserted-by":"publisher","DOI":"10.1145\/2030112.2030166"},{"key":"e_1_2_2_35_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-3046.2004.00287.x_eprint:"},{"key":"e_1_2_2_36_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2004-1622"},{"key":"e_1_2_2_37_1","unstructured":"Pierre-Andre? Michaud Joan-Carles Suris and Russell Viner. 2007. The adolescent with a chronic condition: epidemiology developmental issues and health care provision. (2007)."},{"key":"e_1_2_2_38_1","doi-asserted-by":"publisher","DOI":"10.1145\/2818048.2819983"},{"key":"e_1_2_2_39_1","first-page":"663","article-title":"Family-centered rounds","volume":"61","author":"Mittal Vineeta","year":"2014","unstructured":"Vineeta Mittal. 2014. Family-centered rounds. Pediatric Clinics, Vol. 61, 4 (2014), 663--670.","journal-title":"Pediatric Clinics"},{"key":"e_1_2_2_40_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011--1635"},{"key":"e_1_2_2_41_1","doi-asserted-by":"publisher","DOI":"10.1370\/afm.2180"},{"key":"e_1_2_2_42_1","doi-asserted-by":"publisher","DOI":"10.31478\/201106a"},{"key":"e_1_2_2_43_1","doi-asserted-by":"publisher","DOI":"10.17294\/2330-0698.1656"},{"key":"e_1_2_2_44_1","volume-title":"Pediatrics","volume":"95","author":"PARENTAL","year":"1995","unstructured":"PARENTAL PERMISSION. 1995. Informed consent, parental permission, and assent in pediatric practice. Pediatrics, Vol. 95, 2 (1995)."},{"key":"e_1_2_2_45_1","doi-asserted-by":"publisher","DOI":"10.1145\/2207676.2208601"},{"key":"e_1_2_2_46_1","doi-asserted-by":"publisher","DOI":"10.1136\/amiajnl-2013-002141"},{"key":"e_1_2_2_47_1","volume-title":"Implementing a transition pathway in diabetes: a qualitative study of the experiences and suggestions of young people with diabetes. Child: care, health and development","author":"Price CS","year":"2011","unstructured":"CS Price, S Corbett, N Lewis-Barned, J Morgan, LE Oliver, and G Dovey-Pearce. 2011. Implementing a transition pathway in diabetes: a qualitative study of the experiences and suggestions of young people with diabetes. Child: care, health and development, Vol. 37, 6 (2011), 852--860."},{"key":"e_1_2_2_48_1","doi-asserted-by":"publisher","DOI":"10.2337\/dc08-1220"},{"key":"e_1_2_2_49_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.15885_eprint:"},{"key":"e_1_2_2_50_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp1113631"},{"key":"e_1_2_2_51_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2008-2238"},{"key":"e_1_2_2_52_1","doi-asserted-by":"publisher","DOI":"10.1145\/3369809"},{"key":"e_1_2_2_53_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365--2214.2011.01282.x"},{"key":"e_1_2_2_54_1","doi-asserted-by":"publisher","DOI":"10.1080\/10401330701366812"},{"key":"e_1_2_2_55_1","doi-asserted-by":"publisher","DOI":"10.1145\/1882992.1883087"},{"key":"e_1_2_2_56_1","doi-asserted-by":"publisher","DOI":"10.1002\/mpo.10262"},{"key":"e_1_2_2_57_1","volume-title":"Convention on the Rights of the Child.","author":"Unicef","year":"1989","unstructured":"Unicef et almbox. 1989. Convention on the Rights of the Child. (1989)."},{"key":"e_1_2_2_58_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269215509103551"},{"key":"e_1_2_2_59_1","doi-asserted-by":"publisher","DOI":"10.2307\/3527716"},{"key":"e_1_2_2_60_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2005.01.8390"},{"key":"e_1_2_2_61_1","doi-asserted-by":"publisher","DOI":"10.1145\/1753326.1753650"}],"container-title":["Proceedings of the ACM on Human-Computer Interaction"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3449238","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3449238","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,17]],"date-time":"2025-06-17T21:28:22Z","timestamp":1750195702000},"score":1,"resource":{"primary":{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3449238"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,4,13]]},"references-count":61,"journal-issue":{"issue":"CSCW1","published-print":{"date-parts":[[2021,4,13]]}},"alternative-id":["10.1145\/3449238"],"URL":"https:\/\/doi.org\/10.1145\/3449238","relation":{},"ISSN":["2573-0142"],"issn-type":[{"value":"2573-0142","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,4,13]]},"assertion":[{"value":"2021-04-22","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}