{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T15:53:37Z","timestamp":1776095617169,"version":"3.50.1"},"reference-count":127,"publisher":"Association for Computing Machinery (ACM)","issue":"3","license":[{"start":{"date-parts":[[2023,6,10]],"date-time":"2023-06-10T00:00:00Z","timestamp":1686355200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.acm.org\/publications\/policies\/copyright_policy#Background"}],"funder":[{"DOI":"10.13039\/501100000266","name":"EPSRC","doi-asserted-by":"crossref","award":["EP\/L016176\/1"],"award-info":[{"award-number":["EP\/L016176\/1"]}],"id":[{"id":"10.13039\/501100000266","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["dl.acm.org"],"crossmark-restriction":true},"short-container-title":["ACM Trans. Comput.-Hum. Interact."],"published-print":{"date-parts":[[2023,6,30]]},"abstract":"<jats:p>Recent HCI research has addressed emerging approaches for public engagement. One such public-facing method which has gained popularity over the previous decade has been open design events, or hackathons. In this article, we report on DemVR, a hackathon event that invited designers, technologists, and students of these disciplines to design Virtual Reality (VR) environments for people with dementia and their care partners. While our event gained reasonable attraction from designers and developers, this article unpacks the challenges in representing and involving people with dementia in these events, which had multiple knock-on effects on participant's outputs. Our analysis presents insights into participants\u2019 motivations, challenges participants faced when constructing their \u201cabsent user\u201d, and the design features teams developed to address the social context of the user. We conclude the article by proposing a set of commitments for collaborative design events, community building through design, and reification in design.<\/jats:p>","DOI":"10.1145\/3571814","type":"journal-article","created":{"date-parts":[[2022,11,29]],"date-time":"2022-11-29T12:05:24Z","timestamp":1669723524000},"page":"1-35","update-policy":"https:\/\/doi.org\/10.1145\/crossmark-policy","source":"Crossref","is-referenced-by-count":7,"title":["Exploring Participants\u2019 Representations and Shifting Sensitivities in a Hackathon for Dementia"],"prefix":"10.1145","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6988-5730","authenticated-orcid":false,"given":"James","family":"Hodge","sequence":"first","affiliation":[{"name":"Newcastle University, Open Lab"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3450-148X","authenticated-orcid":false,"given":"Sarah","family":"Foley","sequence":"additional","affiliation":[{"name":"University College Cork National University of Ireland, School of Applied Psychology"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9874-3595","authenticated-orcid":false,"given":"Dan","family":"Lambton-Howard","sequence":"additional","affiliation":[{"name":"Newcastle University, Open Lab"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4555-0335","authenticated-orcid":false,"given":"Laura","family":"Booi","sequence":"additional","affiliation":[{"name":"Leeds Beckett University, Centre for Dementia Research"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9589-9471","authenticated-orcid":false,"given":"Kyle","family":"Montague","sequence":"additional","affiliation":[{"name":"Northumbria University, Computer and Information Sciences"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8386-0844","authenticated-orcid":false,"given":"Sandra","family":"Coulter","sequence":"additional","affiliation":[{"name":"Newcastle, Silverline Memories"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2776-0643","authenticated-orcid":false,"given":"David","family":"Kirk","sequence":"additional","affiliation":[{"name":"Newcastle, Silverline Memories"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6962-6920","authenticated-orcid":false,"given":"Kellie","family":"Morrissey","sequence":"additional","affiliation":[{"name":"University of Limerick, School of Design"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"320","published-online":{"date-parts":[[2023,6,10]]},"reference":[{"key":"e_1_3_3_2_2","first-page":"602:1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Balaam M.","year":"2019","unstructured":"M. Balaam, R. Comber, R. E. Clarke, C. Windlin, A. St\u00e5hl, K. H\u00f6\u00f6k, and G. Fitzpatrick. 2019. Emotion work in experience-centered design. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 602:1\u2013602:12."},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2014.924905"},{"key":"e_1_3_3_4_2","volume-title":"Broadening the Dementia Debate: Towards Social Citizenship","author":"Bartlett R.","year":"2010","unstructured":"R. Bartlett and D. O'Connor. 2010. Broadening the Dementia Debate: Towards Social Citizenship. Policy Press."},{"key":"e_1_3_3_5_2","first-page":"1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Bennett C. L.","year":"2019","unstructured":"C. L. Bennett and D. K. Rosner. 2019. The promise of empathy: design, disability, and knowing the \u201cOther.\u201d In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 1\u201313."},{"key":"e_1_3_3_6_2","doi-asserted-by":"crossref","first-page":"146","DOI":"10.1145\/3025453.3025931","volume-title":"Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems.","author":"Birbeck N.","year":"2017","unstructured":"N. Birbeck, S. Lawson, K. Morrissey, T. Rapley, and P. Olivier. 2017. Self Harmony: Rethinking hackathons to design and critique digital technologies for those affected by self-harm. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. 146\u2013157."},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/1757913917720153"},{"key":"e_1_3_3_8_2","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1145\/3301019.3319997","volume-title":"Companion Publication of the 2019 on Designing Interactive Systems Conference 2019 Companion","author":"Brankaert R.","year":"2019","unstructured":"R. Brankaert, G. Kenning, D. Welsh, S. Foley, J. Hodge, and D. Unbehaun. 2019. Intersections in HCI, Design and Dementia: Inclusivity in Participatory Approaches. Companion Publication of the 2019 on Designing Interactive Systems Conference 2019 Companion. 357\u2013360."},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2020.1769238"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.3402\/qhw.v9.26152"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732311417727"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301219876711"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1177\/1329878X19844034"},{"key":"e_1_3_3_15_2","doi-asserted-by":"crossref","first-page":"395","DOI":"10.1145\/3357236.3395485","volume-title":"Proceedings of the 2020 ACM Designing Interactive Systems Conference","author":"Caraban A.","year":"2020","unstructured":"A. Caraban, L. Konstantinou, and E. Karapanos. 2020. The nudge deck: A design support tool for technology-mediated nudging. In Proceedings of the 2020 ACM Designing Interactive Systems Conference. Association for Computing Machinery, 395\u2013406."},{"key":"e_1_3_3_16_2","volume-title":"Dancing with Dementia: My Story of Living Positively with Dementia","author":"Bryden Christine","year":"2005","unstructured":"Christine Bryden 2005. Dancing with Dementia: My Story of Living Positively with Dementia. Jessica Kingsley Publishers."},{"key":"e_1_3_3_17_2","doi-asserted-by":"crossref","first-page":"2517","DOI":"10.1145\/2470654.2481348","volume-title":"Proceedings of the SIGCHI Conference on Human Factors in Computing Systems.","author":"Clarke R.","year":"2013","unstructured":"R. Clarke, P. Wright, M. Balaam, and J. McCarthy. 2013. Digital portraits: Photo-sharing after domestic violence. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 2517\u20132526."},{"key":"e_1_3_3_18_2","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1145\/3064663.3064667","volume-title":"Proceedings of the 2017 Conference on Designing Interactive Systems.","author":"Colusso L.","year":"2017","unstructured":"L. Colusso, C. L. Bennett, G. Hsieh, and S. A. Munson. 2017. Translational resources: Reducing the gap between academic research and HCI practice. In Proceedings of the 2017 Conference on Designing Interactive Systems. 957\u2013968."},{"key":"e_1_3_3_19_2","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1145\/3196709.3196715","volume-title":"Proceedings of the 2018 Designing Interactive Systems Conference.","author":"Corbett E.","year":"2018","unstructured":"E. Corbett and C. A. Le Dantec. 2018. Exploring trust in digital civics. In Proceedings of the 2018 Designing Interactive Systems Conference. 9\u201320."},{"key":"e_1_3_3_20_2","doi-asserted-by":"crossref","DOI":"10.7551\/mitpress\/12255.001.0001","volume-title":"Design Justice: Community-Led Practices to Build the Worlds We Need","author":"Costanza-Chock S.","year":"2020","unstructured":"S. Costanza-Chock. 2020. Design Justice: Community-Led Practices to Build the Worlds We Need. The MIT Press."},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.chb.2013.02.003"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732316637065"},{"key":"e_1_3_3_23_2","doi-asserted-by":"crossref","first-page":"153","DOI":"10.1145\/3301019.3323911","volume-title":"Companion Publication of the 2019 on Designing Interactive Systems Conference 2019 Companion","author":"Cutting K.","year":"2019","unstructured":"K. Cutting and E. Hedenborg. 2019. Can personas speak? Biopolitics in design processes. In Companion Publication of the 2019 on Designing Interactive Systems Conference 2019 Companion. 153\u2013157."},{"key":"e_1_3_3_24_2","first-page":"1","volume-title":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","author":"Dai J.","year":"2020","unstructured":"J. Dai and K. Moffatt. 2020. Making space for social sharing: Insights from a community-based social group for people with dementia. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, 1\u201313."},{"key":"e_1_3_3_25_2","first-page":"2295","volume-title":"Proceedings of the CHI \u201913 Extended Abstracts on Human Factors in Computing Systems","author":"Dalton N. S.","year":"2013","unstructured":"N. S. Dalton. 2013. Neurodiversity & HCI. In Proceedings of the CHI \u201913 Extended Abstracts on Human Factors in Computing Systems. 2295\u20132304."},{"key":"e_1_3_3_26_2","unstructured":"DEEP: 2020. Retrieved June 16 2020 from https:\/\/www.dementiavoices.org.uk\/."},{"key":"e_1_3_3_27_2","unstructured":"Dementia Caf\u00e9 \u2013 information and advice for people in a relaxed setting | Alzheimer's Society: Retrieved April 14 2021 from https:\/\/www.alzheimers.org.uk\/get-support\/your-support-services\/dementia-cafe."},{"key":"e_1_3_3_28_2","doi-asserted-by":"crossref","first-page":"449","DOI":"10.1145\/3311957.3359442","volume-title":"Conference Companion Publication of the 2019 on Computer Supported Cooperative Work and Social Computing.","author":"Devito M. A.","year":"2019","unstructured":"M. A. Devito, A. M. Walker, J. Birnholtz, K. Ringland, K. Macapagal, A. Kraus, S. Munson, C. Liang, and H. Saksono. 2019. Social technologies for digital wellbeing among marginalized communities. In Conference Companion Publication of the 2019 on Computer Supported Cooperative Work and Social Computing. 449\u2013454."},{"key":"e_1_3_3_29_2","doi-asserted-by":"crossref","first-page":"2612","DOI":"10.1145\/2858036.2858460","volume-title":"Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems.","author":"D'Ignazio C.","year":"2016","unstructured":"C. D'Ignazio, A. Hope, B. Michelson, R. Churchill, and E. Zuckerman. 2016. A feminist HCI approach to designing postpartum technologies: \u201cWhen I first saw a breast pump I was wondering if it was a joke.\u201d In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 2612\u20132622."},{"issue":"3","key":"e_1_3_3_30_2","doi-asserted-by":"crossref","first-page":"69","DOI":"10.3917\/entin.038.0069","article-title":"Hackathons: A field of dreams for \u2018collaborative innovation\u2019?","volume":"38","author":"Endrissat N.","year":"2018","unstructured":"N. Endrissat. 2018. Hackathons: A field of dreams for \u2018collaborative innovation\u2019? Entreprendre Innover. n\u00b0 38, 3 (2018), 69\u201375.","journal-title":"Entreprendre Innover"},{"key":"e_1_3_3_31_2","unstructured":"S. B. Evans. 2018. Disruption by Design: Feminist Interventions in Digital Game Production on a University Campus. (2018)."},{"key":"e_1_3_3_32_2","volume-title":"Proceedings of the ACM on Human-Computer Interaction","volume":"3","author":"Faas T.","year":"2019","unstructured":"T. Faas, I. Liu, L. Dombrowski, and A. D. Miller. 2019. Jam today, jam tomorrow: Learning in online game jams. Proceedings of the ACM on Human-Computer Interaction 3, GROUP (2019). DOI:10.1145\/3361121"},{"key":"e_1_3_3_33_2","doi-asserted-by":"crossref","first-page":"1073","DOI":"10.1145\/3357236.3395543","volume-title":"Proceedings of the 2020 ACM Designing Interactive Systems Conference.","author":"Falk Olesen J.","year":"2020","unstructured":"J. Falk Olesen and K. Halskov. 2020. 10 Years of research with and on hackathons. In Proceedings of the 2020 ACM Designing Interactive Systems Conference. 1073\u20131088."},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnx122"},{"key":"e_1_3_3_35_2","doi-asserted-by":"crossref","first-page":"520","DOI":"10.1145\/2591062.2591121","volume-title":"Companion Proceedings of the 36th International Conference on Software Engineering.","author":"Ferrario M. A.","year":"2014","unstructured":"M. A. Ferrario, W. Simm, P. Newman, S. Forshaw, and J. Whittle. 2014. Software engineering for \u201csocial good\u201d: integrating action research, participatory design, and agile development. In Companion Proceedings of the 36th International Conference on Software Engineering. 520\u2013523."},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1136\/medethics-2015-103301"},{"key":"e_1_3_3_37_2","doi-asserted-by":"crossref","first-page":"363","DOI":"10.1145\/3022198.3022658","volume-title":"Companion of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing.","author":"Filippova A.","year":"2017","unstructured":"A. Filippova, B. Chapman, R. S. Geiger, J. D. Herbsleb, A. Kalyanasundaram, E. Trainer, A. Moser, and A. Stoltzfus. 2017. Hacking and making at time-bounded events: Current trends and next steps in research and event design. In Companion of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing. 363\u2013370."},{"key":"e_1_3_3_38_2","unstructured":"Fixperts \u2013 FixEd: Retrieved October 15 2020 from http:\/\/fixing.education\/fixperts."},{"key":"e_1_3_3_39_2","first-page":"610:1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Foley S.","year":"2019","unstructured":"S. Foley, N. Pantidi, and J. McCarthy. 2019. Care and design: An ethnography of mutual recognition in the context of advanced dementia. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 610:1\u2013610:15."},{"key":"e_1_3_3_40_2","first-page":"1","volume-title":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems.","author":"Foley S.","year":"2020","unstructured":"S. Foley, N. Pantidi, and J. McCarthy. 2020. Student engagement in sensitive design contexts: A case study in dementia care. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. 1\u201313."},{"key":"e_1_3_3_41_2","first-page":"404:1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Foley S.","year":"2019","unstructured":"S. Foley, D. Welsh, N. Pantidi, K. Morrissey, T. Nappey, and J. McCarthy. 2019. Printer Pals: Experience-Centered design to support agency for people with dementia. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 404:1\u2013404:13."},{"key":"e_1_3_3_42_2","first-page":"1","volume-title":"Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems.","author":"Foong P. S.","year":"2018","unstructured":"P. S. Foong, S. Zhao, F. Tan, and J. J. Williams. 2018. Harvesting caregiving knowledge: Design considerations for integrating volunteer input in dementia care. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1\u201312."},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.1177\/0038038510387196"},{"key":"e_1_3_3_44_2","first-page":"107","article-title":"Rethinking recognition","volume":"3","author":"Fraser N.","year":"2000","unstructured":"N. Fraser. 2000. Rethinking recognition. New Left Review 3 (2000), 107\u2013118.","journal-title":"New Left Review"},{"key":"e_1_3_3_45_2","doi-asserted-by":"crossref","unstructured":"K. Gama. 2017. Crowdsourced software development in civic apps-motivations of civic hackathons participants. (2017) 550\u2013555.","DOI":"10.5220\/0006377005500555"},{"key":"e_1_3_3_46_2","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1145\/2858036.2858094","volume-title":"Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems.","author":"Garbett A.","year":"2016","unstructured":"A. Garbett, R. Comber, E. Jenkins, and P. Olivier. 2016. App movement: A platform for community commissioning of mobile applications. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 26\u201337."},{"key":"e_1_3_3_47_2","doi-asserted-by":"publisher","DOI":"10.1080\/24735132.2019.1596210"},{"key":"e_1_3_3_48_2","doi-asserted-by":"publisher","DOI":"10.1145\/3378561"},{"key":"e_1_3_3_49_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.destud.2018.06.001"},{"key":"e_1_3_3_50_2","first-page":"33","volume-title":"Proceedings of the 13th Participatory Design Conference: Short Papers, Industry Cases, Workshop Descriptions, Doctoral Consortium Papers, and Keynote Abstracts - Volume 2.","author":"Hendriks N.","year":"2014","unstructured":"N. Hendriks, L. Huybrechts, A. Wilkinson, and K. Slegers. 2014. Challenges in doing participatory design with people with dementia. Proceedings of the 13th Participatory Design Conference: Short Papers, Industry Cases, Workshop Descriptions, Doctoral Consortium Papers, and Keynote Abstracts - Volume 2. 33\u201336."},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jagp.2017.09.006"},{"key":"e_1_3_3_52_2","first-page":"1","volume-title":"Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems","author":"Hodge J.","year":"2018","unstructured":"J. Hodge, M. Balaam, S. Hastings, and K. Morrissey. 2018. Exploring the design of tailored virtual reality experiences for people with dementia. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1\u201313."},{"key":"e_1_3_3_53_2","first-page":"423:1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Hodge J.","year":"2019","unstructured":"J. Hodge, K. Montague, S. Hastings, and K. Morrissey. 2019. Exploring media capture of meaningful experiences to support families living with dementia. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 423:1\u2013423:14."},{"key":"e_1_3_3_54_2","first-page":"1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Hope A.","year":"2019","unstructured":"A. Hope, C. D'Ignazio, J. Hoy, R. Michelson, J. Roberts, K. Krontiris, and E. Zuckerman. 2019. Hackathons as Participatory Design: Iterating Feminist Utopias. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 1\u201314."},{"key":"e_1_3_3_55_2","doi-asserted-by":"publisher","DOI":"10.1145\/3134688"},{"key":"e_1_3_3_56_2","unstructured":"hOUR Timebank - Ireland: Retrieved October 15 2020 from https:\/\/www.hour-timebank.ie\/."},{"key":"e_1_3_3_57_2","doi-asserted-by":"publisher","DOI":"10.1145\/3389377"},{"key":"e_1_3_3_58_2","unstructured":"Instruments of Inquiry: Understanding the Nature and Role of Tools in Design: Retrieved September 01 2021 from http:\/\/www.ijdesign.org\/index.php\/IJDesign\/article\/view\/2275."},{"key":"e_1_3_3_59_2","doi-asserted-by":"publisher","DOI":"10.1177\/0162243915578486"},{"key":"e_1_3_3_60_2","doi-asserted-by":"publisher","DOI":"10.1111\/ropr.12074"},{"key":"e_1_3_3_61_2","doi-asserted-by":"publisher","DOI":"10.1111\/jola.12104"},{"key":"e_1_3_3_62_2","doi-asserted-by":"publisher","DOI":"10.1080\/19322900802186637"},{"key":"e_1_3_3_63_2","doi-asserted-by":"publisher","DOI":"10.1080\/13562517.2016.1221805"},{"key":"e_1_3_3_64_2","doi-asserted-by":"publisher","DOI":"10.1080\/03043797.2016.1146233"},{"key":"e_1_3_3_65_2","doi-asserted-by":"publisher","DOI":"10.1080\/09581596.2018.1508822"},{"key":"e_1_3_3_66_2","doi-asserted-by":"crossref","DOI":"10.4324\/9781315517490-3","article-title":"Walking interviews as a research method with people living with dementia in their local community","author":"Kullberg A.","year":"2017","unstructured":"A. Kullberg and E. Odzakovic. 2017. Walking interviews as a research method with people living with dementia in their local community. Social Research Methods in Dementia Studies. Routledge.","journal-title":"Social Research Methods in Dementia Studies"},{"key":"e_1_3_3_67_2","first-page":"1","volume-title":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems.","author":"Lambton-Howard D.","year":"2020","unstructured":"D. Lambton-Howard, P. Olivier, V. Vlachokyriakos, H. Celina, and A. Kharrufa. 2020. Unplatformed DESIGN: A model for appropriating social media technologies for coordinated participation. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. 1\u201313."},{"key":"e_1_3_3_68_2","first-page":"85:1","volume-title":"Proceedings of the ACM on Human-Computer Interaction","volume":"3","author":"Lazar A.","year":"2019","unstructured":"A. Lazar and E. E. Dixon. 2019. Safe enough to share: Setting the dementia agenda online. In Proceedings of the ACM on Human-Computer Interaction. 3, CSCW (2019), 85:1\u201385:23. DOI:10.1145\/3359187"},{"key":"e_1_3_3_69_2","doi-asserted-by":"crossref","first-page":"2175","DOI":"10.1145\/3025453.3025522","volume-title":"Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems","author":"Lazar A.","year":"2017","unstructured":"A. Lazar, C. Edasis, and A. M. Piper. 2017. A critical lens on dementia and design in HCI. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. 2175\u20132188."},{"key":"e_1_3_3_70_2","doi-asserted-by":"crossref","first-page":"1034","DOI":"10.1145\/2901790.2901811","volume-title":"Proceedings of the 2016 ACM Conference on Designing Interactive Systems.","author":"Lazar A.","year":"2016","unstructured":"A. Lazar, H. J. Thompson, A. M. Piper, and G. Demiris. 2016. Rethinking the design of robotic pets for older adults. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems. 1034\u20131046."},{"key":"e_1_3_3_71_2","first-page":"1","volume-title":"Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems","author":"Lee M. S. A.","year":"2021","unstructured":"M. S. A. Lee and J. Singh. 2021. The landscape and gaps in open source fairness toolkits. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, 1\u201313."},{"key":"e_1_3_3_72_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-018-0879-z"},{"key":"e_1_3_3_73_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301217691617"},{"key":"e_1_3_3_74_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/29.5.597"},{"key":"e_1_3_3_75_2","doi-asserted-by":"crossref","unstructured":"N. Marsden and M. Haag. 2016. Stereotypes and Politics: Reflections on Personas.","DOI":"10.1145\/2858036.2858151"},{"key":"e_1_3_3_76_2","doi-asserted-by":"crossref","first-page":"4017","DOI":"10.1145\/2858036.2858151","volume-title":"Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems.","author":"Marsden N.","year":"2016","unstructured":"N. Marsden and M. Haag. 2016. Stereotypes and politics: Reflections on personas. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 4017\u20134031."},{"key":"e_1_3_3_77_2","doi-asserted-by":"publisher","DOI":"10.1145\/1015530.1015549"},{"key":"e_1_3_3_78_2","doi-asserted-by":"publisher","DOI":"10.1080\/01634372.2014.900161"},{"key":"e_1_3_3_79_2","doi-asserted-by":"crossref","first-page":"1313","DOI":"10.1145\/3025453.3025558","volume-title":"Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems","author":"McNaney R.","year":"2017","unstructured":"R. McNaney, J. Vines, J. Mercer, L. Mexter, D. Welsh, and T. Young. 2017. DemYouth. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. 1313\u20131325."},{"key":"e_1_3_3_80_2","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1007\/978-3-030-58157-2_4","volume-title":"Proceedings of the International Conference on Collaboration Technologies and Social Computing","author":"Medina Angarita M. A.","year":"2020","unstructured":"M. A. Medina Angarita and A. Nolte. 2020. What do we know about hackathon outcomes and how to support them? \u2013 A Systematic literature review. Collaboration technologies and social computing. In Proceedings of the International Conference on Collaboration Technologies and Social Computing. 50\u201364."},{"key":"e_1_3_3_81_2","first-page":"1","volume-title":"Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems.","author":"Michie L.","year":"2018","unstructured":"L. Michie, M. Balaam, J. McCarthy, T. Osadchiy, and K. Morrissey. 2018. From her story, to our story: Digital storytelling as public engagement around abortion rights advocacy in Ireland. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1\u201315."},{"key":"e_1_3_3_82_2","volume-title":"To Save Everything, Click Here: The Folly of Technological Solutionism","author":"Morozov E.","year":"2013","unstructured":"E. Morozov. 2013. To Save Everything, Click Here: The Folly of Technological Solutionism. Public Affairs."},{"key":"e_1_3_3_83_2","doi-asserted-by":"crossref","first-page":"2163","DOI":"10.1145\/3025453.3025732","volume-title":"Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems.","author":"Morrissey K.","year":"2017","unstructured":"K. Morrissey, A. Garbett, P. Wright, P. Olivier, E. I. Jenkins, and K. Brittain. 2017. Care and connect: Exploring dementia-friendliness through an online community commissioning platform. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. 2163\u20132174."},{"key":"e_1_3_3_84_2","doi-asserted-by":"crossref","first-page":"1326","DOI":"10.1145\/3025453.3025527","volume-title":"Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems.","author":"Morrissey K.","year":"2017","unstructured":"K. Morrissey, J. McCarthy, and N. Pantidi. 2017. The value of experience-centred design approaches in dementia research contexts. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. 1326\u20131338."},{"key":"e_1_3_3_85_2","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1007\/978-1-84882-551-2_1","volume-title":"Supporting People with Dementia Using Pervasive Health Technologies","author":"Mulvenna M. D.","year":"2010","unstructured":"M. D. Mulvenna, C. D. Nugent, F. Moelaert, D. Craig, R.-M. Dr\u00f6es, and J. E. Bengtsson. 2010. Supporting People with Dementia Using Pervasive Health Technologies. M. D. Mulvenna and C. D. Nugent, (eds.), Springer, 3\u201314."},{"key":"e_1_3_3_86_2","doi-asserted-by":"publisher","DOI":"10.46743\/2160-3715\/2014.1282"},{"key":"e_1_3_3_87_2","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1145\/2839509.2844590","volume-title":"Proceedings of the 47th ACM Technical Symposium on Computing Science Education.","author":"Nandi A.","year":"2016","unstructured":"A. Nandi and M. Mandernach. 2016. Hackathons as an informal learning platform. In Proceedings of the 47th ACM Technical Symposium on Computing Science Education. 346\u2013351."},{"key":"e_1_3_3_88_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-0009.2008.00530.x"},{"key":"e_1_3_3_89_2","first-page":"129:1","volume-title":"Proceedings of the ACM on Human-Computer Interaction","volume":"2","author":"Nolte A.","year":"2018","unstructured":"A. Nolte, E. P. P. Pe-Than, A. Filippova, C. Bird, S. Scallen, and J. D. Herbsleb. 2018. You hacked and now what? - exploring outcomes of a corporate hackathon. In Proceedings of the ACM on Human-Computer Interaction. 2, CSCW (2018), 129:1\u2013129:23. DOI:10.1145\/3274398"},{"key":"e_1_3_3_90_2","volume-title":"Proceedings of the CHI\u201921","author":"Olesen J. F.","year":"2021","unstructured":"J. F. Olesen, G. Kannabiran, and N. B. Hansen. 2021. What Do Hackathons Do?: Understanding participation in hackathons through program theory analysis. Proceedings of the CHI\u201921. (2021)."},{"issue":"4","key":"e_1_3_3_91_2","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1145\/2776885","article-title":"Digital civics: Taking a local turn","volume":"22","author":"Olivier P.","year":"2015","unstructured":"P. Olivier and P. Wright. 2015. Digital civics: Taking a local turn. Interactions 22, 4 (2015), 61\u201363.","journal-title":"Interactions"},{"key":"e_1_3_3_92_2","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1145\/3409456.3409458","volume-title":"International Conference on Game Jams, Hackathons and Game Creation Events 2020.","author":"Paganini L.","year":"2020","unstructured":"L. Paganini and K. Gama. 2020. Engaging women's participation in hackathons: A qualitative study with participants of a female-focused hackathon. International Conference on Game Jams, Hackathons and Game Creation Events 2020. 8\u201315."},{"key":"e_1_3_3_93_2","doi-asserted-by":"publisher","DOI":"10.1080\/15710882.2020.1715444"},{"key":"e_1_3_3_94_2","doi-asserted-by":"crossref","first-page":"5311","DOI":"10.1145\/2858036.2858260","volume-title":"Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems.","author":"Piper A. M.","year":"2016","unstructured":"A. M. Piper, R. Cornejo, L. Hurwitz, and C. Unumb. 2016. Technological caregiving: Supporting online activity for adults with cognitive impairments. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 5311\u20135323."},{"key":"e_1_3_3_95_2","doi-asserted-by":"publisher","DOI":"10.1145\/3134722"},{"key":"e_1_3_3_96_2","volume-title":"Design Meets Disability","author":"Pullin G.","year":"2009","unstructured":"G. Pullin. 2009. Design Meets Disability. MIT Press."},{"key":"e_1_3_3_97_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.destud.2005.06.001"},{"key":"e_1_3_3_98_2","first-page":"1","volume-title":"Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems.","author":"Reuter A.","year":"2019","unstructured":"A. Reuter, T. Bartindale, K. Morrissey, T. Scharf, and J. Liddle. 2019. Older voices: Supporting community radio production for civic participation in later life. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 1\u201313."},{"key":"e_1_3_3_99_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2016.1222347"},{"key":"e_1_3_3_100_2","doi-asserted-by":"crossref","DOI":"10.7551\/mitpress\/11035.001.0001","volume-title":"Critical Fabulations: Reworking the Methods and Margins of Design","author":"Rosner D. K.","year":"2018","unstructured":"D. K. Rosner. 2018. Critical Fabulations: Reworking the Methods and Margins of Design. MIT Press."},{"key":"e_1_3_3_101_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaging.2007.12.018"},{"key":"e_1_3_3_102_2","doi-asserted-by":"publisher","DOI":"10.1080\/01419870701491952"},{"key":"e_1_3_3_103_2","first-page":"155:1","volume-title":"Proceedings of the ACM on Human-Computer Interaction","volume":"2","year":"2018","unstructured":"M. K. Scheuerman, S. M. Branham, and F. Hamidi. 2018. Safe spaces and safe places: Unpacking technology-mediated experiences of safety and harm with transgender people. Proceedings of the ACM on Human-Computer Interaction. 2, CSCW (2018), 155:1\u2013155:27. DOI:10.1145\/3274424"},{"key":"e_1_3_3_104_2","first-page":"787","volume-title":"Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing.","author":"Schorch M.","year":"2016","unstructured":"M. Schorch, L. Wan, D. W. Randall, and V. Wulf. 2016. Designing for those who are overlooked: insider perspectives on care practices and cooperative work of elderly informal caregivers. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing. 787\u2013799."},{"key":"e_1_3_3_105_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301217701506"},{"key":"e_1_3_3_106_2","doi-asserted-by":"publisher","DOI":"10.1054\/nedt.1999.0388"},{"key":"e_1_3_3_107_2","first-page":"1","volume-title":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems.","author":"Smith C. E.","year":"2020","unstructured":"C. E. Smith, E. Nevarez, and H. Zhu. 2020. Disseminating research news in HCI: Perceived hazards, how-to's, and opportunities for innovation. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. 1\u201313."},{"key":"e_1_3_3_108_2","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-190050"},{"key":"e_1_3_3_109_2","unstructured":"K. Swaffer. 2016. \u201cBut you don't look like or sound like you have dementia.\u201d"},{"key":"e_1_3_3_110_2","doi-asserted-by":"crossref","unstructured":"K. Swaffer. 2014. Dementia: Stigma language and dementia-friendly: Dementia . (2014). DOI:10.1177\/1471301214548143","DOI":"10.1177\/1471301214548143"},{"key":"e_1_3_3_111_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.chb.2019.08.005"},{"key":"e_1_3_3_112_2","doi-asserted-by":"crossref","first-page":"1073","DOI":"10.1145\/2851581.2886427","volume-title":"Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems.","author":"Talhouk R.","year":"2016","unstructured":"R. Talhouk, S. I. Ahmed, V. Wulf, C. Crivellaro, V. Vlachokyriakos, and P. Olivier. 2016. Refugees and HCI SIG: The role of HCI in responding to the refugee crisis. In Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems. 1073\u20131076."},{"key":"e_1_3_3_113_2","doi-asserted-by":"crossref","first-page":"331","DOI":"10.1145\/2858036.2858331","volume-title":"Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems.","author":"Talhouk R.","year":"2016","unstructured":"R. Talhouk, S. Mesmar, A. Thieme, M. Balaam, P. Olivier, C. Akik, and H. Ghattas. 2016. Syrian refugees and digital health in lebanon: Opportunities for improving antenatal health. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 331\u2013342."},{"key":"e_1_3_3_114_2","first-page":"1","volume-title":"Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems.","author":"Taylor N.","year":"2018","unstructured":"N. Taylor and L. Clarke. 2018. Everybody's Hacking: Participation and the Mainstreaming of Hackathons. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1\u201312."},{"key":"e_1_3_3_115_2","doi-asserted-by":"crossref","first-page":"1079","DOI":"10.1145\/3064663.3064760","volume-title":"Proceedings of the 2017 Conference on Designing Interactive Systems.","author":"Toombs A. L.","year":"2017","unstructured":"A. L. Toombs. 2017. Hackerspace tropes, identities, and community values. In Proceedings of the 2017 Conference on Designing Interactive Systems. 1079\u20131091."},{"key":"e_1_3_3_116_2","doi-asserted-by":"crossref","first-page":"629","DOI":"10.1145\/2702123.2702522","volume-title":"Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems.","author":"Toombs A. L.","year":"2015","unstructured":"A. L. Toombs, S. Bardzell, and J. Bardzell. 2015. The proper care and feeding of hackerspaces: Care ethics and cultures of making. Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems. 629\u2013638."},{"key":"e_1_3_3_117_2","doi-asserted-by":"publisher","DOI":"10.1177\/0020872820904130"},{"key":"e_1_3_3_118_2","first-page":"1118","volume-title":"Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing.","author":"Trainer E. H.","year":"2016","unstructured":"E. H. Trainer, A. Kalyanasundaram, C. Chaihirunkarn, and J. D. Herbsleb. 2016. How to Hackathon: Socio-technical tradeoffs in brief, intensive collocation. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing. 1118\u20131130."},{"key":"e_1_3_3_119_2","unstructured":"C. Treadaway G. Kenning D. Prytherch and J. Fennell. 2016. LAUGH: Designing to enhance positive emotion for people living with dementia. (2016). DOI:10\/LAUGH-Design-Emotion-paper.pdf"},{"key":"e_1_3_3_120_2","first-page":"1","volume-title":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems.","author":"Tsenova V.","year":"2020","unstructured":"V. Tsenova, G. Wood, A. Dolfini, A. Tindley, and D. Kirk. 2020. Un-authorised View: Leveraging volunteer expertise in heritage. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. 1\u201314."},{"key":"e_1_3_3_121_2","first-page":"3231","volume-title":"Proceedings of the CHI \u201913 Extended Abstracts on Human Factors in Computing Systems","author":"Vines J.","year":"2013","unstructured":"J. Vines, R.McNaney, R. Clarke, S. Lindsay, J. McCarthy, S. Howard, M. Romero. and J. Wallace. 2013. Designing For- and with- vulnerable people. In Proceedings of the CHI \u201913 Extended Abstracts on Human Factors in Computing Systems. 3231\u20133234."},{"key":"e_1_3_3_122_2","doi-asserted-by":"publisher","DOI":"10.1145\/2696867"},{"key":"e_1_3_3_123_2","volume-title":"Proceedings of the 2012 ACM annual conference on Human Factors in Computing Systems.","author":"Wallace J.","year":"2012","unstructured":"J. Wallace, A. Thieme, G. Wood, G. Schofield, and P. Olivier. 2012. Enabling self, intimacy and a sense of home in dementia. In Proceedings of the 2012 ACM annual conference on Human Factors in Computing Systems. 2629."},{"key":"e_1_3_3_124_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218763190"},{"key":"e_1_3_3_125_2","first-page":"1","volume-title":"Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems","author":"Welsh D.","year":"2018","unstructured":"D. Welsh, K. Morrissey, S. Foley, R. McNaney, C. Salis, J. McCarthy, and J. Vines. 2018. Ticket to Talk. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1\u201314."},{"key":"e_1_3_3_126_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaging.2019.01.003"},{"key":"e_1_3_3_127_2","doi-asserted-by":"publisher","DOI":"10.1080\/14719037.2019.1695884"},{"issue":"2","key":"e_1_3_3_128_2","doi-asserted-by":"crossref","first-page":"372","DOI":"10.1007\/s40596-015-0397-7","article-title":"Exploring the impact of a culturally tailored short film in modifying dementia stigma among Chinese Americans: A pilot study","volume":"40","author":"Zheng X.","year":"2016","unstructured":"X. Zheng, J. O. Chung, and B. K. Woo. 2016. Exploring the impact of a culturally tailored short film in modifying dementia stigma among Chinese Americans: A pilot study. Academic Psychiatry. 40, 2 (2016), 372\u2013374.","journal-title":"Academic Psychiatry"}],"container-title":["ACM Transactions on Computer-Human Interaction"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3571814","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3571814","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,17]],"date-time":"2025-06-17T17:48:48Z","timestamp":1750182528000},"score":1,"resource":{"primary":{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3571814"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,6,10]]},"references-count":127,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2023,6,30]]}},"alternative-id":["10.1145\/3571814"],"URL":"https:\/\/doi.org\/10.1145\/3571814","relation":{},"ISSN":["1073-0516","1557-7325"],"issn-type":[{"value":"1073-0516","type":"print"},{"value":"1557-7325","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,6,10]]},"assertion":[{"value":"2021-08-17","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-10-16","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-06-10","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}