{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T17:15:11Z","timestamp":1775063711112,"version":"3.50.1"},"reference-count":55,"publisher":"Association for Computing Machinery (ACM)","issue":"2","license":[{"start":{"date-parts":[[2025,5,2]],"date-time":"2025-05-02T00:00:00Z","timestamp":1746144000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"National Health Institute","award":["NIA 1R24AG071471"],"award-info":[{"award-number":["NIA 1R24AG071471"]}]},{"DOI":"10.13039\/501100006374","name":"National Science Foundation","doi-asserted-by":"publisher","award":["NSF 2145049"],"award-info":[{"award-number":["NSF 2145049"]}],"id":[{"id":"10.13039\/501100006374","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["dl.acm.org"],"crossmark-restriction":true},"short-container-title":["Proc. ACM Hum.-Comput. Interact."],"published-print":{"date-parts":[[2025,5,2]]},"abstract":"<jats:p>Alzheimer's Disease and related dementia (ADRD) is prevalent in one in nine individuals age 65 or above, and it has a 65% higher risk of incidence for African American\/Black adults. With an aging population in the United States and persisting healthcare inequities for African American\/Black adults, our research aims to explore design requirements of a digital health platform for delivering culturally relevant content that informs African Americans\/Black adults (45 years and older) about brain health and participation in clinical ADRD studies. We conducted seven focus groups (n = 44) to collect information on facilitators and barriers to brain health literacy and participation in clinical ADRD research, followed by seven participatory design workshops (n = 44) to collaboratively develop solutions for improving brain health literacy and participation in clinical ADRD research. Our findings provide insights into incorporating community into accessible, technological design for reducing brain health disparities for African American\/Black adults.<\/jats:p>","DOI":"10.1145\/3710973","type":"journal-article","created":{"date-parts":[[2025,5,3]],"date-time":"2025-05-03T01:35:05Z","timestamp":1746236105000},"page":"1-26","update-policy":"https:\/\/doi.org\/10.1145\/crossmark-policy","source":"Crossref","is-referenced-by-count":2,"title":["Exploring Design Recommendations for Promoting Brain Health, ADRD Health Literacy, and Participation in clinical ADRD trials in Older African American\/Black Adults"],"prefix":"10.1145","volume":"9","author":[{"ORCID":"https:\/\/orcid.org\/0009-0006-6540-2010","authenticated-orcid":false,"given":"Alec Andrew","family":"Theisz","sequence":"first","affiliation":[{"name":"Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1674-1861","authenticated-orcid":false,"given":"Cristina","family":"Bosco","sequence":"additional","affiliation":[{"name":"Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-6778-8453","authenticated-orcid":false,"given":"John","family":"Osorio Torres","sequence":"additional","affiliation":[{"name":"Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-0935-2510","authenticated-orcid":false,"given":"Fereshtehossadat","family":"Shojaei","sequence":"additional","affiliation":[{"name":"Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-3718-2908","authenticated-orcid":false,"given":"Jenny","family":"Lin","sequence":"additional","affiliation":[{"name":"Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-0858-0909","authenticated-orcid":false,"given":"Bianca","family":"Cureton","sequence":"additional","affiliation":[{"name":"School of Nursing, Indiana University, Indianapolis, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-7768-1556","authenticated-orcid":false,"given":"Anna K","family":"Himes","sequence":"additional","affiliation":[{"name":"School of Nursing, Indiana University, Indianapolis, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6026-7899","authenticated-orcid":false,"given":"Nenette M","family":"Jessup","sequence":"additional","affiliation":[{"name":"School of Nursing, Indiana University, Indianapolis, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4010-2672","authenticated-orcid":false,"given":"Priscilla A","family":"Barnes","sequence":"additional","affiliation":[{"name":"School of Public Health, Indiana University, Bloomington, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1345-4541","authenticated-orcid":false,"given":"Yvonne","family":"Lu","sequence":"additional","affiliation":[{"name":"School of Nursing, Indiana University, Indianapolis, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7591-3176","authenticated-orcid":false,"given":"Hugh C","family":"Hendrie","sequence":"additional","affiliation":[{"name":"School of Medicine, Indiana University, Indianapolis, Indiana, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7917-1341","authenticated-orcid":false,"given":"Carl V","family":"Hill","sequence":"additional","affiliation":[{"name":"Alzheimer's Association, Chicago, Illinois, USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2460-0468","authenticated-orcid":false,"given":"Patrick C","family":"Shih","sequence":"additional","affiliation":[{"name":"Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, Indiana, USA"}]}],"member":"320","published-online":{"date-parts":[[2025,5,2]]},"reference":[{"key":"e_1_2_1_1_1","unstructured":"2023. 2023 Alzheimer's Disease Facts and Figures. https:\/\/www.alz.org\/media\/Documents\/alzheimers-facts-andfigures. pdf."},{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1145\/3234695.3236344"},{"key":"e_1_2_1_3_1","doi-asserted-by":"publisher","DOI":"10.1145\/3175587.3175589"},{"key":"e_1_2_1_4_1","doi-asserted-by":"publisher","DOI":"10.1145\/3544548.3581221"},{"key":"e_1_2_1_5_1","volume-title":"Jonathan Bragg, Marti A Hearst, Andrew Head, and Kyle Lo.","author":"August Tal","year":"2022","unstructured":"Tal August, Lucy Lu Wang, Jonathan Bragg, Marti A Hearst, Andrew Head, and Kyle Lo. 2022. Paper plain: Making medical research papers approachable to healthcare consumers with natural language processing. ACM Transactions on Computer-Human Interaction (2022)."},{"key":"e_1_2_1_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/gps.1037"},{"key":"e_1_2_1_7_1","doi-asserted-by":"publisher","DOI":"10.1145\/1035575.1035578"},{"key":"e_1_2_1_8_1","volume-title":"The role of information technology in health literacy research. Journal of health communication 17, sup3","author":"Bickmore Timothy W","year":"2012","unstructured":"Timothy W Bickmore and Michael K Paasche-Orlow. 2012. The role of information technology in health literacy research. Journal of health communication 17, sup3 (2012), 23--29."},{"key":"e_1_2_1_9_1","volume-title":"An elicitation study to understand Black, Hispanic, and male older adults' willingness to participate in Alzheimer's disease-focused research registries. Journal of Alzheimer's Disease Preprint","author":"Bleakley Amy","year":"2022","unstructured":"Amy Bleakley, Erin K Maloney, Kristin Harkins, Maria N Nelson, Eda Akpek, and Jessica B Langbaum. 2022. An elicitation study to understand Black, Hispanic, and male older adults' willingness to participate in Alzheimer's disease-focused research registries. Journal of Alzheimer's Disease Preprint (2022), 1--11."},{"key":"e_1_2_1_10_1","volume-title":"Vivian Nguyen, Darshil Chheda, Xinran Peng, Nenette M Jessup, Anna K Himes, Bianca Cureton, Yvonne Lu, et al.","author":"Bosco Cristina","year":"2025","unstructured":"Cristina Bosco, Ege Otenen, John Osorio Torres, Vivian Nguyen, Darshil Chheda, Xinran Peng, Nenette M Jessup, Anna K Himes, Bianca Cureton, Yvonne Lu, et al. 2025. Designing a Multimodal and Culturally Relevant Alzheimer Disease and Related Dementia Generative Artificial Intelligence Tool for Black American Informal Caregivers: Cognitive Walk-Through Usability Study. JMIR aging 8 (2025), e60566."},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.1145\/3712295"},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.2196\/60650"},{"key":"e_1_2_1_13_1","volume-title":"Using thematic analysis in psychology. Qualitative research in psychology 3, 2","author":"Braun Virginia","year":"2006","unstructured":"Virginia Braun and Victoria Clarke. 2006. Using thematic analysis in psychology. Qualitative research in psychology 3, 2 (2006), 77--101."},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnu.2013.09.006"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.1145\/3403575"},{"key":"e_1_2_1_16_1","volume-title":"Proceedings of the 19th international conference on human-computer interaction with mobile devices and services. 1--12","author":"Cowan Benjamin R","year":"2017","unstructured":"Benjamin R Cowan, Nadia Pantidi, David Coyle, Kellie Morrissey, Peter Clarke, Sara Al-Shehri, David Earley, and Natasha Bandeira. 2017. ''What can i help you with?'' infrequent users' experiences of intelligent personal assistants. In Proceedings of the 19th international conference on human-computer interaction with mobile devices and services. 1--12."},{"key":"e_1_2_1_17_1","volume-title":"Inge Cantegreil-Kallen, Anne-Sophie Rigaud, et al.","author":"Cristancho-Lacroix Victoria","year":"2014","unstructured":"Victoria Cristancho-Lacroix, Florence Moulin, J\u00e9r\u00e9my Wrobel, B\u00e9n\u00e9dicte Batrancourt, Matthieu Plichart, Jocelyne De Rotrou, Inge Cantegreil-Kallen, Anne-Sophie Rigaud, et al. 2014. A web-based program for informal caregivers of persons with Alzheimer's disease: an iterative user-centered design. JMIR research protocols 3, 3 (2014), e3607."},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.12160"},{"key":"e_1_2_1_19_1","doi-asserted-by":"publisher","DOI":"10.2196\/48166"},{"key":"e_1_2_1_20_1","doi-asserted-by":"publisher","DOI":"10.1145\/3411763.3451609"},{"key":"e_1_2_1_21_1","volume-title":"Latinos, Asian Americans, and Pacific Islanders. American journal of public health 104, 2","author":"George Sheba","year":"2014","unstructured":"Sheba George, Nelida Duran, and Keith Norris. 2014. A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders. American journal of public health 104, 2 (2014), e16--e31."},{"key":"e_1_2_1_22_1","first-page":"78","article-title":"Recruiting older African Americans to brain health and aging research through community engagement","volume":"42","author":"Gluck Mark A","year":"2018","unstructured":"Mark A Gluck, Ashlee Shaw, and Diane Hill. 2018. Recruiting older African Americans to brain health and aging research through community engagement. Generations 42, 2 (2018), 78--82.","journal-title":"Generations"},{"key":"e_1_2_1_23_1","doi-asserted-by":"publisher","DOI":"10.1525\/jer.2010.5.4.33"},{"key":"e_1_2_1_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0b013e3181f14a75"},{"key":"e_1_2_1_25_1","doi-asserted-by":"publisher","DOI":"10.1145\/3386381"},{"key":"e_1_2_1_26_1","doi-asserted-by":"publisher","DOI":"10.1145\/3290605.3300823"},{"key":"e_1_2_1_27_1","doi-asserted-by":"publisher","DOI":"10.1145\/3240925.3240966"},{"key":"e_1_2_1_28_1","doi-asserted-by":"publisher","DOI":"10.1145\/3240925.3240929"},{"key":"e_1_2_1_29_1","doi-asserted-by":"publisher","DOI":"10.1145\/1090785.1090812"},{"key":"e_1_2_1_30_1","doi-asserted-by":"publisher","DOI":"10.1145\/3555133"},{"key":"e_1_2_1_31_1","article-title":"African Americans and their distrust of the health care system: healthcare for diverse populations","volume":"14","author":"Kennedy Bernice Roberts","year":"2007","unstructured":"Bernice Roberts Kennedy, Christopher Clomus Mathis, and Angela K Woods. 2007. African Americans and their distrust of the health care system: healthcare for diverse populations. Journal of cultural diversity 14, 2 (2007).","journal-title":"Journal of cultural diversity"},{"key":"e_1_2_1_32_1","doi-asserted-by":"publisher","DOI":"10.1145\/3428122"},{"key":"e_1_2_1_33_1","doi-asserted-by":"publisher","DOI":"10.1145\/2737856.2738023"},{"key":"e_1_2_1_34_1","doi-asserted-by":"publisher","DOI":"10.2174\/156720512801322627"},{"key":"e_1_2_1_35_1","doi-asserted-by":"publisher","DOI":"10.1145\/2901790.2901854"},{"key":"e_1_2_1_36_1","doi-asserted-by":"publisher","DOI":"10.1145\/3170427.3170613"},{"key":"e_1_2_1_37_1","volume-title":"Earnestine Willis, and Michael K Paasche-Orlow.","author":"Logan Robert A","year":"2015","unstructured":"Robert A Logan, Winston F Wong, Michael Villaire, Gem Daus, Terri Ann Parnell, Earnestine Willis, and Michael K Paasche-Orlow. 2015. Health literacy: A necessary element for achieving health equity. NAM perspectives (2015)."},{"key":"e_1_2_1_38_1","doi-asserted-by":"publisher","DOI":"10.1145\/3347444.3356241"},{"key":"e_1_2_1_39_1","volume-title":"International Handbook of Health Literacy","author":"Mantwill Sarah","unstructured":"Sarah Mantwill and Nicola Diviani. 2019. Health literacy and health disparities: A global perspective. In International Handbook of Health Literacy. Policy Press, 139--152."},{"key":"e_1_2_1_40_1","doi-asserted-by":"publisher","DOI":"10.1145\/3492848"},{"key":"e_1_2_1_41_1","doi-asserted-by":"publisher","DOI":"10.1145\/3603555.3608540"},{"key":"e_1_2_1_42_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730290088094"},{"key":"e_1_2_1_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jalz.2015.12.007"},{"key":"e_1_2_1_44_1","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0b013e3182441680"},{"key":"e_1_2_1_45_1","doi-asserted-by":"publisher","DOI":"10.1145\/3025453.3025732"},{"key":"e_1_2_1_46_1","doi-asserted-by":"publisher","DOI":"10.3928\/24748307-20200617-01"},{"key":"e_1_2_1_47_1","volume-title":"Retrieved","author":"American Association of Retired Persons (AARP).","year":"2022","unstructured":"American Association of Retired Persons (AARP). 2022. Technology and African Americans 50. Retrieved September 01, 2023 from https:\/\/www.aarp.org\/content\/dam\/aarp\/research\/surveys_statistics\/technology\/2022\/2022-technologytrends- older-african-americans-factsheet.doi.10.26419--2Fres.00493.011.pdf"},{"key":"e_1_2_1_48_1","volume-title":"Passel and D'Vera Cohn","author":"Jeffrey","year":"2008","unstructured":"Jeffrey S. Passel and D'Vera Cohn. 2008. U.S. Population Projections: 2005 - 2050. https:\/\/www.pewresearch.org\/hispanic\/ 2008\/02\/11\/us-population-projections-2005--2050\/"},{"key":"e_1_2_1_49_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0b013e3181f12869"},{"key":"e_1_2_1_50_1","doi-asserted-by":"publisher","DOI":"10.1002\/meet.14505001119"},{"key":"e_1_2_1_51_1","doi-asserted-by":"publisher","DOI":"10.1145\/2744206"},{"key":"e_1_2_1_52_1","volume-title":"Workshop Sociotechnical Systems of Care, CSCW 2018-The 21st ACM Conference on Computer-Supported Cooperative Work and Social Computing","author":"Hing Ting Karine Lan","unstructured":"Karine Lan Hing Ting, Dimitri Voilmy, and Mustapha Derras. 2018. Achieving Appropriate Design of Assistive Technologies in Care Contexts. In Workshop Sociotechnical Systems of Care, CSCW 2018-The 21st ACM Conference on Computer-Supported Cooperative Work and Social Computing, New York City's Hudson River (Jersey City), November 1--7."},{"key":"e_1_2_1_53_1","volume-title":"Collaborative search and retrieval: Finding information together. Submitted to ACM CSCW","author":"van Setten Mark","year":"2000","unstructured":"Mark van Setten and Ferial Moelaert-El Hadidy. 2000. Collaborative search and retrieval: Finding information together. Submitted to ACM CSCW (2000)."},{"key":"e_1_2_1_54_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10606-018-9340-2"},{"key":"e_1_2_1_55_1","doi-asserted-by":"publisher","DOI":"10.1109\/CHASE52844.2021.00027"}],"container-title":["Proceedings of the ACM on Human-Computer Interaction"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3710973","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3710973","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,8,21]],"date-time":"2025-08-21T01:02:33Z","timestamp":1755738153000},"score":1,"resource":{"primary":{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3710973"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5,2]]},"references-count":55,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2025,5,2]]}},"alternative-id":["10.1145\/3710973"],"URL":"https:\/\/doi.org\/10.1145\/3710973","relation":{},"ISSN":["2573-0142"],"issn-type":[{"value":"2573-0142","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,5,2]]},"assertion":[{"value":"2025-05-02","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}