{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T23:40:00Z","timestamp":1773099600640,"version":"3.50.1"},"reference-count":164,"publisher":"Association for Computing Machinery (ACM)","issue":"4","content-domain":{"domain":["dl.acm.org"],"crossmark-restriction":true},"short-container-title":["ACM Trans. Comput.-Hum. Interact."],"published-print":{"date-parts":[[2025,8,31]]},"abstract":"<jats:p>Intelligent systems for self-management can help patients and improve quality of life. However, designing AI-based systems is challenging because designers need to account not only for user needs, but also for capabilities and practical constraints of underlying algorithms. We propose and implement a human-centered AI framework to align human and technological requirements and constraints that can guide design of intelligent systems for personal health. We use concepts from a machine learning technique, reinforcement learning, to elicit user needs, through directed content analysis of user interviews, and uncover practical data constraints, through analysis of \u201cin the wild\u201d user engagement logs from a self-monitoring app. We gather and triangulate human-machine-data requirements for a self-management tool for individuals with endometriosis\u2014a poorly understood, complex chronic condition with no reliable treatment. We present recommendations for developing a system that aligns with needs, capabilities, and constraints from human user, data, and machine learning perspectives.<\/jats:p>","DOI":"10.1145\/3717063","type":"journal-article","created":{"date-parts":[[2025,2,17]],"date-time":"2025-02-17T12:16:29Z","timestamp":1739794589000},"page":"1-44","update-policy":"https:\/\/doi.org\/10.1145\/crossmark-policy","source":"Crossref","is-referenced-by-count":2,"title":["Informing the Design of Individualized Self-Management Regimens from the Human, Data, and Machine Learning Perspectives"],"prefix":"10.1145","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9393-3410","authenticated-orcid":false,"given":"Adrienne","family":"Pichon","sequence":"first","affiliation":[{"name":"Department of Biomedical Informatics, Columbia University, New York, NY,\u00a0USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3656-0037","authenticated-orcid":false,"given":"I\u00f1igo","family":"Urteaga","sequence":"additional","affiliation":[{"name":"Basque Center for Applied Mathematics, Basque Foundation for Science (IKERBASQUE), Bilbao, Spain"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5203-274X","authenticated-orcid":false,"given":"Lena","family":"Mamykina","sequence":"additional","affiliation":[{"name":"Department of Biomedical Informatics, Columbia\u00a0University, New York, NY,\u00a0USA"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9721-5240","authenticated-orcid":false,"given":"No\u00e9mie","family":"Elhadad","sequence":"additional","affiliation":[{"name":"Department of Biomedical Informatics, Columbia University, New York, NY, USA"}]}],"member":"320","published-online":{"date-parts":[[2025,8,18]]},"reference":[{"key":"e_1_3_1_2_2","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1155\/2013\/242149","article-title":"Endometriosis: A disease that remains enigmatic","volume":"2013","author":"Aci\u00e9n P.","year":"2013","unstructured":"P. Aci\u00e9n and I. Velasco. 2013. Endometriosis: A disease that remains enigmatic. ISRN Obstetrics and Gynecology 2013 (2013), 1\u201312.","journal-title":"ISRN Obstetrics and Gynecology"},{"key":"e_1_3_1_3_2","doi-asserted-by":"publisher","DOI":"10.1207\/S15327051HCI1523_5"},{"key":"e_1_3_1_4_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-0-387-85820-3_7"},{"key":"e_1_3_1_5_2","doi-asserted-by":"crossref","unstructured":"M. Mehdi Afsar Trafford Crump and Behrouz Far. 2022. Reinforcement learning based recommender systems: A survey. ACM Computing Surveys 55 7 (2022) 1\u201338.","DOI":"10.1145\/3543846"},{"key":"e_1_3_1_6_2","volume-title":"Proceedings of the 37th International Conference on Machine Learning (Proceedings of Machine Learning Research)","author":"Agarwal R.","year":"2020","unstructured":"R. Agarwal, D. Schuurmans, and M. Norouzi. 2020. An optimistic perspective on offline reinforcement learning. In Proceedings of the 37th International Conference on Machine Learning (Proceedings of Machine Learning Research). H. Daum\u00e9 III and A. Singh (Eds.), PMLR."},{"issue":"4","key":"e_1_3_1_7_2","doi-asserted-by":"crossref","first-page":"354.e1","DOI":"10.1016\/j.ajog.2018.12.039","article-title":"Clinical diagnosis of endometriosis: A call to action","volume":"220","author":"Agarwal S. K.","year":"2019","unstructured":"S. K. Agarwal, C. Chapron, L. C. Giudice, M. R. Laufer, N. Leyland, S. A. Missmer, S. S. Singh, and H. S. Taylor. 2019. Clinical diagnosis of endometriosis: A call to action. American Journal of Obstetrics and Gynecology 220, 4 (2019), 354.e1\u2013354.e12.","journal-title":"American Journal of Obstetrics and Gynecology"},{"key":"e_1_3_1_8_2","volume-title":"Proceedings of the International Conference on Machine Learning (ICML)","author":"Agrawal S.","year":"2013","unstructured":"S. Agrawal and N. Goyal. 2013. Thompson sampling for contextual bandits with linear payoffs. In Proceedings of the International Conference on Machine Learning (ICML)."},{"key":"e_1_3_1_9_2","doi-asserted-by":"publisher","DOI":"10.1002\/sim.4512"},{"key":"e_1_3_1_10_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201919)","author":"Amershi S.","year":"2019","unstructured":"S. Amershi, D. Weld, M. Vorvoreanu, A. Fourney, B. Nushi, P. Collisson, J. Suh, S. Iqbal, P. N. Bennett, K. Inkpen, et al. 2019. Guidelines for human-AI interaction. In Proceedings of the ACM CHI Conference (CHI \u201919)."},{"key":"e_1_3_1_11_2","doi-asserted-by":"publisher","DOI":"10.1145\/3589961"},{"key":"e_1_3_1_12_2","doi-asserted-by":"publisher","DOI":"10.1109\/MSP.2017.2743240"},{"key":"e_1_3_1_13_2","volume-title":"Proceedings of the Designing Interactive Systems Conference","author":"Arzate Cruz C.","year":"2020","unstructured":"C. Arzate Cruz, and T. Igarashi. 2020. A survey on interactive reinforcement learning: Design principles and open challenges. In Proceedings of the Designing Interactive Systems Conference. ACM, New York, NY."},{"key":"e_1_3_1_14_2","first-page":"e47260","article-title":"Artificial intelligence-based consumer health informatics application: Scoping review","volume":"25","author":"Asan O.","year":"2023","unstructured":"O. Asan, E. Choi, and X. Wang. 2023. Artificial intelligence-based consumer health informatics application: Scoping review. JMIR 25 (2023), e47260.","journal-title":"JMIR"},{"key":"e_1_3_1_15_2","volume-title":"DRS Biennial Conference Series","author":"Auernhammer J.","year":"2020","unstructured":"J. Auernhammer. 2020. Human-centered AI: The role of human-centered design research in the development of AI. In DRS Biennial Conference Series."},{"key":"e_1_3_1_16_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201917)","author":"Ayobi A.","year":"2017","unstructured":"A. Ayobi, P. Marshall, A. L. Cox, and Y. Chen. 2017. Quantifying the body and caring for the mind: Self-tracking in multiple sclerosis. In Proceedings of the ACM CHI Conference (CHI \u201917). ACM, New York, NY."},{"key":"e_1_3_1_17_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Bardzell S.","year":"2010","unstructured":"S. Bardzell. 2010. Feminist HCI: Taking stock and outlining an agenda for design. In Proceedings of the ACM CHI Conference."},{"key":"e_1_3_1_18_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201911)","author":"Bardzell S.","year":"2011","unstructured":"S. Bardzell and J. Bardzell. 2011. Towards a feminist HCI methodology: Social science, feminism, and HCI. In Proceedings of the ACM CHI Conference (CHI \u201911). ACM, New York, NY."},{"key":"e_1_3_1_19_2","article-title":"Toward human-centered algorithm design","author":"Baumer E. P. S.","year":"2017","unstructured":"E. P. S. Baumer. 2017. Toward human-centered algorithm design. Big Data & Society 4 (2017), 2053951717718854.","journal-title":"Big Data & Society"},{"key":"e_1_3_1_20_2","doi-asserted-by":"crossref","first-page":"260","DOI":"10.1370\/afm.1643","article-title":"Understanding the context of health for persons with multiple chronic conditions: Moving from what is the matter to what matters","author":"Bayliss E. A.","year":"2014","unstructured":"E. A. Bayliss, D. E. Bonds, C. M. Boyd, M. M. Davis, B. Finke, M. H. Fox, R. E. Glasgow, R. A. Goodman, S. Heurtin-Roberts, S. Lachenmayr, et al. 2014. Understanding the context of health for persons with multiple chronic conditions: Moving from what is the matter to what matters. Annals of Family Medicine 12 (2014), 260\u2013269.","journal-title":"Annals of Family Medicine"},{"key":"e_1_3_1_21_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201919)","author":"Berry A. B. L.","year":"2019","unstructured":"A. B. L. Berry, C. Y. Lim, T. Hirsch, A. L. Hartzler, L. M. Kiel, Z. A. Bermet, and J. D. Ralston. 2019. Supporting communication about values between people with multiple chronic conditions and their providers. In Proceedings of the ACM CHI Conference (CHI \u201919)."},{"key":"e_1_3_1_22_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.288.19.2469"},{"issue":"15","key":"e_1_3_1_23_2","doi-asserted-by":"crossref","first-page":"1909","DOI":"10.1001\/jama.288.15.1909","article-title":"Improving primary care for patients with chronic illness","volume":"288","author":"Bodenheimer T.","year":"2002","unstructured":"T. Bodenheimer, E. H. Wagner, and K. Grumbach 2002. Improving primary care for patients with chronic illness. JAMA 288, 15 (2002), 1909.","journal-title":"JAMA"},{"key":"e_1_3_1_24_2","unstructured":"R. R. Bond M. Mulvenna and H. Wang D. Finlay A. Wong A. Koene R. Brisk J. Boger and T. Adel. 2019. Human Centered Artificial Intelligence: Weaving UX into Algorithmic Decision Making. In RoCHI 2\u20139."},{"key":"e_1_3_1_25_2","doi-asserted-by":"publisher","DOI":"10.7551\/mitpress\/6352.001.0001"},{"key":"e_1_3_1_26_2","volume-title":"Proceedings of the Participatory Design Conference (PDC \u201918)","author":"Bratteteig T.","year":"2018","unstructured":"T. Bratteteig and G. Verne. 2018. Does AI make PD obsolete? Exploring challenges from artificial intelligence to participatory design. In Proceedings of the Participatory Design Conference (PDC \u201918). ACM, New York, NY."},{"issue":"3","key":"e_1_3_1_27_2","first-page":"CD009590","article-title":"Endometriosis: An overview of Cochrane reviews","volume":"2014","author":"Brown J.","year":"2014","unstructured":"J. Brown and C. Farquhar. 2014. Endometriosis: An overview of Cochrane reviews. The Cochrane Database of Systematic Reviews 2014, 3 (2014), CD009590.","journal-title":"The Cochrane Database of Systematic Reviews"},{"key":"e_1_3_1_28_2","volume-title":"Proceedings of the of the 29th Australian Conference on Computer-Human interaction (OZCHI \u201917)","author":"Brown R.","year":"2017","unstructured":"R. Brown, B. Ploderer, L. S. Da Seng, P. Lazzarini, and J. van Netten. 2017. MyFootCare: A mobile self-tracking tool to promote self-care amongst people with diabetic foot ulcers. In Proceedings of the of the 29th Australian Conference on Computer-Human interaction (OZCHI \u201917). ACM, New York, NY."},{"key":"e_1_3_1_29_2","doi-asserted-by":"publisher","DOI":"10.1145\/3351995.3352036"},{"key":"e_1_3_1_30_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11135-021-01182-y"},{"key":"e_1_3_1_31_2","doi-asserted-by":"crossref","first-page":"513","DOI":"10.2147\/COPD.S58478","article-title":"Chronic disease self-management and exercise in COPD as pulmonary rehabilitation: A randomized controlled trial","volume":"9","author":"Cameron-Tucker H. L.","year":"2014","unstructured":"H. L. Cameron-Tucker, R. Wood-Baker, C. Owen, L. Joseph, and E. H. Walters. 2014. Chronic disease self-management and exercise in COPD as pulmonary rehabilitation: A randomized controlled trial. International Journal of Chronic Obstructive Pulmonary Disease 9 (2014), 513\u2013523.","journal-title":"International Journal of Chronic Obstructive Pulmonary Disease"},{"key":"e_1_3_1_32_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Capel T.","year":"2023","unstructured":"T. Capel and M. Brereton. 2023. What is human-centered about human-centered AI? A map of the research landscape. In Proceedings of the ACM CHI Conference."},{"key":"e_1_3_1_33_2","doi-asserted-by":"publisher","DOI":"10.1145\/3530987"},{"key":"e_1_3_1_34_2","article-title":"Who is the \u201chuman\u201d in Human-Centered machine learning: The case of predicting mental health from social media","author":"Chancellor S.","year":"2019","unstructured":"S. Chancellor, Eric P. S. Baumer, and M. De Choudhury. 2019. Who is the \u201chuman\u201d in Human-Centered machine learning: The case of predicting mental health from social media. In Proceedings of the ACM CSCW Conference.","journal-title":"Proceedings of the ACM CSCW Conference"},{"key":"e_1_3_1_35_2","volume-title":"Proceedings of the 2020 4th International Symposium on Multidisciplinary Studies and Innovative Technologies (ISMSIT)","author":"Chandran S.","year":"2020","unstructured":"S. Chandran, A. Al-Sa\u2019di, and E. Ahmad. 2020. Exploring user centered design in healthcare: A literature review. In Proceedings of the 2020 4th International Symposium on Multidisciplinary Studies and Innovative Technologies (ISMSIT)."},{"key":"e_1_3_1_36_2","first-page":"939","article-title":"A systematic review of mobile health technologies to support self-management of concurrent diabetes and hypertension","author":"Choi W.","year":"2020","unstructured":"W. Choi, S. Wang, Y. Lee, H. Oh, and Z. Zheng. 2020. A systematic review of mobile health technologies to support self-management of concurrent diabetes and hypertension. JAMIA 27 (2020), 939\u2013945.","journal-title":"JAMIA"},{"key":"e_1_3_1_37_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Chopra S.","year":"2021","unstructured":"S. Chopra, R. Zehrung, T. A. Shanmugam, and E. K. Choe. 2021. Living with uncertainty and stigma: Self-Experimentation and Support-Seeking around polycystic ovary syndrome. In Proceedings of the ACM CHI Conference. ACM, New York, NY."},{"issue":"1","key":"e_1_3_1_38_2","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1145\/3314394","article-title":"Identifying and planning for individualized change: Patient-provider collaboration using lightweight food diaries in healthy eating and irritable bowel syndrome","volume":"3","author":"Chung C. F.","year":"2019","unstructured":"C. F. Chung, Q. Wang, J. Schroeder, A. Cole, J. Zia, J. Fogarty, and S. A. Munson. 2019. Identifying and planning for individualized change: Patient-provider collaboration using lightweight food diaries in healthy eating and irritable bowel syndrome. Proceedings of the of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies 3, 1 (2019), 1\u201327.","journal-title":"Proceedings of the of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies"},{"key":"e_1_3_1_39_2","article-title":"The last mile: Where artificial intelligence meets reality","author":"Coiera E.","year":"2019","unstructured":"E. Coiera. 2019. The last mile: Where artificial intelligence meets reality. JMIR 21 (2019), e16323.","journal-title":"JMIR"},{"key":"e_1_3_1_40_2","doi-asserted-by":"publisher","DOI":"10.1007\/BF00989485"},{"key":"e_1_3_1_41_2","volume-title":"Unending Work and Care: Managing Chronic Illness at Home","author":"Corbin J. M.","year":"1988","unstructured":"J. M. Corbin and A. Strauss. 1988. Unending Work and Care: Managing Chronic Illness at Home. Jossey-Bass."},{"issue":"14","key":"e_1_3_1_42_2","doi-asserted-by":"crossref","first-page":"2115","DOI":"10.1080\/10826084.2021.1972314","article-title":"Toward a just-in-time adaptive intervention to reduce emerging adult alcohol use: Testing approaches for identifying when to intervene","volume":"56","author":"Coughlin L. N.","year":"2021","unstructured":"L. N. Coughlin, I. Nahum-Shani, E. E. Bonar, M. L. Philyaw-Kotov, M. Rabbi, P. Klasnja, and M. A. Walton. 2021. Toward a just-in-time adaptive intervention to reduce emerging adult alcohol use: Testing approaches for identifying when to intervene. Substance Use & Misuse 56, 14 (2021), 2115\u20132125.","journal-title":"Substance Use & Misuse"},{"key":"e_1_3_1_43_2","doi-asserted-by":"crossref","unstructured":"L. E. Crosby N. E. Joffe J. Peugh R. E. Ware and M. T. Britto. 2017. Pilot of the chronic disease Self-Management program for adolescents and young adults with sickle cell disease. Journal of Adolescent Health 60 (2017) 120\u2013123.","DOI":"10.1016\/j.jadohealth.2016.08.022"},{"key":"e_1_3_1_44_2","doi-asserted-by":"crossref","first-page":"100087","DOI":"10.1016\/j.jeud.2024.100087","article-title":"Disregarded, devalued and lacking diversity: An exploration into women\u2019s experiences with endometriosis. A systematic review and narrative synthesis of qualitative data","volume":"8","author":"Cunnington S.","year":"2024","unstructured":"S. Cunnington, A. Cunnington, and A. Hirose. 2024. Disregarded, devalued and lacking diversity: An exploration into women\u2019s experiences with endometriosis. A systematic review and narrative synthesis of qualitative data. Journal of Endometriosis and Uterine Disorders 8 (2024), 100087.","journal-title":"Journal of Endometriosis and Uterine Disorders"},{"key":"e_1_3_1_45_2","doi-asserted-by":"publisher","DOI":"10.1145\/3130911"},{"key":"e_1_3_1_46_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Daskalova N.","year":"2021","unstructured":"N. Daskalova, E. Kyi, K. Ouyang, A. Borem, S. Chen, S. H. Park, N. Nugent, and J. Huang. 2021. Self-E: Smartphone-supported guidance for customizable self-experimentation. In Proceedings of the ACM CHI Conference. ACM, New York, NY."},{"key":"e_1_3_1_47_2","volume-title":"Proceedings of the of the 29th Annual Symposium on User Interface Software and Technology (UIST \u201916)","author":"Daskalova N.","year":"2016","unstructured":"N. Daskalova, D. Metaxa-Kakavouli, A. Tran, N. Nugent, J. Boergers, J. McGeary, and J. Huang. 2016. SleepCoacher: A personalized automated self-experimentation system for sleep recommendations. In Proceedings of the of the 29th Annual Symposium on User Interface Software and Technology (UIST \u201916).ACM, New York, NY."},{"key":"e_1_3_1_48_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201920)","author":"Daskalova N.","year":"2020","unstructured":"N. Daskalova, J. Yoon, Y. Wang, C. Araujo, G. Beltran, N. Nugent, J. McGeary, J. J. Williams, and J. Huang. 2020. SleepBandits: Guided flexible self-experiments for sleep. In Proceedings of the ACM CHI Conference (CHI \u201920). ACM, New York, NY."},{"key":"e_1_3_1_49_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201919)","author":"Davies T.","year":"2019","unstructured":"T. Davies, S. L. Jones, and R. M. Kelly. 2019. Patient perspectives on self-management technologies for chronic fatigue syndrome. In Proceedings of the ACM CHI Conference (CHI \u201919). ACM, New York, NY."},{"key":"e_1_3_1_50_2","doi-asserted-by":"publisher","unstructured":"R. Dazeley P. Vamplew and F. Cruz. 2023. Explainable Reinforcement Learning for Broad-XAI: A Conceptual Framework and Survey. Neural Computing and Applications 35 23 (2023) 16893\u201316916. DOI: 10.1007\/s00521\u2011023\u201108423\u20111","DOI":"10.1007\/s00521\u2011023\u201108423\u20111"},{"key":"e_1_3_1_51_2","volume-title":"Proceedings of the 2014 IEEE international Conference on Bioinformatics and Biomedicine (BIBM)","author":"De croon R.","year":"2014","unstructured":"R. De croon, T. De buyser, J. Klerkx, and E. Duval. 2014. Applying a user-centered, rapid-prototyping methodology with quantified self: A case study with triathletes. In Proceedings of the 2014 IEEE international Conference on Bioinformatics and Biomedicine (BIBM)."},{"key":"e_1_3_1_52_2","doi-asserted-by":"publisher","DOI":"10.1145\/3617694.3623261"},{"key":"e_1_3_1_53_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Desai P. M.","year":"2019","unstructured":"P. M. Desai, E. G. Mitchell, M. L. Hwang, M. E. Levine, D. J. Albers, and L. Mamykina. 2019. Personal health oracle: Explorations of personalized predictions in diabetes self-management. In Proceedings of the ACM CHI Conference. ACM, New York, NY."},{"key":"e_1_3_1_54_2","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1007\/s007790170019","article-title":"Understanding and using context","author":"Dey A. K.","year":"2001","unstructured":"A. K. Dey. 2001. Understanding and using context. Personal and Ubiquitous Computing 5 (2001), 4\u20137.","journal-title":"Personal and Ubiquitous Computing"},{"key":"e_1_3_1_55_2","volume-title":"Data Feminism","author":"D\u2019ignazio C.","year":"2023","unstructured":"C. D\u2019ignazio and L. F. Klein. 2023. Data Feminism. MIT Press."},{"issue":"8","key":"e_1_3_1_56_2","doi-asserted-by":"crossref","first-page":"e0220116","DOI":"10.1371\/journal.pone.0220116","article-title":"Helping patients help themselves: A systematic review of self-management support strategies in primary health care practice","volume":"14","author":"Dineen-Griffin S.","year":"2019","unstructured":"S. Dineen-Griffin, V. Garcia-Cardenas, K. Williams, and S. I. Benrimoj. 2019. Helping patients help themselves: A systematic review of self-management support strategies in primary health care practice. PloS One 14, 8 (2019), e0220116.","journal-title":"PloS One"},{"issue":"1","key":"e_1_3_1_57_2","doi-asserted-by":"crossref","first-page":"56","DOI":"10.1177\/08901171221113834","article-title":"Applying user-centered design in the development of a supportive mHealth app for women in substance use recovery","volume":"37","author":"Eaves E. R.","year":"2023","unstructured":"E. R. Eaves, E. Doerry, S. A. Lanzetta, K. M. Kruithoff, K. Negron, K. Dykman, O. Thoney, and C. C. Harper. 2023. Applying user-centered design in the development of a supportive mHealth app for women in substance use recovery. American Journal of Health Promotion: AJHP 37, 1 (2023), 56\u201364.","journal-title":"American Journal of Health Promotion: AJHP"},{"issue":"3","key":"e_1_3_1_58_2","doi-asserted-by":"crossref","first-page":"418","DOI":"10.1016\/j.rmed.2010.09.017","article-title":"Community based physiotherapeutic exercise in COPD self-management: A randomised controlled trial","volume":"105","author":"Effing T.","year":"2011","unstructured":"T. Effing, G. Zielhuis, H. Kerstjens, P. van der Valk, and J. van der Palen. 2011. Community based physiotherapeutic exercise in COPD self-management: A randomised controlled trial. Respiratory Medicine 105, 3 (2011), 418\u2013426.","journal-title":"Respiratory Medicine"},{"key":"e_1_3_1_59_2","volume-title":"Proceedings of the of the 10th Anniversary Conference on Participatory Design","author":"Ehn P.","year":"2008","unstructured":"P. Ehn. 2008. Participation in design things. In Proceedings of the of the 10th Anniversary Conference on Participatory Design. ACM, New York, NY."},{"key":"e_1_3_1_60_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201921)","author":"Ehsan U.","year":"2021","unstructured":"U. Ehsan, Q. V. Liao, M. Muller, M. O. Riedl, and J. D. Weisz. 2021. Expanding explainability: Towards social transparency in AI systems. In Proceedings of the ACM CHI Conference (CHI \u201921). ACM, New York, NY."},{"key":"e_1_3_1_61_2","unstructured":"N. Elhadad. 2021. Phendo app available at Apple\u2019s App store. Retrieved from https:\/\/itunes.apple.com\/us\/app\/phendo\/id1145512423"},{"key":"e_1_3_1_62_2","unstructured":"N. Elhadad. 2021. Phendo app available at Google Play. Retrieved from https:\/\/play.google.com\/store\/apps\/details?id=com.appliedinformaticsinc.phendo"},{"key":"e_1_3_1_63_2","doi-asserted-by":"publisher","unstructured":"N. Elhadad I. Urteaga S. Lipsky-Gorman and M. McKillop. 2022. User engagement metrics and patterns in Phendo an endometriosis research Mobile App. Preprint. DOI: 10.21203\/rs.3.rs-1862924\/v1","DOI":"10.21203\/rs.3.rs-1862924\/v1"},{"key":"e_1_3_1_64_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2021-059280"},{"issue":"5","key":"e_1_3_1_65_2","doi-asserted-by":"crossref","first-page":"769","DOI":"10.1055\/s-0040-1718755","article-title":"Augmenting the clinical data sources for enigmatic diseases: A cross-sectional study of self-tracking data and clinical documentation in endometriosis","volume":"11","author":"Ensari I.","year":"2020","unstructured":"I. Ensari, A. Pichon, S. Lipsky-Gorman, S. Bakken, and N. Elhadad. 2020. Augmenting the clinical data sources for enigmatic diseases: A cross-sectional study of self-tracking data and clinical documentation in endometriosis. Applied Clinical Informatics 11, 5 (2020), 769\u2013784.","journal-title":"Applied Clinical Informatics"},{"key":"e_1_3_1_66_2","doi-asserted-by":"crossref","unstructured":"G. Fischer. 2001. User modeling in human\u2013computer interaction. User Modeling and User-Adapted Interaction (2001).","DOI":"10.1023\/A:1011145532042"},{"key":"e_1_3_1_67_2","volume-title":"Principled Artificial Intelligence: Mapping Consensus in Ethical and Rights-Based Approaches to Principles for AI","author":"Fjeld J.","year":"2020","unstructured":"J. Fjeld, N. Achten, H. Hilligoss, A. Nagy, and M. Srikumar. 2020. Principled Artificial Intelligence: Mapping Consensus in Ethical and Rights-Based Approaches to Principles for AI. Berkman Klein Center Research Publication."},{"key":"e_1_3_1_68_2","unstructured":"M. Ghassemi T. Naumann P. Schulam A. L. Beam I. Y. Chen and R. Ranganath. 2019. A review of challenges and opportunities in machine learning for health. arXiv:1806.00388. Retrieved from https:\/\/arxiv.org\/abs\/1806.00388"},{"issue":"25","key":"e_1_3_1_69_2","doi-asserted-by":"crossref","first-page":"2389","DOI":"10.1056\/NEJMcp1000274","article-title":"Endometriosis","volume":"362","author":"Giudice L. C.","year":"2010","unstructured":"L. C. Giudice. 2010. Endometriosis. New England Journal of Medicine 362, 25 (2010), 2389\u20132398.","journal-title":"New England Journal of Medicine"},{"key":"e_1_3_1_70_2","doi-asserted-by":"crossref","unstructured":"C. Glanois P. Weng M. Zimmer D. Li T. Yang J. Hao and W. Liu. 2024. A Survey on Interpretable Reinforcement Learning. Machine Learning 113 8 (2024) 5847\u20135890.","DOI":"10.1007\/s10994-024-06543-w"},{"key":"e_1_3_1_71_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41591-018-0310-5"},{"key":"e_1_3_1_72_2","volume-title":"HCI International 2017\u2014Posters\u2019 Extended Abstracts (Communications in Computer and Information Science)","author":"Gupta A.","year":"2017","unstructured":"A. Gupta, X. Tong, C. Shaw, L. Li, and L. Feehan. 2017. FitViz: A personal informatics tool for self-management of rheumatoid arthritis. In HCI International 2017\u2014Posters\u2019 Extended Abstracts (Communications in Computer and Information Science). Constantine Stephanidis (Ed.), Springer International Publishing, Cham."},{"key":"e_1_3_1_73_2","doi-asserted-by":"crossref","first-page":"1844","DOI":"10.1073\/pnas.1807184115","article-title":"Agency plus automation: Designing artificial intelligence into interactive systems","author":"Heer J.","year":"2019","unstructured":"J. Heer. 2019. Agency plus automation: Designing artificial intelligence into interactive systems. Proceedings of the National Academy of Sciences 116 (2019), 1844\u20131850.","journal-title":"Proceedings of the National Academy of Sciences"},{"issue":"3","key":"e_1_3_1_74_2","doi-asserted-by":"crossref","first-page":"239","DOI":"10.1016\/j.phr.2004.04.002","article-title":"Patient self-management: A key to effectiveness and efficiency in care of chronic disease","volume":"119","author":"Holman H.","year":"2004","unstructured":"H. Holman and K. Lorig. 2004. Patient self-management: A key to effectiveness and efficiency in care of chronic disease. Public Health Reports 119, 3 (2004), 239\u2013243.","journal-title":"Public Health Reports"},{"key":"e_1_3_1_75_2","volume-title":"Proceedings of the of the 11th ACM Conference on Embedded Networked Sensor Systems (SenSys \u201913)","author":"Hsieh C. K.","year":"2013","unstructured":"C. K. Hsieh, H. Tangmunarunkit, F. Alquaddoomi, J. Jenkins, J. Kang, C. Ketcham, B. Longstaff, J. Selsky, B. Dawson, D. Swendeman, D. Estrin, and N. Ramanathan. 2013. Lifestreams: A modular sense-making toolset for identifying important patterns from everyday life. In Proceedings of the of the 11th ACM Conference on Embedded Networked Sensor Systems (SenSys \u201913)."},{"key":"e_1_3_1_76_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"e_1_3_1_77_2","unstructured":"X. Hu M. Qian B. Cheng and Y. K. Cheung. 2020. Personalized policy learning using longitudinal mobile health data. arXiv:2001.03258. Retrieved from https:\/\/arxiv.org\/abs\/2001.03258"},{"key":"e_1_3_1_78_2","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1016\/j.rbms.2021.07.003","article-title":"The missed disease? Endometriosis as an example of \u2018undone science\u2019","volume":"14","author":"Hudson N.","year":"2022","unstructured":"N. Hudson. 2022. The missed disease? Endometriosis as an example of \u2018undone science\u2019. Reproductive Biomedicine & Society Online 14 (2022), 20\u201327.","journal-title":"Reproductive Biomedicine & Society Online"},{"key":"e_1_3_1_79_2","first-page":"619","article-title":"The use of mobile applications to support self-management for people with asthma: A systematic review of controlled studies to identify features associated with clinical effectiveness and adherence","author":"Hui C. Y.","year":"2017","unstructured":"C. Y. Hui, R. Walton, B. McKinstry, T. Jackson, R. Parker, and H. Pinnock. 2017. The use of mobile applications to support self-management for people with asthma: A systematic review of controlled studies to identify features associated with clinical effectiveness and adherence. JAMIA 24 (2017), 619\u2013632.","journal-title":"JAMIA"},{"key":"e_1_3_1_80_2","volume-title":"Proceedings of the Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems (CHI EA \u201919)","author":"Inkpen K.","year":"2019","unstructured":"K. Inkpen, S. Chancellor, M. De Choudhury, M. Veale, and Eric P. S. Baumer. 2019. Where is the human? Bridging the gap between AI and HCI. In Proceedings of the Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems (CHI EA \u201919). ACM, New York, NY."},{"key":"e_1_3_1_81_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Karkar R.","year":"2017","unstructured":"R. Karkar, J. Zia, J. Schroeder, D. A. Epstein, L. R. Pina, J. Scofield, J. Fogarty, J. A. Kientz, S. A. Munson, and R. Vilardaga. 2017. TummyTrials: A feasibility study of using self-experimentation to detect individualized food triggers. In Proceedings of the ACM CHI Conference. ACM, New York, NY."},{"key":"e_1_3_1_82_2","first-page":"440","article-title":"A framework for self-experimentation in personalized health","author":"Karkar R.","year":"2016","unstructured":"R. Karkar, J. Zia, R. Vilardaga, S. R. Mishra, J. Fogarty, S. A. Munson, and J. A. Kientz. 2016. A framework for self-experimentation in personalized health. JAMIA 23 (2016), 440\u2013448.","journal-title":"JAMIA"},{"key":"e_1_3_1_83_2","volume-title":"Proceedings of the of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth\u201919)","author":"Kim S. I.","year":"2019","unstructured":"S. I. Kim, E. Jo, M. Ryu, I. Cha, Y. H. Kim, H. Yoo, and H. Hong. 2019. Toward becoming a better self: Understanding self-tracking experiences of adolescents with autism spectrum disorder using custom trackers. In Proceedings of the of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth\u201919). ACM, New York, NY."},{"issue":"6","key":"e_1_3_1_84_2","doi-asserted-by":"crossref","first-page":"573","DOI":"10.1093\/abm\/kay067","article-title":"Efficacy of contextually tailored suggestions for physical activity: A micro-randomized optimization trial of HeartSteps","volume":"53","author":"Klasnja P.","year":"2019","unstructured":"P. Klasnja, S. Smith, N. J. Seewald, A. Lee, K. Hall, B. Luers, E. B. Hekler, and S. A. Murphy. 2019. Efficacy of contextually tailored suggestions for physical activity: A micro-randomized optimization trial of HeartSteps. Annals of Behavioral Medicine: A Publication of the Society of Behavioral Medicine 53, 6 (2019), 573\u2013582.","journal-title":"Annals of Behavioral Medicine: A Publication of the Society of Behavioral Medicine"},{"key":"e_1_3_1_85_2","article-title":"User-centered design of a mobile health intervention to enhance exacerbation-related self-management in patients with chronic obstructive pulmonary disease (Copilot): Mixed methods study","author":"Korpershoek Y. J. G.","year":"2020","unstructured":"Y. J. G. Korpershoek, S. Hermsen, L. Schoonhoven, M. J. Schuurmans, and J. C. A. Trappenburg. 2020. User-centered design of a mobile health intervention to enhance exacerbation-related self-management in patients with chronic obstructive pulmonary disease (Copilot): Mixed methods study. JMIR (2010).","journal-title":"JMIR"},{"key":"e_1_3_1_86_2","unstructured":"A. Krajna M. Brcic T. Lipic and J. Doncevic. 2022. Explainability in reinforcement learning: Perspective and position. arXiv:2203.11547. Retrieved from https:\/\/arxiv.org\/abs\/2203.11547"},{"key":"e_1_3_1_87_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201917)","author":"Lee J.","year":"2017","unstructured":"J. Lee, E. Walker, W. Burleson, M. Kay, M. Buman, and E. B. Hekler. 2017. Self-Experimentation for behavior change: Design and formative evaluation of two approaches. In Proceedings of the ACM CHI Conference (CHI \u201917)."},{"key":"e_1_3_1_88_2","unstructured":"S. Levine A. Kumar G. Tucker and J. Fu. 2020. Offline reinforcement learning: Tutorial review and perspectives on open problems. arXiv:2005.01643. Retrieved from https:\/\/arxiv.org\/abs\/2005.01643"},{"key":"e_1_3_1_89_2","volume-title":"Proceedings of the of the 2011 Annual Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA \u201911)","author":"Li I.","year":"2011","unstructured":"I. Li, A. Dey, J. Forlizzi, K. H\u00f6\u00f6k, and Y. Medynskiy. 2011. Personal informatics and HCI: Design, theory, and social implications. In Proceedings of the of the 2011 Annual Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA \u201911). ACM, New York, NY."},{"key":"e_1_3_1_90_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201924)","author":"Li J.","year":"2024","unstructured":"J. Li, C. He, J. Hu, B. Jia, A. Y. Halevy, and X. Ma. 2024. DiaryHelper: Exploring the use of an automatic contextual information recording agent for elicitation diary study. In Proceedings of the ACM CHI Conference (CHI \u201924)."},{"key":"e_1_3_1_91_2","doi-asserted-by":"publisher","DOI":"10.1080\/01621459.2020.1807993"},{"key":"e_1_3_1_92_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201919)","author":"Lim C. Y.","year":"2019","unstructured":"C. Y. Lim, A. B. L. Berry, A. L. Hartzler, T. Hirsch, D. S. Carrell, Z. A. Bermet, and J. D. Ralston. 2019. Facilitating self-reflection about values and self-care among individuals with chronic conditions. In Proceedings of the ACM CHI Conference (CHI \u201919)."},{"key":"e_1_3_1_93_2","unstructured":"Y. Lin Y. Liu F. Lin L. Zou P. Wu W. Zeng H. Chen and C. Miao. 2022. A survey on reinforcement learning for recommender systems. arXiv:2109.10665. Retrieved from https:\/\/arxiv.org\/abs\/2109.10665"},{"key":"e_1_3_1_94_2","volume-title":"Proceedings of the Graphics Interface 2013 (GI \u201913)","author":"MacLeod H.","year":"2013","unstructured":"H. MacLeod, A. Tang, and S. Carpendale. 2013. Personal informatics in chronic illness management. In Proceedings of the Graphics Interface 2013 (GI \u201913). Canadian Information Processing Society."},{"key":"e_1_3_1_95_2","volume-title":"Proceedings of the Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems (CHI EA \u201922)","author":"Mamykina L.","year":"2022","unstructured":"L. Mamykina, D. A. Epstein, P. Klasnja, D. Sprujt-Metz, J. Meyer, M. Czerwinski, T. Althoff, E. K. Choe, M. De Choudhury, and B. Lim. 2022. Grand challenges for personal informatics and AI. In Proceedings of the Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems (CHI EA \u201922). ACM, New York, NY."},{"key":"e_1_3_1_96_2","first-page":"129","article-title":"Structured scaffolding for reflection and problem solving in diabetes self-management: Qualitative study of mobile diabetes detective","author":"Mamykina L.","year":"2016","unstructured":"L. Mamykina, E. M. Heitkemper, A. M. Smaldone, R. Kukafka, H. Cole, P. G. Lewis, E. D. Davidson, J. N. Mynatt, A. Tobin, C. Cassells, et al. 2016. Structured scaffolding for reflection and problem solving in diabetes self-management: Qualitative study of mobile diabetes detective. JAMIA 23 (2016), 129\u2013136.","journal-title":"JAMIA"},{"key":"e_1_3_1_97_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2015.06.006"},{"key":"e_1_3_1_98_2","article-title":"Adaptive interventions with user-defined goals for health behavior change","author":"Mandyam A.","year":"2024","unstructured":"A. Mandyam, M. Jorke, W. Denton, B. E. Engelhardt, and E. Brunskill. 2024. Adaptive interventions with user-defined goals for health behavior change. In Proceedings of Machine Learning Research, Vol. 248, 597\u2013618. Retrieved from https:\/\/proceedings.mlr.press\/v248\/mandyam24a.html","journal-title":"Proceedings of Machine Learning Research"},{"key":"e_1_3_1_99_2","volume-title":"Proceedings of the ACM CHI Conference","author":"McKillop M.","year":"2018","unstructured":"M. McKillop, L. Mamykina, and N. Elhadad. 2018. Designing in the dark: Eliciting self-tracking dimensions for understanding enigmatic disease. In Proceedings of the ACM CHI Conference."},{"key":"e_1_3_1_100_2","first-page":"e17","article-title":"Exploring self-tracking as a participatory research activity among women with endometriosis","volume":"8","author":"McKillop M.","year":"2016","unstructured":"M. McKillop, N. Voigt, R. Schnall, and N. Elhadad. 2016. Exploring self-tracking as a participatory research activity among women with endometriosis. Journal of Participatory Medicine 8 (2016), e17.","journal-title":"Journal of Participatory Medicine"},{"issue":"4","key":"e_1_3_1_101_2","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1016\/j.amjmed.2014.10.047","article-title":"Health care 2020: Reengineering health care delivery to combat chronic disease","volume":"128","author":"Milani R. V.","year":"2015","unstructured":"R. V. Milani and C. J. Lavie. 2015. Health care 2020: Reengineering health care delivery to combat chronic disease. The American Journal of Medicine 128, 4 (2015), 337\u2013343.","journal-title":"The American Journal of Medicine"},{"key":"e_1_3_1_102_2","unstructured":"S. Milani N. Topin M. Veloso and F. Fang. 2022. A survey of explainable reinforcement learning. arXiv:2202.08434. Retrieved from https:\/\/arxiv.org\/abs\/2202.08434"},{"issue":"2","key":"e_1_3_1_103_2","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1177\/1090198113493092","article-title":"Comparison of a mindful eating intervention to a diabetes self-management intervention among adults with type 2 diabetes: A randomized controlled trial","volume":"41","author":"Miller C. K.","year":"2014","unstructured":"C. K. Miller, J. L. Kristeller, A. Headings, and H. Nagaraja. 2014. Comparison of a mindful eating intervention to a diabetes self-management intervention among adults with type 2 diabetes: A randomized controlled trial. Health Education & Behavior: The Official Publication of the Society for Public Health Education 41, 2 (2014), 145\u2013154.","journal-title":"Health Education & Behavior: The Official Publication of the Society for Public Health Education"},{"key":"e_1_3_1_104_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Mishra S. R.","year":"2019","unstructured":"S. R. Mishra, P. Klasnja, J. MacDuffie Woodburn, E. B. Hekler, L. Omberg, M. Kellen, and L. Mangravite. 2019. Supporting coping with Parkinson\u2019s disease through self stracking. In Proceedings of the ACM CHI Conference. ACM, New York, NY."},{"key":"e_1_3_1_105_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Mitchell E. G.","year":"2021","unstructured":"E. G. Mitchell, E. M. Heitkemper, M. Burgermaster, M. E. Levine, Y. Miao, M. L. Hwang, P. M. Desai, A. Cassells, J. N. Tobin, E. G. Tabak, et al. 2021. From reflection to action: Combining machine learning with expert knowledge for nutrition goal recommendations. In Proceedings of the ACM CHI Conference."},{"issue":"6","key":"e_1_3_1_106_2","doi-asserted-by":"crossref","first-page":"1538","DOI":"10.1183\/09031936.00047814","article-title":"A self-management programme for COPD: A randomised controlled trial","volume":"44","author":"Mitchell K. E.","year":"2014","unstructured":"K. E. Mitchell, V. Johnson-Warrington, L. D. Apps, J. Bankart, L. Sewell, J. E. Williams, K. Rees, K. Jolly, M. Steiner, M. Morgan, et al. 2014. A self-management programme for COPD: A randomised controlled trial. The European Respiratory Journal 44, 6 (2014), 1538\u20131547.","journal-title":"The European Respiratory Journal"},{"key":"e_1_3_1_107_2","doi-asserted-by":"publisher","DOI":"10.1038\/nature14236"},{"key":"e_1_3_1_108_2","volume-title":"To Save Everything, Click Here: The Folly of Technological Solutionism","author":"Morozov E.","year":"2013","unstructured":"E. Morozov. 2013. To Save Everything, Click Here: The Folly of Technological Solutionism. PublicAffairs."},{"issue":"2","key":"e_1_3_1_109_2","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1145\/3181670","article-title":"Visualizing ubiquitously sensed measures of motor ability in multiple sclerosis: Reflections on communicating machine learning in practice","volume":"8","author":"Morrison C.","year":"2018","unstructured":"C. Morrison, K. Huckvale, B. Corish, R. Banks, M. Grayson, J. Dorn, A. Sellen, and S. Lindley. 2018. Visualizing ubiquitously sensed measures of motor ability in multiple sclerosis: Reflections on communicating machine learning in practice. ACM Transactions on Interactive Intelligent Systems (2018) 8, 2, 1\u201328.","journal-title":"ACM Transactions on Interactive Intelligent Systems"},{"key":"e_1_3_1_110_2","volume-title":"The Human-Computer Interaction Handbook: Fundamentals, Evolving Technologies and Emerging Applications","author":"Muller M. J.","year":"2002","unstructured":"M. J. Muller. 2002. Participatory design: The third space in HCI. In The Human-Computer Interaction Handbook: Fundamentals, Evolving Technologies and Emerging Applications."},{"key":"e_1_3_1_111_2","article-title":"Just-in-time adaptive interventions (JITAIs) in mobile health: Key components and design principles for ongoing health behavior support","author":"Nahum-Shani I.","year":"2017","unstructured":"I. Nahum-Shani, S. N. Smith, B. J. Spring, L. M. Collins, K. Witkiewitz, A. Tewari, and S. A. Murphy. 2017. Just-in-time adaptive interventions (JITAIs) in mobile health: Key components and design principles for ongoing health behavior support. Annals of Behavioral Medicine (2017).","journal-title":"Annals of Behavioral Medicine"},{"issue":"6","key":"e_1_3_1_112_2","doi-asserted-by":"crossref","first-page":"316","DOI":"10.1111\/j.1745-7599.2010.00514.x","article-title":"Teaching so they hear: Using a co-created diabetes self-management education approach","volume":"22","author":"New N.","year":"2010","unstructured":"N. New. 2010. Teaching so they hear: Using a co-created diabetes self-management education approach. Journal of the American Academy of Nurse Practitioners 22, 6 (2010), 316\u2013325.","journal-title":"Journal of the American Academy of Nurse Practitioners"},{"key":"e_1_3_1_113_2","volume-title":"The Design of Everyday Things: Revised and Expanded Edition","author":"Norman D.","year":"2013","unstructured":"D. Norman. 2013. The Design of Everyday Things: Revised and Expanded Edition. Basic Books."},{"key":"e_1_3_1_114_2","doi-asserted-by":"publisher","DOI":"10.1145\/1294211.1294256"},{"issue":"1","key":"e_1_3_1_115_2","doi-asserted-by":"crossref","first-page":"45","DOI":"10.1038\/s41386-020-0771-3","article-title":"Opportunities and challenges in the collection and analysis of digital phenotyping data","volume":"56","author":"Onnela J. P.","year":"2021","unstructured":"J. P. Onnela. 2021. Opportunities and challenges in the collection and analysis of digital phenotyping data. Neuropsychopharmacology 56, 1 (2021) 45\u201354.","journal-title":"Neuropsychopharmacology"},{"key":"e_1_3_1_116_2","volume-title":"Proceedings of the of the 17th International Conference on Human-Computer Interaction with Mobile Devices and Services (MobileHCI \u201915)","author":"Owen T.","year":"2015","unstructured":"T. Owen, J. Pearson, H. Thimbleby, and G. Buchanan. 2015. ConCap: Designing to empower individual reflection on chronic conditions using mobile apps. In Proceedings of the of the 17th International Conference on Human-Computer Interaction with Mobile Devices and Services (MobileHCI \u201915). ACM, New York, NY."},{"key":"e_1_3_1_117_2","first-page":"391","article-title":"Six human-centered artificial intelligence grand challenges","author":"Ozmen Garibay O.","year":"2023","unstructured":"O. Ozmen Garibay, B. Winslow, S. Andolina, M. Antona, A. Bodenschatz, C. Coursaris, G. Falco, S. M. Fiore, I. Garibay, K. Grieman, et al. 2023. Six human-centered artificial intelligence grand challenges. International Journal of Human-Computer Studies 39 (2023), 391\u2013437.","journal-title":"International Journal of Human-Computer Studies"},{"key":"e_1_3_1_118_2","doi-asserted-by":"crossref","first-page":"647","DOI":"10.1093\/humrep\/deaa330","article-title":"Self-management factors associated with quality of life among women with endometriosis: A cross-sectional Australian survey","author":"O\u2019Hara R.","year":"2021","unstructured":"R. O\u2019Hara, H. Rowe, and J. Fisher. 2021. Self-management factors associated with quality of life among women with endometriosis: A cross-sectional Australian survey. Human Reproduction 36 (2021), 647\u2013655.","journal-title":"Human Reproduction"},{"key":"e_1_3_1_119_2","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1089\/whr.2020.0099","article-title":"How women with endometriosis experience health care encounters","author":"Pettersson A.","year":"2020","unstructured":"A. Pettersson and C. M. Berter\u00f6. 2020. How women with endometriosis experience health care encounters. Women\u2019s Health Reports 1 (2020), 529\u2013542.","journal-title":"Women\u2019s Health Reports"},{"key":"e_1_3_1_120_2","first-page":"385","article-title":"The messiness of the menstruator: Assessing personas and functionalities of menstrual tracking apps","author":"Pichon A.","year":"2022","unstructured":"A. Pichon, K. B. Jackman, I. T. Winkler, C. Bobel, and N. Elhadad. 2022. The messiness of the menstruator: Assessing personas and functionalities of menstrual tracking apps. JAMIA 29 (2022), 385\u2013399.","journal-title":"JAMIA"},{"key":"e_1_3_1_121_2","first-page":"1","volume-title":"Proceedings of the ACM CSCW Conference","volume":"4","author":"Pichon A.","year":"2020","unstructured":"A. Pichon, K. Schiffer, E. Horan, B. Massey, S. Bakken, L. Mamykina, and N. Elhadad. 2020. Divided we stand: The collaborative work of patients and providers in an enigmatic chronic disease. In Proceedings of the ACM CSCW Conference, Vol. 4, 1\u201324."},{"key":"e_1_3_1_122_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201916)","author":"Pollack A. H.","year":"2016","unstructured":"A. H. Pollack, U. Backonja, A. D. Miller, S. R. Mishra, M. Khelifi, L. Kendall, and W. Pratt. 2016. \u2018Closing the gap: Supporting patients\u2019 transition to self-management after hospitalization. In Proceedings of the ACM CHI Conference (CHI \u201916). ACM, New York, NY."},{"issue":"3","key":"e_1_3_1_123_2","first-page":"1","article-title":"Editor\u2019s introduction: Data as media","volume":"3","author":"Posner M.","year":"2017","unstructured":"M. Posner and L. F. Klein. 2017. Editor\u2019s introduction: Data as media. Feminist Media Histories 3, 3 (2017), 1\u20138.","journal-title":"Feminist Media Histories"},{"key":"e_1_3_1_124_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-57321-8_5"},{"issue":"14","key":"e_1_3_1_125_2","doi-asserted-by":"crossref","first-page":"1347","DOI":"10.1056\/NEJMra1814259","article-title":"Machine learning in medicine","volume":"380","author":"Rajkomar A.","year":"2019","unstructured":"A. Rajkomar, J. Dean, and I. Kohane. 2019. Machine learning in medicine. The New England Journal of Medicine 380, 14 (2019), 1347\u20131358.","journal-title":"The New England Journal of Medicine"},{"key":"e_1_3_1_126_2","article-title":"Progress in context-aware recommender systems\u2014An overview","author":"Raza S.","year":"2019","unstructured":"S. Raza and C. Ding. 2019. Progress in context-aware recommender systems\u2014An overview. Computer Science Review (2019).","journal-title":"Computer Science Review"},{"issue":"7","key":"e_1_3_1_127_2","doi-asserted-by":"crossref","first-page":"905","DOI":"10.1177\/1359105316643069","article-title":"Salient aspects of quality of life among women diagnosed with endometriosis: A qualitative study","volume":"23","author":"Roomaney R.","year":"2018","unstructured":"R. Roomaney and A. Kagee. 2018. Salient aspects of quality of life among women diagnosed with endometriosis: A qualitative study. Journal of Health Psychology 23, 7 (2018), 905\u2013916.","journal-title":"Journal of Health Psychology"},{"key":"e_1_3_1_128_2","doi-asserted-by":"publisher","unstructured":"D. Schiff B. Rakova A. Ayesh A. Fanti and M. Lennon. 2020. Principles to practices for responsible AI: Closing the gap. arXiv:2006.04707. Retrieved from 10.48550\/arXiv.2006.04707","DOI":"10.48550\/arXiv.2006.04707"},{"key":"e_1_3_1_129_2","volume-title":"Proceedings of the of the 2018 Designing Interactive Systems Conference (DIS \u201918)","author":"Schroeder J.","year":"2018","unstructured":"J. Schroeder, C. F. Chung, D. A. Epstein, R. Karkar, A. Parsons, N. Murinova, J. Fogarty, and S. A. Munson. 2018. Examining self-tracking by people with migraine: Goals, needs, and opportunities in a chronic health condition. In Proceedings of the of the 2018 Designing Interactive Systems Conference (DIS \u201918). ACM, New York, NY."},{"key":"e_1_3_1_130_2","doi-asserted-by":"publisher","DOI":"10.1007\/s41666-018-0033-x"},{"key":"e_1_3_1_131_2","volume-title":"Participatory Design: Principles and Practices","author":"Schuler D.","year":"1993","unstructured":"D. Schuler and A. Namioka. 1993. Participatory Design: Principles and Practices. CRC Press."},{"key":"e_1_3_1_132_2","first-page":"62","article-title":"Going digital: A narrative overview of the effects, quality and utility of mobile apps in chronic disease self-management","author":"Scott I. A.","year":"2018","unstructured":"I. A. Scott, P. Scuffham, D. Gupta, T. M. Harch, J. Borchi, and B. Richards. 2018. Going digital: A narrative overview of the effects, quality and utility of mobile apps in chronic disease self-management. Australian Health Review 44 (2018), 62\u201382.","journal-title":"Australian Health Review"},{"key":"e_1_3_1_133_2","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1080\/13698570903013649","article-title":"\u2018Nobody really knows what it is or how to treat it\u2019: Why women with endometriosis do not comply with healthcare advice","author":"Seear K.","year":"2009","unstructured":"K. Seear. 2009. \u2018Nobody really knows what it is or how to treat it\u2019: Why women with endometriosis do not comply with healthcare advice. Health, Risk & Society 11 (2009), 367\u2013385.","journal-title":"Health, Risk & Society"},{"key":"e_1_3_1_134_2","doi-asserted-by":"crossref","first-page":"194","DOI":"10.5172\/hesr.18.2.194","article-title":"The third shift: Health, work and expertise among women with endometriosis","author":"Seear K.","year":"2009","unstructured":"K. Seear. 2009. The third shift: Health, work and expertise among women with endometriosis. Health Sociology Review 18 (2009), 194\u2013206.","journal-title":"Health Sociology Review"},{"key":"e_1_3_1_135_2","doi-asserted-by":"publisher","unstructured":"A. D. Selbst D. Boyd S. Friedler S. Venkatasubramanian and J. Vertesi. 2019. Fairness and Abstraction in Sociotechnical Systems. In Proceedings of the Conference on Fairness Accountability and Transparency 59\u201368. DOI: 10.1145\/3287560.3287598","DOI":"10.1145\/3287560.3287598"},{"key":"e_1_3_1_136_2","first-page":"1265","article-title":"An MDP-Based recommender system","author":"Shani G.","year":"2005","unstructured":"G. Shani, D. Heckerman, and R. I. Brafman. 2005. An MDP-Based recommender system. Journal of Machine Learning Research 6 (2005), 1265\u20131295.","journal-title":"Journal of Machine Learning Research"},{"key":"e_1_3_1_137_2","first-page":"495","article-title":"Human-Centered artificial intelligence: Reliable, safe & trustworthy","author":"Shneiderman B.","year":"2020","unstructured":"B. Shneiderman. 2020. Human-Centered artificial intelligence: Reliable, safe & trustworthy. International Journal of Human-Computer Studies 36 (2020), 495\u2013504.","journal-title":"International Journal of Human-Computer Studies"},{"key":"e_1_3_1_138_2","doi-asserted-by":"crossref","first-page":"354","DOI":"10.1038\/nature24270","article-title":"Mastering the game of go without human knowledge","author":"Silver D.","year":"2017","unstructured":"D. Silver, J. Schrittwieser, K. Simonyan, I. Antonoglou, A. Huang, A. Guez, T. Hubert, L. Baker, M. Lai, A. Bolton, et al. 2017. Mastering the game of go without human knowledge. Nature 550 (2017), 354\u2013359.","journal-title":"Nature"},{"issue":"2","key":"e_1_3_1_139_2","doi-asserted-by":"crossref","first-page":"100","DOI":"10.1370\/afm.971","article-title":"The problem of fragmentation and the need for integrative solutions","volume":"7","author":"Stange K. C.","year":"2009","unstructured":"K. C. Stange. 2009. The problem of fragmentation and the need for integrative solutions. Annals of Family Medicine 7, 2 (2009), 100\u2013103.","journal-title":"Annals of Family Medicine"},{"key":"e_1_3_1_140_2","volume-title":"Reinforcement Learning: An Introduction","author":"Sutton R. S.","year":"2018","unstructured":"R. S. Sutton and A. G. Barto. 2018. Reinforcement Learning: An Introduction (2nd. ed.). The MIT Press.","edition":"2"},{"key":"e_1_3_1_141_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-031-01551-9"},{"key":"e_1_3_1_142_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10462-005-4607-7"},{"issue":"53","key":"e_1_3_1_143_2","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3310\/hsdr02530","article-title":"A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions (PRISMS practical systematic review of self-management support for long-term conditions)","volume":"2","author":"Taylor S. J. C.","year":"2014","unstructured":"S. J. C. Taylor, H. Pinnock, E. Epiphaniou, G. Pearce, H. L. Parke, A. Schwappach, N. Purushotham, S. Jacob, C. J. Griffiths, T. Greenhalgh, et al. 2014. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions (PRISMS practical systematic review of self-management support for long-term conditions). Health Services and Delivery Research 2, 53 (2014), 1\u2013580.","journal-title":"Health Services and Delivery Research"},{"issue":"4","key":"e_1_3_1_144_2","doi-asserted-by":"crossref","DOI":"10.3390\/s18041097","article-title":"QuantifyMe: An open-source automated single-case experimental design platform","volume":"18","author":"Taylor S.","year":"2018","unstructured":"S. Taylor, A. Sano, C. Ferguson, A. Mohan, and R. W. Picard. 2018. QuantifyMe: An open-source automated single-case experimental design platform. Sensors (Basel, Switzerland) 18, 4 (2018).","journal-title":"Sensors (Basel, Switzerland)"},{"key":"e_1_3_1_145_2","doi-asserted-by":"publisher","DOI":"10.1145\/3398069"},{"key":"e_1_3_1_146_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10994-021-05995-8"},{"key":"e_1_3_1_147_2","volume-title":"The Evolution of Socio-Technical Systems: A Conceptual Framework and an Action Research Program","author":"Trist E.","year":"1981","unstructured":"E. Trist. 1981. The Evolution of Socio-Technical Systems: A Conceptual Framework and an Action Research Program. Ontario Quality of Working Life Centre."},{"key":"e_1_3_1_148_2","doi-asserted-by":"publisher","DOI":"10.1145\/3544549.3573866"},{"key":"e_1_3_1_149_2","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1038\/s41746-020-0292-9","article-title":"Learning endometriosis phenotypes from patient-generated data","volume":"3","author":"Urteaga I.","year":"2020","unstructured":"I. Urteaga, M. McKillop, and N. Elhadad. 2020. Learning endometriosis phenotypes from patient-generated data. NPJ Digital Medicine 3 (2020), 88.","journal-title":"NPJ Digital Medicine"},{"key":"e_1_3_1_150_2","volume-title":"Proceedings of the of the 21st International Conference on Artificial Intelligence and Statistics (Proceedings of the of Machine Learning Research)","author":"Urteaga I.","year":"2018","unstructured":"I. Urteaga and C. Wiggins. 2018. Variational inference for the multi-armed contextual bandit. In Proceedings of the of the 21st International Conference on Artificial Intelligence and Statistics (Proceedings of the of Machine Learning Research). Amos Storkey and Fernando Perez-Cruz (Eds.), PMLR."},{"key":"e_1_3_1_151_2","volume-title":"Machines We Trust: Getting along with Artificial Intelligence, 123\u2013138.","author":"Vaughn J. W.","year":"2020","unstructured":"J. W. Vaughn and H. Wallach. 2020. A human-centered agenda for intelligible machine learning. In Machines We Trust: Getting along with Artificial Intelligence, 123\u2013138."},{"key":"e_1_3_1_152_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.knosys.2017.11.003"},{"key":"e_1_3_1_153_2","doi-asserted-by":"crossref","DOI":"10.1377\/hlthaff.20.6.64","article-title":"Improving chronic illness care: Translating evidence into action","author":"Wagner E. H.","year":"2001","unstructured":"E. H. Wagner, B. T. Austin, C. Davis, M. Hindmarsh, J. Schaefer, and A. Bonomi. 2001. Improving chronic illness care: Translating evidence into action. Health Affairs (2001).","journal-title":"Health Affairs"},{"key":"e_1_3_1_154_2","volume-title":"Proceedings of the ACM CHI Conference","author":"Wang D.","year":"2019","unstructured":"D. Wang, Q. Yang, A. Abdul, and B. Y. Lim. 2019. Designing theory-driven user-centric explainable AI. In Proceedings of the ACM CHI Conference."},{"key":"e_1_3_1_155_2","volume-title":"User Modeling and User-Adapted Interaction","author":"Webb G. I.","year":"2001","unstructured":"G. I. Webb, M. J. Pazzani, and D. Billsus. 2001. Machine learning for user modeling. User Modeling and User-Adapted Interaction (2001)."},{"key":"e_1_3_1_156_2","doi-asserted-by":"publisher","DOI":"10.3389\/frai.2021.550030"},{"issue":"5","key":"e_1_3_1_157_2","first-page":"e38765","article-title":"Disparities in women with endometriosis regarding access to care, diagnosis, treatment, and management in the United States: A scoping review","volume":"15","author":"Westwood S.","year":"2023","unstructured":"S. Westwood, M. Fannin, F. Ali, J. Thigpen, R. Tatro, A. Hernandez, C. Peltzer, M. Hildebrand, A. Fernandez-Pacheco, J. R. Raymond-Lezman, et al. 2023. Disparities in women with endometriosis regarding access to care, diagnosis, treatment, and management in the United States: A scoping review. Cureus 15, 5 (2023), e38765.","journal-title":"Cureus"},{"key":"e_1_3_1_158_2","doi-asserted-by":"publisher","DOI":"10.1145\/3328485"},{"key":"e_1_3_1_159_2","volume-title":"In Proceedings of the ACM CHI Conference (CHI \u201919)","author":"Young A. L.","year":"2019","unstructured":"A. L. Young and A. D. Miller. 2019. \u201cThis girl is on fire\u201d: Sensemaking in an online health community for Vulvodynia. In Proceedings of the ACM CHI Conference (CHI \u201919). ACM, New York, NY."},{"issue":"3","key":"e_1_3_1_160_2","doi-asserted-by":"crossref","first-page":"225","DOI":"10.1136\/jfprhc-2013-100853","article-title":"Women\u2019s experiences of endometriosis: A systematic review and synthesis of qualitative research","volume":"41","author":"Young K.","year":"2015","unstructured":"K. Young, J. Fisher, and M. Kirkman. 2015. Women\u2019s experiences of endometriosis: A systematic review and synthesis of qualitative research. The Journal of Family Planning and Reproductive Health Care 41, 3 (2015), 225\u2013234.","journal-title":"The Journal of Family Planning and Reproductive Health Care"},{"key":"e_1_3_1_161_2","volume-title":"Proceedings of the ACM CHI Conference (CHI \u201923)","author":"Zhang A.","year":"2023","unstructured":"A. Zhang, A. Boltz, J. Lynn, C. W. Wang, and M. K. Lee. 2023. Stakeholder-centered AI design: Co-designing worker tools with gig workers through data probes. In Proceedings of the ACM CHI Conference (CHI \u201923). ACM, New York, NY."},{"key":"e_1_3_1_162_2","doi-asserted-by":"publisher","DOI":"10.1145\/3038912.3052661"},{"key":"e_1_3_1_163_2","article-title":"Value-Sensitive algorithm design: Method, case study, and lessons","author":"Zhu H.","year":"2018","unstructured":"H. Zhu, B. Yu, A. Halfaker, and L. Terveen. 2018. Value-Sensitive algorithm design: Method, case study, and lessons. In Proceedings of the ACM CSCW Conference.","journal-title":"Proceedings of the ACM CSCW Conference"},{"key":"e_1_3_1_164_2","volume-title":"Proceedings of the Uncertainty in Artificial Intelligence (UAI)","author":"Zimdars A.","year":"2001","unstructured":"A. Zimdars, D. M. Chickering, and C. Meek. 2001. Using temporal data for making recommendations. In Proceedings of the Uncertainty in Artificial Intelligence (UAI)."},{"key":"e_1_3_1_165_2","article-title":"Endometriosis (primer)","author":"Zondervan K. T.","year":"2018","unstructured":"K. T. Zondervan, C. M. Becker, K. Koga, S. A. Missmer, R. N. Taylor, and P. Vigan\u00f2. 2018. Endometriosis (primer). Nature Reviews: Disease Primers 4 (2018), 9.","journal-title":"Nature Reviews: Disease Primers"}],"container-title":["ACM Transactions on Computer-Human Interaction"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dl.acm.org\/doi\/pdf\/10.1145\/3717063","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,8,19]],"date-time":"2025-08-19T03:42:43Z","timestamp":1755574963000},"score":1,"resource":{"primary":{"URL":"https:\/\/dl.acm.org\/doi\/10.1145\/3717063"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,8,18]]},"references-count":164,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2025,8,31]]}},"alternative-id":["10.1145\/3717063"],"URL":"https:\/\/doi.org\/10.1145\/3717063","relation":{},"ISSN":["1073-0516","1557-7325"],"issn-type":[{"value":"1073-0516","type":"print"},{"value":"1557-7325","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,8,18]]},"assertion":[{"value":"2023-09-15","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-01-22","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-08-18","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}