{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T06:10:18Z","timestamp":1788243018861,"version":"build-2803163510"},"reference-count":32,"publisher":"Wiley","license":[{"start":{"date-parts":[[2023,1,18]],"date-time":"2023-01-18T00:00:00Z","timestamp":1674000000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100009307","name":"Parkinson Canada","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100009307","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Neurology Research International"],"published-print":{"date-parts":[[2023,1,18]]},"abstract":"<jats:p>Background. Parkinson\u2019s disease (PD) is a neurodegenerative condition, predominantly affecting older adults. Preference-based measures (PBMs) can be used to make decisions about the cost-utility of different treatments. There are currently no PBMs for health-related quality of life (HRQoL) for PD. A previous study identified important health domains for individuals with PD and developed an item pool from existing measures per domain. The current study aims to contribute to the development of a new disease-specific PBM of HRQoL for PD by reducing the current pool of items according to the preferences of individuals with PD. Methods. Fifty-three participants completed a visual analogue scale (VAS) of self-perceived health, the prototype PBM measure, and an item importance rating. To reduce the item pool, the following were calculated: (1) inter-item correlations; (2) impact of each item based on item performance and importance rating; (3) directionality of response options by comparing the VAS scores against each item. Results. Participants (male\u2009=\u200954.7%, age\u2009=\u200960.0\u2009\u00b1\u200910.2) had a median Hoehn and Yahr score of 2.5 (interquartile range\u2009=\u20091). Items supported for inclusion by this analysis were sleep, fatigue, tremor, mood, walking, memory, and dexterity. Items demonstrating a logical decrease in VAS score with each increasing severity level were sleep, memory, tremor, fatigue, and mood. Conclusion. This PBM will be critical for informing decisions about the cost-utility of PD treatments, guiding the resource allocation within our healthcare system. Future research will include cognitive debriefing with individuals with PD to refine item response options.<\/jats:p>","DOI":"10.1155\/2023\/6559857","type":"journal-article","created":{"date-parts":[[2023,1,18]],"date-time":"2023-01-18T15:50:12Z","timestamp":1674057012000},"page":"1-8","source":"Crossref","is-referenced-by-count":3,"title":["Item Selection for a New Health-Related Quality of Life Measure for Parkinson\u2019s Disease: The Preference-Based Parkinson\u2019s Disease Index (PB-PDI)"],"prefix":"10.1155","volume":"2023","author":[{"given":"Selina","family":"Malouka","sequence":"first","affiliation":[{"name":"School of Rehabilitation Science, McMaster University, Hamilton, ON L8S 4L8, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lizabeth","family":"Teshler","sequence":"additional","affiliation":[{"name":"Arts and Science Program, McMaster University, Hamilton, ON L8S 4L8, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nancy","family":"Mayo","sequence":"additional","affiliation":[{"name":"Center for Outcomes Research and Evaluation, McGill University Health Centre- Research Institute, Montreal, QC H3A 0G4, Canada"},{"name":"School of Physical and Occupational Therapy, McGill University, Montreal, QC H3G 1Y5, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2843-388X","authenticated-orcid":true,"given":"Marla","family":"Beauchamp","sequence":"additional","affiliation":[{"name":"School of Rehabilitation Science, McMaster University, Hamilton, ON L8S 4L8, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6356-0492","authenticated-orcid":true,"given":"Julie","family":"Richardson","sequence":"additional","affiliation":[{"name":"School of Rehabilitation Science, McMaster University, Hamilton, ON L8S 4L8, Canada"},{"name":"Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, ON L8S 4L8, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3886-0407","authenticated-orcid":true,"given":"Ayse","family":"Kuspinar","sequence":"additional","affiliation":[{"name":"School of Rehabilitation Science, McMaster University, Hamilton, ON L8S 4L8, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","reference":[{"key":"1","doi-asserted-by":"publisher","DOI":"10.1016\/s0896-6273(03)00568-3"},{"issue":"1","key":"2","article-title":"Estimation of the 2020 global population of Parkinson\u2019s disease (PD) [abstract]","volume":"35","author":"N. 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