{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,21]],"date-time":"2026-01-21T08:22:55Z","timestamp":1768983775277,"version":"3.49.0"},"reference-count":32,"publisher":"S. Karger AG","issue":"3","license":[{"start":{"date-parts":[[2008,1,1]],"date-time":"2008-01-01T00:00:00Z","timestamp":1199145600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.karger.com\/Services\/SiteLicenses"},{"start":{"date-parts":[[2008,1,1]],"date-time":"2008-01-01T00:00:00Z","timestamp":1199145600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.karger.com\/Services\/SiteLicenses"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Public Health Genomics"],"published-print":{"date-parts":[[2008]]},"abstract":"<i>Background:<\/i> The purpose of this study is to investigate the sociodemographic and health characteristics associated with the willingness to donate a DNA sample, and consent to testing and long-term storage of that sample, among participants in a longitudinal community-based survey. <i>Sample:<\/i> Eighty-three percent of the 1,071 participants interviewed in 2004\/5 agreed to donate a biological specimen (blood or buccal). <i>Results:<\/i> Age was consistently inversely associated with the willingness to allow genetic testing (OR 0.97; p < 0.05), but was unrelated to the willingness to donate or allow storage.There was no association between race and the consent to donate a specimen, but Blacks were less likely to consent to DNA storage for future research as compared with members of other racial groups (OR 0.50; p < 0.01). Four conditions were listed on the consent form as relevant to the genes targeted for assay. Participants with a family history of 1 or more of these conditions were more likely to donate than those without (OR 1.68; p < 0.01). Participants with a personal history of 1 of the 4 conditions listed were not more or less likely to donate, allow testing or allow storage than respondents without such a history. <i>Conclusions:<\/i> Sociodemographic characteristics were unrelated to the willingness to donate a biological sample. Age, but not race, sex or education, was related to consent to genetic testing. Race, but not age, sex or education, was related to consent to storage. A family history of health conditions listed as relevant to the assays being requested was related to the willingness to donate. Factors that affect the willingness to donate a biological sample in an epidemiologic study are not the same as those associated with the willingness to allow genetic testing or storage of that sample for unspecified future research.<\/jats:p>","DOI":"10.1159\/000113880","type":"journal-article","created":{"date-parts":[[2008,3,28]],"date-time":"2008-03-28T20:47:51Z","timestamp":1206737271000},"page":"171-178","source":"Crossref","is-referenced-by-count":23,"title":["Participant Characteristics That Influence Consent for Genetic Research in a Population-Based Survey: The Baltimore Epidemiologic Catchment Area Follow-Up"],"prefix":"10.1159","volume":"11","author":[{"given":"Briana","family":"Mezuk","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"William W.","family":"Eaton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Zandi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"127","published-online":{"date-parts":[[2008,3,26]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","DOI":"10.1001%2Fjama.286.18.2315"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1080%2F14034940310019506"},{"key":"ref3","doi-asserted-by":"publisher","DOI":"10.1111%2Fj..2004.00192.x"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.1159%2F000051152"},{"key":"ref5","doi-asserted-by":"publisher","DOI":"10.1097%2F01.gim.0000223552.70393.08"},{"key":"ref6","doi-asserted-by":"publisher","DOI":"10.1080%2F14622200410001696583"},{"key":"ref7","doi-asserted-by":"publisher","DOI":"10.1002%2F%28SICI%291098-2272%281997%2914%3A1%3C85%3A%3AAID-GEPI7%3E3.0.CO%3B2-4"},{"key":"ref8","doi-asserted-by":"publisher","DOI":"10.1016%2FS1047-2797%2803%2900073-5"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.1016%2F0021-9681%2883%2990166-2"},{"key":"ref10","doi-asserted-by":"publisher","DOI":"10.1086%2F491747"},{"key":"ref11","doi-asserted-by":"publisher","DOI":"10.1097%2F00001648-200205000-00003"},{"key":"ref12","doi-asserted-by":"publisher","DOI":"10.1080%2F1463677042000189598"},{"key":"ref13","doi-asserted-by":"publisher","DOI":"10.1136%2Fjme.2004.009530"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.1001%2Farchpsyc.57.3.217"},{"key":"ref15","doi-asserted-by":"publisher","DOI":"10.1016%2Fj.jclinepi.2004.04.005"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.1093%2Fije%2F28.3.409"},{"key":"ref17","doi-asserted-by":"publisher","DOI":"10.1001%2Fjama.286.18.2326"},{"key":"ref18","doi-asserted-by":"publisher","DOI":"10.1046%2Fj.1525-1497.1999.07048.x"},{"key":"ref19","doi-asserted-by":"publisher","DOI":"10.1002%2F1096-8628%2820010201%2998%3A4%3C336%3A%3AAID-AJMG1100%3E3.0.CO%3B2-7"},{"key":"ref20","doi-asserted-by":"publisher","DOI":"10.1159%2F000080303"},{"key":"ref21","doi-asserted-by":"publisher","DOI":"10.1001%2Farchinte.162.13.1457"},{"key":"ref22","doi-asserted-by":"publisher","DOI":"10.1001%2Farchinte.165.6.652"},{"key":"ref23","doi-asserted-by":"publisher","DOI":"10.1002%2Fajmg.a.31154"},{"key":"ref24","doi-asserted-by":"publisher","DOI":"10.1001%2Fjama.287.6.773"},{"key":"ref25","doi-asserted-by":"publisher","DOI":"10.1177%2F1090198102251026"},{"key":"ref26","doi-asserted-by":"publisher","DOI":"10.1126%2Fscience.285.5432.1359"},{"key":"ref27","doi-asserted-by":"publisher","DOI":"10.1016%2Fj.socscimed.2004.05.012"},{"key":"ref28","doi-asserted-by":"publisher","DOI":"10.1001%2Fjama.274.22.1786"},{"key":"ref29","doi-asserted-by":"publisher","DOI":"10.1001%2Farchinte.165.1.97"},{"key":"ref30","doi-asserted-by":"publisher","DOI":"10.1016%2Fj.lab.2004.08.003"},{"key":"ref31","doi-asserted-by":"publisher","DOI":"10.1300%2FJ045v12n02_02"},{"key":"ref32","doi-asserted-by":"publisher","DOI":"10.1080%2F13557858.1997.9961813"}],"container-title":["Public Health Genomics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.karger.com\/Article\/Pdf\/113880","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.karger.com\/Article\/Pdf\/113880","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,4,24]],"date-time":"2025-04-24T01:53:45Z","timestamp":1745459625000},"score":1,"resource":{"primary":{"URL":"https:\/\/karger.com\/article\/doi\/10.1159\/000113880"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2008]]},"references-count":32,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2008,3,1]]}},"URL":"https:\/\/doi.org\/10.1159\/000113880","archive":["Portico"],"relation":{},"ISSN":["1662-4246","1662-8063"],"issn-type":[{"value":"1662-4246","type":"print"},{"value":"1662-8063","type":"electronic"}],"subject":[],"published":{"date-parts":[[2008]]}}}