{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T08:52:01Z","timestamp":1789721521169,"version":"4.0.1"},"reference-count":45,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"14","content-domain":{"domain":["www.ahajournals.org"],"crossmark-restriction":true},"short-container-title":["Circulation"],"published-print":{"date-parts":[[2016,4,5]]},"abstract":"<jats:p>The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.<\/jats:p>","DOI":"10.1161\/circulationaha.115.019506","type":"journal-article","created":{"date-parts":[[2016,4,4]],"date-time":"2016-04-04T18:04:21Z","timestamp":1459793061000},"page":"1410-1418","update-policy":"https:\/\/doi.org\/10.1161\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":40,"title":["Report of the National Heart, Lung, and Blood Institute Working Group"],"prefix":"10.1161","volume":"133","author":[{"given":"Sara K.","family":"Pasquali","sequence":"first","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children\u2019s Hospital, Ann Arbor (S.K.P., M.G.G.); Department of Surgery, Johns Hopkins All Children\u2019s Heart Institute, St. Petersburg, FL (J.P.J.); National Institute of Mental Health, National Institutes of Health, Bethesda, MD (G.K.F.); Children\u2019s Hospital Association, Overland Park, KS (D.B.); Department of Cardiology, Boston Children\u2019s Hospital, MA (E.D.B.); Division of Cardiovascular Sciences, National..."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeffrey P.","family":"Jacobs","sequence":"additional","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children\u2019s Hospital, Ann Arbor (S.K.P., M.G.G.); Department of Surgery, Johns Hopkins All Children\u2019s Heart Institute, St. Petersburg, FL (J.P.J.); National Institute of Mental Health, National Institutes of Health, Bethesda, MD (G.K.F.); Children\u2019s Hospital Association, Overland Park, KS (D.B.); Department of Cardiology, Boston Children\u2019s Hospital, MA (E.D.B.); Division of Cardiovascular Sciences, National..."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gregory K.","family":"Farber","sequence":"additional","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children\u2019s Hospital, Ann Arbor (S.K.P., M.G.G.); Department of Surgery, Johns Hopkins All Children\u2019s Heart Institute, St. Petersburg, FL (J.P.J.); National Institute of Mental Health, National Institutes of Health, Bethesda, MD (G.K.F.); Children\u2019s Hospital Association, Overland Park, KS (D.B.); Department of Cardiology, Boston Children\u2019s Hospital, MA (E.D.B.); Division of Cardiovascular Sciences, National..."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Bertoch","sequence":"additional","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children\u2019s Hospital, Ann Arbor (S.K.P., M.G.G.); Department of Surgery, Johns Hopkins All Children\u2019s Heart Institute, St. Petersburg, FL (J.P.J.); National Institute of Mental Health, National Institutes of Health, Bethesda, MD (G.K.F.); Children\u2019s Hospital Association, Overland Park, KS (D.B.); Department of Cardiology, Boston Children\u2019s Hospital, MA (E.D.B.); Division of Cardiovascular Sciences, National..."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth D.","family":"Blume","sequence":"additional","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. 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Mott Children\u2019s Hospital, Ann Arbor (S.K.P., M.G.G.); Department of Surgery, Johns Hopkins All Children\u2019s Heart Institute, St. Petersburg, FL (J.P.J.); National Institute of Mental Health, National Institutes of Health, Bethesda, MD (G.K.F.); Children\u2019s Hospital Association, Overland Park, KS (D.B.); Department of Cardiology, Boston Children\u2019s Hospital, MA (E.D.B.); Division of Cardiovascular Sciences, National..."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anthony C.","family":"Chang","sequence":"additional","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. Mott Children\u2019s Hospital, Ann Arbor (S.K.P., M.G.G.); Department of Surgery, Johns Hopkins All Children\u2019s Heart Institute, St. Petersburg, FL (J.P.J.); National Institute of Mental Health, National Institutes of Health, Bethesda, MD (G.K.F.); Children\u2019s Hospital Association, Overland Park, KS (D.B.); Department of Cardiology, Boston Children\u2019s Hospital, MA (E.D.B.); Division of Cardiovascular Sciences, National..."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wendy K.","family":"Chung","sequence":"additional","affiliation":[{"name":"From Department of Pediatrics and Communicable Diseases, University of Michigan C.S. 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