{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T04:39:07Z","timestamp":1790224747401,"version":"4.1.0"},"reference-count":37,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"9","content-domain":{"domain":["www.ahajournals.org"],"crossmark-restriction":true},"short-container-title":["JAHA"],"published-print":{"date-parts":[[2022,5,3]]},"abstract":"<jats:sec xml:lang=\"en\">\n            <jats:title>Background<\/jats:title>\n            <jats:p xml:lang=\"en\">Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient\u2010report outcomes in adults with congenital heart disease.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec xml:lang=\"en\">\n            <jats:title>Methods and Results<\/jats:title>\n            <jats:p xml:lang=\"en\">As part of the APPROACH\u2010IS (Assessment of Patterns of Patient\u2010Reported Outcomes in Adults with Congenital Heart disease\u2014International Study), we collected data on HF status and patient\u2010reported outcomes in 3959 patients from 15 countries across 5 continents. Patient\u2010report outcomes were: perceived health status (12\u2010item Short Form Health Survey), quality of life (Linear Analogue Scale and Satisfaction with Life Scale), sense of coherence\u201013, psychological distress (Hospital Anxiety and Depression Scale), and illness perception (Brief Illness Perception Questionnaire). In this sample, 137 (3.5%) had HF at the time of investigation, 298 (7.5%) had a history of HF, and 3524 (89.0%) had no current or past episode of HF. Patients with current or past HF were older and had a higher prevalence of complex congenital heart disease, arrhythmias, implantable cardioverter\u2010defibrillators, other clinical comorbidities, and mood disorders than those who never had HF. Patients with HF had worse physical functioning, mental functioning, quality of life, satisfaction with life, sense of coherence, depressive symptoms, and illness perception scores. Magnitudes of differences were large for physical functioning and illness perception and moderate for mental functioning, quality of life, and depressive symptoms.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec xml:lang=\"en\">\n            <jats:title>Conclusions<\/jats:title>\n            <jats:p xml:lang=\"en\">HF in adults with congenital heart disease is associated with poorer patient\u2010reported outcomes, with large effect sizes for physical functioning and illness perception.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec xml:lang=\"en\">\n            <jats:title>Registration<\/jats:title>\n            <jats:p xml:lang=\"en\">\n              URL:\n              <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"https:\/\/clinicaltrials.gov\">https:\/\/clinicaltrials.gov<\/jats:ext-link>\n              ; Unique identifier: NCT02150603.\n            <\/jats:p>\n          <\/jats:sec>","DOI":"10.1161\/jaha.121.024993","type":"journal-article","created":{"date-parts":[[2022,4,26]],"date-time":"2022-04-26T09:48:26Z","timestamp":1650966506000},"update-policy":"https:\/\/doi.org\/10.1161\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":22,"title":["Heart Failure and Patient\u2010Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries"],"prefix":"10.1161","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6872-4764","authenticated-orcid":false,"given":"Chun\u2010Wei","family":"Lu","sequence":"first","affiliation":[{"name":"Department of Pediatrics National Taiwan University Hospital Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3043-3873","authenticated-orcid":false,"given":"Jou\u2010Kou","family":"Wang","sequence":"additional","affiliation":[{"name":"Department of Pediatrics National Taiwan University Hospital Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0445-2824","authenticated-orcid":false,"given":"Hsiao\u2010Ling","family":"Yang","sequence":"additional","affiliation":[{"name":"School of Nursing College of Medicine National Taiwan University Taipei Taiwan"},{"name":"Department of Nursing National Taiwan University Hospital Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2687-0384","authenticated-orcid":false,"given":"Adrienne H.","family":"Kovacs","sequence":"additional","affiliation":[{"name":"Toronto Adult Congenital Heart Disease ProgramPeter Munk Cardiac CenterUniversity Health NetworkUniversity of Toronto Toronto Canada"},{"name":"Knight Cardiovascular InstituteOregon Health &amp; 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