{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T11:45:17Z","timestamp":1782992717348,"version":"3.54.5"},"reference-count":86,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"2","content-domain":{"domain":["www.ahajournals.org"],"crossmark-restriction":true},"short-container-title":["JAHA"],"published-print":{"date-parts":[[2026,1,20]]},"abstract":"<jats:p xml:lang=\"en\">Individuals with congenital heart disease are living well into adulthood, resulting in a growing population at risk for neurocognitive and psychosocial challenges. Numerous studies have described these risks in childhood, but significant gaps remain in our understanding of how those challenges evolve across stages of adulthood and how to optimally integrate neurocognitive and psychosocial care for adults with congenital heart disease. A multidisciplinary group of experts and patient partners assembled in April 2024 in Atlanta, GA, forming 3 working groups: (1) Genetics and Brain Health, (2) Characterizing Neuropsychological and Psychological Outcomes, and (3) Neuropsychological and Psychosocial Interventions. Current knowledge was reviewed, knowledge gaps were identified, and recommendations to address these gaps were formulated. Five critical questions regarding the characterization of neuropsychological and psychological outcomes of adults with congenital heart disease were prioritized for discussion: which neurocognitive and psychosocial domains should be prioritized in research and clinical care, what are the trajectories of neurocognitive and psychosocial functioning over the lifespan, how should neurocognitive and psychosocial screening be deployed, what should neurocognitive and psychosocial assessments include, and how do we make comprehensive neurocognitive and psychosocial care a reality. Although many gaps in knowledge were identified, particularly around characterizing neurocognitive trajectories throughout adulthood, there is substantial evidence of increased risk for poor psychosocial outcomes among adults with with congenital heart disease. Clinical and research advances must progress in tandem to address these risks. Specific recommendations for advancing this field over the next decade are offered.<\/jats:p>","DOI":"10.1161\/jaha.125.042672","type":"journal-article","created":{"date-parts":[[2026,1,19]],"date-time":"2026-01-19T13:00:36Z","timestamp":1768827636000},"update-policy":"https:\/\/doi.org\/10.1161\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":0,"title":["Prioritizing Neurocognitive and Psychosocial Outcomes in Adults With Congenital Heart Disease: A Consensus Statement From the Adults With Congenital Heart Disease\/Neuro 2024 Conference"],"prefix":"10.1161","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1752-1377","authenticated-orcid":false,"given":"Jamie L.","family":"Jackson","sequence":"first","affiliation":[{"name":"The Abigail Wexner Research Institute at Nationwide Children\u2019s Hospital","place":["Columbus, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4754-4577","authenticated-orcid":false,"given":"Kelly R.","family":"Wolfe","sequence":"additional","affiliation":[{"name":"University of Colorado School of Medicine","place":["Denver, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7955-5604","authenticated-orcid":false,"given":"J. William","family":"Gaynor","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital of Philadelphia","place":["Philadelphia, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9029-912X","authenticated-orcid":false,"given":"Laura","family":"Suarez","sequence":"additional","affiliation":[{"name":"Mayo Clinic","place":["Rochester, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7943-0406","authenticated-orcid":false,"given":"Laura","family":"Umfleet","sequence":"additional","affiliation":[{"name":"Medical College of Wisconsin","place":["Milwaukee, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rick","family":"Puder","sequence":"additional","affiliation":[{"name":"Adult Congenital Heart Association","place":["Media, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"Brown","sequence":"additional","affiliation":[{"name":"Adult Congenital Heart Association","place":["Media, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8938-1265","authenticated-orcid":false,"given":"Adam R.","family":"Cassidy","sequence":"additional","affiliation":[{"name":"Mayo Clinic","place":["Rochester, USA"]},{"name":"Mayo Clinic","place":["Rochester, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Gurvitz","sequence":"additional","affiliation":[{"name":"Boston Children\u2019s Hospital and Brigham and Women\u2019s Hospital","place":["Boston, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"276","reference":[{"key":"e_1_3_1_2_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.115.019307"},{"key":"e_1_3_1_3_2","doi-asserted-by":"publisher","DOI":"10.1136\/openhrt-2018-000998"},{"key":"e_1_3_1_4_2","doi-asserted-by":"publisher","DOI":"10.1161\/hc37t1.094816"},{"key":"e_1_3_1_5_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.111.064113"},{"key":"e_1_3_1_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2012.02.011"},{"key":"e_1_3_1_7_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2009-1959"},{"key":"e_1_3_1_8_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.101.4.630"},{"key":"e_1_3_1_9_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951115001134"},{"key":"e_1_3_1_10_2","doi-asserted-by":"publisher","DOI":"10.1080\/09297049.2017.1373758"},{"key":"e_1_3_1_11_2","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.24275"},{"key":"e_1_3_1_12_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951122000063"},{"key":"e_1_3_1_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2017.04.048"},{"key":"e_1_3_1_14_2","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.12242"},{"key":"e_1_3_1_15_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtcvs.2013.10.087"},{"key":"e_1_3_1_16_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.111.026963"},{"key":"e_1_3_1_17_2","doi-asserted-by":"publisher","DOI":"10.1161\/HCQ.0000000000000110"},{"key":"e_1_3_1_18_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11065-021-09478-4"},{"key":"e_1_3_1_19_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.115.019881"},{"key":"e_1_3_1_20_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2022.04.019"},{"key":"e_1_3_1_21_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.117.029686"},{"key":"e_1_3_1_22_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2022.07.008"},{"key":"e_1_3_1_23_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcchd.2020.100005"},{"key":"e_1_3_1_24_2","doi-asserted-by":"publisher","DOI":"10.31887\/DCNS.2019.21.3\/pharvey"},{"key":"e_1_3_1_25_2","doi-asserted-by":"publisher","DOI":"10.1017\/S104795111700230X"},{"key":"e_1_3_1_26_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsz021"},{"key":"e_1_3_1_27_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2021-050875"},{"key":"e_1_3_1_28_2","doi-asserted-by":"publisher","DOI":"10.1007\/s40817-022-00120-6"},{"key":"e_1_3_1_29_2","doi-asserted-by":"publisher","DOI":"10.1136\/heartjnl-2016-310862"},{"key":"e_1_3_1_30_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2016.06.047"},{"key":"e_1_3_1_31_2","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehv386"},{"key":"e_1_3_1_32_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2024.03.007"},{"key":"e_1_3_1_33_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2023.06.087"},{"key":"e_1_3_1_34_2","doi-asserted-by":"publisher","DOI":"10.1097\/HCR.0000000000000763"},{"key":"e_1_3_1_35_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2018.09.005"},{"key":"e_1_3_1_36_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2017.10.038"},{"key":"e_1_3_1_37_2","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2022.906385"},{"key":"e_1_3_1_38_2","doi-asserted-by":"publisher","DOI":"10.1146\/annurev-psych-020122-041854"},{"key":"e_1_3_1_39_2","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.123.029847"},{"key":"e_1_3_1_40_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-023-03376-7"},{"key":"e_1_3_1_41_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2019.10.009"},{"key":"e_1_3_1_42_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-022-02951-8"},{"key":"e_1_3_1_43_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacadv.2023.100716"},{"key":"e_1_3_1_44_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2010.06.027"},{"key":"e_1_3_1_45_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2015.10.010"},{"key":"e_1_3_1_46_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-034588"},{"key":"e_1_3_1_47_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10865-021-00239-5"},{"key":"e_1_3_1_48_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcchd.2024.100512"},{"key":"e_1_3_1_49_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2019.07.635"},{"key":"e_1_3_1_50_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2007.02.040"},{"key":"e_1_3_1_51_2","doi-asserted-by":"publisher","DOI":"10.1002\/wps.21160"},{"key":"e_1_3_1_52_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-022-16771-6"},{"key":"e_1_3_1_53_2","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.122.025358"},{"key":"e_1_3_1_54_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41390-020-01196-6"},{"key":"e_1_3_1_55_2","doi-asserted-by":"publisher","DOI":"10.1002\/bdr2.1971"},{"key":"e_1_3_1_56_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2017.09.020"},{"key":"e_1_3_1_57_2","doi-asserted-by":"publisher","DOI":"10.1037\/0003-066X.55.5.469"},{"key":"e_1_3_1_58_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2215-0366(14)00080-7"},{"key":"e_1_3_1_59_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11910-019-0917-z"},{"key":"e_1_3_1_60_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jalz.2018.07.219"},{"key":"e_1_3_1_61_2","doi-asserted-by":"publisher","DOI":"10.1053\/j.semtcvs.2021.10.014"},{"key":"e_1_3_1_62_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2015.08.021"},{"key":"e_1_3_1_63_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pcad.2018.08.002"},{"key":"e_1_3_1_64_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12872-021-02349-z"},{"key":"e_1_3_1_65_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-020-77866-6"},{"key":"e_1_3_1_66_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.neuroimage.2018.05.045"},{"key":"e_1_3_1_67_2","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2019.00447"},{"key":"e_1_3_1_68_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.athoracsur.2016.05.081"},{"key":"e_1_3_1_69_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2014-3825"},{"key":"e_1_3_1_70_2","doi-asserted-by":"publisher","DOI":"10.1097\/JCN.0000000000000764"},{"key":"e_1_3_1_71_2","doi-asserted-by":"publisher","DOI":"10.1097\/NNR.0000000000000192"},{"key":"e_1_3_1_72_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-017-0747-0"},{"key":"e_1_3_1_73_2","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.2006.095414"},{"key":"e_1_3_1_74_2","doi-asserted-by":"publisher","DOI":"10.1177\/21501351221111998"},{"key":"e_1_3_1_75_2","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.122.028883"},{"key":"e_1_3_1_76_2","doi-asserted-by":"publisher","DOI":"10.1037\/a0038122"},{"key":"e_1_3_1_77_2","doi-asserted-by":"publisher","DOI":"10.1093\/arclin\/acw007"},{"key":"e_1_3_1_78_2","doi-asserted-by":"publisher","DOI":"10.1002\/jts.22059"},{"key":"e_1_3_1_79_2","volume-title":"The Impact of Event Scale\u2010Revised. Assessing Psychological Trauma and PTSD","author":"Weiss DS","year":"1997","unstructured":"Weiss DS, Marmar CR. The Impact of Event Scale\u2010Revised. Assessing Psychological Trauma and PTSD. The Guilford Press; 1997."},{"key":"e_1_3_1_80_2","doi-asserted-by":"publisher","DOI":"10.1037\/1040-3590.9.4.445"},{"key":"e_1_3_1_81_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ncl.2024.05.004"},{"key":"e_1_3_1_82_2","doi-asserted-by":"publisher","DOI":"10.1037\/a0035023"},{"key":"e_1_3_1_83_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617721000199"},{"key":"e_1_3_1_84_2","doi-asserted-by":"publisher","DOI":"10.1177\/2150135117690126"},{"key":"e_1_3_1_85_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(12)61379-8"},{"key":"e_1_3_1_86_2","doi-asserted-by":"publisher","DOI":"10.1177\/13591045241267129"},{"key":"e_1_3_1_87_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2013.52.4611"}],"container-title":["Journal of the American Heart Association"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.ahajournals.org\/doi\/full\/10.1161\/JAHA.125.042672","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T11:10:25Z","timestamp":1782990625000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.ahajournals.org\/doi\/10.1161\/JAHA.125.042672"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,20]]},"references-count":86,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2026,1,20]]}},"alternative-id":["10.1161\/JAHA.125.042672"],"URL":"https:\/\/doi.org\/10.1161\/jaha.125.042672","relation":{},"ISSN":["2047-9980"],"issn-type":[{"value":"2047-9980","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,20]]},"assertion":[{"value":"2025-03-26","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-07-28","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-19","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e042672"}}