{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T11:45:31Z","timestamp":1782992731688,"version":"3.54.5"},"reference-count":44,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"6","content-domain":{"domain":["www.ahajournals.org"],"crossmark-restriction":true},"short-container-title":["JAHA"],"published-print":{"date-parts":[[2026,3,17]]},"abstract":"<jats:sec xml:lang=\"en\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p xml:lang=\"en\">An increasing number of patients with congenital heart disease (CHD) are pursuing pregnancy with the potential for cardiovascular complications. This study aimed to establish patient\u2010centered national research and care priorities to improve pregnancy\u2010related outcomes for individuals with CHD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec xml:lang=\"en\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p xml:lang=\"en\">This mixed\u2010methods study used a modified Stakeholder Engagement in Question Development methodology to systematically identify patient\u2010centered priorities. Key activities included consortium engagement (phase 1), patient and provider questionnaires (phase 2), and an in\u2010person facilitated meeting to explore survey results and follow\u2010up virtual focus groups (phase 3). Reflexive thematic analysis was used to synthesize short\u2010 and long\u2010term research priorities (phase 4).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec xml:lang=\"en\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p xml:lang=\"en\">Three overarching goals emerged: (1) improving access to specialized CHD, cardio\u2010obstetrics, and mental health care; (2) improving quality and consistency in clinical care; and (3) increasing patient and community engagement. These goals were then expanded into 5 central themes: (1) communication within the health care setting; (2) community engagement; (3) ancillary clinical support; (4) integration of patient\u2010reported outcomes; and (5) implementation, education, and knowledge mobilization. Short\u2010term (1\u20135\u2010year) goals included expanded telemedicine use, best practice recommendations for multidisciplinary care coordination, and targeted educational resources. Long\u2010term (5\u201310\u2010year) goals included expansion of adult CHD and cardio\u2010obstetrics programs, integration of mental health services, and advocacy to improve insurance coverage.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec xml:lang=\"en\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p xml:lang=\"en\">The consortium provided a national, community\u2010driven prioritization that highlights actionable pathways to improve pregnancy outcomes for people with CHD. Sustained engagement with patients and community partners is essential to achieving durable improvements across cardio\u2010obstetric care, education, research, and mental health.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1161\/jaha.125.046867","type":"journal-article","created":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T11:33:19Z","timestamp":1773401599000},"update-policy":"https:\/\/doi.org\/10.1161\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":1,"title":["From Insight to Action: A National Patient\u2010Centered Strategic Framework for Improving Reproductive Health Outcomes in Individuals With Congenital Heart Disease"],"prefix":"10.1161","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9984-4016","authenticated-orcid":false,"given":"Mindi","family":"Messmer","sequence":"first","affiliation":[{"name":"Children\u2019s National Hospital","place":["Washington, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6609-8632","authenticated-orcid":false,"given":"Tripti","family":"Gupta","sequence":"additional","affiliation":[{"name":"University of California San Diego","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4049-2017","authenticated-orcid":false,"given":"Rohan","family":"D'Souza","sequence":"additional","affiliation":[{"name":"McMaster University","place":["Hamilton, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7686-1144","authenticated-orcid":false,"given":"Melissa","family":"Russo","sequence":"additional","affiliation":[{"name":"Brown University","place":["Providence, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1752-1377","authenticated-orcid":false,"given":"Jamie L.","family":"Jackson","sequence":"additional","affiliation":[{"name":"Abigail Wexner Research Institute at Nationwide Children\u2019s Hospital","place":["Columbus, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-0145-8850","authenticated-orcid":false,"given":"Kashvi","family":"Singh","sequence":"additional","affiliation":[{"name":"Children\u2019s National Hospital","place":["Washington, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4474-6165","authenticated-orcid":false,"given":"Katherine B.","family":"Salciccioli","sequence":"additional","affiliation":[{"name":"Baylor College of Medicine","place":["Houston, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7745-7162","authenticated-orcid":false,"given":"Katia","family":"Bravo\u2010Jaimes","sequence":"additional","affiliation":[{"name":"Mayo Clinic","place":["Jacksonville, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8075-6817","authenticated-orcid":false,"given":"Nadine A.","family":"Kasparian","sequence":"additional","affiliation":[{"name":"University of Cincinnati College of Medicine","place":["Cincinnati, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1689-2942","authenticated-orcid":false,"given":"Ayesha","family":"Abusbeitan","sequence":"additional","affiliation":[{"name":"Children\u2019s National Hospital","place":["Washington, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Cortes","sequence":"additional","affiliation":[{"name":"Adult Congenital Heart Association","place":["Philadelphia, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-1533-5296","authenticated-orcid":false,"given":"Danielle","family":"Hile","sequence":"additional","affiliation":[{"name":"Adult Congenital Heart Association","place":["Philadelphia, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruth","family":"Phillippi","sequence":"additional","affiliation":[{"name":"Children\u2019s National Hospital","place":["Washington, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Scott","family":"Leezer","sequence":"additional","affiliation":[{"name":"CURA Strategies","place":["Arlington, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7355-6304","authenticated-orcid":false,"given":"Anitha S.","family":"John","sequence":"additional","affiliation":[{"name":"Children\u2019s National Hospital","place":["Washington, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"276","reference":[{"key":"e_1_3_2_2_2","unstructured":"Centers for Disease Control and Prevention . 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