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To address this literature gap, our study sought to understand the experiences of family caregivers with health supervision care as related to guideline adherence and patient-family experience. Through semi-structured interviews, we found that most caregivers felt their child\u2019s health care needs were being met but expressed frustrations due to their child\u2019s PCP\u2019s lack of knowledge on the current DS guidelines. Caregivers saw their PCP as the center of their child\u2019s care and desire a partnership to address their child\u2019s DS medical needs while recognizing their child\u2019s personhood beyond their diagnosis. However, participating caregivers typically did not feel their PCPs were fulfilling this role due to a lack of DS knowledge and experience.<\/jats:p>","DOI":"10.1177\/00099228261425287","type":"journal-article","created":{"date-parts":[[2026,2,23]],"date-time":"2026-02-23T09:46:42Z","timestamp":1771840002000},"page":"901-911","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Experiences and Preferences With Pediatric Health Supervision Care Among Family Caregivers of Individuals With Down Syndrome"],"prefix":"10.1177","volume":"65","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-5450-5871","authenticated-orcid":false,"given":"Aria C.","family":"Mallare","sequence":"first","affiliation":[{"name":"Smith Child Health Outcomes, Research, and Evaluation Center, Stanley Manne Children\u2019s Research Institute, Ann &amp; Robert H. 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