{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T12:59:08Z","timestamp":1777899548103,"version":"3.51.4"},"reference-count":13,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2023,12,5]],"date-time":"2023-12-05T00:00:00Z","timestamp":1701734400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"The Warren Alpert Medical School of Brown University","award":["Research Assistantship Program"],"award-info":[{"award-number":["Research Assistantship Program"]}]},{"name":"Hasbro Children\u2019s Hospital","award":["Division of Pediatric Hematology\/Oncology"],"award-info":[{"award-number":["Division of Pediatric Hematology\/Oncology"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Omega (Westport)"],"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:p>\n                    Cancer is the leading disease-related cause of death for children in the United States; however, limited data exists on caregivers\u2019 needs and evidence-based bereavement interventions are lacking. This is a cross-sectional study of primary caregivers of children who died from cancer. Participants completed five surveys assessing well-being and an optional semi-structured, in-depth qualitative interview. Caregiver\u2019s greatest unmet needs were finding meaning in the death, personal wellness, and social activities. Bereaved caregivers with greater unmet needs reported poorer quality of life in the energy\/fatigue (\n                    <jats:italic toggle=\"yes\">p<\/jats:italic>\n                    = .01), role limitations due to emotional problems (\n                    <jats:italic toggle=\"yes\">p<\/jats:italic>\n                    = .01), pain (\n                    <jats:italic toggle=\"yes\">p<\/jats:italic>\n                    = .01), and emotional well-being (\n                    <jats:italic toggle=\"yes\">p<\/jats:italic>\n                    = .02) domains. Interview themes elicited include inadequate bereavement services, support for siblings, desired contact with the medical team, and connections to other bereaved caregivers. Findings support the need for intensive, evidence-based bereavement programs for families of children who died from cancer, to attempt to mitigate poor bereavement-related outcomes.\n                  <\/jats:p>","DOI":"10.1177\/00302228231219303","type":"journal-article","created":{"date-parts":[[2023,12,5]],"date-time":"2023-12-05T17:14:10Z","timestamp":1701796450000},"page":"2032-2049","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Assessment of Quality of Life, Grief, and Psychosocial Need Among Bereaved Caregivers of Children with Cancer"],"prefix":"10.1177","volume":"92","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7286-1948","authenticated-orcid":false,"given":"Isabel","family":"Josephs","sequence":"first","affiliation":[{"name":"The Warren Alpert Medical School of Brown University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kevin","family":"Xi","sequence":"additional","affiliation":[{"name":"Brown University School of Public Health"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margaret","family":"Mannix","sequence":"additional","affiliation":[{"name":"The Warren Alpert Medical School of Brown University"},{"name":"Rhode Island Hospital\/Hasbro Children\u2019s Hospital"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer J. G.","family":"Welch","sequence":"additional","affiliation":[{"name":"The Warren Alpert Medical School of Brown University"},{"name":"Hasbro Children\u2019s Hospital"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2023,12,5]]},"reference":[{"key":"e_1_3_4_2_1","doi-asserted-by":"publisher","DOI":"10.1158\/1078-0432.CCR-17-0702"},{"key":"e_1_3_4_3_1","doi-asserted-by":"publisher","DOI":"10.3747\/co.24.3710"},{"key":"e_1_3_4_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnr.2019.151201"},{"key":"e_1_3_4_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/abm\/kaz036"},{"key":"e_1_3_4_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25700"},{"key":"e_1_3_4_7_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2010.0291"},{"key":"e_1_3_4_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/0265407587044007"},{"key":"e_1_3_4_9_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMcp1315618"},{"key":"e_1_3_4_10_1","doi-asserted-by":"publisher","DOI":"10.3322\/caac.21387"},{"key":"e_1_3_4_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.10.359"},{"key":"e_1_3_4_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.30087"},{"key":"e_1_3_4_13_1","volume-title":"Basics of qualitative research: Techniques and procedures from developing grounded theory","author":"Strauss A.","year":"1998","unstructured":"Strauss A., Corbin J. (1998). Basics of qualitative research: Techniques and procedures from developing grounded theory, 2nd ed.. 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