{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T12:45:39Z","timestamp":1777898739595,"version":"3.51.4"},"reference-count":28,"publisher":"SAGE Publications","issue":"1_suppl","license":[{"start":{"date-parts":[[2024,5,23]],"date-time":"2024-05-23T00:00:00Z","timestamp":1716422400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"MITRE co-investigators"},{"DOI":"10.13039\/100000030","name":"centers for disease control and prevention","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Public Health Rep"],"published-print":{"date-parts":[[2024,7]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>People with disabilities, people experiencing homelessness, and people who have substance use disorders face unique health challenges. Gaps in public health surveillance data limit the identification of public health needs of these groups and data-driven action. This study aimed to identify current practices, challenges, and opportunities for collecting and reporting COVID-19 surveillance data for these populations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>We used a rapid qualitative assessment to explore COVID-19 surveillance capacities. From July through October 2021, we virtually interviewed key informants from the Centers for Disease Control and Prevention, state and local health departments, and health care providers across the United States. We thematically analyzed and contextualized interview notes, peer-reviewed articles, and participant documents using a literature review.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>We identified themes centered on foundational structural and systems issues that hinder actionable surveillance data for these and other populations that are disproportionately affected by multiple health conditions. Qualitative data analysis of 61 interviews elucidated 4 primary challenges: definitions and policies, resources, data systems, and articulation of the purpose of data collection to these groups. Participants noted the use of multisector partnerships, automated data collection and integration, and data scorecards to circumvent challenges.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>This study highlights the need for multisector, systematic improvements in surveillance data collection and reporting to advance health equity. Improvements must be buttressed with adequate investment in data infrastructure and promoted through clear communication of how data are used to protect health.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/00333549241245624","type":"journal-article","created":{"date-parts":[[2024,5,23]],"date-time":"2024-05-23T06:50:06Z","timestamp":1716447006000},"page":"62S-70S","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":5,"title":["Data Equity as a Building Block for Health Equity: Improving Surveillance Data for People With Disabilities, With Substance Use Disorder, or Experiencing Homelessness, United States"],"prefix":"10.1177","volume":"139","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1406-0886","authenticated-orcid":false,"given":"Ashley A.","family":"Meehan","sequence":"first","affiliation":[{"name":"Office of the Deputy Director for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shauna S.","family":"Flemming","sequence":"additional","affiliation":[{"name":"The MITRE Corporation, McLean, VA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shelley","family":"Lucas","sequence":"additional","affiliation":[{"name":"The MITRE Corporation, McLean, VA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Megan","family":"Schoonveld","sequence":"additional","affiliation":[{"name":"Office of the Deputy Director for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA, USA"},{"name":"Oak Ridge Institute for Science and Education Fellowship, Oak Ridge Associated Universities, Oak Ridge, TN, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer L.","family":"Matjasko","sequence":"additional","affiliation":[{"name":"National Center for Injury Prevention and Control, Division of Violence Prevention, Centers for Disease Control and Prevention, Atlanta, GA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Megan E.","family":"Ward","sequence":"additional","affiliation":[{"name":"The MITRE Corporation, McLean, VA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0544-3612","authenticated-orcid":false,"given":"Kristie E.N.","family":"Clarke","sequence":"additional","affiliation":[{"name":"Center for Surveillance, Epidemiology, and Laboratory Services, Centers for Disease Control and Prevention, Atlanta, GA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2024,5,23]]},"reference":[{"key":"bibr1-00333549241245624","doi-asserted-by":"publisher","DOI":"10.15585\/mmwr.mm6927a3"},{"key":"bibr2-00333549241245624","doi-asserted-by":"publisher","DOI":"10.1093\/infdis\/jiab261"},{"key":"bibr3-00333549241245624","doi-asserted-by":"publisher","DOI":"10.1186\/s12939-021-01582-4"},{"key":"bibr4-00333549241245624","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2021.43407"},{"key":"bibr5-00333549241245624","doi-asserted-by":"publisher","DOI":"10.15585\/mmwr.mm6732a3"},{"key":"bibr6-00333549241245624","unstructured":"US Department of Housing and Urban Development. 2023 AHAR: part 1\u2014PIT estimates of homelessness in the U.S. 2023. Accessed December 15, 2023. https:\/\/www.huduser.gov\/portal\/datasets\/ahar\/2023-ahar-part-1-pit-estimates-of-homelessness-in-the-us.html"},{"key":"bibr7-00333549241245624","unstructured":"US Census Bureau. Disability characteristics. 2019 American Community Survey. 2021. Accessed May 19, 2022. https:\/\/data.census.gov\/cedsci\/table?t=Disability&tid=ACSST1Y2019.S1810&hidePreview=true"},{"key":"bibr8-00333549241245624","unstructured":"Substance Abuse and Mental Health Services Administration. 2017 NSDUH annual national report. 2018. Accessed May 19, 2022. https:\/\/www.samhsa.gov\/data\/report\/2017-nsduh-annual-national-report"},{"key":"bibr9-00333549241245624","unstructured":"Centers for Disease Control and Prevention. PH 101 Series: introduction to public health surveillance. 2018. 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