{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T06:53:21Z","timestamp":1785912801744,"version":"3.56.0"},"reference-count":72,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2026,1,24]],"date-time":"2026-01-24T00:00:00Z","timestamp":1769212800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100009157","name":"National Institute on Disability, Independent Living, and Rehabilitation Research","doi-asserted-by":"crossref","award":["#90RTHF0008"],"award-info":[{"award-number":["#90RTHF0008"]}],"id":[{"id":"10.13039\/100009157","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Public Health Rep"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:p>Despite Alzheimer disease and related dementias\/disorders (ADRD) being a substantial public health concern, the Deaf community remains underrepresented in ADRD research. We examined the extent and nature of existing literature on ADRD in the Deaf community. We conducted a scoping review following Arksey and O\u2019Malley\u2019s framework, adhering to the guidelines of the Preferred Reporting Items for Systematic Reviews and Meta-analyses. We searched 7 databases for peer-reviewed studies published in English, with no restrictions on publication date or study design. Inclusion studies addressed ADRD within the Deaf community and examined aspects such as diagnosis, care, and communication. Our search identified 435 articles, of which 16 met the inclusion criteria. Studies primarily originated from the United Kingdom and Finland, followed by the United States. Most used qualitative methodologies and explored lived experiences and communication barriers. Common themes included limited access to culturally competent care and caregiving challenges. Few studies highlighted diagnostic interventions but noted a general scarcity of resources tailored to Deaf populations. Notable gaps emerged in geographic focus, the range of studied variables, and the lack of validated sign language\u2013based diagnostic instruments and interventions. We recommend expanding research beyond the Global North (ie, higher-income industrialized countries with greater access to resources), incorporating more longitudinal and intersectional approaches, and tailoring resources for Deaf communities. The review underscores the need for culturally competent care, improved diagnostic tools, and policy reforms to address ADRD-related disparities in the Deaf community. Future research should prioritize inclusive methodologies and community-driven interventions to enhance health outcomes and equity for Deaf individuals affected by ADRD.<\/jats:p>","DOI":"10.1177\/00333549251403899","type":"journal-article","created":{"date-parts":[[2026,1,25]],"date-time":"2026-01-25T06:55:26Z","timestamp":1769324126000},"page":"524-533","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Alzheimer Disease and Related Dementias in the Deaf Community: A Scoping Review"],"prefix":"10.1177","volume":"141","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2128-575X","authenticated-orcid":false,"given":"Tahleen A.","family":"Lattimer","sequence":"first","affiliation":[{"name":"Center for Disability Health and Wellness, University of Michigan, Ann Arbor, MI, USA"},{"name":"Department of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, MI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly E.","family":"Tenzek","sequence":"additional","affiliation":[{"name":"Department of Communication, University at Buffalo, State University of New York, Buffalo, NY, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5049-7906","authenticated-orcid":false,"given":"Yotam","family":"Ophir","sequence":"additional","affiliation":[{"name":"Department of Communication, University at Buffalo, State University of New York, Buffalo, NY, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,1,24]]},"reference":[{"key":"e_1_3_2_2_2","unstructured":"Alzheimer\u2019s Association. Alzheimer\u2019s and dementia. 2024. Accessed January 15 2025. https:\/\/www.alz.org\/alzheimers-dementia"},{"key":"e_1_3_2_3_2","unstructured":"World Health Organization. Dementia. March 31 2025. Accessed April 1 2025. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia"},{"key":"e_1_3_2_4_2","doi-asserted-by":"publisher","DOI":"10.1093\/ppar\/prac002"},{"key":"e_1_3_2_5_2","doi-asserted-by":"publisher","DOI":"10.32481\/djph.2021.09.005"},{"key":"e_1_3_2_6_2","doi-asserted-by":"publisher","DOI":"10.1002\/dad2.12417"},{"key":"e_1_3_2_7_2","doi-asserted-by":"publisher","DOI":"10.1002\/trc2.1240"},{"key":"e_1_3_2_8_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2021.14364"},{"key":"e_1_3_2_9_2","doi-asserted-by":"publisher","DOI":"10.1186\/s13195-023-01177-x"},{"key":"e_1_3_2_10_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1001918"},{"key":"e_1_3_2_11_2","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000167545.38161.48"},{"key":"e_1_3_2_12_2","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-200796"},{"key":"e_1_3_2_13_2","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0b013e3181f12432"},{"key":"e_1_3_2_14_2","doi-asserted-by":"publisher","DOI":"10.1353\/aad.2012.0176"},{"key":"e_1_3_2_15_2","doi-asserted-by":"publisher","DOI":"10.18061\/dsq.v22i2.344"},{"key":"e_1_3_2_16_2","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2020.1787818"},{"key":"e_1_3_2_17_2","doi-asserted-by":"publisher","DOI":"10.1177\/2333721420966518"},{"key":"e_1_3_2_18_2","doi-asserted-by":"publisher","DOI":"10.1177\/00333549221110298"},{"key":"e_1_3_2_19_2","doi-asserted-by":"publisher","DOI":"10.2188\/jea.JE20140147"},{"key":"e_1_3_2_20_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2022.20954"},{"key":"e_1_3_2_21_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2468-2667(23)00048-8"},{"key":"e_1_3_2_22_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-1842.2009.00848.x"},{"key":"e_1_3_2_23_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12874-018-0611-x"},{"key":"e_1_3_2_24_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijsu.2010.02.007"},{"key":"e_1_3_2_25_2","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"e_1_3_2_26_2","doi-asserted-by":"publisher","DOI":"10.1080\/1364557032000119616"},{"key":"e_1_3_2_27_2","doi-asserted-by":"publisher","DOI":"10.1177\/01634437221135977"},{"key":"e_1_3_2_28_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaging.2023.101165"},{"key":"e_1_3_2_29_2","first-page":"232","volume-title":"The Routledge Handbook of Translation and Health","author":"Moreland CJ","unstructured":"Moreland CJ, Swabey L. Reducing health disparities in the Deaf community: the impact of interpreters and the rise of Deaf healthcare professionals. In: Susam-Saraeva S, Spisiakova E, eds. The Routledge Handbook of Translation and Health. Routledge; 2021:232-250."},{"key":"e_1_3_2_30_2","doi-asserted-by":"publisher","DOI":"10.1089\/heq.2022.0115"},{"key":"e_1_3_2_31_2","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000028464"},{"key":"e_1_3_2_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301209353987"},{"key":"e_1_3_2_33_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2014.880405"},{"key":"e_1_3_2_34_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaging.2014.08.006"},{"key":"e_1_3_2_35_2","doi-asserted-by":"publisher","DOI":"10.1093\/arclin\/acv042"},{"key":"e_1_3_2_36_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301214557183"},{"key":"e_1_3_2_37_2","doi-asserted-by":"publisher","DOI":"10.1093\/arclin\/acw032"},{"key":"e_1_3_2_38_2","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12181"},{"key":"e_1_3_2_39_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218789567"},{"key":"e_1_3_2_40_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218798993"},{"key":"e_1_3_2_41_2","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X18000946"},{"key":"e_1_3_2_42_2","doi-asserted-by":"publisher","DOI":"10.1080\/03601277.2021.1988447"},{"key":"e_1_3_2_43_2","doi-asserted-by":"publisher","DOI":"10.7861\/clinmed.2020-1098"},{"key":"e_1_3_2_44_2","doi-asserted-by":"publisher","DOI":"10.1108\/QAOA-07-2023-0048"},{"key":"e_1_3_2_45_2","doi-asserted-by":"publisher","DOI":"10.1080\/07317115.2023.2167623"},{"key":"e_1_3_2_46_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1525-1497.2006.00340.x"},{"key":"e_1_3_2_47_2","doi-asserted-by":"publisher","DOI":"10.1080\/10810730.2015.1066468"},{"key":"e_1_3_2_48_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2011.04.001"},{"key":"e_1_3_2_49_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2011.03.004"},{"key":"e_1_3_2_50_2","doi-asserted-by":"publisher","DOI":"10.1353\/aad.2012.0067"},{"issue":"3","key":"e_1_3_2_51_2","first-page":"390","article-title":"HIV education for the Deaf, a vulnerable minority","volume":"109","author":"Peinkofer JR.","year":"1994","unstructured":"Peinkofer JR. HIV education for the Deaf, a vulnerable minority. Public Health Rep. 1994;109(3):390-396.","journal-title":"Public Health Rep"},{"key":"e_1_3_2_52_2","doi-asserted-by":"publisher","DOI":"10.1001\/archfami.9.6.518"},{"key":"e_1_3_2_53_2","doi-asserted-by":"publisher","DOI":"10.1097\/00002820-200310000-00010"},{"key":"e_1_3_2_54_2","doi-asserted-by":"publisher","DOI":"10.1080\/10810730.2012.743633"},{"key":"e_1_3_2_55_2","doi-asserted-by":"publisher","DOI":"10.1086\/JCE201021208"},{"key":"e_1_3_2_56_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2020.04.016"},{"key":"e_1_3_2_57_2","doi-asserted-by":"publisher","DOI":"10.1111\/jlme.12097"},{"key":"e_1_3_2_58_2","doi-asserted-by":"publisher","DOI":"10.1136\/fmch-2020-000351"},{"key":"e_1_3_2_59_2","doi-asserted-by":"publisher","DOI":"10.1080\/10810730.2012.712627"},{"key":"e_1_3_2_60_2","doi-asserted-by":"publisher","DOI":"10.1177\/17407745231188147"},{"key":"e_1_3_2_61_2","unstructured":"Berti N. Why sign language is not universal. LifePrint. November 8 2023. Accessed January 15 2025. https:\/\/www.lifeprint.com\/asl101\/topics\/sign-language-not-universal.htm"},{"key":"e_1_3_2_62_2","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2017.1383034"},{"key":"e_1_3_2_63_2","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20065165"},{"key":"e_1_3_2_64_2","doi-asserted-by":"publisher","DOI":"10.1093\/phr\/118.4.293"},{"key":"e_1_3_2_65_2","doi-asserted-by":"publisher","DOI":"10.1089\/hs.2021.0048"},{"key":"e_1_3_2_66_2","doi-asserted-by":"publisher","DOI":"10.1177\/00333549141291S211"},{"key":"e_1_3_2_67_2","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0000000000004181"},{"key":"e_1_3_2_68_2","doi-asserted-by":"publisher","DOI":"10.1093\/deafed\/enad061"},{"key":"e_1_3_2_69_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(24)00264-X"},{"key":"e_1_3_2_70_2","doi-asserted-by":"publisher","DOI":"10.12688\/f1000research.50786.1"},{"key":"e_1_3_2_71_2","doi-asserted-by":"publisher","DOI":"10.1002\/jhm.13477"},{"key":"e_1_3_2_72_2","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0b013e31827c0d60"},{"key":"e_1_3_2_73_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12909-022-03403-w"}],"container-title":["Public Health Reports\u00ae"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/00333549251403899","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/00333549251403899","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/00333549251403899","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T06:35:29Z","timestamp":1785911729000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/00333549251403899"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,24]]},"references-count":72,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,7]]}},"alternative-id":["10.1177\/00333549251403899"],"URL":"https:\/\/doi.org\/10.1177\/00333549251403899","relation":{},"ISSN":["0033-3549","1468-2877"],"issn-type":[{"value":"0033-3549","type":"print"},{"value":"1468-2877","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,24]]}}}