{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,24]],"date-time":"2026-06-24T11:51:56Z","timestamp":1782301916537,"version":"3.54.5"},"reference-count":44,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2025,4,21]],"date-time":"2025-04-21T00:00:00Z","timestamp":1745193600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,4,21]],"date-time":"2025-04-21T00:00:00Z","timestamp":1745193600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000269","name":"economic and social research council","doi-asserted-by":"publisher","award":["ES\/S010467\/1"],"award-info":[{"award-number":["ES\/S010467\/1"]}],"id":[{"id":"10.13039\/501100000269","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100009250","name":"national institute for social care and health research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100009250","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["INQUIRY"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:p>The economic contribution of family and friend carers of people with dementia is substantial. Pre-death grief experienced by carers of people living with a rare dementia is complex as carers are faced with unique challenges due to geographical isolation and a lack of access to shared experiences. There is an urgent need for specialised interventions to support carers lacking local support. A micro-costing analysis of a novel online group-based pre-death grief and loss programme (\u2018The Road Less Travelled\u2019) tailored for the carers of people with rare dementias was conducted from a provider perspective. Sensitivity analysis was conducted to explore the potential costs of face-to-face delivery of the programme. A budget impact analysis was also conducted to explore the potential costs of roll-out of the programme to carers of people living with a rare dementia across the UK. The total cost of delivering three waves of the grief and loss programme to a total of 20 participant carers was \u00a39848, which equates to a cost of \u00a3492 per carer participant. Sensitivity analysis indicated a total cost of \u00a314\u2009673 for face-to-face delivery, equating to \u00a3734 per carer participant. Sensitivity analysis indicated a total cost of \u00a314\u2009673 for face-to-face delivery, equating to \u00a3734 per carer participant. We estimate from our budget impact analysis that the total costs of a UK wide roll-out to people living with a rare dementia (based on 5% of all people with a dementia) would be \u00a321.77\u2009million. To our knowledge, this is first costing analysis of a pre-death grief and loss programme for carers of people living with a rare dementia. These initial assessments of costs provide a base case for future costing analyses and full economic evaluations which can assess both the cost and benefits to society from supporting people with rare dementias and their carers.<\/jats:p>","DOI":"10.1177\/00469580251332770","type":"journal-article","created":{"date-parts":[[2025,6,18]],"date-time":"2025-06-18T12:04:44Z","timestamp":1750248284000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["The Road Less Travelled: A Micro-Costing Analysis of an Online Pre-Death Grief and Loss Programme for Carers of People with a Rare Dementia"],"prefix":"10.1177","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2593-1069","authenticated-orcid":false,"given":"Bethany F.","family":"Anthony","sequence":"first","affiliation":[{"name":"Bangor University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2282-2019","authenticated-orcid":false,"given":"Jill","family":"Walton","sequence":"additional","affiliation":[{"name":"University College London (UCL), UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emilie V.","family":"Brotherhood","sequence":"additional","affiliation":[{"name":"University College London (UCL), UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4160-0139","authenticated-orcid":false,"given":"Sebastian J.","family":"Crutch","sequence":"additional","affiliation":[{"name":"University College London (UCL), UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhiannon T.","family":"Edwards","sequence":"additional","affiliation":[{"name":"Bangor University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,4,21]]},"reference":[{"key":"e_1_3_2_2_2","doi-asserted-by":"publisher","DOI":"10.1002\/alz.12177"},{"key":"e_1_3_2_3_2","first-page":"79","volume-title":"Projections of Older People Living with Dementia and Costs of Dementia Care in the United Kingdom, 2019-2040","author":"Wittenberg R","unstructured":"Wittenberg R, Hu B, Barraza-Araiza L, Rehill A. 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