{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T20:27:25Z","timestamp":1788380845067,"version":"build-2803163510"},"reference-count":44,"publisher":"SAGE Publications","issue":"9-10","license":[{"start":{"date-parts":[[2022,3,24]],"date-time":"2022-03-24T00:00:00Z","timestamp":1648080000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["NIA P30AG012836-25-S2"],"award-info":[{"award-number":["NIA P30AG012836-25-S2"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["NIA P30AG010124"],"award-info":[{"award-number":["NIA P30AG010124"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000957","name":"Alzheimer\u2019s Association","doi-asserted-by":"publisher","award":["AARF-17-528934"],"award-info":[{"award-number":["AARF-17-528934"]}],"id":[{"id":"10.13039\/100000957","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000957","name":"Alzheimer\u2019s Association","doi-asserted-by":"publisher","award":["NIA K23AG06544"],"award-info":[{"award-number":["NIA K23AG06544"]}],"id":[{"id":"10.13039\/100000957","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Res Aging"],"published-print":{"date-parts":[[2022,10]]},"abstract":"<jats:p>Background: Alzheimer\u2019s disease and Alzheimer\u2019s disease related dementias (AD\/ADRD) research typically requires participants to enroll with a \u201cstudy partner\u201d (SP). Little is known about what predicts who steps into the SP role or whether the SP\u2019s relationship to the participant affects their reports of disease severity.Methods: Health and Retirement Study data (HRS), collected prior to the Aging, Demographics and Memory Study (ADAMS), was used to identify sociocultural factors that predict who serves as a SP in ADAMS. SP-reported outcomes were compared between three types of participant-SP relationships: spousal, adult child, and other.Results: Spouses (35%) and adult children (39%) were similarly likely to serve as SPs. Factors predicting who served differed. In multivariable analyses, adult children rated participants less impaired than spouses on measures of memory, judgment, and organizational abilities ( p &lt; .05). Conclusions: The participant-SP relationship has independent effects on the SP\u2019s reports of the severity of cognitive impairments.<\/jats:p>","DOI":"10.1177\/01640275221075739","type":"journal-article","created":{"date-parts":[[2022,3,24]],"date-time":"2022-03-24T19:52:57Z","timestamp":1648151577000},"page":"734-746","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":14,"title":["Predictors of who Serves as an Alzheimer\u2019s Disease Research Participant\u2019s Study Partner and the Impact of their Relationship on Study Partners\u2019 Reports on Participants"],"prefix":"10.1177","volume":"44","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3994-4343","authenticated-orcid":false,"given":"Shana D.","family":"Stites","sequence":"first","affiliation":[{"name":"Department of Psychiatry, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily A.","family":"Largent","sequence":"additional","affiliation":[{"name":"Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeanine","family":"Gill","sequence":"additional","affiliation":[{"name":"Division of Geriatric Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Gurian","sequence":"additional","affiliation":[{"name":"Division of Geriatrics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Harkins","sequence":"additional","affiliation":[{"name":"Penn Memory Center, Department of Medicine, University of Pennsylvania, Philadelphia, PA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jason","family":"Karlawish","sequence":"additional","affiliation":[{"name":"Penn Memory Center, Departments of Medicine, Medical Ethics and Health Policy, and Neurology, University of Pennsylvania, Philadelphia, PA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,3,24]]},"reference":[{"key":"bibr1-01640275221075739","first-page":"335","volume-title":"The psychological foundations of culture","author":"Adams G.","year":"2004"},{"key":"bibr2-01640275221075739","unstructured":"Adams Questionnaires Forms. 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