{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T02:35:16Z","timestamp":1777948516102,"version":"3.51.4"},"reference-count":29,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T00:00:00Z","timestamp":1777507200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Res Aging"],"abstract":"<jats:p>\n                    The experiences, roles, key contributions, and support provided by secondary caregivers of people with dementia are underexplored when compared to primary caregivers. This scoping review mapped the existing literature on secondary caregivers. The review followed the PRISMA-ScR framework. Data was subtracted to focus on caregiving outcomes, and on thematic patterns across both qualitative and quantitative designs. Findings from the selected articles (\n                    <jats:italic toggle=\"yes\">N<\/jats:italic>\n                    = 10) indicated that secondary caregivers provide emotional, logistical, and financial support. They also experienced psychological distress, guilt, role conflict, and communication challenges. Family dynamics, gender, and cultural expectations shaped the caregiving experiences and outcomes. The search revealed a scarcity of interventions tailored to this group to enhance overall well-being. Secondary caregivers play a vital role in dementia care. Future interventions that clarify caregiving roles, enhance communication, and provide culturally responsive, family-centered support can strengthen caregiver well-being and promote sustainable caregiving networks.\n                  <\/jats:p>","DOI":"10.1177\/01640275261449482","type":"journal-article","created":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T11:41:46Z","timestamp":1777549306000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Secondary Caregiving in Alzheimer\u2019s Disease and Related Dementias: A Scoping Review of Their Challenges and Contributions"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7668-4889","authenticated-orcid":false,"given":"Abigail","family":"G\u00f3mez-Morales","sequence":"first","affiliation":[{"name":"Arizona State University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Raheleh","family":"Bahrami","sequence":"additional","affiliation":[{"name":"Arizona State University"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,4,30]]},"reference":[{"issue":"4","key":"e_1_3_3_2_1","first-page":"e70235","article-title":"Alzheimer\u2019s disease facts and figures","volume":"21","author":"Alzheimer\u2019s disease facts and figures","year":"2025","unstructured":"Alzheimer\u2019s disease facts and figures. (2025). Alzheimer\u2019s disease facts and figures. Alzheimer\u2019s & Dementia, 21(4), Article e70235. https:\/\/doi.org\/10.1002\/alz.70235","journal-title":"Alzheimer\u2019s & Dementia"},{"issue":"2","key":"e_1_3_3_3_1","first-page":"287","article-title":"The experience of primary and secondary caregivers caring for the same adult with Alzheimer\u2019s disease","volume":"7","author":"B\u00e9dard M.","year":"2001","unstructured":"B\u00e9dard M., Raney D., Molloy D. W., Lever J., Pedlar D., Dubois S. (2001). The experience of primary and secondary caregivers caring for the same adult with Alzheimer\u2019s disease. Journal of Mental Health and Aging, 7(2), 287\u2013296. https:\/\/doi.org\/10.3390\/healthcare10061102","journal-title":"Journal of Mental Health and Aging"},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/trc2.12010"},{"key":"e_1_3_3_5_1","doi-asserted-by":"publisher","DOI":"10.1590\/S0104-11692013000400007"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1037\/0882-7974.11.3.527"},{"key":"e_1_3_3_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/153331750301800505"},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.gerinurse.2026.103911"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1037\/pag0000380"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare10061102"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/trc2.12391"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1080\/20016689.2020.1720068"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0266269"},{"key":"e_1_3_3_14_1","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/gbac067"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2020-002242"},{"key":"e_1_3_3_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/inm.12640"},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1080\/07317115.2020.1759748"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.13161"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10597-018-0345-6"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/30.5.583"},{"key":"e_1_3_3_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.14743"},{"key":"e_1_3_3_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/14713012221144485"},{"key":"e_1_3_3_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1098-240X(199802)21:1<51::AID-NUR6>3.0.CO;2-S"},{"key":"e_1_3_3_24_1","doi-asserted-by":"publisher","DOI":"10.5535\/arm.22027"},{"key":"e_1_3_3_25_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph21020182"},{"issue":"2","key":"e_1_3_3_26_1","first-page":"95","article-title":"Characteristics of informal caregivers of patients with dementia in alicante province","volume":"28","author":"Toribio-D\u00edaz M. E.","year":"2013","unstructured":"Toribio-D\u00edaz M. E., Medrano-Mart\u00ednez V., Molt\u00f3-Jord\u00e1 J. M., Beltr\u00e1n-Blasco I. (2013). Characteristics of informal caregivers of patients with dementia in alicante province. Neurologia, 28(2), 95\u2013102. https:\/\/doi.org\/10.1016\/j.nrleng.2012.03.012","journal-title":"Neurologia"},{"key":"e_1_3_3_27_1","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"e_1_3_3_28_1","doi-asserted-by":"publisher","DOI":"10.1080\/J148v19n03_05"},{"key":"e_1_3_3_29_1","unstructured":"World Health Organization [WHO]. (2023). Fact sheets of dementia. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia"},{"key":"e_1_3_3_30_1","volume-title":"Caregivers, stress and. G. Fink","author":"Zarit S. H.","year":"2007","unstructured":"Zarit S. H., Bottigi K., Gaugler J. E., Fink G. (2007) Caregivers, stress and. G. Fink (Ed.), Encyclopedia of Stress, Academic Press."}],"container-title":["Research on Aging"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/01640275261449482","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/01640275261449482","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/01640275261449482","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,3]],"date-time":"2026-05-03T09:49:21Z","timestamp":1777801761000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/01640275261449482"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,4,30]]},"references-count":29,"alternative-id":["10.1177\/01640275261449482"],"URL":"https:\/\/doi.org\/10.1177\/01640275261449482","relation":{},"ISSN":["0164-0275","1552-7573"],"issn-type":[{"value":"0164-0275","type":"print"},{"value":"1552-7573","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,4,30]]},"article-number":"01640275261449482"}}