{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T08:59:50Z","timestamp":1791622790123,"version":"4.3.4"},"reference-count":17,"publisher":"SAGE Publications","issue":"8","license":[{"start":{"date-parts":[[2010,8,11]],"date-time":"2010-08-11T00:00:00Z","timestamp":1281484800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["West J Nurs Res"],"published-print":{"date-parts":[[2010,12]]},"abstract":"<jats:p>In the context of an inherited condition such as sickle cell disease (SCD), it is critical to understand how people with SCD or carriers (sickle cell trait [SCT]) face the challenges of making informed reproductive health decisions. The purpose of this analysis was to examine the beliefs, attitudes, and personal feelings of people with sickle cell disease or sickle cell trait related to making informed reproductive health decisions. Three focus groups were conducted with a total of 15 people who had either SCD or SCT. Five themes were identified: health-related issues in sickle cell disease, testing for sickle cell trait, partner choice, sharing sickle cell status with partners, and reproductive options. These findings enhance understanding of the reproductive experiences in people with SCD and SCT and provide the groundwork for developing an educational intervention focused on making informed decisions about becoming a parent.<\/jats:p>","DOI":"10.1177\/0193945910371482","type":"journal-article","created":{"date-parts":[[2010,8,11]],"date-time":"2010-08-11T22:30:00Z","timestamp":1281565800000},"page":"1073-1090","source":"Crossref","is-referenced-by-count":60,"title":["Reproductive Decisions in People With Sickle Cell Disease or Sickle Cell Trait"],"prefix":"10.1177","volume":"32","author":[{"given":"Agatha M.","family":"Gallo","sequence":"first","affiliation":[{"name":"University of Illinois at Chicago,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana","family":"Wilkie","sequence":"additional","affiliation":[{"name":"University of Illinois at Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Suarez","sequence":"additional","affiliation":[{"name":"University of Illinois at Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Labotka","sequence":"additional","affiliation":[{"name":"University of Illinois at Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Molokie","sequence":"additional","affiliation":[{"name":"University of Illinois at Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexis","family":"Thompson","sequence":"additional","affiliation":[{"name":"Children's Memorial Hospital, Chicago, IL"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"Hershberger","sequence":"additional","affiliation":[{"name":"University of Illinois at Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bonnye","family":"Johnson","sequence":"additional","affiliation":[{"name":"University of Illinois at Chicago"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2010,8,11]]},"reference":[{"key":"atypb1","doi-asserted-by":"publisher","DOI":"10.1016\/S0027-9684(15)31113-5"},{"key":"atypb2","doi-asserted-by":"publisher","DOI":"10.1089\/jwh.1.1999.8.587"},{"key":"atypb3","doi-asserted-by":"publisher","DOI":"10.1002\/pd.1507"},{"key":"atypb4","doi-asserted-by":"publisher","DOI":"10.1080\/0264683021000060057"},{"key":"atypb5","doi-asserted-by":"publisher","DOI":"10.1177\/0011392107084380"},{"key":"atypb6","volume-title":"Sexual experiences in men with sickle cell disease-A phenomenological enquiry","author":"Duffy, T."},{"key":"atypb7","volume-title":"CHOICES: Tailored education for informed reproductive decisions by people with sickle cell disease or sickle cell trait","author":"Gallo, A.M.","year":"2008"},{"key":"atypb8","doi-asserted-by":"publisher","DOI":"10.1097\/GIM.0b013e3180534282"},{"key":"atypb9","volume-title":"Managing sickle cell disease in low-income families","author":"Hill, S.A.","year":"2003"},{"key":"atypb10","doi-asserted-by":"publisher","DOI":"10.1353\/dem.2002.0006"},{"key":"atypb11","volume-title":"Qualitative data analysis: An expanded sourcebook","author":"Miles, M.B.","year":"1994"},{"key":"atypb12","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2009.173"},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1111\/j.1745-7599.2009.00401.x"},{"key":"atypb14","doi-asserted-by":"publisher","DOI":"10.1067\/mpd.2000.109437"},{"key":"atypb15","volume-title":"Sickle cell FAQ\u2019s","author":"Sickle Cell Disease Association of America, Inc."},{"key":"atypb16","volume-title":"Growing old in America: Expectations vs. reality","author":"Taylor, P.","year":"2009"},{"key":"atypb17","first-page":"1013","volume":"62","author":"Wethers, D.","year":"2000","journal-title":"American Family Physician"}],"container-title":["Western Journal of Nursing Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0193945910371482","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0193945910371482","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T16:20:39Z","timestamp":1777652439000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0193945910371482"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,8,11]]},"references-count":17,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2010,12]]}},"alternative-id":["10.1177\/0193945910371482"],"URL":"https:\/\/doi.org\/10.1177\/0193945910371482","relation":{},"ISSN":["0193-9459","1552-8456"],"issn-type":[{"value":"0193-9459","type":"print"},{"value":"1552-8456","type":"electronic"}],"subject":[],"published":{"date-parts":[[2010,8,11]]}}}