{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T03:38:24Z","timestamp":1791949104264,"version":"4.3.4"},"reference-count":45,"publisher":"SAGE Publications","issue":"12","license":[{"start":{"date-parts":[[2017,11,30]],"date-time":"2017-11-30T00:00:00Z","timestamp":1512000000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["West J Nurs Res"],"published-print":{"date-parts":[[2018,12]]},"abstract":"<jats:p>Breast cancer survivors are at lifetime risk for the development of breast cancer\u2013related lymphedema, a chronic, potentially debilitating condition that requires life-long symptom management. Suboptimal self-management rates suggest that health care providers may not be offering educative-support options that are customized to patient-perceived needs. An Institutional Review Board\u2013approved focus group ( N = 9) and mailed surveys ( N = 15) were used to identify (a) barriers to lymphedema self-management, (b) how breast cancer survivors with lymphedema defined education and support, (c) what type of education and support they had received, and (d) what kind of education and support they wanted. Physiological, psychological, and psychosocial factors were identified as barriers to successful lymphedema self-management. One of the main barriers identified was lack of education about lymphedema treatment and risk reduction. In addition, more than half defined support as \u201cprescriptions\u201d and \u201creferrals\u201d; therefore, it is unclear whether patients were exposed to support other than medical treatment.<\/jats:p>","DOI":"10.1177\/0193945917744351","type":"journal-article","created":{"date-parts":[[2017,12,1]],"date-time":"2017-12-01T01:27:57Z","timestamp":1512091677000},"page":"1800-1817","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":59,"title":["Patient Perceptions of Barriers to Self-Management of Breast Cancer\u2013Related Lymphedema"],"prefix":"10.1177","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5098-1191","authenticated-orcid":false,"given":"Pamela L.","family":"Ostby","sequence":"first","affiliation":[{"name":"University of Missouri, Columbia, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane M.","family":"Armer","sequence":"additional","affiliation":[{"name":"University of Missouri, Columbia, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kandis","family":"Smith","sequence":"additional","affiliation":[{"name":"University of Missouri, Columbia, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bob R.","family":"Stewart","sequence":"additional","affiliation":[{"name":"University of Missouri, Columbia, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2017,11,30]]},"reference":[{"key":"bibr1-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-015-2766-x"},{"key":"bibr2-0193945917744351","unstructured":"American Cancer Society. (2017). Cancer facts & figures 2017. Retrieved from https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2017\/cancer-facts-and-figures-2017.pdf"},{"key":"bibr3-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1177\/0894318410389058"},{"key":"bibr4-0193945917744351","first-page":"14","volume":"16","author":"Armer J. M.","year":"2008","journal-title":"Self-Care, Dependent-Care & Nursing"},{"key":"bibr5-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s12609-013-0105-0"},{"key":"bibr6-0193945917744351","first-page":"118","volume":"43","author":"Armer J. M.","year":"2010","journal-title":"Lymphology"},{"key":"bibr7-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1188\/13.ONF.325-336"},{"key":"bibr8-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s12609-010-0009-1"},{"key":"bibr9-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1016\/j.jvsv.2017.06.004"},{"key":"bibr10-0193945917744351","first-page":"99","volume":"11","author":"Boris M.","year":"1997","journal-title":"Oncology"},{"key":"bibr11-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-013-1962-9"},{"key":"bibr12-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1097\/PHM.0000000000000178"},{"key":"bibr13-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0000000000000326"},{"key":"bibr14-0193945917744351","doi-asserted-by":"publisher","DOI":"10.4135\/9781452230153"},{"key":"bibr15-0193945917744351","unstructured":"Dedoose Version 6.1.18. (2015). Web application for managing, analyzing, and presenting qualitative and mixed method research data. Los Angeles, CA: SocioCultural Research Consultants, LLC. www.dedoose.com."},{"key":"bibr16-0193945917744351","first-page":"173","volume":"46","author":"Deng J.","year":"2013","journal-title":"Lymphology"},{"key":"bibr17-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(13)70076-7"},{"key":"bibr18-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pntd.0004740"},{"key":"bibr19-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-010-0941-3"},{"key":"bibr20-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1016\/j.soncn.2012.11.007"},{"key":"bibr21-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3201"},{"key":"bibr22-0193945917744351","volume-title":"The discovery of grounded theory: Strategies for qualitative research","author":"Glaser B. G.","year":"1967"},{"key":"bibr23-0193945917744351","unstructured":"Howlader N., Noone A. M., Krapcho M., Miller D., Bishop K., Kosary C. L. Cronin K. A. (Eds.). (2017). SEER Cancer Statistics Review, 1975\u20132014. Bethesda, MD: National Cancer Institute. Retrieved from https:\/\/seer.cancer.gov\/csr\/1975_2014\/"},{"key":"bibr24-0193945917744351","first-page":"170","volume":"49","author":"International Society of Lymphology","year":"2016","journal-title":"Lymphology"},{"key":"bibr25-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s10549-012-2199-x"},{"key":"bibr26-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1016\/j.soncn.2012.11.004"},{"key":"bibr27-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmrj.2012.05.003"},{"key":"bibr28-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1188\/10.ONF.85-91"},{"key":"bibr29-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s12160-010-9246-9"},{"key":"bibr30-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s10865-016-9782-2"},{"key":"bibr31-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-017-5982-4"},{"key":"bibr32-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s10549-014-2856-3"},{"key":"bibr33-0193945917744351","unstructured":"National Lymphedema Network. (n.d.). NLN position paper: The diagnosis and treatment of lymphedema. Retrieved from https:\/\/www.lymphnet.org\/resources\/nln-position-paper-the-diagnosis-and-treatment-of-lymphedema"},{"key":"bibr34-0193945917744351","doi-asserted-by":"publisher","DOI":"10.3390\/jpm5040370"},{"key":"bibr35-0193945917744351","doi-asserted-by":"publisher","DOI":"10.3390\/jpm4030424"},{"key":"bibr36-0193945917744351","doi-asserted-by":"crossref","first-page":"119","DOI":"10.4135\/9781071909898","volume-title":"Readme first for a user\u2019s guide to qualitative methods","author":"Richards L.","year":"2013","edition":"3"},{"key":"bibr37-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1188\/08.ONF.57-63"},{"key":"bibr38-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-010-0870-5"},{"key":"bibr39-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1097\/NNR.0b013e31824f82b2"},{"key":"bibr40-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-016-3089-2"},{"key":"bibr41-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1188\/10.ONF.E28-E33"},{"key":"bibr42-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3111"},{"key":"bibr43-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-014-2321-1"},{"key":"bibr44-0193945917744351","volume":"357","author":"Stuiver M. M.","year":"2017","journal-title":"British Medical Journal"},{"key":"bibr45-0193945917744351","doi-asserted-by":"publisher","DOI":"10.1007\/s10549-011-1829-z"}],"updated-by":[{"DOI":"10.1177\/0193945918822908","type":"correction","label":"Correction","source":"publisher","updated":{"date-parts":[[2018,12,25]],"date-time":"2018-12-25T00:00:00Z","timestamp":1545696000000}}],"container-title":["Western Journal of Nursing Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0193945917744351","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/0193945917744351","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0193945917744351","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T16:25:32Z","timestamp":1777652732000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0193945917744351"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,11,30]]},"references-count":45,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2018,12]]}},"alternative-id":["10.1177\/0193945917744351"],"URL":"https:\/\/doi.org\/10.1177\/0193945917744351","relation":{},"ISSN":["0193-9459","1552-8456"],"issn-type":[{"value":"0193-9459","type":"print"},{"value":"1552-8456","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,11,30]]}}}