{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T06:03:27Z","timestamp":1789625007847,"version":"build-2803163510"},"reference-count":49,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T00:00:00Z","timestamp":1785715200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100009504","name":"University of Missouri-Kansas City","doi-asserted-by":"publisher","award":["Faculty Funding for Excellence"],"award-info":[{"award-number":["Faculty Funding for Excellence"]}],"id":[{"id":"10.13039\/100009504","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["West J Nurs Res"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>The purpose of this study was to describe the experiences of women with pelvic congestion syndrome (PCS). We aimed to (1) explore the experiences before receiving a PCS diagnosis, (2) describe the experience of being diagnosed and living with PCS, and (3) identify challenges with ongoing pelvic pain after PCS treatment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method:<\/jats:title>\n                    <jats:p>A descriptive qualitative design with a purposive sampling method was used. Women with PCS were recruited from a Facebook PCS support group between October 2023 and February 2024. Participants completed a demographic survey, then participated in a semi-structured interview via Zoom. Data were transcribed verbatim and verified for accuracy. A modified iterative seven-step descriptive data analysis method was used to examine data, compare codes, challenge patterns, and inductively and deductively develop themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      Nine women completed the study. Six essential themes characterized the experience of living with CPP after treatment for PCS: (1)\n                      <jats:italic toggle=\"yes\">life before diagnosis<\/jats:italic>\n                      ; (2)\n                      <jats:italic toggle=\"yes\">diagnosis journey<\/jats:italic>\n                      ; (3)\n                      <jats:italic toggle=\"yes\">pain descriptors and co-occurring symptoms<\/jats:italic>\n                      ; (4)\n                      <jats:italic toggle=\"yes\">impaired quality of life<\/jats:italic>\n                      ; (5)\n                      <jats:italic toggle=\"yes\">being a burden to family and friends<\/jats:italic>\n                      ; and (6)\n                      <jats:italic toggle=\"yes\">losing all faith in women\u2019s healthcare and the system<\/jats:italic>\n                      .\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>This was the first qualitative study of women with ongoing and recurring pelvic pain after treatment for PCS. Findings highlighted the significant challenges women faced even after treatment for PCS, indicating a need for improved assessment strategies that better capture the severity and complexity of PCS symptoms.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/01939459261467540","type":"journal-article","created":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T09:07:06Z","timestamp":1785748026000},"page":"1065-1074","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Losing All Faith in Women\u2019s Healthcare: Experiences of Living with Chronic Pelvic Pain After Pelvic Congestion Syndrome Treatment"],"prefix":"10.1177","volume":"48","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4967-9811","authenticated-orcid":false,"given":"Sarah E.","family":"Patel","sequence":"first","affiliation":[{"name":"School of Nursing and Health Studies, University of Missouri-Kansas City, Kansas City, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-3901-1852","authenticated-orcid":false,"given":"Sarah","family":"George","sequence":"additional","affiliation":[{"name":"School of Medicine, University of Missouri-Kansas City, Kansas City, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-7854-5940","authenticated-orcid":false,"given":"Mercedez D.","family":"Boateng","sequence":"additional","affiliation":[{"name":"University of Missouri-Kansas City, Kansas City, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3891-0109","authenticated-orcid":false,"given":"Mei Rosemary","family":"Fu","sequence":"additional","affiliation":[{"name":"School of Nursing and Health Studies, University of Missouri-Kansas City, Kansas City, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,8,3]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"American College of Obstetricians and Gynecologists. reVITALize: Gynecology data definitions. 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