{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,18]],"date-time":"2026-10-18T14:45:05Z","timestamp":1792334705402,"version":"4.4.0"},"reference-count":26,"publisher":"SAGE Publications","issue":"11","license":[{"start":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T00:00:00Z","timestamp":1787616000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000936","name":"Gordon and Betty Moore Foundation","doi-asserted-by":"publisher","award":["This research is funded by the Gordon and Betty Mo"],"award-info":[{"award-number":["This research is funded by the Gordon and Betty Mo"]}],"id":[{"id":"10.13039\/100000936","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["West J Nurs Res"],"published-print":{"date-parts":[[2026,11]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Young adults living with sickle cell disease (SCD) face complex self-management challenges during care-seeking. Developmentally appropriate, experiential interventions remain limited. Interventions to prepare young adults for emotionally charged real-world situations such as emergency department encounters, peer communication, and independent decision-making are needed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Purpose:<\/jats:title>\n                    <jats:p>To describe the co-design of a simulation-based self-management intervention for young adults living with SCD and conduct evaluation of 6 intervention implementation parameters: necessity, acceptability, feasibility, safety, fidelity, and preliminary effectiveness.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>\n                      Using mixed-methods design guided by community-based participatory research and human-centered design, young adults living with sickle cell disease, caregivers, and community stakeholders co-created a simulation-based intervention with 3 video-supported scenarios with structured role-play and facilitated debriefing. Thirty participants aged 18 to 20 years completed pre\u2013post surveys and participated in post-intervention focus groups. Quantitative data were analyzed using paired-sample\n                      <jats:italic toggle=\"yes\">t<\/jats:italic>\n                      -tests, and qualitative data were analyzed using inductive thematic analysis.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Implementation evaluation demonstrated strong outcomes across all parameters. Participants indicated that the intervention is necessary, acceptable, feasible, safe, effective, and has high fidelity. Statistically significant improvements in self-efficacy were observed post-intervention. Qualitative findings supported these outcomes, with participants reporting increased confidence in emergency department advocacy, communication with healthcare providers and peers, and proactive self-management behaviors.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Evaluation of the 6 intervention implementation parameters supports the use of simulation-based self-management intervention for young adults living with sickle cell disease. Integrating community voices and experiential learning strategies enhances self-efficacy, promotes meaningful behavior change, and improves real-world health management readiness during the critical period of emerging adulthood.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/01939459261473964","type":"journal-article","created":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T09:13:16Z","timestamp":1787649196000},"page":"1160-1169","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Simulation-Based Strategies Co-Designed With Young Adults for Sickle Cell Disease Self-Management"],"prefix":"10.1177","volume":"48","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2092-8909","authenticated-orcid":false,"given":"Dora L.","family":"Clayton-Jones","sequence":"first","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"},{"name":"Medical College of Wisconsin, Clinical and Translational Science Institute, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-1207-445X","authenticated-orcid":false,"given":"Sylvia","family":"Pena","sequence":"additional","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Haglund","sequence":"additional","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8684-986X","authenticated-orcid":false,"given":"Joan P.","family":"Totka","sequence":"additional","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"},{"name":"Medical College of Wisconsin, Clinical and Translational Science Institute, Milwaukee, WI, USA"},{"name":"Children\u2019s Wisconsin, Wauwatosa, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7174-7054","authenticated-orcid":false,"given":"Abir K.","family":"Bekhet","sequence":"additional","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee Za","family":"Ong","sequence":"additional","affiliation":[{"name":"Department of Developmental Science, Marquette University, School of Dentistry, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet","family":"Lucas","sequence":"additional","affiliation":[{"name":"Community Participant"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Edward","family":"Jenkins","sequence":"additional","affiliation":[{"name":"Community Participant"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne M.","family":"Costello","sequence":"additional","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James","family":"Griffin","sequence":"additional","affiliation":[{"name":"Community Participant"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grainne Kilroy","family":"Ferlmann","sequence":"additional","affiliation":[{"name":"Marquette University College of Nursing, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Betty S.","family":"Pace","sequence":"additional","affiliation":[{"name":"Division of Hematology\/Oncology, Department of Pediatrics, Augusta University, GA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,8,25]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"Centers for Disease Control and Prevention. 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