{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T15:13:34Z","timestamp":1788189214234,"version":"build-2803163510"},"reference-count":46,"publisher":"SAGE Publications","issue":"9","license":[{"start":{"date-parts":[[2026,3,24]],"date-time":"2026-03-24T00:00:00Z","timestamp":1774310400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Steno Diabetes Center Zealand","award":["none"],"award-info":[{"award-number":["none"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Clin Rehabil"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To explore the roles, experiences and support needs of relatives of individuals who have undergone major lower extremity amputation during the early post-amputation period (0\u20132 years).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Qualitative study using focus group interviews and a Research-Driven Photo Elicitation approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>A 5-day psychosocial residential rehabilitation program for individuals with lower extremity amputation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Thirty-three relatives of individuals with a major lower extremity amputation recruited through participating patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Intervention<\/jats:title>\n                    <jats:p>Participation in focus group interviews informed by photo elicitation to facilitate reflection and discussion of caregiving experiences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Measures<\/jats:title>\n                    <jats:p>Data were analysed using Reflexive Thematic Analysis to identify patterns and themes related to relatives\u2019 roles and needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      One overarching theme,\n                      <jats:italic toggle=\"yes\">The Road to a New Normal<\/jats:italic>\n                      , described relatives\u2019 adaptive processes following amputation. Three subthemes were identified: (a) a gradual realisation of the long-term emotional and practical consequences of amputation; (b) challenges in supporting patients\u2019 emotional reactions, including grief and altered identity; and (c) shifting relationship dynamics, where relatives assumed caregiving roles while striving to maintain their original relational identity. Many relatives adopted a shared \u2018we-perspective\u2019, emphasising joint adaptation and coping.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Relatives play a central role in post-amputation rehabilitation, and the findings highlight the complexity of relatives\u2019 adaptation following amputation. Their experiences highlight the importance of systematically involving relatives in rehabilitation through support for dyadic coping, emotional preparedness and shared goal setting to enhance outcomes for both patients and caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692155261432020","type":"journal-article","created":{"date-parts":[[2026,3,24]],"date-time":"2026-03-24T08:37:26Z","timestamp":1774341446000},"page":"1254-1267","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["The road to a new normal \u2013 A qualitative study on relatives\u2019 needs and roles in amputation rehabilitation"],"prefix":"10.1177","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-8382-6663","authenticated-orcid":false,"given":"Katrine R","family":"St\u00f8vring","sequence":"first","affiliation":[{"name":"Zealand University Hospital Roskilde"},{"name":"Orthopedic Department, Holbaek Hospital, Holb\u00e6k"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7262-6788","authenticated-orcid":false,"given":"Nina","family":"Rottmann","sequence":"additional","affiliation":[{"name":"University of Southern Denmark"},{"name":"REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annette","family":"Rasmussen","sequence":"additional","affiliation":[{"name":"REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9436-6887","authenticated-orcid":false,"given":"Ulla R","family":"Madsen","sequence":"additional","affiliation":[{"name":"Zealand University Hospital Roskilde"},{"name":"Orthopedic Department, Holbaek Hospital, Holb\u00e6k"},{"name":"REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark"},{"name":"University of Southern Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,3,24]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2019.10.015"},{"key":"e_1_3_3_3_2","first-page":"517","volume-title":"Textbook of applied medical psychology: a multidisciplinary approach [internet]","author":"Rottmann N","unstructured":"Rottmann N, Norup A, Dieperink KB. Informal caregiving in life-threatening or chronic illness. In: Textbook of applied medical psychology: a multidisciplinary approach [internet]. Odense, Denmark: Syddansk Universitetsforlag, 2022 [cited 2024 July 10], pp.517\u2013566. Available from: https:\/\/research.regionh.dk\/en\/publications\/informal-caregiving-in-life-threatening-or-chronic-illness"},{"key":"e_1_3_3_4_2","unstructured":"vive.dk [Internet]. [cited 2024 Oct 30]. At v\u00e6re p\u00e5r\u00f8rende i Danmark. Available from: https:\/\/www.vive.dk\/da\/udgivelser\/at-vaere-paaroerende-i-danmark-rv74poov\/"},{"key":"e_1_3_3_5_2","volume-title":"Caregiving in the Illness Context [Internet]","author":"Revenson TA","unstructured":"Revenson TA, Griva K, Luszczynska A, et al. Caregiving in the Illness Context [Internet]. London: Palgrave Macmillan UK, 2016 [cited 2024 Oct 30]. Available from: http:\/\/link.springer.com\/10.1057\/9781137558985"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-1146"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732320925794"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638280410001708869"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmr.2013.09.010"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2023.2272960"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17082691"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.3402\/qhw.v8i0.21891"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2020.100925"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.5114\/hpr.2020.101495"},{"key":"e_1_3_3_15_2","unstructured":"Engward H Fleuty K Fossey M. Caring and coping: the family perspective on living with limb loss. Blesma The Limbless Veterans \/ Anglia Ruskin University 2018."},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2020.1780480"},{"key":"e_1_3_3_17_2","unstructured":"International Variations in Amputation Practice: A VASCUNET Report \u2013 PubMed [Internet]. [cited 2025 Feb 17]. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/29859821\/"},{"key":"e_1_3_3_18_2","unstructured":"Videnskabsetisk-Komit\u00e9 [The-Scientific-Ethics-Committee]. Overblik over anmeldelsespligten [overview of the reporting obligation] [Internet]. [cited 2025 Feb 24]. Available from: https:\/\/videnskabsetik.dk\/ansoegning-til-etisk-komite\/overblik-over-anmeldelsespligten"},{"key":"e_1_3_3_19_2","article-title":"Strengths of the focus group method: an overview [internet]","author":"Roller MR","unstructured":"Roller MR. Strengths of the focus group method: an overview [internet]. Research Design Review 2020 [cited 2024 Nov 20]. Available from: https:\/\/researchdesignreview.com\/2020\/10\/30\/strengths-focus-group-method-overview\/","journal-title":"Research Design Review"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_3_3_21_2","unstructured":"Madsen et al. Videre i livet efter benamputation.pdf [Internet]. [cited 2025 Jan 6]. Available from: https:\/\/www.rehpa.dk\/wp-content\/uploads\/2024\/10\/Videre-i-livet-efter-benamputation.pdf"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1080\/14725860220137345"},{"key":"e_1_3_3_23_2","article-title":"Fotografi som visuel metode i ern\u00e6rings- og sundhedsfaglige studier","volume":"3","author":"Justesen L","unstructured":"Justesen L, Laub MT, Poulsen BR. Fotografi som visuel metode i ern\u00e6rings- og sundhedsfaglige studier. Arbejdspapirer, Professionsh\u00f8jskolen Metropol [Internet] 2018 June 7 [cited 2024 July 2]; 3(. https:\/\/tidsskrift.dk\/arbejdspapirermetropol\/article\/view\/106186. Available from.","journal-title":"Arbejdspapirer, Professionsh\u00f8jskolen Metropol [Internet]"},{"key":"e_1_3_3_24_2","unstructured":"Dialoogle [Internet]. [cited 2024 Aug 21]. Inspire and boost communication with a visual approach. Available from: https:\/\/dialoogle.com\/en\/"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1002\/nur.20253"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.3390\/bs14040326"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijotn.2022.100958"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijotn.2024.101103"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2021.1882009"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1590\/0034-7167-2023-0264"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1590\/1518-8345.7424.4332"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1053\/j.jfas.2014.06.016"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2022.876455"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cpr.2023.102344"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2021.624609"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2020.1803999"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.3402\/qhw.v8i0.21891"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2017.09.110"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","DOI":"10.1111\/scs.12528"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.5114\/hpr.2020.101495"},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.1177\/0309364620921756"},{"key":"e_1_3_3_44_2","doi-asserted-by":"crossref","unstructured":"emhj. World Health Organization \u2013 Regional Office for the Eastern Mediterranean. [cited 2025 Feb 13]. Experiences and needs of patients with lower limb amputation in Saudi Arabia: a qualitative study. Available from: http:\/\/www.emro.who.int\/emhj-volume-27-2021\/volume-27-issue-4\/experiences-and-needs-of-patients-with-lower-limb-amputation-in-saudi-arabia-a-qualitative-study.html","DOI":"10.26719\/emhj.20.124"},{"key":"e_1_3_3_45_2","article-title":"Experiences and needs of persons who have undergone limb amputation in Saki West, Oyo State, Nigeria","volume":"068","author":"Oloruntola EO","unstructured":"Oloruntola EO, Eze CJ, Alao GO, et al. Experiences and needs of persons who have undergone limb amputation in Saki West, Oyo State, Nigeria. Int Health 2024 Nov 13; ihae068.","journal-title":"Int Health"},{"key":"e_1_3_3_46_2","first-page":"1405","article-title":"Disability, economic and work-role status of individuals with unilateral lower-limb amputation and their families in Bangladesh, post-amputation, and pre-rehabilitation: a cross-sectional study","volume":"73","author":"Sayeed MSI","unstructured":"Sayeed MSI, Oakman J, Dillon MP, et al. Disability, economic and work-role status of individuals with unilateral lower-limb amputation and their families in Bangladesh, post-amputation, and pre-rehabilitation: a cross-sectional study. WORK 2022 Dec 13; 73: 1405\u20131419.","journal-title":"WORK"},{"key":"e_1_3_3_47_2","unstructured":"Regulation (EU) 2026\/679 (General Data Protection Regulation) [Internet]. [cited 2024 Apr 16]. Available from: https:\/\/gdpr-info.eu\/"}],"container-title":["Clinical Rehabilitation"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692155261432020","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/02692155261432020","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692155261432020","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T14:16:27Z","timestamp":1788185787000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/02692155261432020"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3,24]]},"references-count":46,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1177\/02692155261432020"],"URL":"https:\/\/doi.org\/10.1177\/02692155261432020","relation":{},"ISSN":["0269-2155","1477-0873"],"issn-type":[{"value":"0269-2155","type":"print"},{"value":"1477-0873","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,3,24]]}}}