{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T07:07:50Z","timestamp":1790665670167,"version":"4.1.0"},"reference-count":35,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2009,11,12]],"date-time":"2009-11-12T00:00:00Z","timestamp":1257984000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2010,1]]},"abstract":"<jats:p>Introduction: Individuals who are Deaf face challenges both similar and unique from those faced by hearing individuals when a family member is dying. This study was guided by the question, \u2018\u2018What are the challenges faced by a Deaf family member when a loved one is dying?\u2019\u2019<\/jats:p>\n                  <jats:p>Methods: This qualitative study is guided by critical theory and an interpretive perspective. Robert, a college-educated older adult who has been Deaf from birth was interviewed in American Sign Language using a death history format.<\/jats:p>\n                  <jats:p>Results: There are challenges for Deaf family members that affect communication with both the dying person and health care professionals. Patient-family communication issues included physical challenges and financial challenges. Lack of cultural competence concerning the Deaf community created challenges communicating with professionals. Decision-making was also a challenge.<\/jats:p>\n                  <jats:p>Conclusions: These findings provide a framework for future research concerning the needs of Deaf individuals facing the end of life and provide guidance for clinicians.<\/jats:p>","DOI":"10.1177\/0269216309348180","type":"journal-article","created":{"date-parts":[[2009,11,12]],"date-time":"2009-11-12T20:35:43Z","timestamp":1258058143000},"page":"88-93","source":"Crossref","is-referenced-by-count":9,"title":["Can you hear me now? The experience of a deaf family member surrounding the death of loved ones"],"prefix":"10.1177","volume":"24","author":[{"given":"Karen A","family":"Kehl","sequence":"first","affiliation":[{"name":"School of Nursing, University of Wisconsin-Madison, Madison, WI, USA,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Constance M","family":"Gartner","sequence":"additional","affiliation":[{"name":"Elementary School, Wisconsin School for the Deaf, Madison, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2009,11,12]]},"reference":[{"key":"atypb1","doi-asserted-by":"publisher","DOI":"10.1300\/J457v01n02_04"},{"key":"atypb2","first-page":"1459","volume":"53","author":"Kelly L.","year":"2007","journal-title":"Can Fam Physician"},{"key":"atypb3","doi-asserted-by":"publisher","DOI":"10.1097\/00006527-200121020-00008"},{"key":"atypb4","doi-asserted-by":"publisher","DOI":"10.1111\/j.1532-5415.1997.tb02933.x"},{"key":"atypb5","volume-title":"Challenges facing families at the end of life in three settings","author":"Kehl KA","year":"2007"},{"key":"atypb6","first-page":"78","volume":"92","author":"Baker LM","year":"2004","journal-title":"J Med Libr Assoc"},{"key":"atypb7","doi-asserted-by":"publisher","DOI":"10.1177\/082585970301900304"},{"key":"atypb8","doi-asserted-by":"publisher","DOI":"10.1177\/082585970402000405"},{"key":"atypb9","doi-asserted-by":"publisher","DOI":"10.1177\/104990910201900106"},{"key":"atypb10","doi-asserted-by":"publisher","DOI":"10.1001\/jama.291.1.88"},{"key":"atypb11","doi-asserted-by":"publisher","DOI":"10.1001\/jama.284.19.2476"},{"key":"atypb12","doi-asserted-by":"publisher","DOI":"10.1016\/S0095-4543(05)70030-0"},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1089\/109662104773709369"},{"key":"atypb14","first-page":"17","volume":"31","author":"Barnett S.","year":"1999","journal-title":"Fam Med"},{"key":"atypb15","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-123-1-199507010-00008"},{"key":"atypb16","first-page":"376","volume":"34","author":"Barnett S.","year":"2002","journal-title":"Fam Med"},{"key":"atypb17","doi-asserted-by":"publisher","DOI":"10.1353\/sls.1992.0028"},{"key":"atypb18","doi-asserted-by":"publisher","DOI":"10.1353\/aad.2012.0671"},{"key":"atypb19","doi-asserted-by":"publisher","DOI":"10.1093\/oxfordjournals.deafed.a014308"},{"key":"atypb20","doi-asserted-by":"publisher","DOI":"10.1007\/BF02599667"},{"key":"atypb21","first-page":"289","volume":"26","author":"McEwen E.","year":"1988","journal-title":"J Fam Pract"},{"key":"atypb22","first-page":"5","volume":"32","author":"Schein J.","year":"1980","journal-title":"The Deaf American"},{"key":"atypb23","doi-asserted-by":"publisher","DOI":"10.1001\/jama.1995.03520270061032"},{"key":"atypb24","doi-asserted-by":"publisher","DOI":"10.1111\/j.1525-1497.2006.00340.x"},{"key":"atypb25","doi-asserted-by":"publisher","DOI":"10.1023\/A:1020508511133"},{"key":"atypb26","unstructured":"Con A. Cross-cultural considerations in promoting advance care planning in Canada . Vancouver: Health Canada, 2007, p. 128."},{"key":"atypb27","volume-title":"Communicating with the dying and their families","author":"Davis CM","year":"2005"},{"key":"atypb28","volume-title":"A personal death awareness","author":"Worden WJ","year":"2009"},{"key":"atypb29","doi-asserted-by":"publisher","DOI":"10.4135\/9781412976039"},{"key":"atypb30","volume-title":"Transforming qualitative information: Thematic analysis and code development","author":"Boyatzis RE","year":"1998"},{"key":"atypb31","volume-title":"Making sense of qualitative data: Complementary research strategies","author":"Coffey AJ","year":"1996"},{"key":"atypb32","volume-title":"Family perceptions of care at the end of life in an ICU and hospice facility","author":"Kirchhoff KT","year":"2004"},{"key":"atypb33","volume-title":"ADA Questions and answers for health care providers","author":"National Association of the Deaf.","year":"2008"},{"key":"atypb34","doi-asserted-by":"publisher","DOI":"10.1001\/jama.1995.03530100034019"},{"key":"atypb35","volume-title":"Hospitals, Deaf patients connect with video phones","author":"Schlesinger A.","year":"2004"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269216309348180","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269216309348180","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:16:57Z","timestamp":1777659417000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0269216309348180"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2009,11,12]]},"references-count":35,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2010,1]]}},"alternative-id":["10.1177\/0269216309348180"],"URL":"https:\/\/doi.org\/10.1177\/0269216309348180","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2009,11,12]]}}}