{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T01:38:38Z","timestamp":1782783518757,"version":"3.54.5"},"reference-count":42,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2011,3,7]],"date-time":"2011-03-07T00:00:00Z","timestamp":1299456000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2012,3]]},"abstract":"<jats:p>Increasing emphasis is being placed on the need for advanced care planning (ACP) at the end of life. The Preferred Priorities for Care (PPC) document is a patient-held record promoted by the End of Life Care Strategy as an ACP tool to promote discussion and communication amongst patients, family and health care providers. However, little research exists into evaluating its effectiveness or exploring patient and carer views, particularly in non-malignant disease. Because the majority of patients with Motor Neurone Disease (MND) lose verbal communication, early discussion of patients\u2019 wishes and preferences, a central aspect of ACP, is vital. This study examined MND patients\u2019 bereaved relatives\u2019 experiences of using the PPC document and their perceptions about its impact on end-of-life care using qualitative methods. Key findings adding to existing literature were that the PPC document was felt to have little impact on end-of-life care amongst this patient group and that there was a perceived lack of awareness of the document amongst health care professionals (HCPs), in particular hospital staff. This was felt to limit the effectiveness of the document. This has obvious implications for practice, looking at awareness amongst HCPs and ways to improve this situation, particularly in light of the current pressures to meet patient preferences at the end of life.<\/jats:p>","DOI":"10.1177\/0269216311399664","type":"journal-article","created":{"date-parts":[[2011,3,8]],"date-time":"2011-03-08T01:54:35Z","timestamp":1299549275000},"page":"132-138","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":39,"title":["The Preferred Priorities for Care document in Motor Neurone Disease: Views of bereaved relatives and carers"],"prefix":"10.1177","volume":"26","author":[{"given":"Harriet","family":"Preston","sequence":"first","affiliation":[{"name":"St Catherine\u2019s Hospice, Preston, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Iris Cohen","family":"Fineberg","sequence":"additional","affiliation":[{"name":"International Observatory on End-of-Life Care, School of Health and Medicine, Lancaster University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pauline","family":"Callagher","sequence":"additional","affiliation":[{"name":"Royal Preston Hospital\u2009-\u2009MND Care and Research Centre, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Douglas J","family":"Mitchell","sequence":"additional","affiliation":[{"name":"Lancashire Teaching Hospitals NHS Foundation Trust, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2011,3,7]]},"reference":[{"key":"bibr1-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1383\/medc.32.11.105.53361"},{"key":"bibr2-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(07)60944-1"},{"key":"bibr3-0269216311399664","doi-asserted-by":"publisher","DOI":"10.12968\/nrec.2007.9.7.23839"},{"key":"bibr4-0269216311399664","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2001.7.5.12635"},{"key":"bibr5-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1191\/026921698676924076"},{"key":"bibr6-0269216311399664","doi-asserted-by":"publisher","DOI":"10.12968\/hmed.2010.71.1.45968"},{"key":"bibr7-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1136\/jme.2007.022731"},{"key":"bibr8-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.59.3.428"},{"key":"bibr9-0269216311399664","first-page":"203","volume":"2","author":"Mandler RN","year":"2001","journal-title":"Amyotroph Lateral Scler"},{"key":"bibr10-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1016\/j.mpmed.2007.11.015"},{"key":"bibr11-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1001\/jama.298.2.207"},{"key":"bibr12-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-510X(97)00253-0"},{"key":"bibr13-0269216311399664","unstructured":"NHS End of Life Care Programme. Advance Care Planning: A Guide for Health and Social Care Staff, NHS End of Life Care Programme. http:\/\/www.endoflifecareforadults.nhs.uk\/eolc (2007, accessed 1 March 2010)."},{"key":"bibr14-0269216311399664","doi-asserted-by":"publisher","DOI":"10.1177\/082585970502100208"},{"key":"bibr15-0269216311399664","volume-title":"Supportive and palliative care guidance for adults with cancer","author":"NICE","year":"2004"},{"key":"bibr16-0269216311399664","doi-asserted-by":"publisher","DOI":"10.7861\/clinmedicine.3-2-149"},{"key":"bibr17-0269216311399664","first-page":"68","volume":"1","author":"Storey L","year":"2007","journal-title":"End of Life Care"},{"key":"bibr18-0269216311399664","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2004.10.9.16051"},{"key":"bibr19-0269216311399664","doi-asserted-by":"publisher","DOI":"10.12968\/bjnn.2006.2.10.22532"},{"key":"bibr20-0269216311399664","unstructured":"Lancashire and South Cumbria Cancer Network. 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