{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T12:54:45Z","timestamp":1787921685984,"version":"build-2784847793"},"reference-count":27,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2016,9,8]],"date-time":"2016-09-08T00:00:00Z","timestamp":1473292800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Austrian Federal Ministry of Labour, Social Affairs and Consumer Protection"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2017,6]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>A growing number of older people are living in single households. They form a disadvantaged group within society as regards staying at home, most likely towards the end-of-life. It is mainly non-kin-carers who try to fulfil older people\u2019s desire for a home death, but very little is known about the challenges they face during their involvement.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>Getting insight into the engagement of non-kin-carers in the support for older people living alone, and a better understanding of the challenges they have to manage in end-of-life care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Exploratory qualitative design; perspectives of non-kin-carers were collected through personal in-depth interviews ( n\u2009=\u200915) retrospectively.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting:<\/jats:title>\n                    <jats:p>Home care, urban and rural areas in Austria<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings:<\/jats:title>\n                    <jats:p>A slow and subtle transition into care is what characterizes non-kin-care relationships which show differences between friends and neighbours. Towards the end of life, the main challenges emerged around increased physical care needs, issues of decision-making and facing the process of dying. Prior experiences with the latter, which most of the involved carers had, influenced non-kin-carers\u2019 steadiness to allow home death and so did reliable formal support, particularly from specialized palliative care teams.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Support of older people living alone, in particular until the last stage of life, comes along with multiple efforts. Respectful and supporting relationships between professional carers and non-kin-carers are vital to keep non-kin-carers involved.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/0269216316666785","type":"journal-article","created":{"date-parts":[[2016,9,8]],"date-time":"2016-09-08T21:03:53Z","timestamp":1473368633000},"page":"559-565","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":32,"title":["From neighbour to carer: An exploratory study on the role of non-kin-carers in end-of-life care at home for older people living alone"],"prefix":"10.1177","volume":"31","author":[{"given":"Sabine","family":"Pleschberger","sequence":"first","affiliation":[{"name":"Institute of Nursing Science and Practice, Paracelsus Medical University, Salzburg, Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paulina","family":"Wosko","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science and Practice, Paracelsus Medical University, Salzburg, Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2016,9,8]]},"reference":[{"key":"bibr1-0269216316666785","unstructured":"Statistik Austria. Haushaltsprognose 2013 [Demographic household forecasts], 2014, http:\/\/www.statistik.at\/web_de\/statistiken\/menschen_und_gesellschaft\/bevoelkerung\/demographische_prognosen\/haushalts_und_familienprognosen\/index.html"},{"key":"bibr2-0269216316666785","volume-title":"Alleinlebende in Deutschland: Ergebnisse des Mikrozensus","author":"Bundesamt FSOS","year":"2012"},{"key":"bibr3-0269216316666785","volume-title":"What does the 2011 census tell us about older people?","author":"Office for National Statistics","year":"2013"},{"key":"bibr4-0269216316666785","volume-title":"A profile of older Americans: 2012","author":"U.S. Department of Health and Human Services","year":"2012"},{"key":"bibr5-0269216316666785","first-page":"238","volume":"17","author":"Payne S","year":"2010","journal-title":"Eur J Palliat Care"},{"key":"bibr6-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1177\/0269216306073198"},{"key":"bibr7-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1007\/s00391-014-0817-4"},{"key":"bibr8-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/57.3.S158"},{"key":"bibr9-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X99007771"},{"key":"bibr10-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X12000736"},{"key":"bibr11-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2296-14-22"},{"key":"bibr12-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1191\/0269216304pm889oa"},{"key":"bibr13-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1016\/j.colegn.2007.11.005"},{"key":"bibr14-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1725"},{"key":"bibr15-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1177\/026921630301700714"},{"key":"bibr16-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"bibr17-0269216316666785","volume-title":"Case study research: design and methods","author":"Yin R","year":"2009","edition":"4"},{"key":"bibr18-0269216316666785","first-page":"139","volume-title":"Qualitative research practice: a guide for social science students and researchers","author":"Legard R","year":"2003"},{"key":"bibr19-0269216316666785","unstructured":"Gl\u00e4ser J, Laudel G. Life with and without coding: two methods for early-stage data analysis in qualitative research aiming at causal explanations, 2013, http:\/\/www.qualitative-research.net\/index.php\/fqs\/article\/view\/1886."},{"key":"bibr20-0269216316666785","volume-title":"End-of-life care: promoting comfort, choice and well-being for older people?","author":"Seymour J","year":"2005"},{"key":"bibr21-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-12-7"},{"key":"bibr22-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaging.2011.03.007"},{"key":"bibr23-0269216316666785","volume-title":"Compassionate cities: Public health and end-of-life care","author":"Kellehear A","year":"2005"},{"key":"bibr24-0269216316666785","volume-title":"Compassionate communities: case studies from Britain and Europe","author":"Wegleitner K","year":"2016"},{"key":"bibr25-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12006"},{"key":"bibr26-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1007\/s00391-015-1011-z"},{"key":"bibr27-0269216316666785","doi-asserted-by":"publisher","DOI":"10.1177\/0269216315569337"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269216316666785","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/0269216316666785","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269216316666785","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:24:57Z","timestamp":1777659897000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0269216316666785"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,9,8]]},"references-count":27,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2017,6]]}},"alternative-id":["10.1177\/0269216316666785"],"URL":"https:\/\/doi.org\/10.1177\/0269216316666785","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,9,8]]}}}