{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T15:38:53Z","timestamp":1791905933058,"version":"4.3.4"},"reference-count":18,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2021,1,12]],"date-time":"2021-01-12T00:00:00Z","timestamp":1610409600000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2021,1,12]],"date-time":"2021-01-12T00:00:00Z","timestamp":1610409600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To plan and deliver a Young People\u2019s Advisory Group in palliative care and health research at a secondary school.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings:<\/jats:title>\n                    <jats:p>Attending an after-school \u2018Health and Social Research Methods Club\u2019 for 11\u2009weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>This project has equipped researchers with skills and provided a structured template for future Young People\u2019s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/0269216320976035","type":"journal-article","created":{"date-parts":[[2021,1,14]],"date-time":"2021-01-14T21:31:30Z","timestamp":1610659890000},"page":"621-624","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":8,"title":["Reflective insights from developing a palliative care children and young people\u2019s advisory group"],"prefix":"10.1177","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0635-0429","authenticated-orcid":false,"given":"Anna","family":"Roach","sequence":"first","affiliation":[{"name":"Florence Nightingale Faculty of Nursing, Midwifery &amp; Palliative Care, Cicely Saunders Institute of Palliative Care, Policy &amp; Rehabilitation, King\u2019s College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Debbie","family":"Braybrook","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing, Midwifery &amp; Palliative Care, Cicely Saunders Institute of Palliative Care, Policy &amp; Rehabilitation, King\u2019s College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3728-7389","authenticated-orcid":false,"given":"Steve","family":"Marshall","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing, Midwifery &amp; Palliative Care, Cicely Saunders Institute of Palliative Care, Policy &amp; Rehabilitation, King\u2019s College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2021,1,12]]},"reference":[{"key":"e_1_3_2_2_2","unstructured":"National Institute for Health Research I. What is public involvement in research? https:\/\/www.invo.org.uk\/find-out-more\/what-is-public-involvement-in-research-2\/ (2012 accessed 29 July 2020)."},{"key":"e_1_3_2_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320956819."},{"key":"e_1_3_2_4_2","volume-title":"Guidelines for research with children and young people","author":"Shaw C","year":"2011","unstructured":"Shaw C, Brady L-M, Davey C. Guidelines for research with children and young people. London: National Children\u2019s Bureau, 2011."},{"key":"e_1_3_2_5_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781446212288.n14"},{"key":"e_1_3_2_6_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10464-010-9324-y"},{"key":"e_1_3_2_7_2","doi-asserted-by":"publisher","DOI":"10.2307\/j.ctv16rdcfc"},{"key":"e_1_3_2_8_2","volume-title":"Children\u2019s participation: from tokenism to citizenship","author":"Hart RA.","year":"1992","unstructured":"Hart RA. Children\u2019s participation: from tokenism to citizenship. UNICEF, 1992."},{"key":"e_1_3_2_9_2","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2014-307492"},{"key":"e_1_3_2_10_2","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2017-313480"},{"key":"e_1_3_2_11_2","doi-asserted-by":"publisher","DOI":"10.1002\/chi.617"},{"key":"e_1_3_2_12_2","unstructured":"CORDIS | European Commission https:\/\/cordis.europa.eu\/project\/id\/772635 (2019 accessed 29 July 2020)."},{"key":"e_1_3_2_13_2","unstructured":"SCYP. Supporting children & young people pre-bereavement https:\/\/www.kcl.ac.uk\/cicelysaunders\/research\/living\/scyp\/home (2018 accessed 29 July 2020)."},{"key":"e_1_3_2_14_2","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2019-318517"},{"key":"e_1_3_2_15_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216315584875"},{"key":"e_1_3_2_16_2","unstructured":"EnRICH. Starting up a YPAG | EnRICH Network http:\/\/www.enrich-network.org\/research-projects-and-initiatives\/ypag-start-up-tool\/starting-up-a-ypag\/ (2020 accessed 29 July 2020)."},{"key":"e_1_3_2_17_2","doi-asserted-by":"crossref","unstructured":"INVOLVE. Involving children and young people | INVOLVE https:\/\/www.invo.org.uk\/current-work\/involving-children-and-young-people\/ (2020 accessed 29 July 2020).","DOI":"10.12968\/cypn.2020.8.29"},{"key":"e_1_3_2_18_2","unstructured":"Kingston University. Centre for public engagement masterclass: involving children and young people in research https:\/\/www.kingston.ac.uk\/events\/item\/3390\/16-jul-2019-centre-for-public-engagement-masterclass-involving-children-and-young-people-in-research\/ (2019 accessed 29 July 2020)."},{"key":"e_1_3_2_19_2","doi-asserted-by":"publisher","DOI":"10.4324\/9780203116302"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269216320976035","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/0269216320976035","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269216320976035","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:30:54Z","timestamp":1777660254000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0269216320976035"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,1,12]]},"references-count":18,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2021,3]]}},"alternative-id":["10.1177\/0269216320976035"],"URL":"https:\/\/doi.org\/10.1177\/0269216320976035","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,1,12]]}}}